Applicability and Psychometric Properties of General Mental Health Assessment Tools in Autistic People: A Systematic Review / Arvid Nikolai KILDAHL ; Sabine KAISER ; Brynhildur AXELSDOTTIR ; Michael G. AMAN ; Sissel Berge HELVERSCHOU in Journal of Autism and Developmental Disorders, 55-5 (May 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-5 (May 2025) . - p.1713-1726 Titre : Applicability and Psychometric Properties of General Mental Health Assessment Tools in Autistic People: A Systematic Review Type de document : texte imprimé Auteurs : Arvid Nikolai KILDAHL, Auteur ; Sabine KAISER, Auteur ; Brynhildur AXELSDOTTIR, Auteur ; Michael G. AMAN, Auteur ; Sissel Berge HELVERSCHOU, Auteur Article en page(s) : p.1713-1726 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : In recent years, there has been a proliferation of instruments for assessing mental health (MH) among autistic people. This study aimed to review the psychometric properties of broadband instruments used to assess MH problems among autistic people. In accordance with the PRISMA guidelines (PROSPERO: CRD42022316571) we searched the APA PsycINFO via Ovid, Ovid MEDLINE, Ovid Embase and the Web of Science via Clarivate databases from 1980 to March 2022, with an updated search in January 2024, to identify very recent empirical studies. Independent reviewers evaluated the titles and abstracts of the retrieved records (n = 11,577) and full-text articles (n = 1000). Data were extracted from eligible studies, and the quality of the included papers was appraised. In all, 164empirical articles reporting on 35 instruments were included. The review showed variable evidence of reliability and validity of the various instruments. Among the instruments reported in more than one study, the Aberrant Behavior Checklist had consistently good or excellent psychometric evidence. The reliability and validity of other instruments, including: the Developmental Behavior Checklist, Emotion Dysregulation Inventory, Eyberg Child Behavior Inventory, Autism Spectrum Disorder-Comorbid for Children Scale, and Psychopathology in Autism Checklist, were less documented. There is a need for a greater evidence-base for MH assessment tools for autistic people. En ligne : https://doi.org/10.1007/s10803-024-06324-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=554 [article] Applicability and Psychometric Properties of General Mental Health Assessment Tools in Autistic People: A Systematic Review [texte imprimé] / Arvid Nikolai KILDAHL, Auteur ; Sabine KAISER, Auteur ; Brynhildur AXELSDOTTIR, Auteur ; Michael G. AMAN, Auteur ; Sissel Berge HELVERSCHOU, Auteur . - p.1713-1726. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-5 (May 2025) . - p.1713-1726 Index. décimale : PER Périodiques Résumé : In recent years, there has been a proliferation of instruments for assessing mental health (MH) among autistic people. This study aimed to review the psychometric properties of broadband instruments used to assess MH problems among autistic people. In accordance with the PRISMA guidelines (PROSPERO: CRD42022316571) we searched the APA PsycINFO via Ovid, Ovid MEDLINE, Ovid Embase and the Web of Science via Clarivate databases from 1980 to March 2022, with an updated search in January 2024, to identify very recent empirical studies. Independent reviewers evaluated the titles and abstracts of the retrieved records (n = 11,577) and full-text articles (n = 1000). Data were extracted from eligible studies, and the quality of the included papers was appraised. In all, 164empirical articles reporting on 35 instruments were included. The review showed variable evidence of reliability and validity of the various instruments. Among the instruments reported in more than one study, the Aberrant Behavior Checklist had consistently good or excellent psychometric evidence. The reliability and validity of other instruments, including: the Developmental Behavior Checklist, Emotion Dysregulation Inventory, Eyberg Child Behavior Inventory, Autism Spectrum Disorder-Comorbid for Children Scale, and Psychopathology in Autism Checklist, were less documented. There is a need for a greater evidence-base for MH assessment tools for autistic people. En ligne : https://doi.org/10.1007/s10803-024-06324-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=554

Correction To: Schizophrenia in Autistic People with Intellectual Disabilities. Treatment and Interventions / Trine Lise BAKKEN in Journal of Autism and Developmental Disorders, 54-10 (October 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-10 (October 2024) . - p.3973-3973 Titre : Correction To: Schizophrenia in Autistic People with Intellectual Disabilities. Treatment and Interventions Type de document : texte imprimé Auteurs : Trine Lise BAKKEN, Auteur ; Jane Margrete Askeland HELLERUD, Auteur ; Arvid Nikolai KILDAHL, Auteur ; Ann Magritt SOLHEIM-INDERBERG, Auteur ; Oddbjørn HOVE, Auteur ; Sissel Berge HELVERSCHOU, Auteur Article en page(s) : p.3973-3973 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-024-06430-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=536 [article] Correction To: Schizophrenia in Autistic People with Intellectual Disabilities. Treatment and Interventions [texte imprimé] / Trine Lise BAKKEN, Auteur ; Jane Margrete Askeland HELLERUD, Auteur ; Arvid Nikolai KILDAHL, Auteur ; Ann Magritt SOLHEIM-INDERBERG, Auteur ; Oddbjørn HOVE, Auteur ; Sissel Berge HELVERSCHOU, Auteur . - p.3973-3973. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-10 (October 2024) . - p.3973-3973 Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-024-06430-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=536

Exploring the relationship between challenging behaviour and mental health disorder in autistic individuals with intellectual disabilities / Arvid Nikolai KILDAHL in Research in Autism Spectrum Disorders, 104 (June 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 104 (June 2023) . - 102147 Titre : Exploring the relationship between challenging behaviour and mental health disorder in autistic individuals with intellectual disabilities Type de document : texte imprimé Auteurs : Arvid Nikolai KILDAHL, Auteur ; Linn Beate LUDVIGSEN, Auteur ; Oddbjørn HOVE, Auteur ; Sissel Berge HELVERSCHOU, Auteur Article en page(s) : 102147 Langues : Anglais (eng) Mots-clés : Autism  Intellectual disability  Mental health  Challenging behaviour  Aberrant Behavior Checklist  Psychopathology in Autism Checklist Index. décimale : PER Périodiques Résumé : Background Few studies have explored the relationship between challenging behaviour and mental health symptoms in autistic individuals with intellectual disabilities, and findings have been mixed. While the prevalence of mental health disorder in this population is high, recognition and identification of these disorders may be challenging. No previous study of the relationship with challenging behaviour has used mental health measures specifically developed for this population. Method Using a standardised tool for challenging behaviour (Aberrant Behavior Checklist, ABC), differences between participants were explored according to whether they were diagnosed with a mental health disorder, in a clinical sample of 175 autistic individuals with co-occurring intellectual disabilities (ages 14-68) referred for mental health assessment. The relationship between severity of challenging behaviour and severity of mental health symptoms reported on the Psychopathology in Autism Checklist (PAC) was also explored. Results Few group differences were identified for challenging behaviour according to diagnosis, but clear associations were identified between PAC and ABC scales. These included general/non-specific associations and more specific associations that remained significant when controlling for the underlying conditions. Potential interactions were found involving different PAC scales and age, gender, autism-related characteristics, level of intellectual disability, and communication skills, respectively, but these varied for each ABC scale. Conclusions The relationship between challenging behaviour and mental health disorder appears to be complex and multifaceted. The lack of specificity of challenging behaviour indicates that these cannot reliably be used to identify specific mental health disorders, even if these behaviours may constitute atypical expressions of mental health symptoms. En ligne : http://dx.doi.org/https://doi.org/10.1016/j.rasd.2023.102147 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=504 [article] Exploring the relationship between challenging behaviour and mental health disorder in autistic individuals with intellectual disabilities [texte imprimé] / Arvid Nikolai KILDAHL, Auteur ; Linn Beate LUDVIGSEN, Auteur ; Oddbjørn HOVE, Auteur ; Sissel Berge HELVERSCHOU, Auteur . - 102147. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 104 (June 2023) . - 102147 Mots-clés : Autism  Intellectual disability  Mental health  Challenging behaviour  Aberrant Behavior Checklist  Psychopathology in Autism Checklist Index. décimale : PER Périodiques Résumé : Background Few studies have explored the relationship between challenging behaviour and mental health symptoms in autistic individuals with intellectual disabilities, and findings have been mixed. While the prevalence of mental health disorder in this population is high, recognition and identification of these disorders may be challenging. No previous study of the relationship with challenging behaviour has used mental health measures specifically developed for this population. Method Using a standardised tool for challenging behaviour (Aberrant Behavior Checklist, ABC), differences between participants were explored according to whether they were diagnosed with a mental health disorder, in a clinical sample of 175 autistic individuals with co-occurring intellectual disabilities (ages 14-68) referred for mental health assessment. The relationship between severity of challenging behaviour and severity of mental health symptoms reported on the Psychopathology in Autism Checklist (PAC) was also explored. Results Few group differences were identified for challenging behaviour according to diagnosis, but clear associations were identified between PAC and ABC scales. These included general/non-specific associations and more specific associations that remained significant when controlling for the underlying conditions. Potential interactions were found involving different PAC scales and age, gender, autism-related characteristics, level of intellectual disability, and communication skills, respectively, but these varied for each ABC scale. Conclusions The relationship between challenging behaviour and mental health disorder appears to be complex and multifaceted. The lack of specificity of challenging behaviour indicates that these cannot reliably be used to identify specific mental health disorders, even if these behaviours may constitute atypical expressions of mental health symptoms. En ligne : http://dx.doi.org/https://doi.org/10.1016/j.rasd.2023.102147 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=504

Pathological demand avoidance in children and adolescents: A systematic review / Arvid N. KILDAHL in Autism, 25-8 (November 2021)  

Public ISBD [article]  inAutism > 25-8 (November 2021) . - p.2162-2176 Titre : Pathological demand avoidance in children and adolescents: A systematic review Type de document : texte imprimé Auteurs : Arvid N. KILDAHL, Auteur ; Sissel Berge HELVERSCHOU, Auteur ; Anne Langseth RYSSTAD, Auteur ; Elisabeth WIGAARD, Auteur ; Jane Ma HELLERUD, Auteur ; Linn B. LUDVIGSEN, Auteur ; Patricia HOWLIN, Auteur Article en page(s) : p.2162-2176 Langues : Anglais (eng) Mots-clés : Adolescent  Anxiety  Anxiety Disorders  Autism Spectrum Disorder  Autistic Disorder  Child  Child Development Disorders, Pervasive  Humans  anxiety  autism  pathological demand avoidance Index. décimale : PER Périodiques Résumé : Requests for diagnoses of pathological demand avoidance have increased over recent years, but pathological demand avoidance remains a controversial issue. The concept of pathological demand avoidance has been criticised for undermining the self-advocacy of autistic people and neglecting the potential role of anxiety as a possible underlying or contributing cause. The current study was undertaken to summarise and review the methodological quality and findings from current research into pathological demand avoidance in children and adolescents. Further aims were to describe how pathological demand avoidance has been identified and to explore the relationships with autism and other developmental and psychiatric disorders. After a comprehensive search, 13 relevant studies using a wide range of methods were identified and systematic quality assessments were undertaken. All the studies had based the identification of pathological demand avoidance, directly or indirectly, on descriptions from the original study by Newson and colleagues. However, the methods used to develop these criteria were not clearly described. Most studies relied exclusively on parental report for data, and there was a general failure to take account of alternative explanations for the behaviours under study. No studies explored the views of individuals with pathological demand avoidance themselves. Problems concerning definition and measurement in the reviewed studies currently limit any conclusions regarding the uniformity or stability of the behaviours described, or the characteristics of individuals displaying them. Relationships between pathological demand avoidance and other emotional and behavioural difficulties should be explored in future research, as should the perspectives of individuals with pathological demand avoidance themselves. En ligne : http://dx.doi.org/10.1177/13623613211034382 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Pathological demand avoidance in children and adolescents: A systematic review [texte imprimé] / Arvid N. KILDAHL, Auteur ; Sissel Berge HELVERSCHOU, Auteur ; Anne Langseth RYSSTAD, Auteur ; Elisabeth WIGAARD, Auteur ; Jane Ma HELLERUD, Auteur ; Linn B. LUDVIGSEN, Auteur ; Patricia HOWLIN, Auteur . - p.2162-2176. Langues : Anglais (eng) in Autism > 25-8 (November 2021) . - p.2162-2176 Mots-clés : Adolescent  Anxiety  Anxiety Disorders  Autism Spectrum Disorder  Autistic Disorder  Child  Child Development Disorders, Pervasive  Humans  anxiety  autism  pathological demand avoidance Index. décimale : PER Périodiques Résumé : Requests for diagnoses of pathological demand avoidance have increased over recent years, but pathological demand avoidance remains a controversial issue. The concept of pathological demand avoidance has been criticised for undermining the self-advocacy of autistic people and neglecting the potential role of anxiety as a possible underlying or contributing cause. The current study was undertaken to summarise and review the methodological quality and findings from current research into pathological demand avoidance in children and adolescents. Further aims were to describe how pathological demand avoidance has been identified and to explore the relationships with autism and other developmental and psychiatric disorders. After a comprehensive search, 13 relevant studies using a wide range of methods were identified and systematic quality assessments were undertaken. All the studies had based the identification of pathological demand avoidance, directly or indirectly, on descriptions from the original study by Newson and colleagues. However, the methods used to develop these criteria were not clearly described. Most studies relied exclusively on parental report for data, and there was a general failure to take account of alternative explanations for the behaviours under study. No studies explored the views of individuals with pathological demand avoidance themselves. Problems concerning definition and measurement in the reviewed studies currently limit any conclusions regarding the uniformity or stability of the behaviours described, or the characteristics of individuals displaying them. Relationships between pathological demand avoidance and other emotional and behavioural difficulties should be explored in future research, as should the perspectives of individuals with pathological demand avoidance themselves. En ligne : http://dx.doi.org/10.1177/13623613211034382 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Post-traumatic stress disorder and experiences involving violence or sexual abuse in a clinical sample of autistic adults with intellectual disabilities: Prevalence and clinical correlates / Arvid Nikolai KILDAHL in Autism, 28-5 (May 2024)  

Public ISBD [article]  inAutism > 28-5 (May 2024) . - p.1075-1089 Titre : Post-traumatic stress disorder and experiences involving violence or sexual abuse in a clinical sample of autistic adults with intellectual disabilities: Prevalence and clinical correlates Type de document : texte imprimé Auteurs : Arvid Nikolai KILDAHL, Auteur ; Sissel Berge HELVERSCHOU, Auteur Article en page(s) : p.1075-1089 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  intellectual disabilities  post-traumatic stress disorder  sexual abuse  trauma  violence Index. décimale : PER Périodiques Résumé : Autistic people appear to be at increased risk of post-traumatic stress disorder, and experiences involving violence or sexual abuse appear to be common in this population. However, knowledge concerning trauma in autistic people with co-occurring intellectual disabilities is limited. In this cross-sectional study, we explored the prevalence of post-traumatic stress disorder, as well as the prevalence and clinical correlates of reported experiences of violence and sexual abuse, in a clinical sample of 88 autistic adults with intellectual disabilities referred for mental health assessment. Only three participants (3.4%) were diagnosed with post-traumatic stress disorder, even if experiences involving violence (34.1%) or sexual abuse (17.0%) were common. Anxiety and affective disorders were common diagnoses among participants with these experiences. Controlling for autism characteristics, level of intellectual disability and communication skills, experiences of violence/sexual abuse were found to be associated with a measure of 'challenging' behaviours (Aberrant Behaviour Checklist). These results indicate that potentially traumatic experiences are common in autistic adults with intellectual disabilities referred for mental health assessment and that post-traumatic stress disorder may be under-recognised. The findings highlight the importance of trauma screening and post-traumatic stress disorder assessment, as well as the importance of trauma-informed care, in this population. Lay abstract Post-traumatic stress disorder is a mental health disorder that may be triggered by the experience of events perceived as terrifying or overwhelming. Examples of such events include being the victim of violence or sexual abuse. Compared with other people, autistic people have increased risk of being exposed to violence or sexual abuse. In addition, autistic people may be more vulnerable to developing post-traumatic stress disorder following such exposure. However, knowledge is limited concerning the prevalence of experiences involving violence and sexual abuse, and post-traumatic stress disorder, in autistic people with co-occurring intellectual disabilities. Detection of these experiences, and identification of post-traumatic stress disorder, may be challenging in these individuals, and previous research indicates that post-traumatic stress disorder symptoms may be overlooked or misinterpreted. In this study, we examined prevalence of post-traumatic stress disorder, violence and sexual abuse in a clinical sample of 88 autistic adults with intellectual disabilities referred for mental health assessment. Only 3.4% were diagnosed with post-traumatic stress disorder, even if experiences involving violence (34.1%) or sexual abuse (17.0%) were common. Anxiety and affective disorders were common diagnoses among participants with these experiences. Controlling for autism characteristics, level of intellectual disability and communication skills, experiences of violence/sexual abuse were found to be associated with a measure of 'challenging' behaviours. These results indicate that potentially traumatic experiences are common in autistic adults with intellectual disabilities referred for mental health assessment, and that post-traumatic stress disorder may be under-recognised. The findings highlight the importance of trauma screening and post-traumatic stress disorder assessment, as well as the importance of trauma-informed care, in this population. En ligne : https://dx.doi.org/10.1177/13623613231190948 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=527 [article] Post-traumatic stress disorder and experiences involving violence or sexual abuse in a clinical sample of autistic adults with intellectual disabilities: Prevalence and clinical correlates [texte imprimé] / Arvid Nikolai KILDAHL, Auteur ; Sissel Berge HELVERSCHOU, Auteur . - p.1075-1089. Langues : Anglais (eng) in Autism > 28-5 (May 2024) . - p.1075-1089 Mots-clés : autism spectrum disorders  intellectual disabilities  post-traumatic stress disorder  sexual abuse  trauma  violence Index. décimale : PER Périodiques Résumé : Autistic people appear to be at increased risk of post-traumatic stress disorder, and experiences involving violence or sexual abuse appear to be common in this population. However, knowledge concerning trauma in autistic people with co-occurring intellectual disabilities is limited. In this cross-sectional study, we explored the prevalence of post-traumatic stress disorder, as well as the prevalence and clinical correlates of reported experiences of violence and sexual abuse, in a clinical sample of 88 autistic adults with intellectual disabilities referred for mental health assessment. Only three participants (3.4%) were diagnosed with post-traumatic stress disorder, even if experiences involving violence (34.1%) or sexual abuse (17.0%) were common. Anxiety and affective disorders were common diagnoses among participants with these experiences. Controlling for autism characteristics, level of intellectual disability and communication skills, experiences of violence/sexual abuse were found to be associated with a measure of 'challenging' behaviours (Aberrant Behaviour Checklist). These results indicate that potentially traumatic experiences are common in autistic adults with intellectual disabilities referred for mental health assessment and that post-traumatic stress disorder may be under-recognised. The findings highlight the importance of trauma screening and post-traumatic stress disorder assessment, as well as the importance of trauma-informed care, in this population. Lay abstract Post-traumatic stress disorder is a mental health disorder that may be triggered by the experience of events perceived as terrifying or overwhelming. Examples of such events include being the victim of violence or sexual abuse. Compared with other people, autistic people have increased risk of being exposed to violence or sexual abuse. In addition, autistic people may be more vulnerable to developing post-traumatic stress disorder following such exposure. However, knowledge is limited concerning the prevalence of experiences involving violence and sexual abuse, and post-traumatic stress disorder, in autistic people with co-occurring intellectual disabilities. Detection of these experiences, and identification of post-traumatic stress disorder, may be challenging in these individuals, and previous research indicates that post-traumatic stress disorder symptoms may be overlooked or misinterpreted. In this study, we examined prevalence of post-traumatic stress disorder, violence and sexual abuse in a clinical sample of 88 autistic adults with intellectual disabilities referred for mental health assessment. Only 3.4% were diagnosed with post-traumatic stress disorder, even if experiences involving violence (34.1%) or sexual abuse (17.0%) were common. Anxiety and affective disorders were common diagnoses among participants with these experiences. Controlling for autism characteristics, level of intellectual disability and communication skills, experiences of violence/sexual abuse were found to be associated with a measure of 'challenging' behaviours. These results indicate that potentially traumatic experiences are common in autistic adults with intellectual disabilities referred for mental health assessment, and that post-traumatic stress disorder may be under-recognised. The findings highlight the importance of trauma screening and post-traumatic stress disorder assessment, as well as the importance of trauma-informed care, in this population. En ligne : https://dx.doi.org/10.1177/13623613231190948 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=527

Schizophrenia in Autistic People with Intellectual Disabilities. Treatment and Interventions / Trine Lise BAKKEN in Journal of Autism and Developmental Disorders, 55-4 (April 2024)  

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