[article]
| Titre : |
Interviews with parents of boys suffering from Duchenne muscular dystrophy |
| Type de document : |
Texte imprimé et/ou numérique |
| Auteurs : |
Melinda FIRTH, Auteur ; David GARDNER-MEDWIN, Auteur ; Elizabeth WILKINSON, Auteur ; G. P. HOSKING, Auteur |
| Année de publication : |
1983 |
| Article en page(s) : |
p.466-471 |
| Langues : |
Anglais (eng) |
| Index. décimale : |
PER Périodiques |
| Résumé : |
Parents from 53 families of boys with Duchenne muscular dystrophy were interviewed to explore their reactions to the diagnosis and the effects of the disease on family life. The findings are discussed in terms of the problems reported by the parents, their experiences at the time of diagnosis, their views on neonatal screening, the effects on the marital relationship, on siblings and on the affected boys themselves, and the parents' need for better information about the disorder. |
| Permalink : |
https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566 |
in Developmental Medicine & Child Neurology > 25-4 (August 1983) . - p.466-471
|
Faire une suggestion Affiner la rechercheAlternative or unorthodox therapies in Developmental Medicine & Child Neurology, 29-3 (June 1987)
