“If the Right Time Comes”– Perspectives of Indian parents on disclosing the diagnosis of autism to their children / Koyeli SENGUPTA in Research in Autism, 130 (February 2026)  

Public ISBD [article]  inResearch in Autism > 130 (February 2026) . - p.202754 Titre : “If the Right Time Comes”– Perspectives of Indian parents on disclosing the diagnosis of autism to their children Type de document : texte imprimé Auteurs : Koyeli SENGUPTA, Auteur ; Srushti GANDHI, Auteur ; Alokananda RUDRA, Auteur Article en page(s) : p.202754 Langues : Anglais (eng) Mots-clés : Autism  Self-advocacy  Adolescents  Neurodiversity  Disclosure  Psycho-social factors  Rights Index. décimale : PER Périodiques Résumé : Several studies carried out in the global north emphasize the positive impact on well-being after learning of one’s autism diagnosis. However, there is a glaring gap in scientific data from low-resourced countries on the disclosure of a diagnosis of autism. This is the first study from India that utilizes qualitative methodology to understand caregivers’ perceptions of the disclosure of diagnosis. Caregivers of 22 adolescents were interviewed, followed by a thematic analysis of their responses. Caregivers’ responses range from absolute refusal to disclose to consideration that discussing their children’s identity is a crucial parental responsibility. Their decisions are the culmination of two prominent themes- factors impacting them In the Here and Now (like adolescents’ level of understanding and their right to know) and Disclosure has Consequences, which could be both positive and negative. The third theme shows that Disclosure is a Process, as caregiver stances on disclosure are dynamic. The caregivers’ decisions to consider disclosure require the concerted support of extended family and professionals in the disability space to help them navigate the challenges imposed by societal perceptions and non-inclusive systems and ease their acceptance of autism as a form of neurodivergence. En ligne : https://doi.org/10.1016/j.reia.2025.202754 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=579 [article] “If the Right Time Comes”– Perspectives of Indian parents on disclosing the diagnosis of autism to their children [texte imprimé] / Koyeli SENGUPTA, Auteur ; Srushti GANDHI, Auteur ; Alokananda RUDRA, Auteur . - p.202754. Langues : Anglais (eng) in Research in Autism > 130 (February 2026) . - p.202754 Mots-clés : Autism  Self-advocacy  Adolescents  Neurodiversity  Disclosure  Psycho-social factors  Rights Index. décimale : PER Périodiques Résumé : Several studies carried out in the global north emphasize the positive impact on well-being after learning of one’s autism diagnosis. However, there is a glaring gap in scientific data from low-resourced countries on the disclosure of a diagnosis of autism. This is the first study from India that utilizes qualitative methodology to understand caregivers’ perceptions of the disclosure of diagnosis. Caregivers of 22 adolescents were interviewed, followed by a thematic analysis of their responses. Caregivers’ responses range from absolute refusal to disclose to consideration that discussing their children’s identity is a crucial parental responsibility. Their decisions are the culmination of two prominent themes- factors impacting them In the Here and Now (like adolescents’ level of understanding and their right to know) and Disclosure has Consequences, which could be both positive and negative. The third theme shows that Disclosure is a Process, as caregiver stances on disclosure are dynamic. The caregivers’ decisions to consider disclosure require the concerted support of extended family and professionals in the disability space to help them navigate the challenges imposed by societal perceptions and non-inclusive systems and ease their acceptance of autism as a form of neurodivergence. En ligne : https://doi.org/10.1016/j.reia.2025.202754 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=579

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