116 recherche sur le mot-clé 'qualitative research'

Strategies in supporting inclusive education for autistic students ”A systematic review of qualitative research results / Linda PETERSSON-BLOOM in Autism & Developmental Language Impairments, 7 (January-December 2022)  

Public ISBD [article]  inAutism & Developmental Language Impairments > 7 (January-December 2022) Titre : Strategies in supporting inclusive education for autistic students ”A systematic review of qualitative research results Type de document : Texte imprimé et/ou numérique Auteurs : Linda PETERSSON-BLOOM, Auteur ; Mona HOLMQVIST, Auteur Langues : Anglais (eng) Mots-clés : Autism  inclusive education  strategies in the learning environment  qualitative research Index. décimale : PER Périodiques Résumé : Background and Aim Strategies to modify and adjust the educational setting in mainstream education for autistic students are under-researched. Hence, this review aims to identify qualitative research results of adaptation and modification strategies to support inclusive education for autistic students at school and classroom levels. Method In this systematic review, four databases were searched. Following the preferred PRISMA approach, 108 studies met the inclusion criteria, and study characteristics were reported. Synthesis of key findings from included studies was conducted to provide a more comprehensive and holistic understanding. Main Contribution This article provides insights into a complex area via aggregating findings from qualitative research a comprehensive understanding of the phenomena is presented. The results of the qualitative analysis indicate a focus on teachers’ attitudes and students’ social skills in research. Only 16 studies were at the classroom level, 89 were at the school level, and three studies were not categorized at either classroom or school level. A research gap was identified regarding studies focusing on the perspectives of autistic students, environmental adaptations to meet the students’ sensitivity difficulties, and how to enhance the students’ inclusion regarding content taught and knowledge development from a didactic perspective. Conclusions and Implications Professional development that includes autism-specific understanding and strategies for adjusting and modifying to accommodate autistic students is essential. This conclusion may direct school leaders when implementing professional development programs. A special didactical perspective is needed to support teachers’ understanding of challenges in instruction that autistic students may encounter. En ligne : http://dx.doi.org/10.1177/23969415221123429 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491 [article] Strategies in supporting inclusive education for autistic students ”A systematic review of qualitative research results [Texte imprimé et/ou numérique] / Linda PETERSSON-BLOOM, Auteur ; Mona HOLMQVIST, Auteur. Langues : Anglais (eng) in Autism & Developmental Language Impairments > 7 (January-December 2022) Mots-clés : Autism  inclusive education  strategies in the learning environment  qualitative research Index. décimale : PER Périodiques Résumé : Background and Aim Strategies to modify and adjust the educational setting in mainstream education for autistic students are under-researched. Hence, this review aims to identify qualitative research results of adaptation and modification strategies to support inclusive education for autistic students at school and classroom levels. Method In this systematic review, four databases were searched. Following the preferred PRISMA approach, 108 studies met the inclusion criteria, and study characteristics were reported. Synthesis of key findings from included studies was conducted to provide a more comprehensive and holistic understanding. Main Contribution This article provides insights into a complex area via aggregating findings from qualitative research a comprehensive understanding of the phenomena is presented. The results of the qualitative analysis indicate a focus on teachers’ attitudes and students’ social skills in research. Only 16 studies were at the classroom level, 89 were at the school level, and three studies were not categorized at either classroom or school level. A research gap was identified regarding studies focusing on the perspectives of autistic students, environmental adaptations to meet the students’ sensitivity difficulties, and how to enhance the students’ inclusion regarding content taught and knowledge development from a didactic perspective. Conclusions and Implications Professional development that includes autism-specific understanding and strategies for adjusting and modifying to accommodate autistic students is essential. This conclusion may direct school leaders when implementing professional development programs. A special didactical perspective is needed to support teachers’ understanding of challenges in instruction that autistic students may encounter. En ligne : http://dx.doi.org/10.1177/23969415221123429 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491

A qualitative study of autism services and supports in Singapore: Perspectives of service providers, autistic adults and caregivers / E. HAN in Autism, 25-8 (November 2021)  

Public ISBD [article]  inAutism > 25-8 (November 2021) . - p.2279-2290 Titre : A qualitative study of autism services and supports in Singapore: Perspectives of service providers, autistic adults and caregivers Type de document : Texte imprimé et/ou numérique Auteurs : E. HAN, Auteur ; M. M. J. TAN, Auteur ; L. CRANE, Auteur ; H. LEGIDO-QUIGLEY, Auteur Article en page(s) : p.2279-2290 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/therapy  Autistic Disorder  Caregivers  Humans  Qualitative Research  Singapore  autism services and supports  autistic adults  caregivers  qualitative research  service providers Index. décimale : PER Périodiques Résumé : Because autism is a lifelong and complex condition, autistic people may need a range of supports cutting across different sectors (e.g. health, education and social care) at different stages of their lives. Studies in some countries have shown that autistic people and their families face difficulties accessing the services they need, but no research has been done on this topic in Singapore. To start addressing this gap, we interviewed 21 service providers, autistic adults and caregivers/parents of autistic children to find out their perceptions and experiences of autism services and supports in Singapore. Our participants told us that beyond improving access to autism-specific services, they also hoped to see more flexible supports in an inclusive environment and a broader change in societal attitudes. This study highlights that autism service provision should be informed by autistic voices and not only focus on impairment but also recognise the strengths of autistic people alongside their very real needs. The whole of society - including policymakers, professionals, employers, educators, families and autistic people themselves - needs to work together to fight autism stigma and discrimination. En ligne : http://dx.doi.org/10.1177/13623613211016112 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] A qualitative study of autism services and supports in Singapore: Perspectives of service providers, autistic adults and caregivers [Texte imprimé et/ou numérique] / E. HAN, Auteur ; M. M. J. TAN, Auteur ; L. CRANE, Auteur ; H. LEGIDO-QUIGLEY, Auteur . - p.2279-2290. Langues : Anglais (eng) in Autism > 25-8 (November 2021) . - p.2279-2290 Mots-clés : Adult  Autism Spectrum Disorder/therapy  Autistic Disorder  Caregivers  Humans  Qualitative Research  Singapore  autism services and supports  autistic adults  caregivers  qualitative research  service providers Index. décimale : PER Périodiques Résumé : Because autism is a lifelong and complex condition, autistic people may need a range of supports cutting across different sectors (e.g. health, education and social care) at different stages of their lives. Studies in some countries have shown that autistic people and their families face difficulties accessing the services they need, but no research has been done on this topic in Singapore. To start addressing this gap, we interviewed 21 service providers, autistic adults and caregivers/parents of autistic children to find out their perceptions and experiences of autism services and supports in Singapore. Our participants told us that beyond improving access to autism-specific services, they also hoped to see more flexible supports in an inclusive environment and a broader change in societal attitudes. This study highlights that autism service provision should be informed by autistic voices and not only focus on impairment but also recognise the strengths of autistic people alongside their very real needs. The whole of society - including policymakers, professionals, employers, educators, families and autistic people themselves - needs to work together to fight autism stigma and discrimination. En ligne : http://dx.doi.org/10.1177/13623613211016112 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Anxiety in autistic individuals who speak few or no words: A qualitative study of parental experience and anxiety management / Joanne TARVER in Autism, 25-2 (February 2021)  

Public ISBD [article]  inAutism > 25-2 (February 2021) . - p.429-439 Titre : Anxiety in autistic individuals who speak few or no words: A qualitative study of parental experience and anxiety management Type de document : Texte imprimé et/ou numérique Auteurs : Joanne TARVER, Auteur ; Effie PEARSON, Auteur ; Georgina EDWARDS, Auteur ; Aryana SHIRAZI, Auteur ; Liana POTTER, Auteur ; Priya MALHI, Auteur ; Jane WAITE, Auteur Article en page(s) : p.429-439 Langues : Anglais (eng) Mots-clés : anxiety  autism spectrum disorders  qualitative research Index. décimale : PER Périodiques Résumé : Anxiety is a common condition in autistic individuals, including those who also have an intellectual disability. Despite this, autistic individuals who have severe to profound intellectual disability, or use few or no words, are often excluded from autism research. There are also very few assessment tools and interventions with known effectiveness for autistic individuals with intellectual disability. In this study, we aimed to learn more about parent/carers experiences of recognising and managing anxiety in autistic individuals who use few or no words. We conducted semi-structured interviews with parents and carers to address three research questions: (1) what techniques and management strategies do parents describe for anxiety-related behaviour in their child; (2) how do communication difficulties impact parental understanding and management of anxiety provoking situations and behaviours; (3) what is the impact of anxiety-related behaviours on the quality of life of autistic individuals and their families? During the interviews, parents described difficulties recognising anxiety in their child, mostly due to reduced verbal language use and anxiety behaviours overlapping with other behaviours (e.g. autism characteristics). However, parents also described use of a number of management strategies, including some which overlap with components of evidence-based interventions for emotional and behavioural problems in autistic individuals (e.g. exposure/sensory calming). Despite this, parents reported that anxiety continues to have significant impact on quality of life. We will use the findings of this study to inform future research to develop assessment tools and interventions for anxiety in autistic individuals who use few or no words. En ligne : http://dx.doi.org/10.1177/1362361320962366 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=442 [article] Anxiety in autistic individuals who speak few or no words: A qualitative study of parental experience and anxiety management [Texte imprimé et/ou numérique] / Joanne TARVER, Auteur ; Effie PEARSON, Auteur ; Georgina EDWARDS, Auteur ; Aryana SHIRAZI, Auteur ; Liana POTTER, Auteur ; Priya MALHI, Auteur ; Jane WAITE, Auteur . - p.429-439. Langues : Anglais (eng) in Autism > 25-2 (February 2021) . - p.429-439 Mots-clés : anxiety  autism spectrum disorders  qualitative research Index. décimale : PER Périodiques Résumé : Anxiety is a common condition in autistic individuals, including those who also have an intellectual disability. Despite this, autistic individuals who have severe to profound intellectual disability, or use few or no words, are often excluded from autism research. There are also very few assessment tools and interventions with known effectiveness for autistic individuals with intellectual disability. In this study, we aimed to learn more about parent/carers experiences of recognising and managing anxiety in autistic individuals who use few or no words. We conducted semi-structured interviews with parents and carers to address three research questions: (1) what techniques and management strategies do parents describe for anxiety-related behaviour in their child; (2) how do communication difficulties impact parental understanding and management of anxiety provoking situations and behaviours; (3) what is the impact of anxiety-related behaviours on the quality of life of autistic individuals and their families? During the interviews, parents described difficulties recognising anxiety in their child, mostly due to reduced verbal language use and anxiety behaviours overlapping with other behaviours (e.g. autism characteristics). However, parents also described use of a number of management strategies, including some which overlap with components of evidence-based interventions for emotional and behavioural problems in autistic individuals (e.g. exposure/sensory calming). Despite this, parents reported that anxiety continues to have significant impact on quality of life. We will use the findings of this study to inform future research to develop assessment tools and interventions for anxiety in autistic individuals who use few or no words. En ligne : http://dx.doi.org/10.1177/1362361320962366 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=442

Autism Scientists' Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis / G. HOLLIN in Journal of Autism and Developmental Disorders, 49-3 (March 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.809-818 Titre : Autism Scientists' Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis Type de document : Texte imprimé et/ou numérique Auteurs : G. HOLLIN, Auteur ; W. PEARCE, Auteur Article en page(s) : p.809-818 Langues : Anglais (eng) Mots-clés : Autism advocacy  Ethics  Public engagement  Qualitative research Index. décimale : PER Périodiques Résumé : This article draws upon qualitative interviews in order to examine how UK based research psychologists understand public engagement activities and interactions with autistic advocates. Researchers describe public engagement as difficult and understand these difficulties as stemming from autistic impairments. In particular, it is reported that a heterogeneity of autism impairments means there is little agreement on the form research should take, while socio-communicative impairments make interactions difficult. Conversely, researchers describe autistic individuals as having the capacity to positively influence research. In this paper we discuss the nature of these claims and stress the need for autism-specific modes of engagement to be developed. En ligne : http://dx.doi.org/10.1007/s10803-018-3783-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=385 [article] Autism Scientists' Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis [Texte imprimé et/ou numérique] / G. HOLLIN, Auteur ; W. PEARCE, Auteur . - p.809-818. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.809-818 Mots-clés : Autism advocacy  Ethics  Public engagement  Qualitative research Index. décimale : PER Périodiques Résumé : This article draws upon qualitative interviews in order to examine how UK based research psychologists understand public engagement activities and interactions with autistic advocates. Researchers describe public engagement as difficult and understand these difficulties as stemming from autistic impairments. In particular, it is reported that a heterogeneity of autism impairments means there is little agreement on the form research should take, while socio-communicative impairments make interactions difficult. Conversely, researchers describe autistic individuals as having the capacity to positively influence research. In this paper we discuss the nature of these claims and stress the need for autism-specific modes of engagement to be developed. En ligne : http://dx.doi.org/10.1007/s10803-018-3783-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=385

Barriers to healthcare and a 'triple empathy problem' may lead to adverse outcomes for autistic adults: A qualitative study / Laura CARRAVALLAH ; Mona JOHNSON ; Jane O?SULLIVAN ; Nicholas CHOWN ; Stuart NEILSON ; Mary DOHERTY in Autism, 28-7 (July 2024)  

Public ISBD [article]  inAutism > 28-7 (July 2024) . - p.1746-1757 Titre : Barriers to healthcare and a 'triple empathy problem' may lead to adverse outcomes for autistic adults: A qualitative study Type de document : Texte imprimé et/ou numérique Auteurs : Laura CARRAVALLAH, Auteur ; Mona JOHNSON, Auteur ; Jane O?SULLIVAN, Auteur ; Nicholas CHOWN, Auteur ; Stuart NEILSON, Auteur ; Mary DOHERTY, Auteur Article en page(s) : p.1746-1757 Langues : Anglais (eng) Mots-clés : adults  autism  autistic  epistemic injustice  healthcare  health services  insider research  minority stress theory  qualitative research  triple empathy problem Index. décimale : PER Périodiques Résumé : Autistic people experience more co-occurring health conditions and, on average, die younger than non-autistic people. Despite growing awareness of health inequities, autistic people still report barriers to accessing healthcare. We aimed to explore the experiences of autistic people accessing healthcare, shining a light on the complex interplay of relevant factors and to explain, at least in part, the possible reasons underling health disparities and adverse health outcomes. This is a qualitative study from an autistic research team. Data were collected from 1248 autistic adults as part of a large, mixed-methods, international survey exploring barriers to primary healthcare. This article reports the qualitative findings, following a thematic analysis. Using our exploratory findings, we then constructed a model to explain the reported experiences. Respondents reported a variety of barriers. Here, our article gives voice to their stories, in their own words. Themes included: early barriers; communication mismatch; doubt - in oneself and from doctors; helplessness and fear; and healthcare avoidance and serious adverse health outcomes. Our constructed model outlines a chronological journey through which healthcare access barriers may lead to adverse health outcomes. Our findings also build on the double empathy problem, situating this in a medical context, proposing a triple empathy problem. Lay abstract Autistic people live with more mental and physical health conditions and, on average, die younger than non-autistic people. Despite widespread commitments to tackling these issues, autistic people still report various barriers to accessing healthcare. This article aims to explore the area in depth, from the perspective of autistic people. This research benefits from being led by autistic people, for autistic people - all of the researchers are autistic, and most of us are also medical doctors. Data, in the form of written comments and stories, were collected as part of a large survey. Here, we explored these for common themes and possible deeper meaning within the experiences. People who took part reported a variety of barriers. Here, our article gives voice to their stories, in their own words. Themes included: early barriers; communication mismatch; doubt - in oneself and from doctors; helplessness and fear; and healthcare avoidance and adverse health outcomes. Our findings allowed us to create a model that aimed to understand and explain the reported barriers in the context of the previously known consequences. We also built on wider autism theories to explain our findings in more depth. En ligne : https://dx.doi.org/10.1177/13623613231205629 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=531 [article] Barriers to healthcare and a 'triple empathy problem' may lead to adverse outcomes for autistic adults: A qualitative study [Texte imprimé et/ou numérique] / Laura CARRAVALLAH, Auteur ; Mona JOHNSON, Auteur ; Jane O?SULLIVAN, Auteur ; Nicholas CHOWN, Auteur ; Stuart NEILSON, Auteur ; Mary DOHERTY, Auteur . - p.1746-1757. Langues : Anglais (eng) in Autism > 28-7 (July 2024) . - p.1746-1757 Mots-clés : adults  autism  autistic  epistemic injustice  healthcare  health services  insider research  minority stress theory  qualitative research  triple empathy problem Index. décimale : PER Périodiques Résumé : Autistic people experience more co-occurring health conditions and, on average, die younger than non-autistic people. Despite growing awareness of health inequities, autistic people still report barriers to accessing healthcare. We aimed to explore the experiences of autistic people accessing healthcare, shining a light on the complex interplay of relevant factors and to explain, at least in part, the possible reasons underling health disparities and adverse health outcomes. This is a qualitative study from an autistic research team. Data were collected from 1248 autistic adults as part of a large, mixed-methods, international survey exploring barriers to primary healthcare. This article reports the qualitative findings, following a thematic analysis. Using our exploratory findings, we then constructed a model to explain the reported experiences. Respondents reported a variety of barriers. Here, our article gives voice to their stories, in their own words. Themes included: early barriers; communication mismatch; doubt - in oneself and from doctors; helplessness and fear; and healthcare avoidance and serious adverse health outcomes. Our constructed model outlines a chronological journey through which healthcare access barriers may lead to adverse health outcomes. Our findings also build on the double empathy problem, situating this in a medical context, proposing a triple empathy problem. Lay abstract Autistic people live with more mental and physical health conditions and, on average, die younger than non-autistic people. Despite widespread commitments to tackling these issues, autistic people still report various barriers to accessing healthcare. This article aims to explore the area in depth, from the perspective of autistic people. This research benefits from being led by autistic people, for autistic people - all of the researchers are autistic, and most of us are also medical doctors. Data, in the form of written comments and stories, were collected as part of a large survey. Here, we explored these for common themes and possible deeper meaning within the experiences. People who took part reported a variety of barriers. Here, our article gives voice to their stories, in their own words. Themes included: early barriers; communication mismatch; doubt - in oneself and from doctors; helplessness and fear; and healthcare avoidance and adverse health outcomes. Our findings allowed us to create a model that aimed to understand and explain the reported barriers in the context of the previously known consequences. We also built on wider autism theories to explain our findings in more depth. En ligne : https://dx.doi.org/10.1177/13623613231205629 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=531

Couples' Experiences of Parenting a Child After an Autism Diagnosis: A Qualitative Study / N. DOWNES in Journal of Autism and Developmental Disorders, 51-8 (August 2021)  

Permalink

How pupils on the autism spectrum make sense of themselves in the context of their experiences in a mainstream school setting: A qualitative metasynthesis / E. I. WILLIAMS in Autism, 23-1 (January 2019)  

Permalink

How to improve healthcare for autistic people: A qualitative study of the views of autistic people and clinicians / David MASON in Autism, 25-3 (April 2021)  

Permalink

'It's being a part of a grand tradition, a grand counter-culture which involves communities': A qualitative investigation of autistic community connectedness / Monique BOTHA in Autism, 26-8 (November 2022)  

Permalink

Lived Experiences From the Perspective of Individuals With Autism Spectrum Disorder: A Qualitative Meta-Synthesis / Anne-Marie DEPAPE in Focus on Autism and Other Developmental Disabilities, 31-1 (March 2016)  

Permalink