Centre d'Information et de documentation du CRA Rhône-Alpes
CRA
Informations pratiques
-
Adresse
Centre d'information et de documentation
du CRA Rhône-Alpes
Centre Hospitalier le Vinatier
bât 211
95, Bd Pinel
69678 Bron CedexHoraires
Lundi au Vendredi
9h00-12h00 13h30-16h00Contact
Tél: +33(0)4 37 91 54 65
Mail
Fax: +33(0)4 37 91 54 37
-
Détail de l'auteur
Auteur Madeleine DUNCAN |
Documents disponibles écrits par cet auteur (2)
Faire une suggestion Affiner la recherche
Autism in the Western Cape province of South Africa: Rates, socio-demographics, disability and educational characteristics in one million school children / Sarosha PILLAY in Autism, 25-4 (May 2021)
[article]
Titre : Autism in the Western Cape province of South Africa: Rates, socio-demographics, disability and educational characteristics in one million school children Type de document : Texte imprimé et/ou numérique Auteurs : Sarosha PILLAY, Auteur ; Madeleine DUNCAN, Auteur ; Petrus J. DE VRIES, Auteur Article en page(s) : p.1076-1089 Langues : Anglais (eng) Mots-clés : autism education autism spectrum disorder low- and middle-income countries Index. décimale : PER Périodiques Résumé : There is very little information about autism spectrum disorder in South Africa and not much is known about children with autism spectrum disorder and their educational needs. In this study, we searched for all children with autism spectrum disorder attending schools in the Western Cape province of South Africa and compared our findings with the profile of people living in the province. We found fewer children with autism spectrum disorder in schools than expected (0.08%) and co-occurring conditions (intellectual disability?=?22.2%, attention-deficit/hyperactivity disorder?=?2.6% and epilepsy?=?0.7%) were reported at lower rates. More children were from White racial groups and from English-speaking homes compared with the Western Cape population demographics. Most of the children (89%) attended schools for children with Special Educational Needs and only 10% were in Ordinary/Mainstream schools. Eighty-three percent attended schools in urban areas and 17% in rural areas. There was a 76.03% increase in children with autism spectrum disorder in schools between 2012 and 2016. Our findings support the need for better identification and reporting of children with autism spectrum disorder in the education system. We propose urgent review and strengthening of education systems for children with autism spectrum disorder in the Western Cape province and in other parts of South Africa. En ligne : http://dx.doi.org/10.1177/1362361320978042 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444
in Autism > 25-4 (May 2021) . - p.1076-1089[article] Autism in the Western Cape province of South Africa: Rates, socio-demographics, disability and educational characteristics in one million school children [Texte imprimé et/ou numérique] / Sarosha PILLAY, Auteur ; Madeleine DUNCAN, Auteur ; Petrus J. DE VRIES, Auteur . - p.1076-1089.
Langues : Anglais (eng)
in Autism > 25-4 (May 2021) . - p.1076-1089
Mots-clés : autism education autism spectrum disorder low- and middle-income countries Index. décimale : PER Périodiques Résumé : There is very little information about autism spectrum disorder in South Africa and not much is known about children with autism spectrum disorder and their educational needs. In this study, we searched for all children with autism spectrum disorder attending schools in the Western Cape province of South Africa and compared our findings with the profile of people living in the province. We found fewer children with autism spectrum disorder in schools than expected (0.08%) and co-occurring conditions (intellectual disability?=?22.2%, attention-deficit/hyperactivity disorder?=?2.6% and epilepsy?=?0.7%) were reported at lower rates. More children were from White racial groups and from English-speaking homes compared with the Western Cape population demographics. Most of the children (89%) attended schools for children with Special Educational Needs and only 10% were in Ordinary/Mainstream schools. Eighty-three percent attended schools in urban areas and 17% in rural areas. There was a 76.03% increase in children with autism spectrum disorder in schools between 2012 and 2016. Our findings support the need for better identification and reporting of children with autism spectrum disorder in the education system. We propose urgent review and strengthening of education systems for children with autism spectrum disorder in the Western Cape province and in other parts of South Africa. En ligne : http://dx.doi.org/10.1177/1362361320978042 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 ?We are doing damage control?: Government stakeholder perspectives of educational and other services for children with autism spectrum disorder in South Africa / Madeleine DUNCAN ; Petrus J. DE VRIES in Autism, 28-1 (January 2024)
[article]
Titre : ?We are doing damage control?: Government stakeholder perspectives of educational and other services for children with autism spectrum disorder in South Africa Type de document : Texte imprimé et/ou numérique Auteurs : Madeleine DUNCAN, Auteur ; Petrus J. DE VRIES, Auteur Article en page(s) : p.73?83 Mots-clés : autism spectrum disorder education government stakeholder perspectives low- and middle-income countries qualitative research service delivery Index. décimale : PER Périodiques Résumé : Autism spectrum disorder is a growing public health concern in low-and middle-income countries that has prompted a World Health Organization resolution on ?comprehensive and coordinated efforts for management of autism spectrum disorder?. Despite being a signatory of the resolution, South Africa does not have any national policies to guide the management of autism spectrum disorder services. This study explored the perspectives of key government stakeholders on educational and other services for children with autism spectrum disorder in the Western Cape Province of South Africa and their proposed solutions to meet the needs of autistic children and their families. The overarching theme that emerged was ?We are doing damage control?. Government stakeholders acknowledged that autism spectrum disorder services were falling between the ?cracks? caused by competing societal demands on government resources. Participants shared perspectives about autism spectrum disorder services in three categories: a cracked society, siloed service systems and gap-filling strategies. Findings from this study highlighted the need for collaborative efforts between government departments and civil society to develop a strategy for autism spectrum disorder in line with the World Health Organization resolution. Multistakeholder engagement to break down barriers, strengthen systems and develop innovative solutions to improving services for children with autism spectrum disorder and their families is recommended. Lay abstract Autism spectrum disorder is a growing public health concern in low- and middle-income countries like South Africa where there are no plans or policies in place for autism spectrum disorder management. Many children with autism spectrum disorder in South Africa are out of schools and waiting for school placement to become available. This study explored the perspectives of key government stakeholders on educational and other services for children with autism spectrum disorder in the Western Cape Province of South Africa and their suggestion for improving services for these children and their families. Semi-structured interviews were conducted with government stakeholders from the Western Cape Department of Education, Department of Health and the Department of Social development. The main theme that emerged was ?We are doing damage control?. Government stakeholders acknowledged that autism spectrum disorder services were being overlooked because of other demands on government resources. Finding from this study highlighted the need for government departments to work together to develop a strategy for autism spectrum disorder management. Engagement between government and civil society to break down barriers, strengthen systems and develop solutions to improving access to services for children with autism spectrum disorder and their families is recommended. En ligne : https://dx.doi.org/10.1177/13623613221142111 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519
in Autism > 28-1 (January 2024) . - p.73?83[article] ?We are doing damage control?: Government stakeholder perspectives of educational and other services for children with autism spectrum disorder in South Africa [Texte imprimé et/ou numérique] / Madeleine DUNCAN, Auteur ; Petrus J. DE VRIES, Auteur . - p.73?83.
in Autism > 28-1 (January 2024) . - p.73?83
Mots-clés : autism spectrum disorder education government stakeholder perspectives low- and middle-income countries qualitative research service delivery Index. décimale : PER Périodiques Résumé : Autism spectrum disorder is a growing public health concern in low-and middle-income countries that has prompted a World Health Organization resolution on ?comprehensive and coordinated efforts for management of autism spectrum disorder?. Despite being a signatory of the resolution, South Africa does not have any national policies to guide the management of autism spectrum disorder services. This study explored the perspectives of key government stakeholders on educational and other services for children with autism spectrum disorder in the Western Cape Province of South Africa and their proposed solutions to meet the needs of autistic children and their families. The overarching theme that emerged was ?We are doing damage control?. Government stakeholders acknowledged that autism spectrum disorder services were falling between the ?cracks? caused by competing societal demands on government resources. Participants shared perspectives about autism spectrum disorder services in three categories: a cracked society, siloed service systems and gap-filling strategies. Findings from this study highlighted the need for collaborative efforts between government departments and civil society to develop a strategy for autism spectrum disorder in line with the World Health Organization resolution. Multistakeholder engagement to break down barriers, strengthen systems and develop innovative solutions to improving services for children with autism spectrum disorder and their families is recommended. Lay abstract Autism spectrum disorder is a growing public health concern in low- and middle-income countries like South Africa where there are no plans or policies in place for autism spectrum disorder management. Many children with autism spectrum disorder in South Africa are out of schools and waiting for school placement to become available. This study explored the perspectives of key government stakeholders on educational and other services for children with autism spectrum disorder in the Western Cape Province of South Africa and their suggestion for improving services for these children and their families. Semi-structured interviews were conducted with government stakeholders from the Western Cape Department of Education, Department of Health and the Department of Social development. The main theme that emerged was ?We are doing damage control?. Government stakeholders acknowledged that autism spectrum disorder services were being overlooked because of other demands on government resources. Finding from this study highlighted the need for government departments to work together to develop a strategy for autism spectrum disorder management. Engagement between government and civil society to break down barriers, strengthen systems and develop solutions to improving access to services for children with autism spectrum disorder and their families is recommended. En ligne : https://dx.doi.org/10.1177/13623613221142111 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519