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Person-oriented ethics for autism research: Creating best practices through engagement with autism and autistic communities / M. Ariel CASCIO in Autism, 24-7 (October 2020)
[article]
Titre : Person-oriented ethics for autism research: Creating best practices through engagement with autism and autistic communities Type de document : Texte imprimé et/ou numérique Auteurs : M. Ariel CASCIO, Auteur ; Jonathan A WEISS, Auteur ; Eric RACINE, Auteur Article en page(s) : p.1676-1690 Langues : Anglais (eng) Mots-clés : *advocacy *community engagement *ethics *informed consent *research ethics Index. décimale : PER Périodiques Résumé : Research ethics means issues that concern the welfare and wellbeing of people who take part in research. It is important in all scientific studies. Ethics helps people who do research treat people who take part in research fairly and with respect. This article is about day-to-day ethics when autistic people take part in research. We present tips for researchers who want to do this type of study.We used two methods to create these tips. First, we wanted to know what other people said about this topic. We used a literature review to find out. Second, we wanted to know what autistic people, parents, and professionals thought, and had a working group meet to discuss it. The working group provided advice that researchers could consider around day-to-day ethics in research. This article talks about these methods and advice. The advice fits into five big groups:Tailor the research process for the unique needs of each person.Think about the world in which people who take part in research live.Make it easier for people to make their own choices.Value what people who take part in research have to share and consider their needs and strengths.Think about how researchers and people who take part in research work together.This project shows why it is useful for researchers and communities to talk about research ethics together. En ligne : http://dx.doi.org/10.1177/1362361320918763 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431
in Autism > 24-7 (October 2020) . - p.1676-1690[article] Person-oriented ethics for autism research: Creating best practices through engagement with autism and autistic communities [Texte imprimé et/ou numérique] / M. Ariel CASCIO, Auteur ; Jonathan A WEISS, Auteur ; Eric RACINE, Auteur . - p.1676-1690.
Langues : Anglais (eng)
in Autism > 24-7 (October 2020) . - p.1676-1690
Mots-clés : *advocacy *community engagement *ethics *informed consent *research ethics Index. décimale : PER Périodiques Résumé : Research ethics means issues that concern the welfare and wellbeing of people who take part in research. It is important in all scientific studies. Ethics helps people who do research treat people who take part in research fairly and with respect. This article is about day-to-day ethics when autistic people take part in research. We present tips for researchers who want to do this type of study.We used two methods to create these tips. First, we wanted to know what other people said about this topic. We used a literature review to find out. Second, we wanted to know what autistic people, parents, and professionals thought, and had a working group meet to discuss it. The working group provided advice that researchers could consider around day-to-day ethics in research. This article talks about these methods and advice. The advice fits into five big groups:Tailor the research process for the unique needs of each person.Think about the world in which people who take part in research live.Make it easier for people to make their own choices.Value what people who take part in research have to share and consider their needs and strengths.Think about how researchers and people who take part in research work together.This project shows why it is useful for researchers and communities to talk about research ethics together. En ligne : http://dx.doi.org/10.1177/1362361320918763 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431 Moral foundations theory in autism spectrum disorder: A qualitative investigation / Erin E. DEMPSEY in Autism, 24-8 (November 2020)
[article]
Titre : Moral foundations theory in autism spectrum disorder: A qualitative investigation Type de document : Texte imprimé et/ou numérique Auteurs : Erin E. DEMPSEY, Auteur ; Chris MOORE, Auteur ; Annie E. RICHARD, Auteur ; Isabel M SMITH, Auteur Article en page(s) : p.2202-2212 Langues : Anglais (eng) Mots-clés : *autism spectrum disorders *commonsense psychology *ethics *moral emotion *moral foundations theory *morality *social cognition and social behaviour Index. décimale : PER Périodiques Résumé : Morality is important for how humans treat each other and non-human animals. Differences in moral thinking have been found between autistic and neurotypical individuals. This research has relied on ways of thinking about moral psychology that suggest that mature morals develop as individuals learn to take the perspectives of others. Yet, even autistic individuals, who sometimes differ in their ability to take others' perspectives, make moral judgements that are similar to neurotypical individuals. Moral foundations theory suggests that moral psychology is not hierarchical but differs depending on culture. This theory could therefore help make sense of similarities and differences in autistic and neurotypical moral thinking. Moral foundations theory has not yet been investigated among autistic individuals. In this study, we interviewed autistic adults as a first attempt at understanding how moral foundations theory fits with autistic moral thinking. We found that all five moral foundations of moral foundations theory were represented in the interviews, yet certain foundations appeared more prominent than others. The autistic adults interviewed in our study discussed issues of care and fairness more than of loyalty, authority or purity when prompted to discuss moral transgressions. Future research should use quantitative methods to compare groups of autistic and neurotypical individuals to clarify similarities and differences in moral thinking between the groups. En ligne : http://dx.doi.org/10.1177/1362361320939331 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431
in Autism > 24-8 (November 2020) . - p.2202-2212[article] Moral foundations theory in autism spectrum disorder: A qualitative investigation [Texte imprimé et/ou numérique] / Erin E. DEMPSEY, Auteur ; Chris MOORE, Auteur ; Annie E. RICHARD, Auteur ; Isabel M SMITH, Auteur . - p.2202-2212.
Langues : Anglais (eng)
in Autism > 24-8 (November 2020) . - p.2202-2212
Mots-clés : *autism spectrum disorders *commonsense psychology *ethics *moral emotion *moral foundations theory *morality *social cognition and social behaviour Index. décimale : PER Périodiques Résumé : Morality is important for how humans treat each other and non-human animals. Differences in moral thinking have been found between autistic and neurotypical individuals. This research has relied on ways of thinking about moral psychology that suggest that mature morals develop as individuals learn to take the perspectives of others. Yet, even autistic individuals, who sometimes differ in their ability to take others' perspectives, make moral judgements that are similar to neurotypical individuals. Moral foundations theory suggests that moral psychology is not hierarchical but differs depending on culture. This theory could therefore help make sense of similarities and differences in autistic and neurotypical moral thinking. Moral foundations theory has not yet been investigated among autistic individuals. In this study, we interviewed autistic adults as a first attempt at understanding how moral foundations theory fits with autistic moral thinking. We found that all five moral foundations of moral foundations theory were represented in the interviews, yet certain foundations appeared more prominent than others. The autistic adults interviewed in our study discussed issues of care and fairness more than of loyalty, authority or purity when prompted to discuss moral transgressions. Future research should use quantitative methods to compare groups of autistic and neurotypical individuals to clarify similarities and differences in moral thinking between the groups. En ligne : http://dx.doi.org/10.1177/1362361320939331 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431