Centre d'Information et de documentation du CRA Rhône-Alpes
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Autistic women?s experiences of self-compassion after receiving their diagnosis in adulthood / Rosemarie B. WILSON in Autism, 27-5 (July 2023)
[article]
Titre : Autistic women?s experiences of self-compassion after receiving their diagnosis in adulthood Type de document : Texte imprimé et/ou numérique Auteurs : Rosemarie B. WILSON, Auteur ; Andrew R. THOMPSON, Auteur ; Georgina ROWSE, Auteur ; Richard SMITH, Auteur ; Amber-Sophie DUGDALE, Auteur ; Megan FREETH, Auteur Article en page(s) : p.1336-1347 Langues : Anglais (eng) Mots-clés : adults;autistic women;diagnosis;health services;interpretative phenomenological analysis;lived experience;qualitative research;self-compassion Index. décimale : PER Périodiques Résumé : Knowledge of autistic individuals' experiences of self-compassion is very limited. This study investigated autistic women?s experiences of self-compassion after receiving their diagnosis in adulthood. Eleven autistic women completed semi-structured interviews analysed using interpretative phenomenological analysis. Three super-ordinate themes were identified: "Disconnect between the autistic self and experience of societal expectations" (the burden of conformity; autism is misunderstood; social challenges; mental health impact); "Unmasking: the process of self-understanding" (autonomy and self-compassion; validation and grief) and "Impact on relationships" (diagnosis disclosure dilemmas; connection and understanding). Frustration with society?s misconceptions of autism and unhelpful thinking styles were presented as barriers to self-compassion. Most participants reported that their diagnosis had led to the development of a greater sense of self-understanding, which facilitated self-compassion. Some participants suggested their own increased understanding of autism facilitated their compassion towards others. Findings from this study have clinical implications for increasing understanding about autistic women?s experiences of self-compassion and possibly ways to facilitate its development, to enhance well-being. Lay abstract Knowledge of autistic individuals' experiences of self-compassion is very limited. This study investigated autistic women?s experiences of self-compassion after receiving their diagnosis in adulthood. Eleven autistic women were interviewed about their experiences of receiving their diagnosis in adulthood and their experiences of self-compassion. Systematic analysis of the interview transcripts revealed common themes in the participants' experiences. Participants reported that their autism diagnosis helped them to better understand themselves, particularly when reflecting on problematic past experiences. After receiving an autism diagnosis, participants described being able to relate to themselves with greater self-kindness compared to previous self-criticism; this included allowing themselves to assert their needs and engage in self-care activities. Participants spoke about having difficult social experiences, including feeling pressure to conform to expectations in society and often feeling misunderstood. The findings highlight the barriers autistic women face obtaining their diagnoses and demonstrate the need for autism training for professionals to support early identification. Findings from this study suggest that interventions aimed at developing self-compassion could support and enhance autistic women?s well-being. En ligne : http://dx.doi.org/10.1177/13623613221136752 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=507
in Autism > 27-5 (July 2023) . - p.1336-1347[article] Autistic women?s experiences of self-compassion after receiving their diagnosis in adulthood [Texte imprimé et/ou numérique] / Rosemarie B. WILSON, Auteur ; Andrew R. THOMPSON, Auteur ; Georgina ROWSE, Auteur ; Richard SMITH, Auteur ; Amber-Sophie DUGDALE, Auteur ; Megan FREETH, Auteur . - p.1336-1347.
Langues : Anglais (eng)
in Autism > 27-5 (July 2023) . - p.1336-1347
Mots-clés : adults;autistic women;diagnosis;health services;interpretative phenomenological analysis;lived experience;qualitative research;self-compassion Index. décimale : PER Périodiques Résumé : Knowledge of autistic individuals' experiences of self-compassion is very limited. This study investigated autistic women?s experiences of self-compassion after receiving their diagnosis in adulthood. Eleven autistic women completed semi-structured interviews analysed using interpretative phenomenological analysis. Three super-ordinate themes were identified: "Disconnect between the autistic self and experience of societal expectations" (the burden of conformity; autism is misunderstood; social challenges; mental health impact); "Unmasking: the process of self-understanding" (autonomy and self-compassion; validation and grief) and "Impact on relationships" (diagnosis disclosure dilemmas; connection and understanding). Frustration with society?s misconceptions of autism and unhelpful thinking styles were presented as barriers to self-compassion. Most participants reported that their diagnosis had led to the development of a greater sense of self-understanding, which facilitated self-compassion. Some participants suggested their own increased understanding of autism facilitated their compassion towards others. Findings from this study have clinical implications for increasing understanding about autistic women?s experiences of self-compassion and possibly ways to facilitate its development, to enhance well-being. Lay abstract Knowledge of autistic individuals' experiences of self-compassion is very limited. This study investigated autistic women?s experiences of self-compassion after receiving their diagnosis in adulthood. Eleven autistic women were interviewed about their experiences of receiving their diagnosis in adulthood and their experiences of self-compassion. Systematic analysis of the interview transcripts revealed common themes in the participants' experiences. Participants reported that their autism diagnosis helped them to better understand themselves, particularly when reflecting on problematic past experiences. After receiving an autism diagnosis, participants described being able to relate to themselves with greater self-kindness compared to previous self-criticism; this included allowing themselves to assert their needs and engage in self-care activities. Participants spoke about having difficult social experiences, including feeling pressure to conform to expectations in society and often feeling misunderstood. The findings highlight the barriers autistic women face obtaining their diagnoses and demonstrate the need for autism training for professionals to support early identification. Findings from this study suggest that interventions aimed at developing self-compassion could support and enhance autistic women?s well-being. En ligne : http://dx.doi.org/10.1177/13623613221136752 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=507