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Brief Report: Modest but Clinically Meaningful Effects of Early Behavioral Intervention in Twins with Rett Syndrome-A Case Study / K. B. TITLESTAD in Journal of Autism and Developmental Disorders, 49-12 (December 2019)
[article]
Titre : Brief Report: Modest but Clinically Meaningful Effects of Early Behavioral Intervention in Twins with Rett Syndrome-A Case Study Type de document : Texte imprimé et/ou numérique Auteurs : K. B. TITLESTAD, Auteur ; S. ELDEVIK, Auteur Article en page(s) : p.5063-5072 Langues : Anglais (eng) Mots-clés : Case study Clinical significance Early intensive behavioral intervention Rett syndrome Index. décimale : PER Périodiques Résumé : A growing evidence base supports early intensive behavioral intervention (EIBI) for young children with autism spectrum disorder. We have found only one study exploring the outcome of EIBI for children with Rett syndrome, which reported little effect. It suggested that future studies should employ more fine-grained outcome measures. We provided EIBI for twin 3-year-old girls with Rett syndrome for a period of 3 years. We analyzed raw scores and standard scores from a measure of adaptive behavior and a detailed assessment of skills across 25 areas. We detected moderate but clinically meaningful gains in areas such as communication and self-help. Gains are discussed from a quality of life perspective and whether the moderate effects can justify the resources required in EIBI. En ligne : http://dx.doi.org/10.1007/s10803-019-04185-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=411
in Journal of Autism and Developmental Disorders > 49-12 (December 2019) . - p.5063-5072[article] Brief Report: Modest but Clinically Meaningful Effects of Early Behavioral Intervention in Twins with Rett Syndrome-A Case Study [Texte imprimé et/ou numérique] / K. B. TITLESTAD, Auteur ; S. ELDEVIK, Auteur . - p.5063-5072.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-12 (December 2019) . - p.5063-5072
Mots-clés : Case study Clinical significance Early intensive behavioral intervention Rett syndrome Index. décimale : PER Périodiques Résumé : A growing evidence base supports early intensive behavioral intervention (EIBI) for young children with autism spectrum disorder. We have found only one study exploring the outcome of EIBI for children with Rett syndrome, which reported little effect. It suggested that future studies should employ more fine-grained outcome measures. We provided EIBI for twin 3-year-old girls with Rett syndrome for a period of 3 years. We analyzed raw scores and standard scores from a measure of adaptive behavior and a detailed assessment of skills across 25 areas. We detected moderate but clinically meaningful gains in areas such as communication and self-help. Gains are discussed from a quality of life perspective and whether the moderate effects can justify the resources required in EIBI. En ligne : http://dx.doi.org/10.1007/s10803-019-04185-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=411 Hidden communicative competence: Case study evidence using eye-tracking and video analysis / Andrew GRAYSON in Autism, 16-1 (January 2012)
[article]
Titre : Hidden communicative competence: Case study evidence using eye-tracking and video analysis Type de document : Texte imprimé et/ou numérique Auteurs : Andrew GRAYSON, Auteur ; Anne EMERSON, Auteur ; Patricia HOWARD-JONES, Auteur ; Lynne O’NEIL, Auteur Année de publication : 2012 Article en page(s) : p.75-86 Langues : Anglais (eng) Mots-clés : autism case study communication disability communication skills eye-tracking facilitated communication intellectual disability learning disability literacy video analysis systematic observation Index. décimale : PER Périodiques Résumé : A facilitated communication (FC) user with an autism spectrum disorder produced sophisticated texts by pointing, with physical support, to letters on a letterboard while their eyes were tracked and while their pointing movements were video recorded. This FC user has virtually no independent means of expression, and is held to have no literacy skills. The resulting data were subjected to a variety of analyses aimed at describing the relationship between the FC user’s looking and pointing behaviours, in order to make inferences about the complex question of ‘authorship’. The eye-tracking data present a challenge to traditional ‘facilitator influence’ accounts of authorship, and are consistent with the proposition that this FC user does indeed author the sophisticated texts that are attributed to him; he looks for longer at to-be-typed letters before typing them, and looks ahead to subsequent letters of words before the next letter of the word is typed. En ligne : http://dx.doi.org/10.1177/1362361310393260 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=153
in Autism > 16-1 (January 2012) . - p.75-86[article] Hidden communicative competence: Case study evidence using eye-tracking and video analysis [Texte imprimé et/ou numérique] / Andrew GRAYSON, Auteur ; Anne EMERSON, Auteur ; Patricia HOWARD-JONES, Auteur ; Lynne O’NEIL, Auteur . - 2012 . - p.75-86.
Langues : Anglais (eng)
in Autism > 16-1 (January 2012) . - p.75-86
Mots-clés : autism case study communication disability communication skills eye-tracking facilitated communication intellectual disability learning disability literacy video analysis systematic observation Index. décimale : PER Périodiques Résumé : A facilitated communication (FC) user with an autism spectrum disorder produced sophisticated texts by pointing, with physical support, to letters on a letterboard while their eyes were tracked and while their pointing movements were video recorded. This FC user has virtually no independent means of expression, and is held to have no literacy skills. The resulting data were subjected to a variety of analyses aimed at describing the relationship between the FC user’s looking and pointing behaviours, in order to make inferences about the complex question of ‘authorship’. The eye-tracking data present a challenge to traditional ‘facilitator influence’ accounts of authorship, and are consistent with the proposition that this FC user does indeed author the sophisticated texts that are attributed to him; he looks for longer at to-be-typed letters before typing them, and looks ahead to subsequent letters of words before the next letter of the word is typed. En ligne : http://dx.doi.org/10.1177/1362361310393260 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=153