[article]
| Titre : |
Between care and faith: Mothers’ experiences of ASD services, diagnosis, emotional well-being, and faith communication |
| Type de document : |
texte imprimé |
| Auteurs : |
Petervir A. PAZ, Auteur |
| Article en page(s) : |
202824 |
| Langues : |
Anglais (eng) |
| Mots-clés : |
Autism Spirituality Family Support Advocacy Parenting |
| Index. décimale : |
PER Périodiques |
| Résumé : |
This qualitative phenomenological study investigated the lived experiences of mothers parenting children with autism spectrum disorder (ASD) in Butuan City, Philippines, where constrained healthcare resources and enduring stigma influence caregiving dynamics. Utilizing Resilience Theory, Social Stigma Theory, and Relational Communication Theory, the study examined (1) the impact of mothers’ demographic backgrounds on access to ASD services and emotional well-being, (2) mothers’ diagnostic trajectories, encompassing early indicators, assessment procedures, and determinants influencing diagnosis and care, and (3) the influence of mothers’ emotional experiences on faith communication and spiritual life in relation to God, family, and community. Purposive sample enlisted seven women who had served as primary carers for a minimum of five years. Comprehensive semi-structured interviews were performed from February 2025 to July 2025 at two therapy centers; STEPS Butuan Learning and Development Center; Createabilities Therapy Services, Inc. and examined utilizing Braun and Clarke’s thematic analysis. The findings identified six interrelated themes: Familial Interactions and Support Structures, Diagnosis and Personalized Care, Managing the Diagnosis, Experiencing Isolation, Spirituality and the Pursuit of Divine Intervention, and Promotion of Healthcare and Community Assistance. A Supportive Care Communication Framework is proposed to enhance family dialogue, healthcare collaboration, community inclusion, faith-based support, and system-level coordination, with implications for policy and psychosocial interventions for mothers and children with ASD. |
| En ligne : |
https://doi.org/10.1016/j.reia.2026.202824 |
| Permalink : |
https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=581 |
in Research in Autism > 131 (March 2026) . - 202824
[article] Between care and faith: Mothers’ experiences of ASD services, diagnosis, emotional well-being, and faith communication [texte imprimé] / Petervir A. PAZ, Auteur . - 202824. Langues : Anglais ( eng) in Research in Autism > 131 (March 2026) . - 202824
| Mots-clés : |
Autism Spirituality Family Support Advocacy Parenting |
| Index. décimale : |
PER Périodiques |
| Résumé : |
This qualitative phenomenological study investigated the lived experiences of mothers parenting children with autism spectrum disorder (ASD) in Butuan City, Philippines, where constrained healthcare resources and enduring stigma influence caregiving dynamics. Utilizing Resilience Theory, Social Stigma Theory, and Relational Communication Theory, the study examined (1) the impact of mothers’ demographic backgrounds on access to ASD services and emotional well-being, (2) mothers’ diagnostic trajectories, encompassing early indicators, assessment procedures, and determinants influencing diagnosis and care, and (3) the influence of mothers’ emotional experiences on faith communication and spiritual life in relation to God, family, and community. Purposive sample enlisted seven women who had served as primary carers for a minimum of five years. Comprehensive semi-structured interviews were performed from February 2025 to July 2025 at two therapy centers; STEPS Butuan Learning and Development Center; Createabilities Therapy Services, Inc. and examined utilizing Braun and Clarke’s thematic analysis. The findings identified six interrelated themes: Familial Interactions and Support Structures, Diagnosis and Personalized Care, Managing the Diagnosis, Experiencing Isolation, Spirituality and the Pursuit of Divine Intervention, and Promotion of Healthcare and Community Assistance. A Supportive Care Communication Framework is proposed to enhance family dialogue, healthcare collaboration, community inclusion, faith-based support, and system-level coordination, with implications for policy and psychosocial interventions for mothers and children with ASD. |
| En ligne : |
https://doi.org/10.1016/j.reia.2026.202824 |
| Permalink : |
https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=581 |
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