Parental Quality of Life and Impact of Multidisciplinary Intervention for Children with Autism Spectrum Disorders: A Qualitative Study / Chiara FANTE ; Raffaele DE LUCA PICIONE ; Barbara DIONI ; Tommaso MANARI ; Cinzia RAFFIN ; Francesca CAPELLI ; Christian Franceschini ; Vittorio LENZO ; Alessandro MUSETTI in Journal of Autism and Developmental Disorders, 55-1 (January 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-1 (January 2025) . - p.310-322 Titre : Parental Quality of Life and Impact of Multidisciplinary Intervention for Children with Autism Spectrum Disorders: A Qualitative Study : Journal of Autism and Developmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Chiara FANTE, Auteur ; Raffaele DE LUCA PICIONE, Auteur ; Barbara DIONI, Auteur ; Tommaso MANARI, Auteur ; Cinzia RAFFIN, Auteur ; Francesca CAPELLI, Auteur ; Christian Franceschini, Auteur ; Vittorio LENZO, Auteur ; Alessandro MUSETTI, Auteur Article en page(s) : p.310-322 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The presence of a child with Autism Spectrum Disorder (ASD) in the family can have a negative impact on parental Quality of Life (QoL), but evidence on how treatments for children with ASD can affect parental QoL is currently limited. In this qualitative study, we develop a semi-structured interview in order to investigate the impact of ASD on the QoL of mothers and fathers from a subjective perspective, as well as the effect of the intervention on their QoL and adjustment process. The sample consisted of 31 parents of children with ASD severity 2 or 3, aged 5 to 11 years, undergoing a multidisciplinary intervention. In order to identify emerging themes from the interview transcripts, a Thematic Analysis was conducted using a bottom-up approach. We identified three main themes relating to parental QoL (ASD impact on QoL, useful external resources, QoL improvement-related factors) and five themes relating to parents' views on the intervention (positive impact on parent, dissatisfaction with previous interventions, parental involvement, useful features, critical issues). The results provide indications of the process of parental adaptation and the components of interventions that foster an improvement in their QoL. In conclusion, living with a child with ASD can have a significant influence on a parents' QoL, not just physically and emotionally, but also in terms of general goals, family structure, and social interactions. En ligne : https://doi.org/10.1007/s10803-023-06225-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546 [article] Parental Quality of Life and Impact of Multidisciplinary Intervention for Children with Autism Spectrum Disorders: A Qualitative Study : Journal of Autism and Developmental Disorders [Texte imprimé et/ou numérique] / Chiara FANTE, Auteur ; Raffaele DE LUCA PICIONE, Auteur ; Barbara DIONI, Auteur ; Tommaso MANARI, Auteur ; Cinzia RAFFIN, Auteur ; Francesca CAPELLI, Auteur ; Christian Franceschini, Auteur ; Vittorio LENZO, Auteur ; Alessandro MUSETTI, Auteur . - p.310-322. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-1 (January 2025) . - p.310-322 Index. décimale : PER Périodiques Résumé : The presence of a child with Autism Spectrum Disorder (ASD) in the family can have a negative impact on parental Quality of Life (QoL), but evidence on how treatments for children with ASD can affect parental QoL is currently limited. In this qualitative study, we develop a semi-structured interview in order to investigate the impact of ASD on the QoL of mothers and fathers from a subjective perspective, as well as the effect of the intervention on their QoL and adjustment process. The sample consisted of 31 parents of children with ASD severity 2 or 3, aged 5 to 11 years, undergoing a multidisciplinary intervention. In order to identify emerging themes from the interview transcripts, a Thematic Analysis was conducted using a bottom-up approach. We identified three main themes relating to parental QoL (ASD impact on QoL, useful external resources, QoL improvement-related factors) and five themes relating to parents' views on the intervention (positive impact on parent, dissatisfaction with previous interventions, parental involvement, useful features, critical issues). The results provide indications of the process of parental adaptation and the components of interventions that foster an improvement in their QoL. In conclusion, living with a child with ASD can have a significant influence on a parents' QoL, not just physically and emotionally, but also in terms of general goals, family structure, and social interactions. En ligne : https://doi.org/10.1007/s10803-023-06225-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546

Self-efficacy as a mediator between involvement in intervention and quality of life in parents of children and adolescents with autism spectrum disorder / Chiara FANTE in Research in Autism Spectrum Disorders, 113 (May 2024)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 113 (May 2024) . - p.102351 Titre : Self-efficacy as a mediator between involvement in intervention and quality of life in parents of children and adolescents with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Chiara FANTE, Auteur ; Andrea ZAGARIA, Auteur ; Barbara DIONI, Auteur ; Cinzia RAFFIN, Auteur ; Francesca CAPELLI, Auteur ; Tommaso MANARI, Auteur ; Vittorio LENZO, Auteur ; Raffaele DE LUCA PICIONE, Auteur ; Alessandro MUSETTI, Auteur Article en page(s) : p.102351 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Quality of life  Self-efficacy  Parental involvement in intervention Index. décimale : PER Périodiques Résumé : Previous studies have suggested that increased parental involvement in intervention for children with autism spectrum disorders (ASD) may be associated with improved parental Quality of Life (QoL). This study investigates the mediating role of parental self-efficacy in the relationship between involvement in intervention and QoL in parents of children and adolescents with ASD. One hundred and eighty-eight parents provided self-reported measures regarding demographics, involvement in intervention, self-efficacy, child?s functioning and QoL (i.e., overall QoL and ASD symptoms-related QoL). After controlling for child?s functioning, structural equation modelling showed that (a) self-efficacy partially mediates the association between direct involvement in intervention and overall QoL, b) after accounting for the mediator,a negative association emerges between direct involvement in intervention and overall QoL (i.e., suppression effect), (c) self-efficacy fully mediates the association between direct involvement in intervention and ASD symptoms-related QoL, (d) self-efficacy fully mediates the association between indirect involvement in intervention and ASD symptoms-related QoL. These findings extend previous literature by revealing the key role of parental self-efficacy, and are relevant to designing interventions aimed at supporting and improving family adaptation processes. En ligne : https://doi.org/10.1016/j.rasd.2024.102351 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524 [article] Self-efficacy as a mediator between involvement in intervention and quality of life in parents of children and adolescents with autism spectrum disorder [Texte imprimé et/ou numérique] / Chiara FANTE, Auteur ; Andrea ZAGARIA, Auteur ; Barbara DIONI, Auteur ; Cinzia RAFFIN, Auteur ; Francesca CAPELLI, Auteur ; Tommaso MANARI, Auteur ; Vittorio LENZO, Auteur ; Raffaele DE LUCA PICIONE, Auteur ; Alessandro MUSETTI, Auteur . - p.102351. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 113 (May 2024) . - p.102351 Mots-clés : Autism spectrum disorder  Quality of life  Self-efficacy  Parental involvement in intervention Index. décimale : PER Périodiques Résumé : Previous studies have suggested that increased parental involvement in intervention for children with autism spectrum disorders (ASD) may be associated with improved parental Quality of Life (QoL). This study investigates the mediating role of parental self-efficacy in the relationship between involvement in intervention and QoL in parents of children and adolescents with ASD. One hundred and eighty-eight parents provided self-reported measures regarding demographics, involvement in intervention, self-efficacy, child?s functioning and QoL (i.e., overall QoL and ASD symptoms-related QoL). After controlling for child?s functioning, structural equation modelling showed that (a) self-efficacy partially mediates the association between direct involvement in intervention and overall QoL, b) after accounting for the mediator,a negative association emerges between direct involvement in intervention and overall QoL (i.e., suppression effect), (c) self-efficacy fully mediates the association between direct involvement in intervention and ASD symptoms-related QoL, (d) self-efficacy fully mediates the association between indirect involvement in intervention and ASD symptoms-related QoL. These findings extend previous literature by revealing the key role of parental self-efficacy, and are relevant to designing interventions aimed at supporting and improving family adaptation processes. En ligne : https://doi.org/10.1016/j.rasd.2024.102351 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524

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