2 recherche sur le mot-clé 'Questionnaire development'

Development of the Emotion Dysregulation Inventory: A PROMIS(R)ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder / Carla A. MAZEFSKY in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3736-3746 Titre : Development of the Emotion Dysregulation Inventory: A PROMIS(R)ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Carla A. MAZEFSKY, Auteur ; Taylor N. DAY, Auteur ; Matthew SIEGEL, Auteur ; Susan W. WHITE, Auteur ; Lan YU, Auteur ; Paul A. PILKONIS, Auteur Article en page(s) : p.3736-3746 Langues : Anglais (eng) Mots-clés : Autism Inpatient Collection  Autism spectrum disorder (ASD)  Emotion regulation  Patient-Reported Outcomes Measurement Information System (PROMIS(R))  Psychiatric inpatients  Questionnaire development Index. décimale : PER Périodiques Résumé : The lack of sensitive measures suitable for use across the range of functioning in autism spectrum disorder (ASD) is a barrier to treatment development and monitoring. The Emotion Dysregulation Inventory (EDI) is a caregiver-report questionnaire designed to capture emotional distress and problems with emotion regulation in both minimally verbal and verbal individuals. The first two phases of the EDI's development are described, including: (1) utilizing methods from the Patient-Reported Outcomes Measurement Information System (PROMIS(R)) project to develop the item pool and response options; and (2) assessment of the EDI in psychiatric inpatients with ASD. The results suggest that the EDI captures a wide range of emotion dysregulation, is sensitive to change, and is not biased by verbal or intellectual ability. En ligne : http://dx.doi.org/10.1007/s10803-016-2907-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370 [article] Development of the Emotion Dysregulation Inventory: A PROMIS(R)ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder [texte imprimé] / Carla A. MAZEFSKY, Auteur ; Taylor N. DAY, Auteur ; Matthew SIEGEL, Auteur ; Susan W. WHITE, Auteur ; Lan YU, Auteur ; Paul A. PILKONIS, Auteur . - p.3736-3746. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3736-3746 Mots-clés : Autism Inpatient Collection  Autism spectrum disorder (ASD)  Emotion regulation  Patient-Reported Outcomes Measurement Information System (PROMIS(R))  Psychiatric inpatients  Questionnaire development Index. décimale : PER Périodiques Résumé : The lack of sensitive measures suitable for use across the range of functioning in autism spectrum disorder (ASD) is a barrier to treatment development and monitoring. The Emotion Dysregulation Inventory (EDI) is a caregiver-report questionnaire designed to capture emotional distress and problems with emotion regulation in both minimally verbal and verbal individuals. The first two phases of the EDI's development are described, including: (1) utilizing methods from the Patient-Reported Outcomes Measurement Information System (PROMIS(R)) project to develop the item pool and response options; and (2) assessment of the EDI in psychiatric inpatients with ASD. The results suggest that the EDI captures a wide range of emotion dysregulation, is sensitive to change, and is not biased by verbal or intellectual ability. En ligne : http://dx.doi.org/10.1007/s10803-016-2907-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370

Expanding quality of life assessment for autistic adults in mid- to late-life: Measure development and validation / Hannah E. VINER in Research in Autism, 135 (July 2026)  

Public ISBD [article]  inResearch in Autism > 135 (July 2026) . - 202933 Titre : Expanding quality of life assessment for autistic adults in mid- to late-life: Measure development and validation Type de document : texte imprimé Auteurs : Hannah E. VINER, Auteur ; Philipp SISCHKA, Auteur ; Holly RADFORD, Auteur ; Anna E. KORNADT, Auteur Année de publication : 2026 Article en page(s) : 202933 Langues : Anglais (eng) Mots-clés : Autism  PCA  Neurodiversity  Questionnaire development  Ageing  Quality of life Index. décimale : PER Périodiques Résumé : Background and objectives Quality of life (QoL) has been identified as a key research priority by the autism community. Previous qualitative research has highlighted autism-specific QoL domains which are not captured by existing QoL measures. Accurately measuring QoL across the lifespan is essential to providing appropriate support and services which enhance QoL and ageing experiences. This study aimed to develop and validate a novel Quality of Life for Autistic Adults (QoL-AA) measure reflecting these underrepresented or absent domains. Research design and methods A total of 407 autistic adults aged 40–76 years from the United Kingdom, Germany, and Luxembourg completed an online questionnaire including 15 new QoL items, established QoL questionnaires, and measures of mental health and loneliness. Results Principal Component Analysis identified three components: Accessibility and Acceptance, Interpersonal Connection and Support, and Control over Daily Life. As expected, these components correlated positively with existing QoL measures and negatively with mental health and loneliness measures. The components explained significant additional variance in depression, anxiety, perceived stress, and loneliness, beyond existing QoL measures. Individual components demonstrated differential associations with each outcome and can be used as independent modules. Discussion and implications The resulting QoL-AA measure, available in English, French, and German, provides initial validation of a tool addressing QoL domains identified as important by autistic adults in mid- to late-life, supporting a more comprehensive assessment of autistic adults’ QoL in later life. En ligne : https://doi.org/10.1016/j.reia.2026.202933 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588 [article] Expanding quality of life assessment for autistic adults in mid- to late-life: Measure development and validation [texte imprimé] / Hannah E. VINER, Auteur ; Philipp SISCHKA, Auteur ; Holly RADFORD, Auteur ; Anna E. KORNADT, Auteur . - 2026 . - 202933. Langues : Anglais (eng) in Research in Autism > 135 (July 2026) . - 202933 Mots-clés : Autism  PCA  Neurodiversity  Questionnaire development  Ageing  Quality of life Index. décimale : PER Périodiques Résumé : Background and objectives Quality of life (QoL) has been identified as a key research priority by the autism community. Previous qualitative research has highlighted autism-specific QoL domains which are not captured by existing QoL measures. Accurately measuring QoL across the lifespan is essential to providing appropriate support and services which enhance QoL and ageing experiences. This study aimed to develop and validate a novel Quality of Life for Autistic Adults (QoL-AA) measure reflecting these underrepresented or absent domains. Research design and methods A total of 407 autistic adults aged 40–76 years from the United Kingdom, Germany, and Luxembourg completed an online questionnaire including 15 new QoL items, established QoL questionnaires, and measures of mental health and loneliness. Results Principal Component Analysis identified three components: Accessibility and Acceptance, Interpersonal Connection and Support, and Control over Daily Life. As expected, these components correlated positively with existing QoL measures and negatively with mental health and loneliness measures. The components explained significant additional variance in depression, anxiety, perceived stress, and loneliness, beyond existing QoL measures. Individual components demonstrated differential associations with each outcome and can be used as independent modules. Discussion and implications The resulting QoL-AA measure, available in English, French, and German, provides initial validation of a tool addressing QoL domains identified as important by autistic adults in mid- to late-life, supporting a more comprehensive assessment of autistic adults’ QoL in later life. En ligne : https://doi.org/10.1016/j.reia.2026.202933 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588