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Détail de l'auteur
Auteur Noemi Alice SPINAZZI |
Documents disponibles écrits par cet auteur (1)
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Autism Spectrum Disorder in Down Syndrome: Experiences from Caregivers / Noemi Alice SPINAZZI in Journal of Autism and Developmental Disorders, 54-3 (March 2024)
[article]
Titre : Autism Spectrum Disorder in Down Syndrome: Experiences from Caregivers Type de document : Texte imprimé et/ou numérique Auteurs : Noemi Alice SPINAZZI, Auteur ; Alyssa Bianca VELASCO, Auteur ; Drew James WODECKI, Auteur ; Lina PATEL, Auteur Article en page(s) : p.1171-1180 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : This study aimed to learn about the experiences of families of individuals with a dual diagnosis of Down syndrome (DS) and autism spectrum disorder (ASD) (DS-ASD), and to document the journey from early concerns to diagnosis and intervention. Caregivers completed an online survey describing their journey raising a child with DS-ASD. Survey responses were analyzed qualitatively and coded into categories to highlight common themes. Stereotypy, severe communication impairments, and behavioral difficulties prompted caregivers to pursue further evaluation. There was a mean 4.65-year gap between first noticing symptoms and receiving an ASD diagnosis. Several therapeutic interventions were identified as beneficial, including behavioral and communication support. Caregivers expressed frustration and described high levels of stress and social isolation. The diagnosis of ASD in children with DS is often delayed, and caregivers' initial concerns are frequently dismissed. Raising a child with DS-ASD can lead to social isolation and elevated caregiver stress. More research is needed to tailor diagnostic algorithms and therapeutic interventions to the unique needs of this patient population. Caregivers yearn for improved understanding of DS-ASD, more targeted therapies and educational programs, and more overall support. En ligne : https://doi.org/10.1007/s10803-022-05758-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1171-1180[article] Autism Spectrum Disorder in Down Syndrome: Experiences from Caregivers [Texte imprimé et/ou numérique] / Noemi Alice SPINAZZI, Auteur ; Alyssa Bianca VELASCO, Auteur ; Drew James WODECKI, Auteur ; Lina PATEL, Auteur . - p.1171-1180.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1171-1180
Index. décimale : PER Périodiques Résumé : This study aimed to learn about the experiences of families of individuals with a dual diagnosis of Down syndrome (DS) and autism spectrum disorder (ASD) (DS-ASD), and to document the journey from early concerns to diagnosis and intervention. Caregivers completed an online survey describing their journey raising a child with DS-ASD. Survey responses were analyzed qualitatively and coded into categories to highlight common themes. Stereotypy, severe communication impairments, and behavioral difficulties prompted caregivers to pursue further evaluation. There was a mean 4.65-year gap between first noticing symptoms and receiving an ASD diagnosis. Several therapeutic interventions were identified as beneficial, including behavioral and communication support. Caregivers expressed frustration and described high levels of stress and social isolation. The diagnosis of ASD in children with DS is often delayed, and caregivers' initial concerns are frequently dismissed. Raising a child with DS-ASD can lead to social isolation and elevated caregiver stress. More research is needed to tailor diagnostic algorithms and therapeutic interventions to the unique needs of this patient population. Caregivers yearn for improved understanding of DS-ASD, more targeted therapies and educational programs, and more overall support. En ligne : https://doi.org/10.1007/s10803-022-05758-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524