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Auteur Taylor HALLIGAN |
Documents disponibles écrits par cet auteur (1)
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Brief Report: Assessment Experiences of Children with Neurogenetic Syndromes: Caregivers' Perceptions and Suggestions for Improvement / Bridgette KELLEHER in Journal of Autism and Developmental Disorders, 50-4 (April 2020)
[article]
Titre : Brief Report: Assessment Experiences of Children with Neurogenetic Syndromes: Caregivers' Perceptions and Suggestions for Improvement Type de document : Texte imprimé et/ou numérique Auteurs : Bridgette KELLEHER, Auteur ; Taylor HALLIGAN, Auteur ; Tessa GARWOOD, Auteur ; Samantha HOWELL, Auteur ; Breanna MARTIN-O'DELL, Auteur ; Amber SWINT, Auteur ; Liberty-Ann SHELTON, Auteur ; Joey SHIN, Auteur Article en page(s) : p.1443-1450 Langues : Anglais (eng) Mots-clés : Autism Caregivers Clinical assessment Neurogenetic syndromes Outcome measures Index. décimale : PER Périodiques Résumé : It is well-recognized that measurement options for diagnosing and monitoring children with neurogenetic syndromes (NGS) associated with moderate to severe intellectual impairment are limited (Berry-Kravis, Dev Med Child Neurol https://doi.org/10.1111/dmcn.13018, 2016), and caregivers experience significant concerns regarding the assessment process. However to date, these concerns have not been summarized into actionable steps for clinicians and test-makers. As such, we used a mixed methods approach to assess caregiver-derived perceptions and suggestions for improving assessments in NGS. Results indicated many shared challenges and suggestions for improvement, particularly in the domains of testing procedures and examiner communication. Integrating these suggestions into future protocols is an important next step toward improving the quality of assessment procedures for children with NGS and their families across both clinical and research contexts. En ligne : http://dx.doi.org/10.1007/s10803-020-04363-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421
in Journal of Autism and Developmental Disorders > 50-4 (April 2020) . - p.1443-1450[article] Brief Report: Assessment Experiences of Children with Neurogenetic Syndromes: Caregivers' Perceptions and Suggestions for Improvement [Texte imprimé et/ou numérique] / Bridgette KELLEHER, Auteur ; Taylor HALLIGAN, Auteur ; Tessa GARWOOD, Auteur ; Samantha HOWELL, Auteur ; Breanna MARTIN-O'DELL, Auteur ; Amber SWINT, Auteur ; Liberty-Ann SHELTON, Auteur ; Joey SHIN, Auteur . - p.1443-1450.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-4 (April 2020) . - p.1443-1450
Mots-clés : Autism Caregivers Clinical assessment Neurogenetic syndromes Outcome measures Index. décimale : PER Périodiques Résumé : It is well-recognized that measurement options for diagnosing and monitoring children with neurogenetic syndromes (NGS) associated with moderate to severe intellectual impairment are limited (Berry-Kravis, Dev Med Child Neurol https://doi.org/10.1111/dmcn.13018, 2016), and caregivers experience significant concerns regarding the assessment process. However to date, these concerns have not been summarized into actionable steps for clinicians and test-makers. As such, we used a mixed methods approach to assess caregiver-derived perceptions and suggestions for improving assessments in NGS. Results indicated many shared challenges and suggestions for improvement, particularly in the domains of testing procedures and examiner communication. Integrating these suggestions into future protocols is an important next step toward improving the quality of assessment procedures for children with NGS and their families across both clinical and research contexts. En ligne : http://dx.doi.org/10.1007/s10803-020-04363-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421