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An On-Line Survey of University Students with Autism Spectrum Disorder in Australia and New Zealand: Characteristics, Support Satisfaction, and Advocacy / Anastasia H. ANDERSON in Journal of Autism and Developmental Disorders, 50-2 (February 2020)
[article]
Titre : An On-Line Survey of University Students with Autism Spectrum Disorder in Australia and New Zealand: Characteristics, Support Satisfaction, and Advocacy Type de document : Texte imprimé et/ou numérique Auteurs : Anastasia H. ANDERSON, Auteur ; Mark CARTER, Auteur ; Jennifer STEPHENSON, Auteur Article en page(s) : p.440-454 Langues : Anglais (eng) Mots-clés : Advocacy Autism spectrum disorder Educational supports and services On-line survey University students Index. décimale : PER Périodiques Résumé : An on-line survey of 102 (51 females; undergraduate and graduate) university students with ASD across Australia and New Zealand examined student characteristics and satisfaction with academic and non-academic supports. A broad range of disciplines were studied, and the participants' reported strengths included a passion for learning, strong technology skills, and creative thoughts. The participants' greatest concerns were academic requirements and mental health, including high rates of self-harm and suicidal ideation. Despite support satisfaction ratings being high, support usage was low, possibly indicating a mismatch of supports and needs, lack of awareness of available supports, and/or poor advocacy skills. En ligne : http://dx.doi.org/10.1007/s10803-019-04259-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=416
in Journal of Autism and Developmental Disorders > 50-2 (February 2020) . - p.440-454[article] An On-Line Survey of University Students with Autism Spectrum Disorder in Australia and New Zealand: Characteristics, Support Satisfaction, and Advocacy [Texte imprimé et/ou numérique] / Anastasia H. ANDERSON, Auteur ; Mark CARTER, Auteur ; Jennifer STEPHENSON, Auteur . - p.440-454.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-2 (February 2020) . - p.440-454
Mots-clés : Advocacy Autism spectrum disorder Educational supports and services On-line survey University students Index. décimale : PER Périodiques Résumé : An on-line survey of 102 (51 females; undergraduate and graduate) university students with ASD across Australia and New Zealand examined student characteristics and satisfaction with academic and non-academic supports. A broad range of disciplines were studied, and the participants' reported strengths included a passion for learning, strong technology skills, and creative thoughts. The participants' greatest concerns were academic requirements and mental health, including high rates of self-harm and suicidal ideation. Despite support satisfaction ratings being high, support usage was low, possibly indicating a mismatch of supports and needs, lack of awareness of available supports, and/or poor advocacy skills. En ligne : http://dx.doi.org/10.1007/s10803-019-04259-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=416 Brief Report: The Feasibility and Effectiveness of an Advocacy Program for Latino Families of Children with Autism Spectrum Disorder / Meghan M. BURKE in Journal of Autism and Developmental Disorders, 46-7 (July 2016)
[article]
Titre : Brief Report: The Feasibility and Effectiveness of an Advocacy Program for Latino Families of Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Meghan M. BURKE, Auteur ; Sandra MAGAÑA, Auteur ; Marlene GARCIA, Auteur ; Maria P. MELLO, Auteur Article en page(s) : p.2532-2538 Langues : Anglais (eng) Mots-clés : Advocacy Empowerment Family–School Partnership Family Services Index. décimale : PER Périodiques Résumé : Latino, Spanish-speaking families of children with autism spectrum disorder (ASD) face unique barriers in special education advocacy. Although advocacy programs are becoming more common in the United States, none of these programs target Latino families. This is a pilot study to examine the feasibility and effectiveness of an advocacy program for Latino families of children with ASD. Using a quasi-experimental design, 40 Latino family members of children with ASD participated in this study. Results demonstrated consistent attendance, low attrition, and high participant satisfaction. Intervention (versus control) group participants demonstrated significantly increased empowerment and special education knowledge, and stronger family–school partnerships. Findings provide preliminary support for advocacy programs for Latino families of children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-016-2765-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290
in Journal of Autism and Developmental Disorders > 46-7 (July 2016) . - p.2532-2538[article] Brief Report: The Feasibility and Effectiveness of an Advocacy Program for Latino Families of Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Meghan M. BURKE, Auteur ; Sandra MAGAÑA, Auteur ; Marlene GARCIA, Auteur ; Maria P. MELLO, Auteur . - p.2532-2538.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 46-7 (July 2016) . - p.2532-2538
Mots-clés : Advocacy Empowerment Family–School Partnership Family Services Index. décimale : PER Périodiques Résumé : Latino, Spanish-speaking families of children with autism spectrum disorder (ASD) face unique barriers in special education advocacy. Although advocacy programs are becoming more common in the United States, none of these programs target Latino families. This is a pilot study to examine the feasibility and effectiveness of an advocacy program for Latino families of children with ASD. Using a quasi-experimental design, 40 Latino family members of children with ASD participated in this study. Results demonstrated consistent attendance, low attrition, and high participant satisfaction. Intervention (versus control) group participants demonstrated significantly increased empowerment and special education knowledge, and stronger family–school partnerships. Findings provide preliminary support for advocacy programs for Latino families of children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-016-2765-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290 Treatments for Neurodevelopmental Disorders: Evidence, Advocacy, and the Internet / Nina C. DI PIETRO in Journal of Autism and Developmental Disorders, 43-1 (January 2013)
[article]
Titre : Treatments for Neurodevelopmental Disorders: Evidence, Advocacy, and the Internet Type de document : Texte imprimé et/ou numérique Auteurs : Nina C. DI PIETRO, Auteur ; Louise WHITELEY, Auteur ; Ania MIZGALEWICZ, Auteur ; Judy ILLES, Auteur Article en page(s) : p.122-133 Langues : Anglais (eng) Mots-clés : Autism cerebral palsy Foetal alcohol spectrum disorder Advocacy Internet Treatment information Science communication Ethics Content analysis Index. décimale : PER Périodiques Résumé : The Internet is a major source of health-related information for parents of sick children despite concerns surrounding quality. For neurodevelopmental disorders, the websites of advocacy groups are a largely unexamined source of information. We evaluated treatment information posted on nine highly-trafficked advocacy websites for autism, cerebral palsy, and fetal alcohol spectrum disorder. We found that the majority of claims about treatment safety and efficacy were unsubstantiated. Instead, a range of rhetorical strategies were used to imply scientific support. When peer-reviewed publications were cited, 20 % were incorrect or irrelevant. We call for new partnerships between advocacy and experts in developmental disorders to ensure better accuracy and higher transparency about how treatment information is selected and evidenced on advocacy websites. En ligne : http://dx.doi.org/10.1007/s10803-012-1551-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=187
in Journal of Autism and Developmental Disorders > 43-1 (January 2013) . - p.122-133[article] Treatments for Neurodevelopmental Disorders: Evidence, Advocacy, and the Internet [Texte imprimé et/ou numérique] / Nina C. DI PIETRO, Auteur ; Louise WHITELEY, Auteur ; Ania MIZGALEWICZ, Auteur ; Judy ILLES, Auteur . - p.122-133.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 43-1 (January 2013) . - p.122-133
Mots-clés : Autism cerebral palsy Foetal alcohol spectrum disorder Advocacy Internet Treatment information Science communication Ethics Content analysis Index. décimale : PER Périodiques Résumé : The Internet is a major source of health-related information for parents of sick children despite concerns surrounding quality. For neurodevelopmental disorders, the websites of advocacy groups are a largely unexamined source of information. We evaluated treatment information posted on nine highly-trafficked advocacy websites for autism, cerebral palsy, and fetal alcohol spectrum disorder. We found that the majority of claims about treatment safety and efficacy were unsubstantiated. Instead, a range of rhetorical strategies were used to imply scientific support. When peer-reviewed publications were cited, 20 % were incorrect or irrelevant. We call for new partnerships between advocacy and experts in developmental disorders to ensure better accuracy and higher transparency about how treatment information is selected and evidenced on advocacy websites. En ligne : http://dx.doi.org/10.1007/s10803-012-1551-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=187 Autism Spectrum Disorder in Children: The Disparities between the Developed and Developing Countries / Samuel N. UWAEZUOKE in Autism - Open Access, 5-3 ([01/06/2015])
[article]
Titre : Autism Spectrum Disorder in Children: The Disparities between the Developed and Developing Countries Type de document : Texte imprimé et/ou numérique Auteurs : Samuel N. UWAEZUOKE, Auteur Article en page(s) : 5 p. Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Children Developed countries Developing countries Epidemiologic gaps Management gaps Advocacy Index. décimale : PER Périodiques Résumé : This review aims to appraise the disparities in the prevalence and management of childhood autism in developed and developing countries, and to discuss strategies that will possibly close the gaps. Autism is one of the pervasive developmental disorders or autism spectrum disorders which are characterized by developmental delays in socialization and communication. Following the revised definition by the Diagnostic and Statistical Manual of mental disorders, Fifth edition (DSM-V), the term ‘autism spectrum disorder’ (ASD) is now used as the nomenclature to identify children with autism and other related disorders. Unlike in developing countries, more research work has been conducted in the developed world where advanced support services and use of standardized screening and diagnostic instruments are the norm. Thus, disparities exist in the prevalence rates as high figures are reported from developed countries while the rates from developing countries are low. Furthermore, wide therapeutic options are available for children with ASD in the developed world. In developing countries, treatment interventions are largely unavailable coupled with dearth of the requisite health care professionals. To close the huge gaps in epidemiologic data and management of ASD between the developed and developing nations, there is need for international bodies such as ‘Autism speaks’ to increasingly drive the global advocacy action for children with ASD. It is also recommended that the governments of these developing nations should prioritize the funding of autism research, undertake massive public enlightenment and build the capacity of health professionals in synergy with international advocacy groups. En ligne : https://dx.doi.org/10.4172/2165-7890.1000152 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=409
in Autism - Open Access > 5-3 [01/06/2015] . - 5 p.[article] Autism Spectrum Disorder in Children: The Disparities between the Developed and Developing Countries [Texte imprimé et/ou numérique] / Samuel N. UWAEZUOKE, Auteur . - 5 p.
Langues : Anglais (eng)
in Autism - Open Access > 5-3 [01/06/2015] . - 5 p.
Mots-clés : Autism spectrum disorder Children Developed countries Developing countries Epidemiologic gaps Management gaps Advocacy Index. décimale : PER Périodiques Résumé : This review aims to appraise the disparities in the prevalence and management of childhood autism in developed and developing countries, and to discuss strategies that will possibly close the gaps. Autism is one of the pervasive developmental disorders or autism spectrum disorders which are characterized by developmental delays in socialization and communication. Following the revised definition by the Diagnostic and Statistical Manual of mental disorders, Fifth edition (DSM-V), the term ‘autism spectrum disorder’ (ASD) is now used as the nomenclature to identify children with autism and other related disorders. Unlike in developing countries, more research work has been conducted in the developed world where advanced support services and use of standardized screening and diagnostic instruments are the norm. Thus, disparities exist in the prevalence rates as high figures are reported from developed countries while the rates from developing countries are low. Furthermore, wide therapeutic options are available for children with ASD in the developed world. In developing countries, treatment interventions are largely unavailable coupled with dearth of the requisite health care professionals. To close the huge gaps in epidemiologic data and management of ASD between the developed and developing nations, there is need for international bodies such as ‘Autism speaks’ to increasingly drive the global advocacy action for children with ASD. It is also recommended that the governments of these developing nations should prioritize the funding of autism research, undertake massive public enlightenment and build the capacity of health professionals in synergy with international advocacy groups. En ligne : https://dx.doi.org/10.4172/2165-7890.1000152 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=409 Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial / Julie LOUNDS TAYLOR in Journal of Autism and Developmental Disorders, 47-3 (March 2017)
[article]
Titre : Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial Type de document : Texte imprimé et/ou numérique Auteurs : Julie LOUNDS TAYLOR, Auteur ; Robert M. HODAPP, Auteur ; Meghan M. BURKE, Auteur ; Sydney N. WAITZ-KUDLA, Auteur ; Carol RABIDEAU, Auteur Article en page(s) : p.846-857 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Parents Intervention Transition to adulthood Services Advocacy Empowerment Randomized controlled trial Index. décimale : PER Périodiques Résumé : This study presents findings from a pilot randomized controlled trial, testing a 12-week intervention to train parents of youth with autism spectrum disorder (ASD) to advocate for adult disability services—the Volunteer Advocacy Program-Transition (VAP-T). Participants included 41 parents of youth with ASD within 2 years of high school exit, randomly assigned to a treatment (N?=?20) or wait-list control (N?=?21) group. Outcomes, collected before and after the intervention, included parental knowledge about adult services, advocacy skills-comfort, and empowerment. The VAP-T had acceptable feasibility, treatment fidelity, and acceptability. After participating in the VAP-T, intervention parents (compared to controls) knew more about the adult service system, were more skilled/comfortable advocating, and felt more empowered. En ligne : http://dx.doi.org/10.1007/s10803-016-2994-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304
in Journal of Autism and Developmental Disorders > 47-3 (March 2017) . - p.846-857[article] Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial [Texte imprimé et/ou numérique] / Julie LOUNDS TAYLOR, Auteur ; Robert M. HODAPP, Auteur ; Meghan M. BURKE, Auteur ; Sydney N. WAITZ-KUDLA, Auteur ; Carol RABIDEAU, Auteur . - p.846-857.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-3 (March 2017) . - p.846-857
Mots-clés : Autism spectrum disorder Parents Intervention Transition to adulthood Services Advocacy Empowerment Randomized controlled trial Index. décimale : PER Périodiques Résumé : This study presents findings from a pilot randomized controlled trial, testing a 12-week intervention to train parents of youth with autism spectrum disorder (ASD) to advocate for adult disability services—the Volunteer Advocacy Program-Transition (VAP-T). Participants included 41 parents of youth with ASD within 2 years of high school exit, randomly assigned to a treatment (N?=?20) or wait-list control (N?=?21) group. Outcomes, collected before and after the intervention, included parental knowledge about adult services, advocacy skills-comfort, and empowerment. The VAP-T had acceptable feasibility, treatment fidelity, and acceptability. After participating in the VAP-T, intervention parents (compared to controls) knew more about the adult service system, were more skilled/comfortable advocating, and felt more empowered. En ligne : http://dx.doi.org/10.1007/s10803-016-2994-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304 Identifying the Associated Factors of Mediation and Due Process in Families of Students with Autism Spectrum Disorder / Meghan M. BURKE in Journal of Autism and Developmental Disorders, 45-5 (May 2015)
PermalinkPerspectives of Former Students with ASD from Australia and New Zealand on Their University Experience / Anastasia H. ANDERSON in Journal of Autism and Developmental Disorders, 50-8 (August 2020)
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