Centre d'Information et de documentation du CRA Rhône-Alpes
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Centre d'information et de documentation
du CRA Rhône-Alpes
Centre Hospitalier le Vinatier
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69678 Bron CedexHoraires
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Mention de date : March 2024
Paru le : 01/03/2024 |
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[n° ou bulletin]
[n° ou bulletin] 54-3 - March 2024 [Texte imprimé et/ou numérique] . - 2024. Langues : Anglais (eng)
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Exemplaires (1)
| Code-barres | Cote | Support | Localisation | Section | Disponibilité |
|---|---|---|---|---|---|
| PER0002140 | PER JAD | Périodique | Centre d'Information et de Documentation du CRA Rhône-Alpes | PER - Périodiques | Exclu du prêt |
Dépouillements
Ajouter le résultat dans votre panierSocial-Motor Coordination Between Peers: Joint Action Developmental Trajectories in ASD and TD / Shahar BAR YEHUDA in Journal of Autism and Developmental Disorders, 54-3 (March 2024)
Titre : Social-Motor Coordination Between Peers: Joint Action Developmental Trajectories in ASD and TD Type de document : Texte imprimé et/ou numérique Auteurs : Shahar BAR YEHUDA, Auteur ; Nirit BAUMINGER-ZVIELY, Auteur Article en page(s) : p.811-828 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Coordinating a physical movement in time and space with social and nonsocial partners to achieve a shared goal - "joint action" (JA) - characterizes many peer-engagement situations that pose challenges for individuals with autism spectrum disorder (ASD). This cross-sectional study examined development of JA capabilities comparing ASD versus typically developing (TD) groups in early childhood, preadolescence, and adolescence while performing mirroring and complementing JA tasks with social (peer) and nonsocial (computer) partners. Results indicated better motor coordination abilities on computerized tasks than in peer dyads, with larger peer-dyad deficits shown by the ASD group. Developmental growth in JA abilities emerged, but the ASD group lagged behind same-age peers with TD. Socio-motor interventions may offer new channels to facilitate peer engagement in ASD. En ligne : https://doi.org/10.1007/s10803-022-05851-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.811-828[article] Social-Motor Coordination Between Peers: Joint Action Developmental Trajectories in ASD and TD [Texte imprimé et/ou numérique] / Shahar BAR YEHUDA, Auteur ; Nirit BAUMINGER-ZVIELY, Auteur . - p.811-828.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.811-828
Index. décimale : PER Périodiques Résumé : Coordinating a physical movement in time and space with social and nonsocial partners to achieve a shared goal - "joint action" (JA) - characterizes many peer-engagement situations that pose challenges for individuals with autism spectrum disorder (ASD). This cross-sectional study examined development of JA capabilities comparing ASD versus typically developing (TD) groups in early childhood, preadolescence, and adolescence while performing mirroring and complementing JA tasks with social (peer) and nonsocial (computer) partners. Results indicated better motor coordination abilities on computerized tasks than in peer dyads, with larger peer-dyad deficits shown by the ASD group. Developmental growth in JA abilities emerged, but the ASD group lagged behind same-age peers with TD. Socio-motor interventions may offer new channels to facilitate peer engagement in ASD. En ligne : https://doi.org/10.1007/s10803-022-05851-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Associations Between Parenting Stress and Quality Time in Families of Youth with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Rebecca S. BRADLEY, Auteur ; Grace L. STAPLES, Auteur ; Lauren B. QUETSCH, Auteur ; Lindsey S. ALOIA, Auteur ; Cynthia E. BROWN, Auteur ; Stephen M. KANNE, Auteur Article en page(s) : p.829-840 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Increased stress among parents of youth with ASD has been well-documented. However, research on aspects of the parent-child relationship and subsequent links to parenting stress is limited. We assessed parents (N = 511) of youth with ASD to examine relations between parenting stress and parent-child quality time (amount of quality time, shared enjoyment, synchronicity). Elevated parenting stress was associated with less time spent engaging with youth in shared activities and decreased parent and child enjoyment during shared interactions. Parents with elevated stress reported engaging in shared activities and experiencing synchronicity with their child less often than parents below the clinical threshold. Future research should emphasize longitudinal efforts examining the directionality of this relationship to better inform family-focused intervention. En ligne : https://doi.org/10.1007/s10803-022-05852-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.829-840[article] Associations Between Parenting Stress and Quality Time in Families of Youth with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Rebecca S. BRADLEY, Auteur ; Grace L. STAPLES, Auteur ; Lauren B. QUETSCH, Auteur ; Lindsey S. ALOIA, Auteur ; Cynthia E. BROWN, Auteur ; Stephen M. KANNE, Auteur . - p.829-840.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.829-840
Index. décimale : PER Périodiques Résumé : Increased stress among parents of youth with ASD has been well-documented. However, research on aspects of the parent-child relationship and subsequent links to parenting stress is limited. We assessed parents (N = 511) of youth with ASD to examine relations between parenting stress and parent-child quality time (amount of quality time, shared enjoyment, synchronicity). Elevated parenting stress was associated with less time spent engaging with youth in shared activities and decreased parent and child enjoyment during shared interactions. Parents with elevated stress reported engaging in shared activities and experiencing synchronicity with their child less often than parents below the clinical threshold. Future research should emphasize longitudinal efforts examining the directionality of this relationship to better inform family-focused intervention. En ligne : https://doi.org/10.1007/s10803-022-05852-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Developmental Language Differences in Children with Autism Spectrum Disorders and Possible Sex Difference Type de document : Texte imprimé et/ou numérique Auteurs : Haiyi XIONG, Auteur ; Xiao LIU, Auteur ; Feng YANG, Auteur ; Ting YANG, Auteur ; Jinjin CHEN, Auteur ; Jie CHEN, Auteur ; Tingyu LI, Auteur Article en page(s) : p.841-851 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Developmental difference is a common characteristic of autism spectrum disorder (ASD) with unclear sex differences. The current study included 610 children with ASD, aged between 2 and 7 years, with completed language profiles. We used a nonparametric item response theory model called Mokken scale analysis to examine the order of acquisition of developmental language milestones in children with ASD. Our results demonstrated the developmental language differences in the expressive and receptive language dimensions in children with ASD compared with typical developmental sequences. Furthermore, The acquisition of gestures and pragmatics was more impaired in the female subgroup than in the male subgroup. The identified developmental language sequence could help provide a more comprehensive ASD developmental profile. En ligne : https://doi.org/10.1007/s10803-022-05806-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.841-851[article] Developmental Language Differences in Children with Autism Spectrum Disorders and Possible Sex Difference [Texte imprimé et/ou numérique] / Haiyi XIONG, Auteur ; Xiao LIU, Auteur ; Feng YANG, Auteur ; Ting YANG, Auteur ; Jinjin CHEN, Auteur ; Jie CHEN, Auteur ; Tingyu LI, Auteur . - p.841-851.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.841-851
Index. décimale : PER Périodiques Résumé : Developmental difference is a common characteristic of autism spectrum disorder (ASD) with unclear sex differences. The current study included 610 children with ASD, aged between 2 and 7 years, with completed language profiles. We used a nonparametric item response theory model called Mokken scale analysis to examine the order of acquisition of developmental language milestones in children with ASD. Our results demonstrated the developmental language differences in the expressive and receptive language dimensions in children with ASD compared with typical developmental sequences. Furthermore, The acquisition of gestures and pragmatics was more impaired in the female subgroup than in the male subgroup. The identified developmental language sequence could help provide a more comprehensive ASD developmental profile. En ligne : https://doi.org/10.1007/s10803-022-05806-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Implementation of a Peer-Mediated Intervention to Teach Behavioral Expectations for Two Students on Autism Spectrum and a Student with ADHD in an Inclusive Elementary Classroom in Taiwan Type de document : Texte imprimé et/ou numérique Auteurs : Yu-Ling CHEN, Auteur Article en page(s) : p.852-870 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : One of the characteristics of individuals on the autism spectrum is the restricted, repetitive patterns of behaviors, interests, or activities which have been considered the result of a direct deficit in self-regulation skills. Peer-mediated intervention (PMI) is one of the ways to support young children on the autism spectrum for following school routines independently. PMI is an evidence-based practice based on behavioral principles to train typical peers to help with students on the autism spectrum. By using PMI, students on the autism spectrum can have more interaction opportunities with typical peers. Students on the autism spectrum can become less dependent on adult support to complete the expectations independently or with peers' support. The aim of this study is to use PMI to support students with autism and ADHD aged 7-8 in a regular classroom to complete the behavioral expectations in Taiwan. This study used a multiple probe design across three participants to determine the effects of the intervention. The researchers trained seven typically developing peers on how to prompt and reinforce the target children. This study took both peers and target children?s data. The data shows a positive result for target children to follow the expectations independently and most peer models can prompt and reinforce the target children after being trained. Our study has extended the effectiveness and usage of PMI in teaching behavioral expectations in Taiwan. En ligne : https://doi.org/10.1007/s10803-022-05873-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.852-870[article] Implementation of a Peer-Mediated Intervention to Teach Behavioral Expectations for Two Students on Autism Spectrum and a Student with ADHD in an Inclusive Elementary Classroom in Taiwan [Texte imprimé et/ou numérique] / Yu-Ling CHEN, Auteur . - p.852-870.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.852-870
Index. décimale : PER Périodiques Résumé : One of the characteristics of individuals on the autism spectrum is the restricted, repetitive patterns of behaviors, interests, or activities which have been considered the result of a direct deficit in self-regulation skills. Peer-mediated intervention (PMI) is one of the ways to support young children on the autism spectrum for following school routines independently. PMI is an evidence-based practice based on behavioral principles to train typical peers to help with students on the autism spectrum. By using PMI, students on the autism spectrum can have more interaction opportunities with typical peers. Students on the autism spectrum can become less dependent on adult support to complete the expectations independently or with peers' support. The aim of this study is to use PMI to support students with autism and ADHD aged 7-8 in a regular classroom to complete the behavioral expectations in Taiwan. This study used a multiple probe design across three participants to determine the effects of the intervention. The researchers trained seven typically developing peers on how to prompt and reinforce the target children. This study took both peers and target children?s data. The data shows a positive result for target children to follow the expectations independently and most peer models can prompt and reinforce the target children after being trained. Our study has extended the effectiveness and usage of PMI in teaching behavioral expectations in Taiwan. En ligne : https://doi.org/10.1007/s10803-022-05873-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Parents' Perceptions: Environments and the Contextual Strategies of Parents to Support the Participation of Children and Adolescents with Autism Spectrum Disorder-A Descriptive Population-Based Study from Switzerland Type de document : Texte imprimé et/ou numérique Auteurs : Beate KRIEGER, Auteur ; Albine MOSER, Auteur ; Thomas MORGENTHALER, Auteur ; Anna J. H. M. BEURSKENS, Auteur ; Barbara PI?KUR, Auteur Article en page(s) : p.871-893 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Environments have a modifying effect on the participation of children and adolescents with autism spectrum disorder (ASD) in all areas of life. This cross-sectional study investigated parental perspectives on supportive or hindering environments and the daily contextual strategies parents used to enhance their children?s participation. Qualitative and quantitative data gathered from 115 parents from German-speaking Switzerland using the participation and environment measure-child and youth (PEM-CY) were analyzed. Results revealed 45 environmental supports and barriers at home, at school, and in the community. Contextual strategies were identified in combination with people, activities, time, objects, and places. Parental perspectives on participation and their contextual strategies should be considered in environmental-based interventions to support the participation of children and adolescents with ASD. En ligne : https://doi.org/10.1007/s10803-022-05826-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.871-893[article] Parents' Perceptions: Environments and the Contextual Strategies of Parents to Support the Participation of Children and Adolescents with Autism Spectrum Disorder-A Descriptive Population-Based Study from Switzerland [Texte imprimé et/ou numérique] / Beate KRIEGER, Auteur ; Albine MOSER, Auteur ; Thomas MORGENTHALER, Auteur ; Anna J. H. M. BEURSKENS, Auteur ; Barbara PI?KUR, Auteur . - p.871-893.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.871-893
Index. décimale : PER Périodiques Résumé : Environments have a modifying effect on the participation of children and adolescents with autism spectrum disorder (ASD) in all areas of life. This cross-sectional study investigated parental perspectives on supportive or hindering environments and the daily contextual strategies parents used to enhance their children?s participation. Qualitative and quantitative data gathered from 115 parents from German-speaking Switzerland using the participation and environment measure-child and youth (PEM-CY) were analyzed. Results revealed 45 environmental supports and barriers at home, at school, and in the community. Contextual strategies were identified in combination with people, activities, time, objects, and places. Parental perspectives on participation and their contextual strategies should be considered in environmental-based interventions to support the participation of children and adolescents with ASD. En ligne : https://doi.org/10.1007/s10803-022-05826-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Effects of Bumetanide on Neurocognitive Functioning in Children with Autism Spectrum Disorder: Secondary Analysis of a Randomized Placebo-Controlled Trial Type de document : Texte imprimé et/ou numérique Auteurs : Dorinde M. VAN ANDEL, Auteur ; Jan J. SPRENGERS, Auteur ; Marsh KÖNIGS, Auteur ; Maretha V. DE JONGE, Auteur ; Hilgo BRUINING, Auteur Article en page(s) : p.894-904 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : We present the secondary-analysis of neurocognitive tests in the 'Bumetanide in Autism Medication and Biomarker' (BAMBI;EUDRA-CT-2014-001560-35) study, a randomized double-blind placebo-controlled (1:1) trial testing 3-months bumetanide treatment (??1 mg twice-daily) in unmedicated children 7-15 years with ASD. Children with IQ???70 were analyzed for baseline deficits and treatment-effects on the intention-to-treat-population with generalized-linear-models, principal component analysis and network analysis. Ninety-two children were allocated to treatment and 83 eligible for analyses. Heterogeneous neurocognitive impairments were found that were unaffected by bumetanide treatment. Network analysis showed higher modularity after treatment (mean difference:-0.165, 95%CI:-0.317 to ??0.013,p = .034) and changes in the relative importance of response inhibition in the neurocognitive network (mean difference:-0.037, 95%CI:-0.073 to ??0.001,p = .042). This study offers perspectives to include neurocognitive tests in ASD trials. En ligne : https://doi.org/10.1007/s10803-022-05841-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.894-904[article] Effects of Bumetanide on Neurocognitive Functioning in Children with Autism Spectrum Disorder: Secondary Analysis of a Randomized Placebo-Controlled Trial [Texte imprimé et/ou numérique] / Dorinde M. VAN ANDEL, Auteur ; Jan J. SPRENGERS, Auteur ; Marsh KÖNIGS, Auteur ; Maretha V. DE JONGE, Auteur ; Hilgo BRUINING, Auteur . - p.894-904.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.894-904
Index. décimale : PER Périodiques Résumé : We present the secondary-analysis of neurocognitive tests in the 'Bumetanide in Autism Medication and Biomarker' (BAMBI;EUDRA-CT-2014-001560-35) study, a randomized double-blind placebo-controlled (1:1) trial testing 3-months bumetanide treatment (??1 mg twice-daily) in unmedicated children 7-15 years with ASD. Children with IQ???70 were analyzed for baseline deficits and treatment-effects on the intention-to-treat-population with generalized-linear-models, principal component analysis and network analysis. Ninety-two children were allocated to treatment and 83 eligible for analyses. Heterogeneous neurocognitive impairments were found that were unaffected by bumetanide treatment. Network analysis showed higher modularity after treatment (mean difference:-0.165, 95%CI:-0.317 to ??0.013,p = .034) and changes in the relative importance of response inhibition in the neurocognitive network (mean difference:-0.037, 95%CI:-0.073 to ??0.001,p = .042). This study offers perspectives to include neurocognitive tests in ASD trials. En ligne : https://doi.org/10.1007/s10803-022-05841-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Pre- and Perinatal Risk Factors for Youth with Autism Spectrum Disorder Versus Youth with Other Mental Health Disorders Type de document : Texte imprimé et/ou numérique Auteurs : R. Enrique VARELA, Auteur ; Emily VINET, Auteur ; Jodi KAMPS, Auteur ; Laura NIDITCH, Auteur Article en page(s) : p.905-914 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Research has linked pre- and perinatal complications (PPCs) with increased risk for autism spectrum disorder (ASD). However, PPCs are also known risk factors for other mental health disorders. This study explored which PPCs are specific risk factors for ASD, as opposed to other forms of psychopathology, among a large sample of clinically-referred youth. Archival data were used from 1177 youth who were evaluated at a hospital-based autism clinic. Results from logistic regressions indicated that use of tobacco, alcohol, or drugs, or experiencing amniocentesis predicted inclusion in the non-ASD group, while physical difficulties with delivery predicted inclusion in the ASD group. Possible explanations and implications for these findings are discussed. En ligne : https://doi.org/10.1007/s10803-022-05888-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.905-914[article] Pre- and Perinatal Risk Factors for Youth with Autism Spectrum Disorder Versus Youth with Other Mental Health Disorders [Texte imprimé et/ou numérique] / R. Enrique VARELA, Auteur ; Emily VINET, Auteur ; Jodi KAMPS, Auteur ; Laura NIDITCH, Auteur . - p.905-914.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.905-914
Index. décimale : PER Périodiques Résumé : Research has linked pre- and perinatal complications (PPCs) with increased risk for autism spectrum disorder (ASD). However, PPCs are also known risk factors for other mental health disorders. This study explored which PPCs are specific risk factors for ASD, as opposed to other forms of psychopathology, among a large sample of clinically-referred youth. Archival data were used from 1177 youth who were evaluated at a hospital-based autism clinic. Results from logistic regressions indicated that use of tobacco, alcohol, or drugs, or experiencing amniocentesis predicted inclusion in the non-ASD group, while physical difficulties with delivery predicted inclusion in the ASD group. Possible explanations and implications for these findings are discussed. En ligne : https://doi.org/10.1007/s10803-022-05888-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Factors Predicting Poor Mental and Physical Health in Parents of Children with Autism Spectrum Disorder: Results from 2016 to 2019 National Survey of Children?s Health Type de document : Texte imprimé et/ou numérique Auteurs : Jiwon LEE, Auteur ; Brian BARGER, Auteur Article en page(s) : p.915-930 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Although poor health has been reported in parents of children with autism spectrum disorder (ASD), most studies excluded fathers and focused on mental health. We combined 2016-2019 data from the National Surveys of Children?s Health to determine child and parent characteristics that predict poor mental and physical health in fathers (n = 818) and mothers (n = 2111) of children with ASD. For fathers of children with ASD, higher parenting stress was significantly associated with greater odds of poor physical health, whereas racial and ethnic minorities and living at 400% above the federal poverty were significantly associated with lower odds of poor mental health. For mothers of children with ASD, greater child sleep problems were significantly associated with greater odds of poor physical health, and two-parent household living 400% above the poverty line was significantly associated with reported lower odds of poor mental health. Continued efforts to reduce parenting stress and improve child sleep problems, along with expanding existing services and coverages of ASD services, especially for low-income families, may help reduce the burden on these families, preventing adverse future health outcomes in this population. En ligne : https://doi.org/10.1007/s10803-022-05870-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.915-930[article] Factors Predicting Poor Mental and Physical Health in Parents of Children with Autism Spectrum Disorder: Results from 2016 to 2019 National Survey of Children?s Health [Texte imprimé et/ou numérique] / Jiwon LEE, Auteur ; Brian BARGER, Auteur . - p.915-930.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.915-930
Index. décimale : PER Périodiques Résumé : Although poor health has been reported in parents of children with autism spectrum disorder (ASD), most studies excluded fathers and focused on mental health. We combined 2016-2019 data from the National Surveys of Children?s Health to determine child and parent characteristics that predict poor mental and physical health in fathers (n = 818) and mothers (n = 2111) of children with ASD. For fathers of children with ASD, higher parenting stress was significantly associated with greater odds of poor physical health, whereas racial and ethnic minorities and living at 400% above the federal poverty were significantly associated with lower odds of poor mental health. For mothers of children with ASD, greater child sleep problems were significantly associated with greater odds of poor physical health, and two-parent household living 400% above the poverty line was significantly associated with reported lower odds of poor mental health. Continued efforts to reduce parenting stress and improve child sleep problems, along with expanding existing services and coverages of ASD services, especially for low-income families, may help reduce the burden on these families, preventing adverse future health outcomes in this population. En ligne : https://doi.org/10.1007/s10803-022-05870-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Screening, Diagnosis, and Intervention for Autism: Experiences of Black and Multiracial Families Seeking Care Type de document : Texte imprimé et/ou numérique Auteurs : Amy S. WEITLAUF, Auteur ; Alexandra MICELI, Auteur ; Alison VEHORN, Auteur ; Yewande DADA, Auteur ; Theodora PINNOCK, Auteur ; Joyce W. HARRIS, Auteur ; Jeffrey HINE, Auteur ; Zachary WARREN, Auteur Article en page(s) : p.931-942 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Purpose: Despite advances in screening and awareness, Black and multiracial families continue to experience challenges when seeking an autism diagnosis for their children. Methods: We surveyed 400 Black and multiracial families of young children with autism from an existing research database in the United States about their retrospective diagnostic experiences. We gathered quantitative and qualitative data and engaged in iterative coding to understand timing and content of first concerns, families' experiences of care providers and systems, and the impact of race and culture on accessing care. Results: Families provided examples of early developmental concern and described provider, systemic, and cultural barriers and facilitators to care. Families also provided insight into the influence of culture and made recommendations on how the medical system could better care for Black and multiracial families of children with autism. Conclusions: Results add to a growing body of literature supporting the need for culturally sensitive and accessible care related to developmental monitoring, diagnosis, and follow-up care for Black and multiracial children. En ligne : https://doi.org/10.1007/s10803-022-05861-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.931-942[article] Screening, Diagnosis, and Intervention for Autism: Experiences of Black and Multiracial Families Seeking Care [Texte imprimé et/ou numérique] / Amy S. WEITLAUF, Auteur ; Alexandra MICELI, Auteur ; Alison VEHORN, Auteur ; Yewande DADA, Auteur ; Theodora PINNOCK, Auteur ; Joyce W. HARRIS, Auteur ; Jeffrey HINE, Auteur ; Zachary WARREN, Auteur . - p.931-942.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.931-942
Index. décimale : PER Périodiques Résumé : Purpose: Despite advances in screening and awareness, Black and multiracial families continue to experience challenges when seeking an autism diagnosis for their children. Methods: We surveyed 400 Black and multiracial families of young children with autism from an existing research database in the United States about their retrospective diagnostic experiences. We gathered quantitative and qualitative data and engaged in iterative coding to understand timing and content of first concerns, families' experiences of care providers and systems, and the impact of race and culture on accessing care. Results: Families provided examples of early developmental concern and described provider, systemic, and cultural barriers and facilitators to care. Families also provided insight into the influence of culture and made recommendations on how the medical system could better care for Black and multiracial families of children with autism. Conclusions: Results add to a growing body of literature supporting the need for culturally sensitive and accessible care related to developmental monitoring, diagnosis, and follow-up care for Black and multiracial children. En ligne : https://doi.org/10.1007/s10803-022-05861-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Factors Impacting Parental Quality of Life in Preschool Children on the Autism Spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Valsamma EAPEN, Auteur ; Raisa ISLAM, Auteur ; Syeda Ishra AZIM, Auteur ; Anne MASI, Auteur ; Louis KLEIN, Auteur ; Lisa KARLOV, Auteur Article en page(s) : p.943-954 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : This study examined connections between parental quality of life (QoL) and features of children (autism severity, cognitive ability, behavioral profile, and sociodemographic factors). Parents of 97 children attending an autism-specific preschool completed the Quality of Life in Autism, Vineland Adaptive Behavior Scales and Child Behavior Checklist. The Autism Diagnostic Observation Schedule and Mullen Scales of Early Learning were also administered. Reduced restrictive/repetitive behavior and higher socialization and play/leisure scores were associated with better parental QoL. Better behavioral regulation and attention also predicted better QoL, as did stronger communication and reduced internalising behaviours. Findings indicate that a child?s level of autism specific traits, adaptive functioning and behavioral profile has greater impact on parental QoL than cognitive level. En ligne : https://doi.org/10.1007/s10803-022-05848-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.943-954[article] Factors Impacting Parental Quality of Life in Preschool Children on the Autism Spectrum [Texte imprimé et/ou numérique] / Valsamma EAPEN, Auteur ; Raisa ISLAM, Auteur ; Syeda Ishra AZIM, Auteur ; Anne MASI, Auteur ; Louis KLEIN, Auteur ; Lisa KARLOV, Auteur . - p.943-954.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.943-954
Index. décimale : PER Périodiques Résumé : This study examined connections between parental quality of life (QoL) and features of children (autism severity, cognitive ability, behavioral profile, and sociodemographic factors). Parents of 97 children attending an autism-specific preschool completed the Quality of Life in Autism, Vineland Adaptive Behavior Scales and Child Behavior Checklist. The Autism Diagnostic Observation Schedule and Mullen Scales of Early Learning were also administered. Reduced restrictive/repetitive behavior and higher socialization and play/leisure scores were associated with better parental QoL. Better behavioral regulation and attention also predicted better QoL, as did stronger communication and reduced internalising behaviours. Findings indicate that a child?s level of autism specific traits, adaptive functioning and behavioral profile has greater impact on parental QoL than cognitive level. En ligne : https://doi.org/10.1007/s10803-022-05848-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Male and Female Toddlers with DSM-5 Autism Spectrum Disorder have Similar Developmental Profiles and Core Autism Symptoms Type de document : Texte imprimé et/ou numérique Auteurs : Holly K. HARRIS, Auteur ; Georgios D. SIDERIDIS, Auteur ; William J. BARBARESI, Auteur ; Elizabeth HARSTAD, Auteur Article en page(s) : p.955-962 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Compare developmental profiles and core ASD symptom manifestation between male and female toddlers with DSM-5 ASD. Retrospective record review of 500 toddlers (79% male) at time of ASD diagnosis. There were no differences in developmental functioning between males and females. When adjusting for multiple comparisons, sex differences were only noted for sensory seeking behavior occurring at a higher frequency in females. Overall, there were no significant differences in demographic characteristics, developmental functioning, or manifestation of core ASD symptoms between males versus female toddlers at the time of DSM-5 ASD diagnosis. En ligne : https://doi.org/10.1007/s10803-022-05874-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.955-962[article] Male and Female Toddlers with DSM-5 Autism Spectrum Disorder have Similar Developmental Profiles and Core Autism Symptoms [Texte imprimé et/ou numérique] / Holly K. HARRIS, Auteur ; Georgios D. SIDERIDIS, Auteur ; William J. BARBARESI, Auteur ; Elizabeth HARSTAD, Auteur . - p.955-962.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.955-962
Index. décimale : PER Périodiques Résumé : Compare developmental profiles and core ASD symptom manifestation between male and female toddlers with DSM-5 ASD. Retrospective record review of 500 toddlers (79% male) at time of ASD diagnosis. There were no differences in developmental functioning between males and females. When adjusting for multiple comparisons, sex differences were only noted for sensory seeking behavior occurring at a higher frequency in females. Overall, there were no significant differences in demographic characteristics, developmental functioning, or manifestation of core ASD symptoms between males versus female toddlers at the time of DSM-5 ASD diagnosis. En ligne : https://doi.org/10.1007/s10803-022-05874-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Use of ECT in Autism Spectrum Disorder and/or Intellectual Disability: A Single Site Retrospective Analysis Type de document : Texte imprimé et/ou numérique Auteurs : Joshua R. SMITH, Auteur ; Corey E. HOPKINS, Auteur ; Jiangmei XIONG, Auteur ; James LUCCARELLI, Auteur ; Elizabeth SHULTZ, Auteur ; Simon VANDEKAR, Auteur Article en page(s) : p.963-982 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) and intellectual disability (ID) are heterogenous and prevalent conditions which may occur in isolation or as a co-morbidity. Psychiatric co-morbidity is common with limited treatment options. Preliminary research into electroconvulsive therapy (ECT) for these conditions has been encouraging. Thus, further research in this patient population is warranted. We conducted a 10-year retrospective review of the electronic medical record and identified intellectually capable individuals with ASD (IC-ASD), and those with ASD+ID or ID who received at least three ECT treatments. 32 patients were identified of which 30 (94%) experienced positive clinical response, defined as a clinical global impression-improvement (CGI-I) score of 3 or less. The average retrospective CGI-I score across all groups was 1.97, and results of a t-test performed on CGI-I scores indicated improvement across all groups [t = ? 16.54, df = 31, p<0.001, 95% CI = (1.72, 2.22)]. No significant adverse events were identified based on clinical documentation. Our findings further support previous ECT research in this patient population. En ligne : https://doi.org/10.1007/s10803-022-05868-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.963-982[article] Use of ECT in Autism Spectrum Disorder and/or Intellectual Disability: A Single Site Retrospective Analysis [Texte imprimé et/ou numérique] / Joshua R. SMITH, Auteur ; Corey E. HOPKINS, Auteur ; Jiangmei XIONG, Auteur ; James LUCCARELLI, Auteur ; Elizabeth SHULTZ, Auteur ; Simon VANDEKAR, Auteur . - p.963-982.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.963-982
Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) and intellectual disability (ID) are heterogenous and prevalent conditions which may occur in isolation or as a co-morbidity. Psychiatric co-morbidity is common with limited treatment options. Preliminary research into electroconvulsive therapy (ECT) for these conditions has been encouraging. Thus, further research in this patient population is warranted. We conducted a 10-year retrospective review of the electronic medical record and identified intellectually capable individuals with ASD (IC-ASD), and those with ASD+ID or ID who received at least three ECT treatments. 32 patients were identified of which 30 (94%) experienced positive clinical response, defined as a clinical global impression-improvement (CGI-I) score of 3 or less. The average retrospective CGI-I score across all groups was 1.97, and results of a t-test performed on CGI-I scores indicated improvement across all groups [t = ? 16.54, df = 31, p<0.001, 95% CI = (1.72, 2.22)]. No significant adverse events were identified based on clinical documentation. Our findings further support previous ECT research in this patient population. En ligne : https://doi.org/10.1007/s10803-022-05868-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Caregiver Attributions of Toddlers' Behaviors: A Comparison Between Groups of Children with Differing Developmental Concerns Type de document : Texte imprimé et/ou numérique Auteurs : Daina M. TAGAVI, Auteur ; Hannah R. BENAVIDEZ, Auteur ; Taylor C. KALMUS, Auteur ; Carlyn C. PERRYMAN, Auteur ; Wendy L. STONE, Auteur Article en page(s) : p.983-996 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Little is known about the attributional patterns of caregivers of autistic children, particularly in relation to caregivers of children with other developmental or behavioral disorders. This study examined differences in caregiver attributions of child behavior between three groups: toddlers with (1) Autism spectrum disorder (ASD) or ASD concerns; (2) Other developmental concerns; and (3) No concerns. Qualitative descriptions of actual child behaviors were coded using a three-stage content analysis. Regression analyses were utilized to determine if group membership predicted types of positive and challenging behaviors caregivers endorsed, as well as their attributions of these behaviors. Caregivers of children with ASD or ASD concerns endorsed similar types of behaviors, but rated their child?s positive behaviors as less characteristic of their child and more a function of the particular situation, less stable or permanent, and less controllable as compared to caregivers of toddlers with other developmental or no concerns. Additionally, they rated their child?s challenging behaviors as more stable or permanent and less controllable as compared to caregivers of toddlers with other developmental concerns or no concerns. These findings suggest that caregivers of children with ASD and ASD related concerns may be vulnerable to a negative attributional pattern, which can have important implications for child and family functioning and overall quality of life. En ligne : https://doi.org/10.1007/s10803-022-05879-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.983-996[article] Caregiver Attributions of Toddlers' Behaviors: A Comparison Between Groups of Children with Differing Developmental Concerns [Texte imprimé et/ou numérique] / Daina M. TAGAVI, Auteur ; Hannah R. BENAVIDEZ, Auteur ; Taylor C. KALMUS, Auteur ; Carlyn C. PERRYMAN, Auteur ; Wendy L. STONE, Auteur . - p.983-996.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.983-996
Index. décimale : PER Périodiques Résumé : Little is known about the attributional patterns of caregivers of autistic children, particularly in relation to caregivers of children with other developmental or behavioral disorders. This study examined differences in caregiver attributions of child behavior between three groups: toddlers with (1) Autism spectrum disorder (ASD) or ASD concerns; (2) Other developmental concerns; and (3) No concerns. Qualitative descriptions of actual child behaviors were coded using a three-stage content analysis. Regression analyses were utilized to determine if group membership predicted types of positive and challenging behaviors caregivers endorsed, as well as their attributions of these behaviors. Caregivers of children with ASD or ASD concerns endorsed similar types of behaviors, but rated their child?s positive behaviors as less characteristic of their child and more a function of the particular situation, less stable or permanent, and less controllable as compared to caregivers of toddlers with other developmental or no concerns. Additionally, they rated their child?s challenging behaviors as more stable or permanent and less controllable as compared to caregivers of toddlers with other developmental concerns or no concerns. These findings suggest that caregivers of children with ASD and ASD related concerns may be vulnerable to a negative attributional pattern, which can have important implications for child and family functioning and overall quality of life. En ligne : https://doi.org/10.1007/s10803-022-05879-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : A Pilot Study on the Effect of Peer Support on Quality of Life of Adolescents with Autism Spectrum Disorder and Gender Dysphoria Type de document : Texte imprimé et/ou numérique Auteurs : T. BRANDSMA, Auteur ; K. VISSER, Auteur ; J. J. G. VOLK, Auteur ; A. Balleur van RIJN, Auteur ; L. P. DEKKER, Auteur Article en page(s) : p.997-1008 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Gender dysphoria (GD) and Autism Spectrum Disorder (ASD) co-occur relatively often, but there is no evidence-based treatment for this specific group. Therefore, we examined the effects of a group intervention for adolescents with ASD and GD in a pilot study with a pre-post-test design. The adolescents completed questionnaires on quality of life, self-esteem, gender dysphoric feelings, and social responsiveness. Results show that participating in this peer support group seems to increase aspects of quality of life, i.e., increased parent-reported psychological well-being and decreased psychological complaints. Even though more research is needed, these results indicate that peer support is an invaluable part of treatment for adolescents with ASD and GD. En ligne : https://doi.org/10.1007/s10803-022-05832-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.997-1008[article] A Pilot Study on the Effect of Peer Support on Quality of Life of Adolescents with Autism Spectrum Disorder and Gender Dysphoria [Texte imprimé et/ou numérique] / T. BRANDSMA, Auteur ; K. VISSER, Auteur ; J. J. G. VOLK, Auteur ; A. Balleur van RIJN, Auteur ; L. P. DEKKER, Auteur . - p.997-1008.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.997-1008
Index. décimale : PER Périodiques Résumé : Gender dysphoria (GD) and Autism Spectrum Disorder (ASD) co-occur relatively often, but there is no evidence-based treatment for this specific group. Therefore, we examined the effects of a group intervention for adolescents with ASD and GD in a pilot study with a pre-post-test design. The adolescents completed questionnaires on quality of life, self-esteem, gender dysphoric feelings, and social responsiveness. Results show that participating in this peer support group seems to increase aspects of quality of life, i.e., increased parent-reported psychological well-being and decreased psychological complaints. Even though more research is needed, these results indicate that peer support is an invaluable part of treatment for adolescents with ASD and GD. En ligne : https://doi.org/10.1007/s10803-022-05832-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Extending the Usefulness of the Brief Observation of Social Communication Change (BOSCC): Validating the Phrase Speech and Young Fluent Version Type de document : Texte imprimé et/ou numérique Auteurs : Katherine BYRNE, Auteur ; Kyle STERRETT, Auteur ; Alison HOLBROOK, Auteur ; So Hyun KIM, Auteur ; Rebecca GRZADZINSKI, Auteur ; Catherine LORD, Auteur Article en page(s) : p.1009-1023 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The current study investigated the utility of the Brief Observation of Social Communication Change-Phrase Speech Young Fluent (BOSCC-PSYF) as an outcome measure of treatment response by analyzing the measure?s psychometric properties and initial validity. The BOSCC coding scheme was applied to 345 administrations from 160 participants diagnosed with autism. Participants included individuals of any age with phrase speech, or individuals under the age of 8 years with complex sentences. All were receiving behavioral intervention throughout the study. Test-retest and inter-rater reliability were good for the Early Communication and Social Reciprocity/Language domains, and fair for the Restricted and Repetitive Behavior domain. Significant changes occurred over time in the Early Communication and Social Reciprocity/Language domains, and Core Total scores. The BOSCC-PSYF may provide a low-cost, flexible, and user-friendly outcome measure that reliably measures changes in broad social communicative behaviors in a short period of time. En ligne : https://doi.org/10.1007/s10803-022-05877-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1009-1023[article] Extending the Usefulness of the Brief Observation of Social Communication Change (BOSCC): Validating the Phrase Speech and Young Fluent Version [Texte imprimé et/ou numérique] / Katherine BYRNE, Auteur ; Kyle STERRETT, Auteur ; Alison HOLBROOK, Auteur ; So Hyun KIM, Auteur ; Rebecca GRZADZINSKI, Auteur ; Catherine LORD, Auteur . - p.1009-1023.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1009-1023
Index. décimale : PER Périodiques Résumé : The current study investigated the utility of the Brief Observation of Social Communication Change-Phrase Speech Young Fluent (BOSCC-PSYF) as an outcome measure of treatment response by analyzing the measure?s psychometric properties and initial validity. The BOSCC coding scheme was applied to 345 administrations from 160 participants diagnosed with autism. Participants included individuals of any age with phrase speech, or individuals under the age of 8 years with complex sentences. All were receiving behavioral intervention throughout the study. Test-retest and inter-rater reliability were good for the Early Communication and Social Reciprocity/Language domains, and fair for the Restricted and Repetitive Behavior domain. Significant changes occurred over time in the Early Communication and Social Reciprocity/Language domains, and Core Total scores. The BOSCC-PSYF may provide a low-cost, flexible, and user-friendly outcome measure that reliably measures changes in broad social communicative behaviors in a short period of time. En ligne : https://doi.org/10.1007/s10803-022-05877-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Psychometric Evaluation of the Autism Spectrum Rating Scales (6-18 Years Parent Report) in a Clinical Sample Type de document : Texte imprimé et/ou numérique Auteurs : Ji Su HONG, Auteur ; Jeremy PERRIN, Auteur ; Vini SINGH, Auteur ; Luke KALB, Auteur ; Elizabeth A. CROSS, Auteur ; Ericka WODKA, Auteur ; Chana RICHTER, Auteur ; Rebecca LANDA, Auteur Article en page(s) : p.1024-1035 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : ASD is a neurodevelopmental disorder impacting 1 in 44 children and early identification of children with ASD is critical for the intervention. Several screening measures have been developed for early identification, including the Autism Spectrum Rating Scales, 6-18 years Parent Report (ASRS). The ASRS has been understudied, and the current study assessed the validity of the ASRS in a clinical sample of 490 children at a tertiary ASD-specialty clinic. Results indicated that the ASRS demonstrated favorable sensitivity, but poor specificity. True positive screening results were more likely to occur for children with a multiracial background, while they were less likely to occur for children with a high social capital. Overall, though the ASRS has clinical utility as a screening measure, it did not perform effectively to differentiate ASD from Non-ASD clinical disorders. En ligne : https://doi.org/10.1007/s10803-022-05871-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1024-1035[article] Psychometric Evaluation of the Autism Spectrum Rating Scales (6-18 Years Parent Report) in a Clinical Sample [Texte imprimé et/ou numérique] / Ji Su HONG, Auteur ; Jeremy PERRIN, Auteur ; Vini SINGH, Auteur ; Luke KALB, Auteur ; Elizabeth A. CROSS, Auteur ; Ericka WODKA, Auteur ; Chana RICHTER, Auteur ; Rebecca LANDA, Auteur . - p.1024-1035.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1024-1035
Index. décimale : PER Périodiques Résumé : ASD is a neurodevelopmental disorder impacting 1 in 44 children and early identification of children with ASD is critical for the intervention. Several screening measures have been developed for early identification, including the Autism Spectrum Rating Scales, 6-18 years Parent Report (ASRS). The ASRS has been understudied, and the current study assessed the validity of the ASRS in a clinical sample of 490 children at a tertiary ASD-specialty clinic. Results indicated that the ASRS demonstrated favorable sensitivity, but poor specificity. True positive screening results were more likely to occur for children with a multiracial background, while they were less likely to occur for children with a high social capital. Overall, though the ASRS has clinical utility as a screening measure, it did not perform effectively to differentiate ASD from Non-ASD clinical disorders. En ligne : https://doi.org/10.1007/s10803-022-05871-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : A Systematic Review of Family Functioning in Families of Children on the Autism Spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Gwendoline DESQUENNE GODFREY, Auteur ; Naomi DOWNES, Auteur ; Emilie CAPPE, Auteur Article en page(s) : p.1036-1057 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : This article aims to review the literature on family functioning in the field of autism. The search was conducted in August 2021 in PubMed, PsycINFO, and PubPsy and sixty-two articles were included. Studies were published in English between 1980 and 2021 and provided quantitative data from validated measures of family functioning in families with an official diagnosis of autism. Results showed that family functioning appeared more problematic for families of autistic children than non-autistic ones. Difficulties were correlated with more caregiver demand and less resources. Interventional results varied. The findings highlight the importance of considering family functioning when providing care for autistic children and their families. Limitations and implications for future research are discussed. En ligne : https://doi.org/10.1007/s10803-022-05830-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1036-1057[article] A Systematic Review of Family Functioning in Families of Children on the Autism Spectrum [Texte imprimé et/ou numérique] / Gwendoline DESQUENNE GODFREY, Auteur ; Naomi DOWNES, Auteur ; Emilie CAPPE, Auteur . - p.1036-1057.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1036-1057
Index. décimale : PER Périodiques Résumé : This article aims to review the literature on family functioning in the field of autism. The search was conducted in August 2021 in PubMed, PsycINFO, and PubPsy and sixty-two articles were included. Studies were published in English between 1980 and 2021 and provided quantitative data from validated measures of family functioning in families with an official diagnosis of autism. Results showed that family functioning appeared more problematic for families of autistic children than non-autistic ones. Difficulties were correlated with more caregiver demand and less resources. Interventional results varied. The findings highlight the importance of considering family functioning when providing care for autistic children and their families. Limitations and implications for future research are discussed. En ligne : https://doi.org/10.1007/s10803-022-05830-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Examining Sensitivity to Developmental Changes on the Behavioral Inflexibility Scale Type de document : Texte imprimé et/ou numérique Auteurs : Brian A. BOYD, Auteur ; Waylon HOWARD, Auteur ; James W. BODFISH, Auteur ; Luc LECAVALIER, Auteur ; Clare HARROP, Auteur ; Desiree JONES, Auteur ; Aaron DALLMAN, Auteur ; Sahana NAGABHUSHAN KALBURGI, Auteur ; Jill HOLLWAY, Auteur Article en page(s) : p.1058-1067 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The study objective was to determine if the validated Behavioral Inflexibility Scale (BIS) is sensitive to the detection of developmental changes in inflexibility in a sample of autistic children. En ligne : https://doi.org/10.1007/s10803-022-05837-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1058-1067[article] Examining Sensitivity to Developmental Changes on the Behavioral Inflexibility Scale [Texte imprimé et/ou numérique] / Brian A. BOYD, Auteur ; Waylon HOWARD, Auteur ; James W. BODFISH, Auteur ; Luc LECAVALIER, Auteur ; Clare HARROP, Auteur ; Desiree JONES, Auteur ; Aaron DALLMAN, Auteur ; Sahana NAGABHUSHAN KALBURGI, Auteur ; Jill HOLLWAY, Auteur . - p.1058-1067.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1058-1067
Index. décimale : PER Périodiques Résumé : The study objective was to determine if the validated Behavioral Inflexibility Scale (BIS) is sensitive to the detection of developmental changes in inflexibility in a sample of autistic children. En ligne : https://doi.org/10.1007/s10803-022-05837-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : The Impact of Emergency Pandemic HCBS Funding on the Continuity and Security of People with Intellectual and Developmental Disabilities Type de document : Texte imprimé et/ou numérique Auteurs : Carli FRIEDMAN, Auteur Article en page(s) : p.1068-1077 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : This study?s aim was to examine the impact of pandemic emergency Home- and Community-Based Services (HCBS) payments on the continuity and security of people with intellectual and developmental disabilities (IDD). Using a multilevel logistic regression, we analyzed secondary Personal Outcome Measures interviews from 738 people with IDD (March 2020 through April 2022), and state pandemic emergency HCBS payment data from 16 states. The odds of people with IDD experiencing continuity and security during the pandemic increased by 3% for every 1% states increased their payment rates, and by 398% when states offered retainer payments. Increased reimbursement rates and retainer payments can help providers maintain operations and promote the continuity and security of people with IDD. En ligne : https://doi.org/10.1007/s10803-022-05859-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1068-1077[article] The Impact of Emergency Pandemic HCBS Funding on the Continuity and Security of People with Intellectual and Developmental Disabilities [Texte imprimé et/ou numérique] / Carli FRIEDMAN, Auteur . - p.1068-1077.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1068-1077
Index. décimale : PER Périodiques Résumé : This study?s aim was to examine the impact of pandemic emergency Home- and Community-Based Services (HCBS) payments on the continuity and security of people with intellectual and developmental disabilities (IDD). Using a multilevel logistic regression, we analyzed secondary Personal Outcome Measures interviews from 738 people with IDD (March 2020 through April 2022), and state pandemic emergency HCBS payment data from 16 states. The odds of people with IDD experiencing continuity and security during the pandemic increased by 3% for every 1% states increased their payment rates, and by 398% when states offered retainer payments. Increased reimbursement rates and retainer payments can help providers maintain operations and promote the continuity and security of people with IDD. En ligne : https://doi.org/10.1007/s10803-022-05859-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Brief Report: Differences in Naturalistic Attention to Real-World Scenes in Adolescents with 16p.11.2 Deletion Type de document : Texte imprimé et/ou numérique Auteurs : Amanda J. HASKINS, Auteur ; Jeff MENTCH, Auteur ; Caitlin VAN WICKLIN, Auteur ; Yeo Bi CHOI, Auteur ; Caroline E. ROBERTSON, Auteur Article en page(s) : p.1078-1087 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Sensory differences are nearly universal in autism, but their genetic origins are poorly understood. Here, we tested how individuals with an autism-linked genotype, 16p.11.2 deletion ("16p"), attend to visual information in immersive, real-world photospheres. We monitored participants' (N = 44) gaze while they actively explored 360° scenes via headmounted virtual reality. We modeled the visually salient and semantically meaningful information in scenes and quantified the relative bottom-up vs. top-down influences on attentional deployment. We found, when compared to typically developed control (TD) participants, 16p participants' attention was less dominantly predicted by semantically meaningful scene regions, relative to visually salient regions. These results suggest that a reduction in top-down relative to bottom-up attention characterizes how individuals with 16p.11.2 deletions engage with naturalistic visual environments. En ligne : https://doi.org/10.1007/s10803-022-05850-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1078-1087[article] Brief Report: Differences in Naturalistic Attention to Real-World Scenes in Adolescents with 16p.11.2 Deletion [Texte imprimé et/ou numérique] / Amanda J. HASKINS, Auteur ; Jeff MENTCH, Auteur ; Caitlin VAN WICKLIN, Auteur ; Yeo Bi CHOI, Auteur ; Caroline E. ROBERTSON, Auteur . - p.1078-1087.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1078-1087
Index. décimale : PER Périodiques Résumé : Sensory differences are nearly universal in autism, but their genetic origins are poorly understood. Here, we tested how individuals with an autism-linked genotype, 16p.11.2 deletion ("16p"), attend to visual information in immersive, real-world photospheres. We monitored participants' (N = 44) gaze while they actively explored 360° scenes via headmounted virtual reality. We modeled the visually salient and semantically meaningful information in scenes and quantified the relative bottom-up vs. top-down influences on attentional deployment. We found, when compared to typically developed control (TD) participants, 16p participants' attention was less dominantly predicted by semantically meaningful scene regions, relative to visually salient regions. These results suggest that a reduction in top-down relative to bottom-up attention characterizes how individuals with 16p.11.2 deletions engage with naturalistic visual environments. En ligne : https://doi.org/10.1007/s10803-022-05850-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Contrasting Views of Autism Spectrum Traits in Adults, Especially in Self-Reports vs. Informant-Reports for Women High in Autism Spectrum Traits Type de document : Texte imprimé et/ou numérique Auteurs : Sara C. TAYLOR, Auteur ; Brielle N. GEHRINGER, Auteur ; Holly C. DOW, Auteur ; Allison LANGER, Auteur ; Eric RAWOT, Auteur ; Zoe SMERNOFF, Auteur ; Samantha STEEMAN, Auteur ; Laura ALMASY, Auteur ; Daniel J. RADER, Auteur ; Maja BU?AN, Auteur ; Edward S. BRODKIN, Auteur Article en page(s) : p.1088-1100 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : There is uncertainty among researchers and clinicians about how to best measure autism spectrum dimensional traits in adults. In a sample of adults with high levels of autism spectrum traits and without intellectual disability (probands, n = 103) and their family members (n = 96), we sought to compare self vs. informant reports of autism spectrum-related traits and possible effects of sex on discrepancies. Using correlational analysis, we found poor agreement between self- and informant-report measures for probands, yet moderate agreement for family members. We found reporting discrepancy was greatest for female probands, often self-reporting more autism-related behaviors. Our findings suggest that autism spectrum traits are often underrecognized by informants, making self-report data important to collect in clinical and research settings. En ligne : https://doi.org/10.1007/s10803-022-05822-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1088-1100[article] Contrasting Views of Autism Spectrum Traits in Adults, Especially in Self-Reports vs. Informant-Reports for Women High in Autism Spectrum Traits [Texte imprimé et/ou numérique] / Sara C. TAYLOR, Auteur ; Brielle N. GEHRINGER, Auteur ; Holly C. DOW, Auteur ; Allison LANGER, Auteur ; Eric RAWOT, Auteur ; Zoe SMERNOFF, Auteur ; Samantha STEEMAN, Auteur ; Laura ALMASY, Auteur ; Daniel J. RADER, Auteur ; Maja BU?AN, Auteur ; Edward S. BRODKIN, Auteur . - p.1088-1100.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1088-1100
Index. décimale : PER Périodiques Résumé : There is uncertainty among researchers and clinicians about how to best measure autism spectrum dimensional traits in adults. In a sample of adults with high levels of autism spectrum traits and without intellectual disability (probands, n = 103) and their family members (n = 96), we sought to compare self vs. informant reports of autism spectrum-related traits and possible effects of sex on discrepancies. Using correlational analysis, we found poor agreement between self- and informant-report measures for probands, yet moderate agreement for family members. We found reporting discrepancy was greatest for female probands, often self-reporting more autism-related behaviors. Our findings suggest that autism spectrum traits are often underrecognized by informants, making self-report data important to collect in clinical and research settings. En ligne : https://doi.org/10.1007/s10803-022-05822-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Perceptual Grouping in Autism Spectrum Disorder: An Exploratory Magnetoencephalography Study Type de document : Texte imprimé et/ou numérique Auteurs : Christine M. FALTER-WAGNER, Auteur ; Christian M. KIEFER, Auteur ; Anthony J. BAILEY, Auteur ; Kai VOGELEY, Auteur ; Jürgen DAMMERS, Auteur Article en page(s) : p.1101-1112 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Visual information is organised according to visual grouping principles. In visual grouping tasks individuals with ASD have shown equivocal performance. We explored neural correlates of Gestalt grouping in individuals with and without ASD. Neuromagnetic activity of individuals with (15) and without (18) ASD was compared during a visual grouping task testing grouping by proximity versus similarity. Individuals without ASD showed stronger evoked responses with earlier peaks in response to both grouping types indicating an earlier neuronal differentiation between grouping principles in individuals without ASD. In contrast, individuals with ASD showed particularly prolonged processing of grouping by similarity suggesting a high demand of neural resources. The neuronal processing differences found could explain less efficient grouping performance observed behaviourally in ASD. En ligne : https://doi.org/10.1007/s10803-022-05844-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1101-1112[article] Perceptual Grouping in Autism Spectrum Disorder: An Exploratory Magnetoencephalography Study [Texte imprimé et/ou numérique] / Christine M. FALTER-WAGNER, Auteur ; Christian M. KIEFER, Auteur ; Anthony J. BAILEY, Auteur ; Kai VOGELEY, Auteur ; Jürgen DAMMERS, Auteur . - p.1101-1112.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1101-1112
Index. décimale : PER Périodiques Résumé : Visual information is organised according to visual grouping principles. In visual grouping tasks individuals with ASD have shown equivocal performance. We explored neural correlates of Gestalt grouping in individuals with and without ASD. Neuromagnetic activity of individuals with (15) and without (18) ASD was compared during a visual grouping task testing grouping by proximity versus similarity. Individuals without ASD showed stronger evoked responses with earlier peaks in response to both grouping types indicating an earlier neuronal differentiation between grouping principles in individuals without ASD. In contrast, individuals with ASD showed particularly prolonged processing of grouping by similarity suggesting a high demand of neural resources. The neuronal processing differences found could explain less efficient grouping performance observed behaviourally in ASD. En ligne : https://doi.org/10.1007/s10803-022-05844-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Differences in Praxis Errors in Autism Spectrum Disorder Compared to Developmental Coordination Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Gabriel ABRAMS, Auteur ; Aditya JAYASHANKAR, Auteur ; Emily KILROY, Auteur ; Christiana BUTERA, Auteur ; Laura HARRISON, Auteur ; Priscilla RING, Auteur ; Anusha HOUSSAIN, Auteur ; Alexis NALBACH, Auteur ; Sharon A. CERMAK, Auteur ; Lisa AZIZ-ZADEH, Auteur Article en page(s) : p.1113-1129 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : This study aimed to better understand how autism spectrum disorder (ASD) and developmental coordination disorder (DCD) differ in types of praxis errors made on the Florida Apraxia Battery Modified (FAB-M) and the potential relationships between praxis errors and social deficits in ASD. The ASD group made significantly more timing sequencing errors in imitation of meaningful gestures, as well as more body-part-for-tool errors during gesture-to-command compared to the other two groups. In the ASD group, increased temporal errors in meaningful imitation were significantly correlated with poorer affect recognition and less repetitive behaviors. Thus, in ASD, aspects of imitation ability are related to socioemotional skills and repetitive behaviors. En ligne : https://doi.org/10.1007/s10803-022-05858-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1113-1129[article] Differences in Praxis Errors in Autism Spectrum Disorder Compared to Developmental Coordination Disorder [Texte imprimé et/ou numérique] / Gabriel ABRAMS, Auteur ; Aditya JAYASHANKAR, Auteur ; Emily KILROY, Auteur ; Christiana BUTERA, Auteur ; Laura HARRISON, Auteur ; Priscilla RING, Auteur ; Anusha HOUSSAIN, Auteur ; Alexis NALBACH, Auteur ; Sharon A. CERMAK, Auteur ; Lisa AZIZ-ZADEH, Auteur . - p.1113-1129.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1113-1129
Index. décimale : PER Périodiques Résumé : This study aimed to better understand how autism spectrum disorder (ASD) and developmental coordination disorder (DCD) differ in types of praxis errors made on the Florida Apraxia Battery Modified (FAB-M) and the potential relationships between praxis errors and social deficits in ASD. The ASD group made significantly more timing sequencing errors in imitation of meaningful gestures, as well as more body-part-for-tool errors during gesture-to-command compared to the other two groups. In the ASD group, increased temporal errors in meaningful imitation were significantly correlated with poorer affect recognition and less repetitive behaviors. Thus, in ASD, aspects of imitation ability are related to socioemotional skills and repetitive behaviors. En ligne : https://doi.org/10.1007/s10803-022-05858-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Exploring Autistic College Students' Perceptions and Management of Peer Stigma: An Interpretative Phenomenological Analysis Type de document : Texte imprimé et/ou numérique Auteurs : Jill C. UNDERHILL, Auteur ; Jaclyn CLARK, Auteur ; Rebecca S. HANSEN, Auteur ; Hillary ADAMS, Auteur Article en page(s) : p.1130-1142 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Autistic college students are often forced to navigate stigma on campus, but little is known about how autistic college students manage communicated stigma. Semi-structured interviews with ten autistic college students were conducted to explore how they manage peer stigma. Interpretative Phenomenological Analysis (IPA) was used to identify three themes from the data: First, participants seek to avoid peer stigma by concealing attributes associated with autism. Next, participants buffer against peer stigma by engaging in favorable social comparison. Finally, participants perceive the autism label as highly stigmatizing, necessitating limited disclosure on campus. These results can help researchers and practitioners focus efforts to promote neurodiversity to both autistic students and their peers on campus. En ligne : https://doi.org/10.1007/s10803-022-05867-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1130-1142[article] Exploring Autistic College Students' Perceptions and Management of Peer Stigma: An Interpretative Phenomenological Analysis [Texte imprimé et/ou numérique] / Jill C. UNDERHILL, Auteur ; Jaclyn CLARK, Auteur ; Rebecca S. HANSEN, Auteur ; Hillary ADAMS, Auteur . - p.1130-1142.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1130-1142
Index. décimale : PER Périodiques Résumé : Autistic college students are often forced to navigate stigma on campus, but little is known about how autistic college students manage communicated stigma. Semi-structured interviews with ten autistic college students were conducted to explore how they manage peer stigma. Interpretative Phenomenological Analysis (IPA) was used to identify three themes from the data: First, participants seek to avoid peer stigma by concealing attributes associated with autism. Next, participants buffer against peer stigma by engaging in favorable social comparison. Finally, participants perceive the autism label as highly stigmatizing, necessitating limited disclosure on campus. These results can help researchers and practitioners focus efforts to promote neurodiversity to both autistic students and their peers on campus. En ligne : https://doi.org/10.1007/s10803-022-05867-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Retinal Thinning in Adults with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Evelyn B. N. FRIEDEL, Auteur ; Ludger TEBARTZ VAN ELST, Auteur ; Mirjam SCHAFER, Auteur ; Simon MAIER, Auteur ; Kimon RUNGE, Auteur ; Sebastian KÜCHLIN, Auteur ; Michael REICH, Auteur ; Wolf A. LAGRÈZE, Auteur ; Jürgen KORNMEIER, Auteur ; Dieter EBERT, Auteur ; Dominique ENDRES, Auteur ; Katharina DOMSCHKE, Auteur ; Kathrin NICKEL, Auteur Article en page(s) : p.1143-1156 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Since the retina shares its embryological origin with the central nervous system, optical coherence tomography (OCT), an imaging technique frequently employed in ophthalmology to analyze the macula and intraretinal layer thicknesses and volumes, has recently become increasingly important in psychiatric research. We examined 34 autistic and 31 neurotypical adults (NT) using OCT. Autistic adults had reduced overall macular and outer nuclear layer (ONL) thickness and volume compared to NT. Both macular and ONL thickness showed significant inverse associations with the severity of autistic symptoms measured with the Social Responsiveness Scale 2 (SRS-2). Longitudinal studies across different age groups are required to clarify whether retinal changes may represent a possible trait marker. En ligne : https://doi.org/10.1007/s10803-022-05882-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1143-1156[article] Retinal Thinning in Adults with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Evelyn B. N. FRIEDEL, Auteur ; Ludger TEBARTZ VAN ELST, Auteur ; Mirjam SCHAFER, Auteur ; Simon MAIER, Auteur ; Kimon RUNGE, Auteur ; Sebastian KÜCHLIN, Auteur ; Michael REICH, Auteur ; Wolf A. LAGRÈZE, Auteur ; Jürgen KORNMEIER, Auteur ; Dieter EBERT, Auteur ; Dominique ENDRES, Auteur ; Katharina DOMSCHKE, Auteur ; Kathrin NICKEL, Auteur . - p.1143-1156.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1143-1156
Index. décimale : PER Périodiques Résumé : Since the retina shares its embryological origin with the central nervous system, optical coherence tomography (OCT), an imaging technique frequently employed in ophthalmology to analyze the macula and intraretinal layer thicknesses and volumes, has recently become increasingly important in psychiatric research. We examined 34 autistic and 31 neurotypical adults (NT) using OCT. Autistic adults had reduced overall macular and outer nuclear layer (ONL) thickness and volume compared to NT. Both macular and ONL thickness showed significant inverse associations with the severity of autistic symptoms measured with the Social Responsiveness Scale 2 (SRS-2). Longitudinal studies across different age groups are required to clarify whether retinal changes may represent a possible trait marker. En ligne : https://doi.org/10.1007/s10803-022-05882-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : A Qualitative Study of Adults' and Support Persons' Experiences of Support After Autism Diagnosis Type de document : Texte imprimé et/ou numérique Auteurs : Yunhe HUANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Kitty-Rose FOLEY, Auteur ; Julian N. TROLLOR, Auteur Article en page(s) : p.1157-1170 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Adulthood autism diagnosis has become increasingly common, but little is known about post-diagnosis support experiences and needs. We interviewed 19 autistic adults and 4 support persons on experiences of formal and informal post-diagnosis support. Reflexive thematic analysis was used to identify themes. Participants reported difficulties accessing suitable formal support, especially regarding education and employment. Informal support was helpful but created challenges in the relationships between autistic adults and support persons. For autistic adults, support from autistic peers fostered belonging and self-acceptance. We also identified complex interactions between adults' post-diagnosis identity development and support experiences as they resolved the dilemma between self-acceptance and a desire to change. Findings have important implications for services working with autistic adults and their families. En ligne : https://doi.org/10.1007/s10803-022-05828-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1157-1170[article] A Qualitative Study of Adults' and Support Persons' Experiences of Support After Autism Diagnosis [Texte imprimé et/ou numérique] / Yunhe HUANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Kitty-Rose FOLEY, Auteur ; Julian N. TROLLOR, Auteur . - p.1157-1170.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1157-1170
Index. décimale : PER Périodiques Résumé : Adulthood autism diagnosis has become increasingly common, but little is known about post-diagnosis support experiences and needs. We interviewed 19 autistic adults and 4 support persons on experiences of formal and informal post-diagnosis support. Reflexive thematic analysis was used to identify themes. Participants reported difficulties accessing suitable formal support, especially regarding education and employment. Informal support was helpful but created challenges in the relationships between autistic adults and support persons. For autistic adults, support from autistic peers fostered belonging and self-acceptance. We also identified complex interactions between adults' post-diagnosis identity development and support experiences as they resolved the dilemma between self-acceptance and a desire to change. Findings have important implications for services working with autistic adults and their families. En ligne : https://doi.org/10.1007/s10803-022-05828-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Autism Spectrum Disorder in Down Syndrome: Experiences from Caregivers Type de document : Texte imprimé et/ou numérique Auteurs : Noemi Alice SPINAZZI, Auteur ; Alyssa Bianca VELASCO, Auteur ; Drew James WODECKI, Auteur ; Lina PATEL, Auteur Article en page(s) : p.1171-1180 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : This study aimed to learn about the experiences of families of individuals with a dual diagnosis of Down syndrome (DS) and autism spectrum disorder (ASD) (DS-ASD), and to document the journey from early concerns to diagnosis and intervention. Caregivers completed an online survey describing their journey raising a child with DS-ASD. Survey responses were analyzed qualitatively and coded into categories to highlight common themes. Stereotypy, severe communication impairments, and behavioral difficulties prompted caregivers to pursue further evaluation. There was a mean 4.65-year gap between first noticing symptoms and receiving an ASD diagnosis. Several therapeutic interventions were identified as beneficial, including behavioral and communication support. Caregivers expressed frustration and described high levels of stress and social isolation. The diagnosis of ASD in children with DS is often delayed, and caregivers' initial concerns are frequently dismissed. Raising a child with DS-ASD can lead to social isolation and elevated caregiver stress. More research is needed to tailor diagnostic algorithms and therapeutic interventions to the unique needs of this patient population. Caregivers yearn for improved understanding of DS-ASD, more targeted therapies and educational programs, and more overall support. En ligne : https://doi.org/10.1007/s10803-022-05758-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1171-1180[article] Autism Spectrum Disorder in Down Syndrome: Experiences from Caregivers [Texte imprimé et/ou numérique] / Noemi Alice SPINAZZI, Auteur ; Alyssa Bianca VELASCO, Auteur ; Drew James WODECKI, Auteur ; Lina PATEL, Auteur . - p.1171-1180.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1171-1180
Index. décimale : PER Périodiques Résumé : This study aimed to learn about the experiences of families of individuals with a dual diagnosis of Down syndrome (DS) and autism spectrum disorder (ASD) (DS-ASD), and to document the journey from early concerns to diagnosis and intervention. Caregivers completed an online survey describing their journey raising a child with DS-ASD. Survey responses were analyzed qualitatively and coded into categories to highlight common themes. Stereotypy, severe communication impairments, and behavioral difficulties prompted caregivers to pursue further evaluation. There was a mean 4.65-year gap between first noticing symptoms and receiving an ASD diagnosis. Several therapeutic interventions were identified as beneficial, including behavioral and communication support. Caregivers expressed frustration and described high levels of stress and social isolation. The diagnosis of ASD in children with DS is often delayed, and caregivers' initial concerns are frequently dismissed. Raising a child with DS-ASD can lead to social isolation and elevated caregiver stress. More research is needed to tailor diagnostic algorithms and therapeutic interventions to the unique needs of this patient population. Caregivers yearn for improved understanding of DS-ASD, more targeted therapies and educational programs, and more overall support. En ligne : https://doi.org/10.1007/s10803-022-05758-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Burden of Rare Copy Number Variants in Microcephaly: A Brazilian Cohort of 185 Microcephalic Patients and Review of the Literature Type de document : Texte imprimé et/ou numérique Auteurs : Giovanna Cantini TOLEZANO, Auteur ; Giovanna Civitate BASTOS, Auteur ; Silvia Souza DA COSTA, Auteur ; Bruna Lucheze FREIRE, Auteur ; Thais Kataoka HOMMA, Auteur ; Rachel Sayuri HONJO, Auteur ; Guilherme Lopes YAMAMOTO, Auteur ; Maria Rita PASSOS-BUENO, Auteur ; Celia Priszkulnik KOIFFMANN, Auteur ; Chong Ae KIM, Auteur ; Angela Maria VIANNA-MORGANTE, Auteur ; Alexander Augusto DE LIMA JORGE, Auteur ; Débora Romeo BERTOLA, Auteur ; Carla ROSENBERG, Auteur ; Ana Cristina Victorino KREPISCHI, Auteur Article en page(s) : p.1181-1212 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Microcephaly presents heterogeneous genetic etiology linked to several neurodevelopmental disorders (NDD). Copy number variants (CNVs) are a causal mechanism of microcephaly whose investigation is a crucial step for unraveling its molecular basis. Our purpose was to investigate the burden of rare CNVs in microcephalic individuals and to review genes and CNV syndromes associated with microcephaly. We performed chromosomal microarray analysis (CMA) in 185 Brazilian patients with microcephaly and evaluated microcephalic patients carrying<200 kb CNVs documented in the DECIPHER database. Additionally, we reviewed known genes and CNV syndromes causally linked to microcephaly through the PubMed, OMIM, DECIPHER, and ClinGen databases. Rare clinically relevant CNVs were detected in 39 out of the 185 Brazilian patients investigated by CMA (21%). In 31 among the 60 DECIPHER patients carrying<200 kb CNVs, at least one known microcephaly gene was observed. Overall, four gene sets implicated in microcephaly were disclosed: known microcephaly genes; genes with supporting evidence of association with microcephaly; known macrocephaly genes; and novel candidates, including OTUD7A, BBC3, CNTN6, and NAA15. In the review, we compiled 957 known microcephaly genes and 58 genomic CNV loci, comprising 13 duplications and 50 deletions, which have already been associated with clinical findings including microcephaly. We reviewed genes and CNV syndromes previously associated with microcephaly, reinforced the high CMA diagnostic yield for this condition, pinpointed novel candidate loci linked to microcephaly deserving further evaluation, and provided a useful resource for future research on the field of neurodevelopment. En ligne : https://doi.org/10.1007/s10803-022-05853-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1181-1212[article] Burden of Rare Copy Number Variants in Microcephaly: A Brazilian Cohort of 185 Microcephalic Patients and Review of the Literature [Texte imprimé et/ou numérique] / Giovanna Cantini TOLEZANO, Auteur ; Giovanna Civitate BASTOS, Auteur ; Silvia Souza DA COSTA, Auteur ; Bruna Lucheze FREIRE, Auteur ; Thais Kataoka HOMMA, Auteur ; Rachel Sayuri HONJO, Auteur ; Guilherme Lopes YAMAMOTO, Auteur ; Maria Rita PASSOS-BUENO, Auteur ; Celia Priszkulnik KOIFFMANN, Auteur ; Chong Ae KIM, Auteur ; Angela Maria VIANNA-MORGANTE, Auteur ; Alexander Augusto DE LIMA JORGE, Auteur ; Débora Romeo BERTOLA, Auteur ; Carla ROSENBERG, Auteur ; Ana Cristina Victorino KREPISCHI, Auteur . - p.1181-1212.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1181-1212
Index. décimale : PER Périodiques Résumé : Microcephaly presents heterogeneous genetic etiology linked to several neurodevelopmental disorders (NDD). Copy number variants (CNVs) are a causal mechanism of microcephaly whose investigation is a crucial step for unraveling its molecular basis. Our purpose was to investigate the burden of rare CNVs in microcephalic individuals and to review genes and CNV syndromes associated with microcephaly. We performed chromosomal microarray analysis (CMA) in 185 Brazilian patients with microcephaly and evaluated microcephalic patients carrying<200 kb CNVs documented in the DECIPHER database. Additionally, we reviewed known genes and CNV syndromes causally linked to microcephaly through the PubMed, OMIM, DECIPHER, and ClinGen databases. Rare clinically relevant CNVs were detected in 39 out of the 185 Brazilian patients investigated by CMA (21%). In 31 among the 60 DECIPHER patients carrying<200 kb CNVs, at least one known microcephaly gene was observed. Overall, four gene sets implicated in microcephaly were disclosed: known microcephaly genes; genes with supporting evidence of association with microcephaly; known macrocephaly genes; and novel candidates, including OTUD7A, BBC3, CNTN6, and NAA15. In the review, we compiled 957 known microcephaly genes and 58 genomic CNV loci, comprising 13 duplications and 50 deletions, which have already been associated with clinical findings including microcephaly. We reviewed genes and CNV syndromes previously associated with microcephaly, reinforced the high CMA diagnostic yield for this condition, pinpointed novel candidate loci linked to microcephaly deserving further evaluation, and provided a useful resource for future research on the field of neurodevelopment. En ligne : https://doi.org/10.1007/s10803-022-05853-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Brief Report: Response to Joint Attention and Object Imitation as Predictors of Expressive and Receptive Language Growth Rate in Young Children on the Autism Spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Kyle M. FROST, Auteur ; Anamiguel POMALES-RAMOS, Auteur ; Brooke INGERSOLL, Auteur Article en page(s) : p.1213-1220 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Joint attention and imitation are thought to facilitate a developmental cascade of language and social communication skills. Delays in developing these skills may affect the quality of children?s social interactions and subsequent language development. We examined how responding to joint attention and object imitation skills predicted rate of expressive and receptive communication growth rate in a heterogeneous sample of autistic children. Children?s baseline skills in responding to joint attention uniquely predicted expressive, but not receptive, language growth rate over time, while object imitation did not significantly predict language growth rate over and above joint attention skills. Future research should examine the potential moderating roles of child age and developmental level in explaining associations between joint attention and object imitation and later language development. En ligne : https://doi.org/10.1007/s10803-022-05567-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1213-1220[article] Brief Report: Response to Joint Attention and Object Imitation as Predictors of Expressive and Receptive Language Growth Rate in Young Children on the Autism Spectrum [Texte imprimé et/ou numérique] / Kyle M. FROST, Auteur ; Anamiguel POMALES-RAMOS, Auteur ; Brooke INGERSOLL, Auteur . - p.1213-1220.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1213-1220
Index. décimale : PER Périodiques Résumé : Joint attention and imitation are thought to facilitate a developmental cascade of language and social communication skills. Delays in developing these skills may affect the quality of children?s social interactions and subsequent language development. We examined how responding to joint attention and object imitation skills predicted rate of expressive and receptive communication growth rate in a heterogeneous sample of autistic children. Children?s baseline skills in responding to joint attention uniquely predicted expressive, but not receptive, language growth rate over time, while object imitation did not significantly predict language growth rate over and above joint attention skills. Future research should examine the potential moderating roles of child age and developmental level in explaining associations between joint attention and object imitation and later language development. En ligne : https://doi.org/10.1007/s10803-022-05567-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Setting Families Up for Success: A Pilot Study of a Toolkit to Enhance the Autism Spectrum Disorder Diagnostic Evaluation Process Type de document : Texte imprimé et/ou numérique Auteurs : Rachel HAINE-SCHLAGEL, Auteur ; Christina CORSELLO, Auteur ; Barbara CAPLAN, Auteur ; Hilary GOULD, Auteur ; Lauren BROOKMAN-FRAZEE, Auteur Article en page(s) : p.1221-1230 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Families of children with autism spectrum disorder (ASD) face challenges engaging in services following diagnosis. This study: (1) developed and implemented a toolkit to tailor ASD evaluation feedback to families' needs, and (2) evaluated caregiver and provider perceptions of the toolkit. Focus groups with providers (N = 11) informed toolkit development. Seven providers participated in pilot training and implementation. Provider and caregiver toolkit perceptions were assessed using interviews, surveys, and a fidelity checklist. Toolkit strategies reflect focus group themes. Provider and caregiver ratings suggest the initial feasibility, acceptability, and utility of the toolkit. This toolkit may be feasible to implement in community settings and may increase caregiver satisfaction, though further refinements are needed to support service connection. En ligne : https://doi.org/10.1007/s10803-022-05601-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1221-1230[article] Setting Families Up for Success: A Pilot Study of a Toolkit to Enhance the Autism Spectrum Disorder Diagnostic Evaluation Process [Texte imprimé et/ou numérique] / Rachel HAINE-SCHLAGEL, Auteur ; Christina CORSELLO, Auteur ; Barbara CAPLAN, Auteur ; Hilary GOULD, Auteur ; Lauren BROOKMAN-FRAZEE, Auteur . - p.1221-1230.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1221-1230
Index. décimale : PER Périodiques Résumé : Families of children with autism spectrum disorder (ASD) face challenges engaging in services following diagnosis. This study: (1) developed and implemented a toolkit to tailor ASD evaluation feedback to families' needs, and (2) evaluated caregiver and provider perceptions of the toolkit. Focus groups with providers (N = 11) informed toolkit development. Seven providers participated in pilot training and implementation. Provider and caregiver toolkit perceptions were assessed using interviews, surveys, and a fidelity checklist. Toolkit strategies reflect focus group themes. Provider and caregiver ratings suggest the initial feasibility, acceptability, and utility of the toolkit. This toolkit may be feasible to implement in community settings and may increase caregiver satisfaction, though further refinements are needed to support service connection. En ligne : https://doi.org/10.1007/s10803-022-05601-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Correction: Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis Type de document : Texte imprimé et/ou numérique Auteurs : Jessica E. GOLDBLUM, Auteur ; Tyler C. MCFAYDEN, Auteur ; Stephanie BRISTOL, Auteur ; Orla C. PUTNAM, Auteur ; Amanda WYLIE, Auteur ; Clare HARROP, Auteur Article en page(s) : p.1231-1231 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-023-06210-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1231-1231[article] Correction: Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis [Texte imprimé et/ou numérique] / Jessica E. GOLDBLUM, Auteur ; Tyler C. MCFAYDEN, Auteur ; Stephanie BRISTOL, Auteur ; Orla C. PUTNAM, Auteur ; Amanda WYLIE, Auteur ; Clare HARROP, Auteur . - p.1231-1231.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1231-1231
Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-023-06210-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
Titre : Publisher Correction to: Morphological Features of Language Regions in Individuals with Tuberous Sclerosis Complex Type de document : Texte imprimé et/ou numérique Auteurs : Banu AHTAM, Auteur ; Hyuk Jin YUN, Auteur ; Rutvi VYAS, Auteur ; Rudolph PIENAAR, Auteur ; Josephine H. WILSON, Auteur ; Caroline P. GOSWAMI, Auteur ; Laura F. BERTO, Auteur ; Simon K. WARFIELD, Auteur ; Mustafa SAHIN, Auteur ; P. Ellen GRANT, Auteur ; Jurriaan M. PETERS, Auteur ; Kiho IM, Auteur Article en page(s) : p.1232-1232 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-023-06098-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1232-1232[article] Publisher Correction to: Morphological Features of Language Regions in Individuals with Tuberous Sclerosis Complex [Texte imprimé et/ou numérique] / Banu AHTAM, Auteur ; Hyuk Jin YUN, Auteur ; Rutvi VYAS, Auteur ; Rudolph PIENAAR, Auteur ; Josephine H. WILSON, Auteur ; Caroline P. GOSWAMI, Auteur ; Laura F. BERTO, Auteur ; Simon K. WARFIELD, Auteur ; Mustafa SAHIN, Auteur ; P. Ellen GRANT, Auteur ; Jurriaan M. PETERS, Auteur ; Kiho IM, Auteur . - p.1232-1232.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1232-1232
Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-023-06098-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524
