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Détail de l'auteur
Auteur J. Madison HYER |
Documents disponibles écrits par cet auteur (2)
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Characteristics associated with healthcare independence among autistic adults / Anne LONGO in Research in Autism Spectrum Disorders, 95 (July 2022)
[article]
Titre : Characteristics associated with healthcare independence among autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Anne LONGO, Auteur ; Dan GILMORE, Auteur ; Jennifer GARVIN, Auteur ; J. Madison HYER, Auteur ; Daniel COURY, Auteur ; Christopher HANKS, Auteur ; Susan MOFFATT-BRUCE, Auteur ; Amy HESS, Auteur ; Brittany N. HAND, Auteur Article en page(s) : 101972 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Adults Healthcare independence Healthcare transition Autism Index. décimale : PER Périodiques Résumé : Background Healthcare independence refers to someone?s ability to assume responsibility for their own health and complete tasks like taking medication as prescribed or scheduling healthcare appointments. Prior studies have shown that autistic people tend to need more support with healthcare tasks than people with other chronic conditions. We sought to identify modifiable and non-modifiable factors linked with healthcare independence among autistic adults. Method We conducted a cross-sectional survey to examine how executive functioning skills, restrictive and repetitive behaviors, gender, education, and age were linked with healthcare independence among this population. Participants included: (a) autistic adults (n = 19) who are their own legal guardian, who participated via self-report; and (b) family members of autistic adults with a legal guardian (n = 11), who provided proxy-reports. Results Findings differed between self- and proxy-reports. Among autistic adults who self-reported, difficulties in executive functioning were strongly linked with less healthcare independence. Among proxy-reports, greater restrictive and repetitive behaviors were strongly linked with less healthcare independence. According to the proxy-reports, having not completed high school, being older during the healthcare transition, and being male were all independently linked with less healthcare independence. Conclusions Interventions aimed at supporting executive functioning, providing opportunities to increase independence with healthcare tasks, and reducing the extent to which restrictive and repetitive behaviors interfere with daily activities may be viable options for supporting healthcare independence among autistic adults. Our findings are an important first step for future initiatives to better identify individuals who need additional care coordination, supports, or services to maximize healthcare independence. En ligne : https://doi.org/10.1016/j.rasd.2022.101972 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475
in Research in Autism Spectrum Disorders > 95 (July 2022) . - 101972[article] Characteristics associated with healthcare independence among autistic adults [Texte imprimé et/ou numérique] / Anne LONGO, Auteur ; Dan GILMORE, Auteur ; Jennifer GARVIN, Auteur ; J. Madison HYER, Auteur ; Daniel COURY, Auteur ; Christopher HANKS, Auteur ; Susan MOFFATT-BRUCE, Auteur ; Amy HESS, Auteur ; Brittany N. HAND, Auteur . - 101972.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 95 (July 2022) . - 101972
Mots-clés : Autism spectrum disorder Adults Healthcare independence Healthcare transition Autism Index. décimale : PER Périodiques Résumé : Background Healthcare independence refers to someone?s ability to assume responsibility for their own health and complete tasks like taking medication as prescribed or scheduling healthcare appointments. Prior studies have shown that autistic people tend to need more support with healthcare tasks than people with other chronic conditions. We sought to identify modifiable and non-modifiable factors linked with healthcare independence among autistic adults. Method We conducted a cross-sectional survey to examine how executive functioning skills, restrictive and repetitive behaviors, gender, education, and age were linked with healthcare independence among this population. Participants included: (a) autistic adults (n = 19) who are their own legal guardian, who participated via self-report; and (b) family members of autistic adults with a legal guardian (n = 11), who provided proxy-reports. Results Findings differed between self- and proxy-reports. Among autistic adults who self-reported, difficulties in executive functioning were strongly linked with less healthcare independence. Among proxy-reports, greater restrictive and repetitive behaviors were strongly linked with less healthcare independence. According to the proxy-reports, having not completed high school, being older during the healthcare transition, and being male were all independently linked with less healthcare independence. Conclusions Interventions aimed at supporting executive functioning, providing opportunities to increase independence with healthcare tasks, and reducing the extent to which restrictive and repetitive behaviors interfere with daily activities may be viable options for supporting healthcare independence among autistic adults. Our findings are an important first step for future initiatives to better identify individuals who need additional care coordination, supports, or services to maximize healthcare independence. En ligne : https://doi.org/10.1016/j.rasd.2022.101972 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 Mortality rate and age of death among Medicare-enrolled autistic older adults / Morgan KRANTZ in Research in Autism Spectrum Disorders, 100 (February 2023)
[article]
Titre : Mortality rate and age of death among Medicare-enrolled autistic older adults Type de document : Texte imprimé et/ou numérique Auteurs : Morgan KRANTZ, Auteur ; Djhenne DALMACY, Auteur ; Lauren BISHOP, Auteur ; J. Madison HYER, Auteur ; Brittany N. HAND, Auteur Article en page(s) : 102077 Langues : Anglais (eng) Mots-clés : Autism Older adulthood Survival Mortality Index. décimale : PER Périodiques Résumé : Background An emerging body of evidence suggests that autistic people are at greater risk for mortality than non-autistic people. Yet, relatively little is known about mortality rates among autistic people during older adulthood (i.e., age 65 or older). Methods We examined 5-year mortality among a national US sample of Medicare-enrolled autistic (n = 3308) and non-autistic (n = 33,080) adults aged 65 or older. Results Autistic older adults had 2.87 times greater rate of mortality (95 % CI = 2.61 “3.07) than non-autistic older adults. Among decedents (39.6 % of autistic and 15.1 % of non-autistic older adults), the median age of death was 72 years (IQR = 69 “78) for autistic and 75 years (IQR=70 “83) for non-autistic older adults. Among autistic older adults, those with intellectual disability had 1.57 times greater rate of mortality (95 % CI = 1.41 “1.76) than those without, and males had 1.27 times greater rate of mortality (95 % CI = 1.12 “1.43) than females. Conclusions Many trends regarding mortality observed in younger samples of autistic people were also observed in our study. However, we found only a three-year difference in median age at death between autistic and non-autistic decedents, which is a much smaller disparity than reported in some other studies. This potentially suggests that when autistic people live to the age of 65, they may live to a more similar age as non-autistic peers. En ligne : https://doi.org/10.1016/j.rasd.2022.102077 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491
in Research in Autism Spectrum Disorders > 100 (February 2023) . - 102077[article] Mortality rate and age of death among Medicare-enrolled autistic older adults [Texte imprimé et/ou numérique] / Morgan KRANTZ, Auteur ; Djhenne DALMACY, Auteur ; Lauren BISHOP, Auteur ; J. Madison HYER, Auteur ; Brittany N. HAND, Auteur . - 102077.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 100 (February 2023) . - 102077
Mots-clés : Autism Older adulthood Survival Mortality Index. décimale : PER Périodiques Résumé : Background An emerging body of evidence suggests that autistic people are at greater risk for mortality than non-autistic people. Yet, relatively little is known about mortality rates among autistic people during older adulthood (i.e., age 65 or older). Methods We examined 5-year mortality among a national US sample of Medicare-enrolled autistic (n = 3308) and non-autistic (n = 33,080) adults aged 65 or older. Results Autistic older adults had 2.87 times greater rate of mortality (95 % CI = 2.61 “3.07) than non-autistic older adults. Among decedents (39.6 % of autistic and 15.1 % of non-autistic older adults), the median age of death was 72 years (IQR = 69 “78) for autistic and 75 years (IQR=70 “83) for non-autistic older adults. Among autistic older adults, those with intellectual disability had 1.57 times greater rate of mortality (95 % CI = 1.41 “1.76) than those without, and males had 1.27 times greater rate of mortality (95 % CI = 1.12 “1.43) than females. Conclusions Many trends regarding mortality observed in younger samples of autistic people were also observed in our study. However, we found only a three-year difference in median age at death between autistic and non-autistic decedents, which is a much smaller disparity than reported in some other studies. This potentially suggests that when autistic people live to the age of 65, they may live to a more similar age as non-autistic peers. En ligne : https://doi.org/10.1016/j.rasd.2022.102077 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491