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Auteur Andrew R. THOMPSON |
Documents disponibles écrits par cet auteur (4)
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Autistic women?s experiences of self-compassion after receiving their diagnosis in adulthood / Rosemarie B. WILSON in Autism, 27-5 (July 2023)
[article]
Titre : Autistic women?s experiences of self-compassion after receiving their diagnosis in adulthood Type de document : Texte imprimé et/ou numérique Auteurs : Rosemarie B. WILSON, Auteur ; Andrew R. THOMPSON, Auteur ; Georgina ROWSE, Auteur ; Richard SMITH, Auteur ; Amber-Sophie DUGDALE, Auteur ; Megan FREETH, Auteur Article en page(s) : p.1336-1347 Langues : Anglais (eng) Mots-clés : adults;autistic women;diagnosis;health services;interpretative phenomenological analysis;lived experience;qualitative research;self-compassion Index. décimale : PER Périodiques Résumé : Knowledge of autistic individuals' experiences of self-compassion is very limited. This study investigated autistic women?s experiences of self-compassion after receiving their diagnosis in adulthood. Eleven autistic women completed semi-structured interviews analysed using interpretative phenomenological analysis. Three super-ordinate themes were identified: "Disconnect between the autistic self and experience of societal expectations" (the burden of conformity; autism is misunderstood; social challenges; mental health impact); "Unmasking: the process of self-understanding" (autonomy and self-compassion; validation and grief) and "Impact on relationships" (diagnosis disclosure dilemmas; connection and understanding). Frustration with society?s misconceptions of autism and unhelpful thinking styles were presented as barriers to self-compassion. Most participants reported that their diagnosis had led to the development of a greater sense of self-understanding, which facilitated self-compassion. Some participants suggested their own increased understanding of autism facilitated their compassion towards others. Findings from this study have clinical implications for increasing understanding about autistic women?s experiences of self-compassion and possibly ways to facilitate its development, to enhance well-being. Lay abstract Knowledge of autistic individuals' experiences of self-compassion is very limited. This study investigated autistic women?s experiences of self-compassion after receiving their diagnosis in adulthood. Eleven autistic women were interviewed about their experiences of receiving their diagnosis in adulthood and their experiences of self-compassion. Systematic analysis of the interview transcripts revealed common themes in the participants' experiences. Participants reported that their autism diagnosis helped them to better understand themselves, particularly when reflecting on problematic past experiences. After receiving an autism diagnosis, participants described being able to relate to themselves with greater self-kindness compared to previous self-criticism; this included allowing themselves to assert their needs and engage in self-care activities. Participants spoke about having difficult social experiences, including feeling pressure to conform to expectations in society and often feeling misunderstood. The findings highlight the barriers autistic women face obtaining their diagnoses and demonstrate the need for autism training for professionals to support early identification. Findings from this study suggest that interventions aimed at developing self-compassion could support and enhance autistic women?s well-being. En ligne : http://dx.doi.org/10.1177/13623613221136752 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=507
in Autism > 27-5 (July 2023) . - p.1336-1347[article] Autistic women?s experiences of self-compassion after receiving their diagnosis in adulthood [Texte imprimé et/ou numérique] / Rosemarie B. WILSON, Auteur ; Andrew R. THOMPSON, Auteur ; Georgina ROWSE, Auteur ; Richard SMITH, Auteur ; Amber-Sophie DUGDALE, Auteur ; Megan FREETH, Auteur . - p.1336-1347.
Langues : Anglais (eng)
in Autism > 27-5 (July 2023) . - p.1336-1347
Mots-clés : adults;autistic women;diagnosis;health services;interpretative phenomenological analysis;lived experience;qualitative research;self-compassion Index. décimale : PER Périodiques Résumé : Knowledge of autistic individuals' experiences of self-compassion is very limited. This study investigated autistic women?s experiences of self-compassion after receiving their diagnosis in adulthood. Eleven autistic women completed semi-structured interviews analysed using interpretative phenomenological analysis. Three super-ordinate themes were identified: "Disconnect between the autistic self and experience of societal expectations" (the burden of conformity; autism is misunderstood; social challenges; mental health impact); "Unmasking: the process of self-understanding" (autonomy and self-compassion; validation and grief) and "Impact on relationships" (diagnosis disclosure dilemmas; connection and understanding). Frustration with society?s misconceptions of autism and unhelpful thinking styles were presented as barriers to self-compassion. Most participants reported that their diagnosis had led to the development of a greater sense of self-understanding, which facilitated self-compassion. Some participants suggested their own increased understanding of autism facilitated their compassion towards others. Findings from this study have clinical implications for increasing understanding about autistic women?s experiences of self-compassion and possibly ways to facilitate its development, to enhance well-being. Lay abstract Knowledge of autistic individuals' experiences of self-compassion is very limited. This study investigated autistic women?s experiences of self-compassion after receiving their diagnosis in adulthood. Eleven autistic women were interviewed about their experiences of receiving their diagnosis in adulthood and their experiences of self-compassion. Systematic analysis of the interview transcripts revealed common themes in the participants' experiences. Participants reported that their autism diagnosis helped them to better understand themselves, particularly when reflecting on problematic past experiences. After receiving an autism diagnosis, participants described being able to relate to themselves with greater self-kindness compared to previous self-criticism; this included allowing themselves to assert their needs and engage in self-care activities. Participants spoke about having difficult social experiences, including feeling pressure to conform to expectations in society and often feeling misunderstood. The findings highlight the barriers autistic women face obtaining their diagnoses and demonstrate the need for autism training for professionals to support early identification. Findings from this study suggest that interventions aimed at developing self-compassion could support and enhance autistic women?s well-being. En ligne : http://dx.doi.org/10.1177/13623613221136752 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=507 'Conflict versus Congruence': A Qualitative Study Exploring the Experience of Gender Dysphoria for Adults with Autism Spectrum Disorder / Rachel S. COLEMAN-SMITH in Journal of Autism and Developmental Disorders, 50-8 (August 2020)
[article]
Titre : 'Conflict versus Congruence': A Qualitative Study Exploring the Experience of Gender Dysphoria for Adults with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Rachel S. COLEMAN-SMITH, Auteur ; Richard SMITH, Auteur ; Elizabeth MILNE, Auteur ; Andrew R. THOMPSON, Auteur Article en page(s) : p.2643-2657 Langues : Anglais (eng) Mots-clés : Autism Gender dysphoria Grounded theory Qualitative Index. décimale : PER Périodiques Résumé : An emergent evidence base indicates a higher prevalence of autism exists amongst people attending gender identity clinics. This qualitative study explored adults' with autism experiences of coming to understand and address their gender dysphoria (GD). Data were collected and analysed using Grounded Theory. Ten adults with autism and GD undertook semi-structured interviews. A tentative theoretical framework of common processes involved in understanding and addressing GD for individuals with autism was developed. The experience is captured in the core category-Conflict versus Congruence. A key finding was the impact of autism as a barrier but sometimes a protective factor in participants' understanding and addressing GD. Participants appeared to achieve greater personal congruence and wellbeing upon transition. Nevertheless, conflicts remained as they navigated the social world with a continuing fear of hostility and sense of difference due to having two stigmatised identities. En ligne : http://dx.doi.org/10.1007/s10803-019-04296-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428
in Journal of Autism and Developmental Disorders > 50-8 (August 2020) . - p.2643-2657[article] 'Conflict versus Congruence': A Qualitative Study Exploring the Experience of Gender Dysphoria for Adults with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Rachel S. COLEMAN-SMITH, Auteur ; Richard SMITH, Auteur ; Elizabeth MILNE, Auteur ; Andrew R. THOMPSON, Auteur . - p.2643-2657.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-8 (August 2020) . - p.2643-2657
Mots-clés : Autism Gender dysphoria Grounded theory Qualitative Index. décimale : PER Périodiques Résumé : An emergent evidence base indicates a higher prevalence of autism exists amongst people attending gender identity clinics. This qualitative study explored adults' with autism experiences of coming to understand and address their gender dysphoria (GD). Data were collected and analysed using Grounded Theory. Ten adults with autism and GD undertook semi-structured interviews. A tentative theoretical framework of common processes involved in understanding and addressing GD for individuals with autism was developed. The experience is captured in the core category-Conflict versus Congruence. A key finding was the impact of autism as a barrier but sometimes a protective factor in participants' understanding and addressing GD. Participants appeared to achieve greater personal congruence and wellbeing upon transition. Nevertheless, conflicts remained as they navigated the social world with a continuing fear of hostility and sense of difference due to having two stigmatised identities. En ligne : http://dx.doi.org/10.1007/s10803-019-04296-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428 Intense connection and love: The experiences of autistic mothers / Amber-Sophie DUGDALE in Autism, 26-7 (October 2022)
[article]
Titre : Intense connection and love: The experiences of autistic mothers Type de document : Texte imprimé et/ou numérique Auteurs : Amber-Sophie DUGDALE, Auteur ; Andrew R. THOMPSON, Auteur ; Alexandra LEEDHAM, Auteur ; Nigel BEAIL, Auteur ; Megan FREETH, Auteur Article en page(s) : p.1973-1984 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder Autistic Disorder Child Emotions Female Humans Love Mothers Pregnancy Qualitative Research autistic mother interpretative phenomenological analysis lived experience parenting Index. décimale : PER Périodiques Résumé : For many women, adulthood involves becoming a mother. Knowledge of how motherhood is experienced by autistic women is currently poor. Poor knowledge has a range of negative consequences and can lead to inappropriate support. In this study, nine autistic women were interviewed about their experiences of motherhood. Seven of the nine mothers had an officially diagnosed autistic child, the final two mothers also suspected at least one of their children to be autistic. Systematic in-depth analysis of interview transcripts identified a range of common themes. Participants largely experienced motherhood as joyful, rewarding, and enjoyable, though managing children's needs had a profound personal impact. Participants reflected on the need for self-care and self-acceptance, resulting in personal growth and adaptation. Participants also spoke of strong bonds, feelings of intense connection, and a range of shared experiences with their children. It was also clear that autistic motherhood is associated with a series of challenges unlikely to be experienced by non-autistic mothers, including the necessity of negotiating misunderstandings from others. The findings demonstrate that, generally, professionals need to be better educated on how autism presents in adulthood, including the fact that autistic women often engage in behaviour to mask their true self. Professionals need to know that there is potential for mismatching between emotional experience and facial expression, that autistic women have sensory needs (especially in pregnancy). Professionals frequently struggle to effectively take the needs and perspectives of autistic mothers into account, resulting in profoundly negative consequences for the mother. En ligne : http://dx.doi.org/10.1177/13623613211005987 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484
in Autism > 26-7 (October 2022) . - p.1973-1984[article] Intense connection and love: The experiences of autistic mothers [Texte imprimé et/ou numérique] / Amber-Sophie DUGDALE, Auteur ; Andrew R. THOMPSON, Auteur ; Alexandra LEEDHAM, Auteur ; Nigel BEAIL, Auteur ; Megan FREETH, Auteur . - p.1973-1984.
Langues : Anglais (eng)
in Autism > 26-7 (October 2022) . - p.1973-1984
Mots-clés : Adult Autism Spectrum Disorder Autistic Disorder Child Emotions Female Humans Love Mothers Pregnancy Qualitative Research autistic mother interpretative phenomenological analysis lived experience parenting Index. décimale : PER Périodiques Résumé : For many women, adulthood involves becoming a mother. Knowledge of how motherhood is experienced by autistic women is currently poor. Poor knowledge has a range of negative consequences and can lead to inappropriate support. In this study, nine autistic women were interviewed about their experiences of motherhood. Seven of the nine mothers had an officially diagnosed autistic child, the final two mothers also suspected at least one of their children to be autistic. Systematic in-depth analysis of interview transcripts identified a range of common themes. Participants largely experienced motherhood as joyful, rewarding, and enjoyable, though managing children's needs had a profound personal impact. Participants reflected on the need for self-care and self-acceptance, resulting in personal growth and adaptation. Participants also spoke of strong bonds, feelings of intense connection, and a range of shared experiences with their children. It was also clear that autistic motherhood is associated with a series of challenges unlikely to be experienced by non-autistic mothers, including the necessity of negotiating misunderstandings from others. The findings demonstrate that, generally, professionals need to be better educated on how autism presents in adulthood, including the fact that autistic women often engage in behaviour to mask their true self. Professionals need to know that there is potential for mismatching between emotional experience and facial expression, that autistic women have sensory needs (especially in pregnancy). Professionals frequently struggle to effectively take the needs and perspectives of autistic mothers into account, resulting in profoundly negative consequences for the mother. En ligne : http://dx.doi.org/10.1177/13623613211005987 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 The experience of seeking, receiving, and reflecting upon a diagnosis of autism in the UK: A meta-synthesis of qualitative studies conducted with autistic individuals / Rosemarie B. WILSON in Research in Autism Spectrum Disorders, 103 (May 2023)
[article]
Titre : The experience of seeking, receiving, and reflecting upon a diagnosis of autism in the UK: A meta-synthesis of qualitative studies conducted with autistic individuals Type de document : Texte imprimé et/ou numérique Auteurs : Rosemarie B. WILSON, Auteur ; Andrew R. THOMPSON, Auteur ; Georgina ROWSE, Auteur ; Megan FREETH, Auteur Article en page(s) : p.102135 Langues : Anglais (eng) Mots-clés : Autism Thematic synthesis Qualitative Diagnostic assessments Systematic review Index. décimale : PER Périodiques Résumé : Background The autism diagnosis process can profoundly impact an individual?s life. The purpose of this review is to systematically identify, appraise and synthesise qualitative research concerning individuals' experiences of seeking, receiving and reflecting upon a diagnosis of autism in the UK. The purpose is to improve understanding of how this process is experienced and identify potential areas for improvement. Method Six databases were systematically searched for qualitative studies exploring autistic individuals' experiences of the autistic diagnostic process in the UK. Nineteen studies met inclusion criteria and were analysed using Thematic Synthesis. Results Three super-ordinate themes were identified; 'Negotiating self-identity' making sense of the autism diagnosis, including navigating a distressing assessment process, conflicting emotions towards diagnosis, neurodiversity, self-reflection and self-kindness. 'Feeling Misunderstood' in society and the impact on well-being, including social challenges and mental health misdiagnosis. 'Support Post-Diagnosis' including increased understanding, connection and validation. Overall, limited understanding from professionals was found to create barriers to assessment and acquisition of appropriate support. Conclusions Adjustment to an autism diagnosis is a dynamic process accompanied by a range of emotional responses. In many cases the diagnosis facilitated self-understanding and self-kindness, contrasting with self-criticism pre-diagnosis. It is recommended that clinicians attempt to recognise strengths and support individuals during the typically deficit-focused autism assessment process. Findings demonstrate the need for further autism training for both specialist and non-specialist professionals and the benefits of peer support around the diagnostic process. This review also highlights wider societal misconceptions of autism, intolerance of difference and the subsequent mental health impacts on autistic individuals. En ligne : https://doi.org/10.1016/j.rasd.2023.102135 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=501
in Research in Autism Spectrum Disorders > 103 (May 2023) . - p.102135[article] The experience of seeking, receiving, and reflecting upon a diagnosis of autism in the UK: A meta-synthesis of qualitative studies conducted with autistic individuals [Texte imprimé et/ou numérique] / Rosemarie B. WILSON, Auteur ; Andrew R. THOMPSON, Auteur ; Georgina ROWSE, Auteur ; Megan FREETH, Auteur . - p.102135.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 103 (May 2023) . - p.102135
Mots-clés : Autism Thematic synthesis Qualitative Diagnostic assessments Systematic review Index. décimale : PER Périodiques Résumé : Background The autism diagnosis process can profoundly impact an individual?s life. The purpose of this review is to systematically identify, appraise and synthesise qualitative research concerning individuals' experiences of seeking, receiving and reflecting upon a diagnosis of autism in the UK. The purpose is to improve understanding of how this process is experienced and identify potential areas for improvement. Method Six databases were systematically searched for qualitative studies exploring autistic individuals' experiences of the autistic diagnostic process in the UK. Nineteen studies met inclusion criteria and were analysed using Thematic Synthesis. Results Three super-ordinate themes were identified; 'Negotiating self-identity' making sense of the autism diagnosis, including navigating a distressing assessment process, conflicting emotions towards diagnosis, neurodiversity, self-reflection and self-kindness. 'Feeling Misunderstood' in society and the impact on well-being, including social challenges and mental health misdiagnosis. 'Support Post-Diagnosis' including increased understanding, connection and validation. Overall, limited understanding from professionals was found to create barriers to assessment and acquisition of appropriate support. Conclusions Adjustment to an autism diagnosis is a dynamic process accompanied by a range of emotional responses. In many cases the diagnosis facilitated self-understanding and self-kindness, contrasting with self-criticism pre-diagnosis. It is recommended that clinicians attempt to recognise strengths and support individuals during the typically deficit-focused autism assessment process. Findings demonstrate the need for further autism training for both specialist and non-specialist professionals and the benefits of peer support around the diagnostic process. This review also highlights wider societal misconceptions of autism, intolerance of difference and the subsequent mental health impacts on autistic individuals. En ligne : https://doi.org/10.1016/j.rasd.2023.102135 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=501