Initial Psychometric Properties of the Catalight Family Wellbeing Scale / Lindsey SNEED in Journal of Autism and Developmental Disorders, 55-3 (March 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-3 (March 2025) . - p.1067-1077 Titre : Initial Psychometric Properties of the Catalight Family Wellbeing Scale Type de document : texte imprimé Auteurs : Lindsey SNEED, Auteur ; Ryan TAYLOR, Auteur ; Ian COOK, Auteur ; Michelle BEFI, Auteur ; Brianna FITCHETT, Auteur ; Doreen SAMELSON, Auteur ; Vincent BEMMEL, Auteur Article en page(s) : p.1067-1077 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Wellbeing refers to a person s overall happiness and satisfaction with life. Wellbeing for people with Intellectual and Developmental Disabilities (I/DD) and their families is historically significantly lower compared to the general population. It is important in the context of behavioral health treatment to not only measure the individual who is receiving treatment?s overall wellbeing, but also the wellbeing of the family. The purpose of this study was to understand the initial psychometric properties of the Catalight Family Wellbeing Scale. En ligne : https://doi.org/10.1007/s10803-024-06254-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=548 [article] Initial Psychometric Properties of the Catalight Family Wellbeing Scale [texte imprimé] / Lindsey SNEED, Auteur ; Ryan TAYLOR, Auteur ; Ian COOK, Auteur ; Michelle BEFI, Auteur ; Brianna FITCHETT, Auteur ; Doreen SAMELSON, Auteur ; Vincent BEMMEL, Auteur . - p.1067-1077. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-3 (March 2025) . - p.1067-1077 Index. décimale : PER Périodiques Résumé : Wellbeing refers to a person s overall happiness and satisfaction with life. Wellbeing for people with Intellectual and Developmental Disabilities (I/DD) and their families is historically significantly lower compared to the general population. It is important in the context of behavioral health treatment to not only measure the individual who is receiving treatment?s overall wellbeing, but also the wellbeing of the family. The purpose of this study was to understand the initial psychometric properties of the Catalight Family Wellbeing Scale. En ligne : https://doi.org/10.1007/s10803-024-06254-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=548

Psychometric Properties of The Parental Stress Scale for Parents of Children with Intellectual and Developmental Disabilities / Lindsey SNEED in Journal of Autism and Developmental Disorders, 56-5 (May 2026)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 56-5 (May 2026) . - p.1836-1848 Titre : Psychometric Properties of The Parental Stress Scale for Parents of Children with Intellectual and Developmental Disabilities Type de document : texte imprimé Auteurs : Lindsey SNEED, Auteur ; Ben PFINGSTON, Auteur ; Ian COOK, Auteur ; Ryan TAYLOR, Auteur ; Doreen SAMELSON, Auteur ; Brianna FITCHETT, Auteur Article en page(s) : p.1836-1848 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Parental stress can be debilitating for parents and their families. This is particularly true for parents who have a child with autism spectrum disorder (ASD) or other intellectual and developmental disability (I/DD). Effective screening and measurement of parental stress leads to accurate and effective intervention. The purpose of this study was to understand the psychometric properties of the Parental Stress Scale (PSS) for families who have a child with I/DD (ages ranging from 1 to 18 years old, with a mean of 5.28). Caregivers of 3220 families who have a child with I/DD (91% diagnosed with ASD) completed the scale. The psychometric properties including internal reliability and factor structure were completed as well as discriminant validity. Results of confirmatory factor analysis with the 18-item scale revealed a poor model fit with three items not meeting minimum factor loading threshold. Given this, the three items were removed, and confirmatory factor analysis was reconducted with 15 items of the PSS. Results revealed good internal consistency and discriminant validity, as well as a good model fit with all 15 items loading above the minimum threshold. The identified two-factor structure is consistent with the dichotomous (rewarding/burdensome) construct of parental stress that Berry and Jones (J Soc Pers Relationsh 12(3):463–472, 1995) originally designed the scale to index. Thus, the 15-item PSS has initial psychometric evidence in a large sample of families with a child with I/DD. En ligne : https://doi.org/10.1007/s10803-024-06700-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=587 [article] Psychometric Properties of The Parental Stress Scale for Parents of Children with Intellectual and Developmental Disabilities [texte imprimé] / Lindsey SNEED, Auteur ; Ben PFINGSTON, Auteur ; Ian COOK, Auteur ; Ryan TAYLOR, Auteur ; Doreen SAMELSON, Auteur ; Brianna FITCHETT, Auteur . - p.1836-1848. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 56-5 (May 2026) . - p.1836-1848 Index. décimale : PER Périodiques Résumé : Parental stress can be debilitating for parents and their families. This is particularly true for parents who have a child with autism spectrum disorder (ASD) or other intellectual and developmental disability (I/DD). Effective screening and measurement of parental stress leads to accurate and effective intervention. The purpose of this study was to understand the psychometric properties of the Parental Stress Scale (PSS) for families who have a child with I/DD (ages ranging from 1 to 18 years old, with a mean of 5.28). Caregivers of 3220 families who have a child with I/DD (91% diagnosed with ASD) completed the scale. The psychometric properties including internal reliability and factor structure were completed as well as discriminant validity. Results of confirmatory factor analysis with the 18-item scale revealed a poor model fit with three items not meeting minimum factor loading threshold. Given this, the three items were removed, and confirmatory factor analysis was reconducted with 15 items of the PSS. Results revealed good internal consistency and discriminant validity, as well as a good model fit with all 15 items loading above the minimum threshold. The identified two-factor structure is consistent with the dichotomous (rewarding/burdensome) construct of parental stress that Berry and Jones (J Soc Pers Relationsh 12(3):463–472, 1995) originally designed the scale to index. Thus, the 15-item PSS has initial psychometric evidence in a large sample of families with a child with I/DD. En ligne : https://doi.org/10.1007/s10803-024-06700-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=587

Sleep problems and the occurrence of dangerous behavior within autistic people: A retrospective community-based sample / Kalina HATZELL in Autism, 30-4 (April 2026)  

Public ISBD [article]  inAutism > 30-4 (April 2026) . - p.944-957 Titre : Sleep problems and the occurrence of dangerous behavior within autistic people: A retrospective community-based sample Type de document : texte imprimé Auteurs : Kalina HATZELL, Auteur ; Ben PFINGSTON, Auteur ; Lindsey SNEED, Auteur Article en page(s) : p.944-957 Langues : Anglais (eng) Mots-clés : autism  community-based  dangerous behavior  retrospective  sleep problems Index. décimale : PER Périodiques Résumé : Sleep disturbances affect 50%–80% of autistic individuals and are linked to heightened risk for psychiatric comorbidities and dangerous behaviors, including self-injury, suicidal ideation, and aggression. While previous studies have identified correlational relationships, few have examined whether sleep problems predict dangerous behaviors in large, real-world samples. This study used retrospective clinical data from a behavioral health nonprofit to investigate whether sleep problems predict dangerous behaviors among autistic individuals, accounting for age and adaptive functioning. The sample included 8,375 autistic individuals (mean age = 8.35 years). Sleep problems, dangerous behaviors, and adaptive functioning were measured at intake and every 6 months. Binary logistic regressions assessed whether sleep problems predicted current and historical suicidal ideation, self-injury, and aggression. Results showed that sleep problems significantly increased the odds of a history of suicidal ideation and suicidal ideation at intake (odds ratio = 2.29, 2.46, respectively), a history of self-injury and self-injury at intake (odds ratio = 1.95, 2.20, respectively), and aggression at intake (odds ratio = 1.58), even after adjusting for age, sex, and adaptive functioning. Age and adaptive behavior were also independently associated with dangerous behaviors. These findings underscore the importance of routinely assessing and treating sleep problems in autistic individuals as a potential pathway to reducing dangerous behaviors and improving overall wellbeing.Lay Abstract Sleep problems are very common among autistic children and adults, affecting between half and three-quarters of individuals. Poor sleep is linked to higher risks for serious behaviors such as self-injury, suicidal thoughts, and aggression, but it is not well understood whether sleep problems actually predict these behaviors. This study looked at real-world clinical data from over 8,000 autistic individuals, ages 2 to 21, who received services from a large behavioral health organization. We examined whether having sleep problems increased the likelihood of dangerous behaviors, even after taking into account a person’s age, daily living skills, and sex. We found that individuals with sleep problems were more than twice as likely to show self-injury or suicidal thoughts and were also more likely to show aggression. These findings highlight how important it is for providers and families to regularly assess and address sleep difficulties as part of autism care. Improving sleep may be an important step toward reducing the risk of dangerous behaviors and supporting overall wellbeing for autistic individuals and their families. En ligne : https://dx.doi.org/10.1177/13623613261417525 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=584 [article] Sleep problems and the occurrence of dangerous behavior within autistic people: A retrospective community-based sample [texte imprimé] / Kalina HATZELL, Auteur ; Ben PFINGSTON, Auteur ; Lindsey SNEED, Auteur . - p.944-957. Langues : Anglais (eng) in Autism > 30-4 (April 2026) . - p.944-957 Mots-clés : autism  community-based  dangerous behavior  retrospective  sleep problems Index. décimale : PER Périodiques Résumé : Sleep disturbances affect 50%–80% of autistic individuals and are linked to heightened risk for psychiatric comorbidities and dangerous behaviors, including self-injury, suicidal ideation, and aggression. While previous studies have identified correlational relationships, few have examined whether sleep problems predict dangerous behaviors in large, real-world samples. This study used retrospective clinical data from a behavioral health nonprofit to investigate whether sleep problems predict dangerous behaviors among autistic individuals, accounting for age and adaptive functioning. The sample included 8,375 autistic individuals (mean age = 8.35 years). Sleep problems, dangerous behaviors, and adaptive functioning were measured at intake and every 6 months. Binary logistic regressions assessed whether sleep problems predicted current and historical suicidal ideation, self-injury, and aggression. Results showed that sleep problems significantly increased the odds of a history of suicidal ideation and suicidal ideation at intake (odds ratio = 2.29, 2.46, respectively), a history of self-injury and self-injury at intake (odds ratio = 1.95, 2.20, respectively), and aggression at intake (odds ratio = 1.58), even after adjusting for age, sex, and adaptive functioning. Age and adaptive behavior were also independently associated with dangerous behaviors. These findings underscore the importance of routinely assessing and treating sleep problems in autistic individuals as a potential pathway to reducing dangerous behaviors and improving overall wellbeing.Lay Abstract Sleep problems are very common among autistic children and adults, affecting between half and three-quarters of individuals. Poor sleep is linked to higher risks for serious behaviors such as self-injury, suicidal thoughts, and aggression, but it is not well understood whether sleep problems actually predict these behaviors. This study looked at real-world clinical data from over 8,000 autistic individuals, ages 2 to 21, who received services from a large behavioral health organization. We examined whether having sleep problems increased the likelihood of dangerous behaviors, even after taking into account a person’s age, daily living skills, and sex. We found that individuals with sleep problems were more than twice as likely to show self-injury or suicidal thoughts and were also more likely to show aggression. These findings highlight how important it is for providers and families to regularly assess and address sleep difficulties as part of autism care. Improving sleep may be an important step toward reducing the risk of dangerous behaviors and supporting overall wellbeing for autistic individuals and their families. En ligne : https://dx.doi.org/10.1177/13623613261417525 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=584

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