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Faire une suggestionEfficacy of caregiver-mediated joint engagement intervention for young children with autism spectrum disorders / Chung-Hsin CHIANG in Autism, 20-2 (February 2016)
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Titre : Efficacy of caregiver-mediated joint engagement intervention for young children with autism spectrum disorders Type de document : texte imprimé Auteurs : Chung-Hsin CHIANG, Auteur ; Ching-Lin CHU, Auteur ; Tsung-Chin LEE, Auteur Article en page(s) : p.172-182 Langues : Anglais (eng) Mots-clés : autism spectrum disorders caregiver-mediated intervention joint attention joint engagement Index. décimale : PER Périodiques Résumé : Joint attention intervention for children with autism spectrum disorders was focused on improving joint engagement and joint attention skills. The purpose of this study was to develop a caregiver-mediated joint engagement intervention program combined with body movement play to investigate the effects of joint engagement/joint attention skills in young children with autism spectrum disorders. A quasi-experimental research design was conducted. A total of 34 young children with autism spectrum disorders aged 2–4 years were separated into an intervention and a control group. The program consisted of 20 sessions, 60 min per session, twice a week, for the target child and his or her parent. The results indicated that child-initiated supportive and coordinated joint engagement was greater for the intervention group compared with the control group at 3-month follow-up. This demonstrated that our joint engagement intervention could enhance joint engagement, especially coordinated joint engagement for young children with autism spectrum disorders. The limitations of the study and future directions were discussed. En ligne : http://dx.doi.org/10.1177/1362361315575725 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=278
in Autism > 20-2 (February 2016) . - p.172-182[article] Efficacy of caregiver-mediated joint engagement intervention for young children with autism spectrum disorders [texte imprimé] / Chung-Hsin CHIANG, Auteur ; Ching-Lin CHU, Auteur ; Tsung-Chin LEE, Auteur . - p.172-182.
Langues : Anglais (eng)
in Autism > 20-2 (February 2016) . - p.172-182
Mots-clés : autism spectrum disorders caregiver-mediated intervention joint attention joint engagement Index. décimale : PER Périodiques Résumé : Joint attention intervention for children with autism spectrum disorders was focused on improving joint engagement and joint attention skills. The purpose of this study was to develop a caregiver-mediated joint engagement intervention program combined with body movement play to investigate the effects of joint engagement/joint attention skills in young children with autism spectrum disorders. A quasi-experimental research design was conducted. A total of 34 young children with autism spectrum disorders aged 2–4 years were separated into an intervention and a control group. The program consisted of 20 sessions, 60 min per session, twice a week, for the target child and his or her parent. The results indicated that child-initiated supportive and coordinated joint engagement was greater for the intervention group compared with the control group at 3-month follow-up. This demonstrated that our joint engagement intervention could enhance joint engagement, especially coordinated joint engagement for young children with autism spectrum disorders. The limitations of the study and future directions were discussed. En ligne : http://dx.doi.org/10.1177/1362361315575725 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=278 The relationship between treatment attendance, adherence, and outcome in a caregiver-mediated intervention for low-resourced families of young children with autism spectrum disorder / Themba CARR in Autism, 20-6 (August 2016)
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Titre : The relationship between treatment attendance, adherence, and outcome in a caregiver-mediated intervention for low-resourced families of young children with autism spectrum disorder Type de document : texte imprimé Auteurs : Themba CARR, Auteur ; Wendy SHIH, Auteur ; Kathy LAWTON, Auteur ; Catherine LORD, Auteur ; Bryan KING, Auteur ; Connie KASARI, Auteur Article en page(s) : p.643-652 Langues : Anglais (eng) Mots-clés : adherence attendance autism caregiver-mediated intervention under-resourced families Index. décimale : PER Périodiques Résumé : Rates of participation in intervention research have not been extensively studied within autism spectrum disorder. Such research is important given the benefit of early intervention on long-term prognosis for children with autism spectrum disorder. The goals of this study were to examine how family demographic factors predicted treatment attendance and adherence in a caregiver-mediated randomized controlled trial targeting core deficits of autism spectrum disorder, and whether treatment attendance and adherence predicted outcome. In all, 147 caregiver–child dyads from a low-resourced population were randomized to in-home caregiver-mediated module or group-based caregiver education module treatment. Treatment attendance, adherence, and outcome (time spent in joint engagement) were the primary outcome variables. The majority of families who entered treatment (N = 87) maintained good attendance. Attendance was significantly predicted by socioeconomic status, site, and treatment condition. Families in caregiver-mediated module reported lower levels of treatment adherence, which was significantly predicted by site, condition, caregiver stress, and child nonverbal intelligence quotient. Dyads in caregiver-mediated module had significantly longer interactions of joint engagement, which was significantly predicted by an interaction between treatment attendance and condition. Overall, the results from this study stress the importance of considering demographic variables in research design when considering barriers to treatment attendance and adherence. En ligne : http://dx.doi.org/10.1177/1362361315598634 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290
in Autism > 20-6 (August 2016) . - p.643-652[article] The relationship between treatment attendance, adherence, and outcome in a caregiver-mediated intervention for low-resourced families of young children with autism spectrum disorder [texte imprimé] / Themba CARR, Auteur ; Wendy SHIH, Auteur ; Kathy LAWTON, Auteur ; Catherine LORD, Auteur ; Bryan KING, Auteur ; Connie KASARI, Auteur . - p.643-652.
Langues : Anglais (eng)
in Autism > 20-6 (August 2016) . - p.643-652
Mots-clés : adherence attendance autism caregiver-mediated intervention under-resourced families Index. décimale : PER Périodiques Résumé : Rates of participation in intervention research have not been extensively studied within autism spectrum disorder. Such research is important given the benefit of early intervention on long-term prognosis for children with autism spectrum disorder. The goals of this study were to examine how family demographic factors predicted treatment attendance and adherence in a caregiver-mediated randomized controlled trial targeting core deficits of autism spectrum disorder, and whether treatment attendance and adherence predicted outcome. In all, 147 caregiver–child dyads from a low-resourced population were randomized to in-home caregiver-mediated module or group-based caregiver education module treatment. Treatment attendance, adherence, and outcome (time spent in joint engagement) were the primary outcome variables. The majority of families who entered treatment (N = 87) maintained good attendance. Attendance was significantly predicted by socioeconomic status, site, and treatment condition. Families in caregiver-mediated module reported lower levels of treatment adherence, which was significantly predicted by site, condition, caregiver stress, and child nonverbal intelligence quotient. Dyads in caregiver-mediated module had significantly longer interactions of joint engagement, which was significantly predicted by an interaction between treatment attendance and condition. Overall, the results from this study stress the importance of considering demographic variables in research design when considering barriers to treatment attendance and adherence. En ligne : http://dx.doi.org/10.1177/1362361315598634 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290 Feasibility and acceptability of a caregiver-mediated early support program, delivered online, for infants at elevated familial likelihood for autism: A feasibility randomized controlled trial / Malavi SRIKAR ; Reny RAJU ; Divya SWAMINATHAN ; Rachel Elizabeth JOHNSON ; Linda R. WATSON ; Deepa Bhat NAIR ; John Vijay Sagar KOMMU ; Jo CHOPRA-MCGOWAN ; Prathyusha P. VASUKI in Autism Research, 17-9 (September 2024)
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Titre : Feasibility and acceptability of a caregiver-mediated early support program, delivered online, for infants at elevated familial likelihood for autism: A feasibility randomized controlled trial Type de document : texte imprimé Auteurs : Malavi SRIKAR, Auteur ; Reny RAJU, Auteur ; Divya SWAMINATHAN, Auteur ; Rachel Elizabeth JOHNSON, Auteur ; Linda R. WATSON, Auteur ; Deepa Bhat NAIR, Auteur ; John Vijay Sagar KOMMU, Auteur ; Jo CHOPRA-MCGOWAN, Auteur ; Prathyusha P. VASUKI, Auteur Article en page(s) : p.1853-1866 Langues : Anglais (eng) Mots-clés : acceptability caregiver perspectives caregiver-mediated intervention elevated likelihood for autism feasibility LiL' STEPS randomized controlled trial Index. décimale : PER Périodiques Résumé : Abstract Preliminary evidence indicates potential benefit of providing caregiver-mediated intervention, prior to diagnosis, for infants at elevated familial likelihood for autism and related developmental delays including language delay (EL-A). However, delivering such interventions online and in low-resource settings like India has not been reported. This study aimed to evaluate the feasibility and acceptability of delivering a novel manualized caregiver-mediated early support program, the ?LiL' STEPS,? online in India, for EL-A infants. LiL' STEPS stands for Language development & Intervention Lab's (LiL') Supporting Early social-communication and language by Promoting caregiver Sensitive responsiveness (STEPS). The program comprised 14 sessions with a focus on social-communication and language, conducted over 12-weeks using demonstration and video feedback. Families of 36 EL-A infants aged 9 to 15-months participated in this feasibility randomized controlled trial (RCT). Families were randomized in a 2:1 ratio (n 24 LiL' STEPS and n 12 care as usual groups). Information on feasibility and acceptability was collated following a mixed methods approach from caregiver interviews, fidelity forms, session notes, and study register. Findings indicated the LiL' STEPS study trial as feasible and acceptable with recruitment rate of 4 per month, 100% willingness for randomization, 8.3% attrition, and 3.03% loss of blinding. Interventionist and caregiver fidelity was maintained above 80%. Despite challenges like interruptions during sessions, 100% families found the program acceptable and satisfactory, 86% said they would recommend the program to others, and 71% preferred online modality. Caregivers' perspectives on beneficial components and experience attending the program have been described. Accordingly, recommendations for future definitive RCTs have been presented. En ligne : https://doi.org/10.1002/aur.3217 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535
in Autism Research > 17-9 (September 2024) . - p.1853-1866[article] Feasibility and acceptability of a caregiver-mediated early support program, delivered online, for infants at elevated familial likelihood for autism: A feasibility randomized controlled trial [texte imprimé] / Malavi SRIKAR, Auteur ; Reny RAJU, Auteur ; Divya SWAMINATHAN, Auteur ; Rachel Elizabeth JOHNSON, Auteur ; Linda R. WATSON, Auteur ; Deepa Bhat NAIR, Auteur ; John Vijay Sagar KOMMU, Auteur ; Jo CHOPRA-MCGOWAN, Auteur ; Prathyusha P. VASUKI, Auteur . - p.1853-1866.
Langues : Anglais (eng)
in Autism Research > 17-9 (September 2024) . - p.1853-1866
Mots-clés : acceptability caregiver perspectives caregiver-mediated intervention elevated likelihood for autism feasibility LiL' STEPS randomized controlled trial Index. décimale : PER Périodiques Résumé : Abstract Preliminary evidence indicates potential benefit of providing caregiver-mediated intervention, prior to diagnosis, for infants at elevated familial likelihood for autism and related developmental delays including language delay (EL-A). However, delivering such interventions online and in low-resource settings like India has not been reported. This study aimed to evaluate the feasibility and acceptability of delivering a novel manualized caregiver-mediated early support program, the ?LiL' STEPS,? online in India, for EL-A infants. LiL' STEPS stands for Language development & Intervention Lab's (LiL') Supporting Early social-communication and language by Promoting caregiver Sensitive responsiveness (STEPS). The program comprised 14 sessions with a focus on social-communication and language, conducted over 12-weeks using demonstration and video feedback. Families of 36 EL-A infants aged 9 to 15-months participated in this feasibility randomized controlled trial (RCT). Families were randomized in a 2:1 ratio (n 24 LiL' STEPS and n 12 care as usual groups). Information on feasibility and acceptability was collated following a mixed methods approach from caregiver interviews, fidelity forms, session notes, and study register. Findings indicated the LiL' STEPS study trial as feasible and acceptable with recruitment rate of 4 per month, 100% willingness for randomization, 8.3% attrition, and 3.03% loss of blinding. Interventionist and caregiver fidelity was maintained above 80%. Despite challenges like interruptions during sessions, 100% families found the program acceptable and satisfactory, 86% said they would recommend the program to others, and 71% preferred online modality. Caregivers' perspectives on beneficial components and experience attending the program have been described. Accordingly, recommendations for future definitive RCTs have been presented. En ligne : https://doi.org/10.1002/aur.3217 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535 Short report: Associations of family characteristics and clinicians" use of caregiver coaching in early intervention / Diondra STRAITON ; David S MANDELL ; Brooke R. INGERSOLL ; Samantha CRABBE ; Sarah RIETH ; Melanie PELLECCHIA in Autism, 29-7 (July 2025)
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Titre : Short report: Associations of family characteristics and clinicians" use of caregiver coaching in early intervention Type de document : texte imprimé Auteurs : Diondra STRAITON, Auteur ; David S MANDELL, Auteur ; Brooke R. INGERSOLL, Auteur ; Samantha CRABBE, Auteur ; Sarah RIETH, Auteur ; Melanie PELLECCHIA, Auteur Article en page(s) : p.1898-1906 Langues : Anglais (eng) Mots-clés : autism services caregiver-mediated intervention community-based implementation early intervention family characteristics Index. décimale : PER Périodiques Résumé : There is a great demand for quality early intervention services for autistic children and their families. Caregiver-mediated interventions are critical components of evidence-based early intervention. However, their implementation in publicly funded systems is often done with poor fidelity. Qualitative evidence suggests that family characteristics impact clinicians" use of caregiver-mediated intervention coaching strategies. We estimated associations between family characteristics and clinicians" use of a caregiver-mediated intervention in a publicly funded early intervention system, leveraging data from a pilot randomized trial. Data were collected from 12 clinicians and 34 families. We used multiple linear regression models to estimate associations. The association between household income and clinicians" overall coaching fidelity demonstrated a quadratic trend (b = 10.4, standard error = 4.1, p < 0.05) with low fidelity for low- and high-income families relative to middle-income families. Use of in vivo feedback, one component of coaching, was similarly associated with income (b = 0.5, standard error = 0.2, p < 0.05). Clinicians" coaching fidelity was lower among families in exclusively English-speaking homes than for families who speak other languages (b = 18.4, standard error = 8.8, p < 0.05). Results suggest that associations between family characteristics and clinician behavior may be more nuanced than previously understood.Lay abstract There is a high demand for quality early intervention services for autistic children and their families. A key part of effective early intervention is teaching caregivers how to support their child?s development through caregiver-mediated interventions. However, in publicly funded programs, these strategies are often not followed correctly. Some studies suggest that family characteristics may influence how well clinicians apply these coaching methods. In this study, we explored the connection between family factors, like household income and language spoken at home, and the way clinicians coached families. We found that clinicians used coaching strategies less consistently with both lower- and higher-income families compared to middle-income ones. In addition, families that spoke only English at home received less consistent coaching than those who spoke other languages. These findings highlight the complex relationship between family background and how early intervention services are delivered, suggesting a need for further research. En ligne : https://dx.doi.org/10.1177/13623613251317780 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558
in Autism > 29-7 (July 2025) . - p.1898-1906[article] Short report: Associations of family characteristics and clinicians" use of caregiver coaching in early intervention [texte imprimé] / Diondra STRAITON, Auteur ; David S MANDELL, Auteur ; Brooke R. INGERSOLL, Auteur ; Samantha CRABBE, Auteur ; Sarah RIETH, Auteur ; Melanie PELLECCHIA, Auteur . - p.1898-1906.
Langues : Anglais (eng)
in Autism > 29-7 (July 2025) . - p.1898-1906
Mots-clés : autism services caregiver-mediated intervention community-based implementation early intervention family characteristics Index. décimale : PER Périodiques Résumé : There is a great demand for quality early intervention services for autistic children and their families. Caregiver-mediated interventions are critical components of evidence-based early intervention. However, their implementation in publicly funded systems is often done with poor fidelity. Qualitative evidence suggests that family characteristics impact clinicians" use of caregiver-mediated intervention coaching strategies. We estimated associations between family characteristics and clinicians" use of a caregiver-mediated intervention in a publicly funded early intervention system, leveraging data from a pilot randomized trial. Data were collected from 12 clinicians and 34 families. We used multiple linear regression models to estimate associations. The association between household income and clinicians" overall coaching fidelity demonstrated a quadratic trend (b = 10.4, standard error = 4.1, p < 0.05) with low fidelity for low- and high-income families relative to middle-income families. Use of in vivo feedback, one component of coaching, was similarly associated with income (b = 0.5, standard error = 0.2, p < 0.05). Clinicians" coaching fidelity was lower among families in exclusively English-speaking homes than for families who speak other languages (b = 18.4, standard error = 8.8, p < 0.05). Results suggest that associations between family characteristics and clinician behavior may be more nuanced than previously understood.Lay abstract There is a high demand for quality early intervention services for autistic children and their families. A key part of effective early intervention is teaching caregivers how to support their child?s development through caregiver-mediated interventions. However, in publicly funded programs, these strategies are often not followed correctly. Some studies suggest that family characteristics may influence how well clinicians apply these coaching methods. In this study, we explored the connection between family factors, like household income and language spoken at home, and the way clinicians coached families. We found that clinicians used coaching strategies less consistently with both lower- and higher-income families compared to middle-income ones. In addition, families that spoke only English at home received less consistent coaching than those who spoke other languages. These findings highlight the complex relationship between family background and how early intervention services are delivered, suggesting a need for further research. En ligne : https://dx.doi.org/10.1177/13623613251317780 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 Examining variability in Naturalistic Developmental Behavioral Intervention strategy use in caregivers of children with autism spectrum disorders / Hallie BROWN in Journal of Child Psychology and Psychiatry, 66-1 (January 2025)
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Titre : Examining variability in Naturalistic Developmental Behavioral Intervention strategy use in caregivers of children with autism spectrum disorders Type de document : texte imprimé Auteurs : Hallie BROWN, Auteur ; Deanna SWAIN, Auteur ; Hye Won KIM, Auteur ; Sally ROGERS, Auteur ; Annette ESTES, Auteur ; Connie KASARI, Auteur ; Catherine LORD, Auteur ; So Hyun KIM, Auteur Article en page(s) : p.4-15 Langues : Anglais (eng) Mots-clés : autism caregiver Input caregiver-mediated intervention child mental health Naturalistic Developmental Behavioral Interventions (NDBI) Index. décimale : PER Périodiques Résumé : Background Naturalistic Developmental Behavioral Interventions (NDBIs) for young children with autism spectrum disorder commonly involve caregiver-mediated approaches. However, to date, there is limited research on how caregivers' skills change, and, in turn, impact child outcomes. Methods We evaluated the NDBI strategy use of 191 caregivers prior to participation in NDBIs (or control groups) across multiple randomized controlled trials, using the Measure of NDBI Strategy Implementation, Caregiver Change (MONSI-CC). Clustering analyses were used to examine caregiver variability in NDBI strategy use at intervention entry. Generalized Linear Mixed Models were used to examine changes in caregiver strategy use over the course of intervention and its impact on changes in children's social communication. Results Using clustering analysis, we found that caregivers' baseline skills fit four profiles: limited, emerging, variable, and consistent/high, with few demographic factors distinguishing these groups. Caregivers starting with limited or emerging skills improved in their strategy use with intervention. Caregivers starting with more skills (consistent/high or variable) maintained higher skills over intervention. Children of caregivers in these groups who received target NDBIs improved in their social communication skills. Conclusions Results suggested that caregiver skills improve through participation in NDBIs and may directly contribute to their children's outcomes, although more research on mediating factors is needed. Individualized approaches for caregivers and their children starting with differing skill profiles at intervention entry may be warranted. En ligne : https://dx.doi.org/10.1111/jcpp.13994 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=544
in Journal of Child Psychology and Psychiatry > 66-1 (January 2025) . - p.4-15[article] Examining variability in Naturalistic Developmental Behavioral Intervention strategy use in caregivers of children with autism spectrum disorders [texte imprimé] / Hallie BROWN, Auteur ; Deanna SWAIN, Auteur ; Hye Won KIM, Auteur ; Sally ROGERS, Auteur ; Annette ESTES, Auteur ; Connie KASARI, Auteur ; Catherine LORD, Auteur ; So Hyun KIM, Auteur . - p.4-15.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 66-1 (January 2025) . - p.4-15
Mots-clés : autism caregiver Input caregiver-mediated intervention child mental health Naturalistic Developmental Behavioral Interventions (NDBI) Index. décimale : PER Périodiques Résumé : Background Naturalistic Developmental Behavioral Interventions (NDBIs) for young children with autism spectrum disorder commonly involve caregiver-mediated approaches. However, to date, there is limited research on how caregivers' skills change, and, in turn, impact child outcomes. Methods We evaluated the NDBI strategy use of 191 caregivers prior to participation in NDBIs (or control groups) across multiple randomized controlled trials, using the Measure of NDBI Strategy Implementation, Caregiver Change (MONSI-CC). Clustering analyses were used to examine caregiver variability in NDBI strategy use at intervention entry. Generalized Linear Mixed Models were used to examine changes in caregiver strategy use over the course of intervention and its impact on changes in children's social communication. Results Using clustering analysis, we found that caregivers' baseline skills fit four profiles: limited, emerging, variable, and consistent/high, with few demographic factors distinguishing these groups. Caregivers starting with limited or emerging skills improved in their strategy use with intervention. Caregivers starting with more skills (consistent/high or variable) maintained higher skills over intervention. Children of caregivers in these groups who received target NDBIs improved in their social communication skills. Conclusions Results suggested that caregiver skills improve through participation in NDBIs and may directly contribute to their children's outcomes, although more research on mediating factors is needed. Individualized approaches for caregivers and their children starting with differing skill profiles at intervention entry may be warranted. En ligne : https://dx.doi.org/10.1111/jcpp.13994 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=544

