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Countering evidence denial and the promotion of pseudoscience in autism spectrum disorder / Isabel M. SMITH in Autism Research, 10-8 (August 2017)
[article]
Titre : Countering evidence denial and the promotion of pseudoscience in autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Isabel M. SMITH, Auteur ; Noni E. MACDONALD, Auteur Article en page(s) : p.1334-1337 Langues : Anglais (eng) Mots-clés : autism spectrum disorder denialism evidence science communication Index. décimale : PER Périodiques Résumé : This commentary introduces a framework within which clinical and research experts in autism spectrum disorder (ASD) can address public instances of evidence denial and promotion of pseudoscience related to ASD. This is a generalized extension of work by a World Health Organization (WHO) group dedicated to reducing the influence of Vocal Vaccine Deniers through educating advocates in how to effectively defuse their arguments. The WHO guidelines were informed by conceptual work on the “denialism” phenomenon, and by studies in psychology, communication, vaccine science, and public health. Our goal is to introduce these ideas to, and encourage discussion within, the ASD research community. En ligne : http://dx.doi.org/10.1002/aur.1810 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310
in Autism Research > 10-8 (August 2017) . - p.1334-1337[article] Countering evidence denial and the promotion of pseudoscience in autism spectrum disorder [Texte imprimé et/ou numérique] / Isabel M. SMITH, Auteur ; Noni E. MACDONALD, Auteur . - p.1334-1337.
Langues : Anglais (eng)
in Autism Research > 10-8 (August 2017) . - p.1334-1337
Mots-clés : autism spectrum disorder denialism evidence science communication Index. décimale : PER Périodiques Résumé : This commentary introduces a framework within which clinical and research experts in autism spectrum disorder (ASD) can address public instances of evidence denial and promotion of pseudoscience related to ASD. This is a generalized extension of work by a World Health Organization (WHO) group dedicated to reducing the influence of Vocal Vaccine Deniers through educating advocates in how to effectively defuse their arguments. The WHO guidelines were informed by conceptual work on the “denialism” phenomenon, and by studies in psychology, communication, vaccine science, and public health. Our goal is to introduce these ideas to, and encourage discussion within, the ASD research community. En ligne : http://dx.doi.org/10.1002/aur.1810 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310 Are lay abstracts published in Autism readable enough for the general public? A short report / Lan YI in Autism, 27-8 (November 2023)
[article]
Titre : Are lay abstracts published in Autism readable enough for the general public? A short report Type de document : Texte imprimé et/ou numérique Auteurs : Lan YI, Auteur ; Xiaohu YANG, Auteur Article en page(s) : p.2555-2559 Mots-clés : academic writing lay abstract plain language readability science communication Index. décimale : PER Périodiques Résumé : Lay abstracts are brief descriptions or summaries of research that are targeted at a general audience. They are held as an important means for the research community to provide greater transparency to the general public and to increase visibility of the pertinent research. This study aims to examine the extent to which lay abstracts published in the journal Autism are comprehensible to a lay audience in terms of readability measures. Results showed that lay abstracts published in Autism were more readable than their corresponding abstracts but were less readable than plain English texts (e.g. news reports). To our knowledge, this is probably the first comparative study on the readability of lay abstracts. Possible explanations for and implications of these findings were offered.Lay abstractResearch papers are sometimes hard to follow. Lay abstracts give a short account of research papers. However, it is unclear whether lay abstracts are readable to the lay people. This study examined the readability of 570 abstracts and lay abstracts published between 2020 and 2022 in the journal Autism. We found that that lay abstracts are easier to read than abstracts but are harder to read than news reports. The findings suggest that lay abstracts, on average, are hard to read for the lay people. We propose that the journal and its authors may invite reviewers from outside the research community to test whether a lay abstract is readable. En ligne : http://dx.doi.org/10.1177/13623613231163083 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=514
in Autism > 27-8 (November 2023) . - p.2555-2559[article] Are lay abstracts published in Autism readable enough for the general public? A short report [Texte imprimé et/ou numérique] / Lan YI, Auteur ; Xiaohu YANG, Auteur . - p.2555-2559.
in Autism > 27-8 (November 2023) . - p.2555-2559
Mots-clés : academic writing lay abstract plain language readability science communication Index. décimale : PER Périodiques Résumé : Lay abstracts are brief descriptions or summaries of research that are targeted at a general audience. They are held as an important means for the research community to provide greater transparency to the general public and to increase visibility of the pertinent research. This study aims to examine the extent to which lay abstracts published in the journal Autism are comprehensible to a lay audience in terms of readability measures. Results showed that lay abstracts published in Autism were more readable than their corresponding abstracts but were less readable than plain English texts (e.g. news reports). To our knowledge, this is probably the first comparative study on the readability of lay abstracts. Possible explanations for and implications of these findings were offered.Lay abstractResearch papers are sometimes hard to follow. Lay abstracts give a short account of research papers. However, it is unclear whether lay abstracts are readable to the lay people. This study examined the readability of 570 abstracts and lay abstracts published between 2020 and 2022 in the journal Autism. We found that that lay abstracts are easier to read than abstracts but are harder to read than news reports. The findings suggest that lay abstracts, on average, are hard to read for the lay people. We propose that the journal and its authors may invite reviewers from outside the research community to test whether a lay abstract is readable. En ligne : http://dx.doi.org/10.1177/13623613231163083 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=514 Treatments for Neurodevelopmental Disorders: Evidence, Advocacy, and the Internet / Nina C. DI PIETRO in Journal of Autism and Developmental Disorders, 43-1 (January 2013)
[article]
Titre : Treatments for Neurodevelopmental Disorders: Evidence, Advocacy, and the Internet Type de document : Texte imprimé et/ou numérique Auteurs : Nina C. DI PIETRO, Auteur ; Louise WHITELEY, Auteur ; Ania MIZGALEWICZ, Auteur ; Judy ILLES, Auteur Article en page(s) : p.122-133 Langues : Anglais (eng) Mots-clés : Autism cerebral palsy Foetal alcohol spectrum disorder Advocacy Internet Treatment information Science communication Ethics Content analysis Index. décimale : PER Périodiques Résumé : The Internet is a major source of health-related information for parents of sick children despite concerns surrounding quality. For neurodevelopmental disorders, the websites of advocacy groups are a largely unexamined source of information. We evaluated treatment information posted on nine highly-trafficked advocacy websites for autism, cerebral palsy, and fetal alcohol spectrum disorder. We found that the majority of claims about treatment safety and efficacy were unsubstantiated. Instead, a range of rhetorical strategies were used to imply scientific support. When peer-reviewed publications were cited, 20 % were incorrect or irrelevant. We call for new partnerships between advocacy and experts in developmental disorders to ensure better accuracy and higher transparency about how treatment information is selected and evidenced on advocacy websites. En ligne : http://dx.doi.org/10.1007/s10803-012-1551-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=187
in Journal of Autism and Developmental Disorders > 43-1 (January 2013) . - p.122-133[article] Treatments for Neurodevelopmental Disorders: Evidence, Advocacy, and the Internet [Texte imprimé et/ou numérique] / Nina C. DI PIETRO, Auteur ; Louise WHITELEY, Auteur ; Ania MIZGALEWICZ, Auteur ; Judy ILLES, Auteur . - p.122-133.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 43-1 (January 2013) . - p.122-133
Mots-clés : Autism cerebral palsy Foetal alcohol spectrum disorder Advocacy Internet Treatment information Science communication Ethics Content analysis Index. décimale : PER Périodiques Résumé : The Internet is a major source of health-related information for parents of sick children despite concerns surrounding quality. For neurodevelopmental disorders, the websites of advocacy groups are a largely unexamined source of information. We evaluated treatment information posted on nine highly-trafficked advocacy websites for autism, cerebral palsy, and fetal alcohol spectrum disorder. We found that the majority of claims about treatment safety and efficacy were unsubstantiated. Instead, a range of rhetorical strategies were used to imply scientific support. When peer-reviewed publications were cited, 20 % were incorrect or irrelevant. We call for new partnerships between advocacy and experts in developmental disorders to ensure better accuracy and higher transparency about how treatment information is selected and evidenced on advocacy websites. En ligne : http://dx.doi.org/10.1007/s10803-012-1551-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=187