Anxiety in young people with autism spectrum disorder: Common and autism-related anxiety experiences and their associations with individual characteristics / Boon Yen LAU in Autism, 24-5 (July 2020)  

Public ISBD [article]  inAutism > 24-5 (July 2020) . - p.1111-1126 Titre : Anxiety in young people with autism spectrum disorder: Common and autism-related anxiety experiences and their associations with individual characteristics Type de document : texte imprimé Auteurs : Boon Yen LAU, Auteur ; Ruth LEONG, Auteur ; Mirko ULJAREVIĆ, Auteur ; Jian Wei LERH, Auteur ; Jacqui RODGERS, Auteur ; Matthew J. HOLLOCKS, Auteur ; Mikle SOUTH, Auteur ; Helen MCCONACHIE, Auteur ; Ann OZSIVADJIAN, Auteur ; Amy VAN HECKE, Auteur ; Robin A. LIBOVE, Auteur ; Antonio Y. HARDAN, Auteur ; Susan R. LEEKAM, Auteur ; Emily SIMONOFF, Auteur ; Iliana MAGIATI, Auteur Article en page(s) : p.1111-1126 Langues : Anglais (eng) Mots-clés : anxiety  assessment  autism spectrum disorder  children  comorbidity  measurement  phenomenology  presentation  young people Index. décimale : PER Périodiques Résumé : Anxiety is common in autism spectrum disorder. Many anxiety symptoms in autism spectrum disorder are consistent with Diagnostic and Statistical Manual of Mental Disorders (5th ed.) anxiety disorders (termed "common" anxieties), but others may be qualitatively different, likely relating to autism spectrum disorder traits (herein termed "autism-related" anxieties). To date, few studies have examined both "common" and "autism-related" anxiety experiences in autism spectrum disorder. We explored caregiver-reported Spence Children's Anxiety Scale-Parent version data from a multi-site (United Kingdom, Singapore, and United States) pooled database of 870 6- to 18-year-old participants with autism spectrum disorder, of whom 287 provided at least one written response to the optional open-ended Spence Children's Anxiety Scale-Parent item 39 ("Is there anything else your child is afraid of?"). Responses were thematically coded to explore (a) common and autism-related anxiety presentations and (b) their relationship with young people's characteristics. Nearly half of the responses were autism-related anxieties (mostly sensory, uncommon, or idiosyncratic specific phobias and worries about change and unpredictability). The other half described additional common anxieties not covered in the original measure (mostly social, weather and environmental disasters, and animals). Caregivers of participants who were more severely affected by autism spectrum disorder symptoms reported more autism-related, as compared to common, additional anxieties. Implications for the assessment and understanding of anxiety in autism are discussed. En ligne : http://dx.doi.org/10.1177/1362361319886246 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=426 [article] Anxiety in young people with autism spectrum disorder: Common and autism-related anxiety experiences and their associations with individual characteristics [texte imprimé] / Boon Yen LAU, Auteur ; Ruth LEONG, Auteur ; Mirko ULJAREVIĆ, Auteur ; Jian Wei LERH, Auteur ; Jacqui RODGERS, Auteur ; Matthew J. HOLLOCKS, Auteur ; Mikle SOUTH, Auteur ; Helen MCCONACHIE, Auteur ; Ann OZSIVADJIAN, Auteur ; Amy VAN HECKE, Auteur ; Robin A. LIBOVE, Auteur ; Antonio Y. HARDAN, Auteur ; Susan R. LEEKAM, Auteur ; Emily SIMONOFF, Auteur ; Iliana MAGIATI, Auteur . - p.1111-1126. Langues : Anglais (eng) in Autism > 24-5 (July 2020) . - p.1111-1126 Mots-clés : anxiety  assessment  autism spectrum disorder  children  comorbidity  measurement  phenomenology  presentation  young people Index. décimale : PER Périodiques Résumé : Anxiety is common in autism spectrum disorder. Many anxiety symptoms in autism spectrum disorder are consistent with Diagnostic and Statistical Manual of Mental Disorders (5th ed.) anxiety disorders (termed "common" anxieties), but others may be qualitatively different, likely relating to autism spectrum disorder traits (herein termed "autism-related" anxieties). To date, few studies have examined both "common" and "autism-related" anxiety experiences in autism spectrum disorder. We explored caregiver-reported Spence Children's Anxiety Scale-Parent version data from a multi-site (United Kingdom, Singapore, and United States) pooled database of 870 6- to 18-year-old participants with autism spectrum disorder, of whom 287 provided at least one written response to the optional open-ended Spence Children's Anxiety Scale-Parent item 39 ("Is there anything else your child is afraid of?"). Responses were thematically coded to explore (a) common and autism-related anxiety presentations and (b) their relationship with young people's characteristics. Nearly half of the responses were autism-related anxieties (mostly sensory, uncommon, or idiosyncratic specific phobias and worries about change and unpredictability). The other half described additional common anxieties not covered in the original measure (mostly social, weather and environmental disasters, and animals). Caregivers of participants who were more severely affected by autism spectrum disorder symptoms reported more autism-related, as compared to common, additional anxieties. Implications for the assessment and understanding of anxiety in autism are discussed. En ligne : http://dx.doi.org/10.1177/1362361319886246 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=426

Anxiety, Intolerance of Uncertainty and Restricted and Repetitive Behaviour: Insights Directly from Young People with ASD / C. JOYCE in Journal of Autism and Developmental Disorders, 47-12 (December 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-12 (December 2017) . - p.3789-3802 Titre : Anxiety, Intolerance of Uncertainty and Restricted and Repetitive Behaviour: Insights Directly from Young People with ASD Type de document : texte imprimé Auteurs : C. JOYCE, Auteur ; E. HONEY, Auteur ; Susan R. LEEKAM, Auteur ; Sarah L. BARRETT, Auteur ; Jacqui RODGERS, Auteur Année de publication : 2017 Article en page(s) : p.3789-3802 Langues : Anglais (eng) Mots-clés : Asd  Anxiety  Intolerance of uncertainty  Restricted and repetitive behaviours  Self-report Index. décimale : PER Périodiques Résumé : In order to investigate the experience of anxiety and restricted and repetitive behaviours (RRB) in young people with ASD, 19 families with young people with ASD aged between 13 and 20 years completed questionnaire measures of RRB, anxiety, and intolerance of uncertainty. Ten young people also completed a novel semi-structured interview exploring an individualised example of an RRB. Findings demonstrated that young people with ASD can self-report and show insight in to their RRB, and replicated previous findings based on parent report showing a significant positive relationship between RRB and anxiety. This is the first evidence of young person self-report using both quantitative and qualitative data and indicates a range of reasons why young people may engage in RRB. En ligne : http://dx.doi.org/10.1007/s10803-017-3027-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325 [article] Anxiety, Intolerance of Uncertainty and Restricted and Repetitive Behaviour: Insights Directly from Young People with ASD [texte imprimé] / C. JOYCE, Auteur ; E. HONEY, Auteur ; Susan R. LEEKAM, Auteur ; Sarah L. BARRETT, Auteur ; Jacqui RODGERS, Auteur . - 2017 . - p.3789-3802. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-12 (December 2017) . - p.3789-3802 Mots-clés : Asd  Anxiety  Intolerance of uncertainty  Restricted and repetitive behaviours  Self-report Index. décimale : PER Périodiques Résumé : In order to investigate the experience of anxiety and restricted and repetitive behaviours (RRB) in young people with ASD, 19 families with young people with ASD aged between 13 and 20 years completed questionnaire measures of RRB, anxiety, and intolerance of uncertainty. Ten young people also completed a novel semi-structured interview exploring an individualised example of an RRB. Findings demonstrated that young people with ASD can self-report and show insight in to their RRB, and replicated previous findings based on parent report showing a significant positive relationship between RRB and anxiety. This is the first evidence of young person self-report using both quantitative and qualitative data and indicates a range of reasons why young people may engage in RRB. En ligne : http://dx.doi.org/10.1007/s10803-017-3027-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325

Are There Subgroups within the Autistic Spectrum? A Cluster Analysis of a Group of Children with Autistic Spectrum Disorders / Margot PRIOR in Journal of Child Psychology and Psychiatry, 39-6 (September 1998)

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 39-6 (September 1998) . - p.893-902 Titre : Are There Subgroups within the Autistic Spectrum? A Cluster Analysis of a Group of Children with Autistic Spectrum Disorders Type de document : texte imprimé Auteurs : Margot PRIOR, Auteur ; Susan R. LEEKAM, Auteur ; Ben ONG, Auteur ; Richard EISENMAJER, Auteur ; Lorna WING, Auteur ; Judith GOULD, Auteur ; David DOWE, Auteur Année de publication : 1998 Article en page(s) : p.893-902 Langues : Anglais (eng) Mots-clés : Asperger syndrome  autism  Pervasive Developmental Disorder  symptomatology  cluster analysis Index. décimale : PER Périodiques Résumé : Comprehensive data on the developmental history and current behaviours of a large sample of high-functioning individuals with diagnoses of autism, Asperger's syndrome, or other related disorder were collected via parent interviews. This provided the basis for a taxonomic analysis to search for subgroups. Most participants also completed theory of mind tasks. Three clusters or subgroups were obtained; these differed on theory of mind performance and on verbal abilities. Although subgroups were identified which bore some relationship to clinical differentiation of autistic, Asperger syndrome, and Pervasive Developmental Disorder Not Otherwise Specified (PDD-NOS) cases, the nature of the differences between them appeared strongly related to ability variables. Examination of the kinds of behaviours that differentiated the groups suggested that a spectrum of autistic disorders on which children differ primarily in term of degrees of social and cognitive impairments could explain the findings. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=123 [article] Are There Subgroups within the Autistic Spectrum? A Cluster Analysis of a Group of Children with Autistic Spectrum Disorders [texte imprimé] / Margot PRIOR, Auteur ; Susan R. LEEKAM, Auteur ; Ben ONG, Auteur ; Richard EISENMAJER, Auteur ; Lorna WING, Auteur ; Judith GOULD, Auteur ; David DOWE, Auteur . - 1998 . - p.893-902. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 39-6 (September 1998) . - p.893-902 Mots-clés : Asperger syndrome  autism  Pervasive Developmental Disorder  symptomatology  cluster analysis Index. décimale : PER Périodiques Résumé : Comprehensive data on the developmental history and current behaviours of a large sample of high-functioning individuals with diagnoses of autism, Asperger's syndrome, or other related disorder were collected via parent interviews. This provided the basis for a taxonomic analysis to search for subgroups. Most participants also completed theory of mind tasks. Three clusters or subgroups were obtained; these differed on theory of mind performance and on verbal abilities. Although subgroups were identified which bore some relationship to clinical differentiation of autistic, Asperger syndrome, and Pervasive Developmental Disorder Not Otherwise Specified (PDD-NOS) cases, the nature of the differences between them appeared strongly related to ability variables. Examination of the kinds of behaviours that differentiated the groups suggested that a spectrum of autistic disorders on which children differ primarily in term of degrees of social and cognitive impairments could explain the findings. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=123

Assessing pragmatic language difficulties using the Revised Children's Communication Checklist-2. Exploratory structural equation modeling and associations with restricted and repetitive behaviors / Jennifer KEATING in Autism Research, 17-3 (March 2024)  

Public ISBD [article]  inAutism Research > 17-3 (March 2024) . - p.584-595 Titre : Assessing pragmatic language difficulties using the Revised Children's Communication Checklist-2. Exploratory structural equation modeling and associations with restricted and repetitive behaviors Type de document : texte imprimé Auteurs : Jennifer KEATING, Auteur ; Mirko ULJAREVIĆ, Auteur ; Stephanie H.M. VAN GOOZEN, Auteur ; Kirsten ABBOT-SMITH, Auteur ; Dale F. HAY, Auteur ; Susan R. LEEKAM, Auteur Article en page(s) : p.584-595 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract In this paper, we investigated the psychometric properties of the Child Communication Checklist-Revised (CCC-R) for the first time with an English-speaking sample. We used a confirmatory application of exploratory structural equation modeling (ESEM) to re-evaluate the CCC-R's psychometric properties. We found strong support for its use as an assessment for pragmatic and structural language. Our second main aim was to explore associations between pragmatic and structural language and restricted and repetitive behaviors (RRBs), two hallmark characteristics of autism. We used the CCC-R and Repetitive Behavior Questionnaire (RBQ-2) to investigate these associations in a diverse non-clinical sample of children, taking a transdiagnostic approach. We intentionally excluded autism and other neurodevelopmental diagnoses to test, (1) the CCC-R in a broad sample and (2) the association between pragmatic language and RRB in children not already selected for that association. The sample comprised two groups of children, one was community sampled (n = 123) and the other (n = 143) included children with non-specific behavioral, emotional and/or cognitive difficulties referred to an assessment unit by schools. We found clear associations between pragmatic language difficulties and RRBs in both groups. Regression analysis showed that pragmatic language was the only significant contributor to RRBs even after Grammatical-Semantic score, age, sex, and socioeconomic status were controlled. The pattern was the same for both recruitment groups. However, the effects were stronger for the school-referred group which also had more pragmatic difficulties, grammatical-semantic difficulties and RRBs. A robust link between pragmatic language and RRBs, established in autism, has continuity across the broader non-clinical population. En ligne : https://doi.org/10.1002/aur.3100 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=525 [article] Assessing pragmatic language difficulties using the Revised Children's Communication Checklist-2. Exploratory structural equation modeling and associations with restricted and repetitive behaviors [texte imprimé] / Jennifer KEATING, Auteur ; Mirko ULJAREVIĆ, Auteur ; Stephanie H.M. VAN GOOZEN, Auteur ; Kirsten ABBOT-SMITH, Auteur ; Dale F. HAY, Auteur ; Susan R. LEEKAM, Auteur . - p.584-595. Langues : Anglais (eng) in Autism Research > 17-3 (March 2024) . - p.584-595 Index. décimale : PER Périodiques Résumé : Abstract In this paper, we investigated the psychometric properties of the Child Communication Checklist-Revised (CCC-R) for the first time with an English-speaking sample. We used a confirmatory application of exploratory structural equation modeling (ESEM) to re-evaluate the CCC-R's psychometric properties. We found strong support for its use as an assessment for pragmatic and structural language. Our second main aim was to explore associations between pragmatic and structural language and restricted and repetitive behaviors (RRBs), two hallmark characteristics of autism. We used the CCC-R and Repetitive Behavior Questionnaire (RBQ-2) to investigate these associations in a diverse non-clinical sample of children, taking a transdiagnostic approach. We intentionally excluded autism and other neurodevelopmental diagnoses to test, (1) the CCC-R in a broad sample and (2) the association between pragmatic language and RRB in children not already selected for that association. The sample comprised two groups of children, one was community sampled (n = 123) and the other (n = 143) included children with non-specific behavioral, emotional and/or cognitive difficulties referred to an assessment unit by schools. We found clear associations between pragmatic language difficulties and RRBs in both groups. Regression analysis showed that pragmatic language was the only significant contributor to RRBs even after Grammatical-Semantic score, age, sex, and socioeconomic status were controlled. The pattern was the same for both recruitment groups. However, the effects were stronger for the school-referred group which also had more pragmatic difficulties, grammatical-semantic difficulties and RRBs. A robust link between pragmatic language and RRBs, established in autism, has continuity across the broader non-clinical population. En ligne : https://doi.org/10.1002/aur.3100 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=525

Assessing subtypes of restricted and repetitive behaviour using the Adult Repetitive Behaviour Questionnaire-2 in autistic adults / Sarah L. BARRETT in Molecular Autism, 9 (2018)  

Public ISBD [article]  inMolecular Autism > 9 (2018) . - 58 p. Titre : Assessing subtypes of restricted and repetitive behaviour using the Adult Repetitive Behaviour Questionnaire-2 in autistic adults Type de document : texte imprimé Auteurs : Sarah L. BARRETT, Auteur ; Mirko ULJAREVIĆ, Auteur ; Catherine R.G. JONES, Auteur ; Susan R. LEEKAM, Auteur Article en page(s) : 58 p. Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Aged  Autistic Disorder/classification/*diagnosis  Female  Humans  Male  Middle Aged  *Stereotyped Behavior  Surveys and Questionnaires/*standards  *Adults  *Insistence on sameness  *Principal components analysis  *Questionnaire  *Repetitive behaviours  *Repetitive sensory and motor behaviours  the Cardiff University School of Psychology Research Ethics Committee  (EC.14.04.08.3784R2A3). All participants provided informed electronic consent  before taking part in the study.Not applicableThe authors declare that they have  no competing interests.Springer Nature remains neutral with regard to  jurisdictional claims in published maps and institutional affiliations. Index. décimale : PER Périodiques Résumé : Background: The majority of previous research into restricted and repetitive behaviours (RRBs) has focussed on children, partly due to a lack of suitable measures for RRBs in adults. This study aimed to explore the psychometric properties of the Adult Repetitive Behaviour Questionnaire-2 (RBQ-2A) in a large sample of autistic adults using a self-report questionnaire method. Methods: The RBQ-2A and Autism-Spectrum Quotient (AQ) were administered online. Data from 275 autistic adults aged 18-66 (M = 36.56, SD = 12.24; 100 men and 171 women) were analysed using polychoric principal components analysis (PCA). Reliability and validity were assessed using Cronbach's alpha and correlation analyses. Results: PCA resulted in two components of the RBQ-2A, interpretable as repetitive sensory and motor behaviours (RSMB) and insistence on sameness (IS). Both components showed acceptable internal consistency (alpha = .70 and .81 respectively) and were significantly moderately correlated with scores on the AQ (r s = .25 and .42). Participants' scores on IS were higher than their scores on RSMB. RSMB, but not IS, was negatively associated with age, particularly in older adults (>/= 50 years). There were no gender differences. Conclusions: The RBQ-2A is a reliable and valid self-report measure of RRBs in the present sample of autistic adults. As one of the few measures of RRBs aimed at adults, it is suitable for adults with the ability to read and complete a self-report questionnaire. Results build on previous work with children using the Repetitive Behaviour Questionnaire-2 (RBQ-2). En ligne : https://dx.doi.org/10.1186/s13229-018-0242-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=389 [article] Assessing subtypes of restricted and repetitive behaviour using the Adult Repetitive Behaviour Questionnaire-2 in autistic adults [texte imprimé] / Sarah L. BARRETT, Auteur ; Mirko ULJAREVIĆ, Auteur ; Catherine R.G. JONES, Auteur ; Susan R. LEEKAM, Auteur . - 58 p. Langues : Anglais (eng) in Molecular Autism > 9 (2018) . - 58 p. Mots-clés : Adolescent  Adult  Aged  Autistic Disorder/classification/*diagnosis  Female  Humans  Male  Middle Aged  *Stereotyped Behavior  Surveys and Questionnaires/*standards  *Adults  *Insistence on sameness  *Principal components analysis  *Questionnaire  *Repetitive behaviours  *Repetitive sensory and motor behaviours  the Cardiff University School of Psychology Research Ethics Committee  (EC.14.04.08.3784R2A3). All participants provided informed electronic consent  before taking part in the study.Not applicableThe authors declare that they have  no competing interests.Springer Nature remains neutral with regard to  jurisdictional claims in published maps and institutional affiliations. Index. décimale : PER Périodiques Résumé : Background: The majority of previous research into restricted and repetitive behaviours (RRBs) has focussed on children, partly due to a lack of suitable measures for RRBs in adults. This study aimed to explore the psychometric properties of the Adult Repetitive Behaviour Questionnaire-2 (RBQ-2A) in a large sample of autistic adults using a self-report questionnaire method. Methods: The RBQ-2A and Autism-Spectrum Quotient (AQ) were administered online. Data from 275 autistic adults aged 18-66 (M = 36.56, SD = 12.24; 100 men and 171 women) were analysed using polychoric principal components analysis (PCA). Reliability and validity were assessed using Cronbach's alpha and correlation analyses. Results: PCA resulted in two components of the RBQ-2A, interpretable as repetitive sensory and motor behaviours (RSMB) and insistence on sameness (IS). Both components showed acceptable internal consistency (alpha = .70 and .81 respectively) and were significantly moderately correlated with scores on the AQ (r s = .25 and .42). Participants' scores on IS were higher than their scores on RSMB. RSMB, but not IS, was negatively associated with age, particularly in older adults (>/= 50 years). There were no gender differences. Conclusions: The RBQ-2A is a reliable and valid self-report measure of RRBs in the present sample of autistic adults. As one of the few measures of RRBs aimed at adults, it is suitable for adults with the ability to read and complete a self-report questionnaire. Results build on previous work with children using the Repetitive Behaviour Questionnaire-2 (RBQ-2). En ligne : https://dx.doi.org/10.1186/s13229-018-0242-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=389

Beyond 'modalarity'and innateness: sensory experience, social interaction and symbolic development in children with autism and blindness / Susan R. LEEKAM

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Brief Report: Effects of Sensory Sensitivity and Intolerance of Uncertainty on Anxiety in Mothers of Children with Autism Spectrum Disorder / Mirko ULJAREVIĆ in Journal of Autism and Developmental Disorders, 46-1 (January 2016)  

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Brief Report: Young Adults with Autism Spectrum Disorder Show Normal Attention to Eye-Gaze Information—Evidence from a New Change Blindness Paradigm / Sue FLETCHER-WATSON in Journal of Autism and Developmental Disorders, 38-9 (October 2008)  

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Characterising Insistence on Sameness and Circumscribed Interests: A Qualitative Study of Parent Perspectives / Alicia GENG ; Luke D. SMILLIE ; Thomas W. FRAZIER ; Antonio Y. HARDAN ; Gail A. ALVAREZ ; Andrew WHITEHOUSE ; Rachel K. SCHUCK ; Susan R. LEEKAM ; Mirko ULJAREVIĆ in Journal of Autism and Developmental Disorders, 55-8 (August 2025)  

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Comparison of ICD-10 and Gillberg’s Criteria for Asperger Syndrome / Susan R. LEEKAM in Autism, 4-1 (March 2000)  

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Conclusion: Integrating Neurocognitive, Diagnostic, and Intervention Perspectives in Autism / Susan R. LEEKAM

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Conflict management in couple relationships: the experiences of individuals with Asperger syndrome and their partners / Beverley WINN in Good Autism Practice - GAP, 17-2 (October 2016)

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Correction to: Describing the Profile of Diagnostic Features in Autistic Adults Using an Abbreviated Version of the Diagnostic Interview for Social and Communication Disorders (DISCO-Abbreviated) / Sarah J. CARRINGTON in Journal of Autism and Developmental Disorders, 51-6 (June 2021)  

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Corrigendum to “DSM-5 Autism Spectrum Disorder: In search of essential behaviours for diagnosis” [Res. Autism Spectr. Disord. 8 (2014) (6) 701–715] / Sarah J. CARRINGTON in Research in Autism Spectrum Disorders, 78 (October 2020)  

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Deconstructing the repetitive behaviour phenotype in autism spectrum disorder through a large population-based analysis / Mirko ULJAREVIĆ in Journal of Child Psychology and Psychiatry, 61-9 (September 2020)  

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