Annual Research Review: Quality of life and childhood mental and behavioural disorders – a critical review of the research / Ulf JONSSON in Journal of Child Psychology and Psychiatry, 58-4 (April 2017) 

Public ISBD [article]  in Journal of Child Psychology and Psychiatry > 58-4 (April 2017) . - p.439-469 Titre : Annual Research Review: Quality of life and childhood mental and behavioural disorders – a critical review of the research Type de document : texte imprimé Auteurs : Ulf JONSSON, Auteur ; Iman ALAIE, Auteur ; Anna LÖFGREN WILTEUS, Auteur ; Eric ZANDER, Auteur ; Peter B. MARSCHIK, Auteur ; David COGHILL, Auteur ; Sven BÖLTE, Auteur Article en page(s) : p.439-469 Langues : Anglais (eng) Mots-clés : Quality of life  psychopathology  mental health  adolescence Index. décimale : PER Périodiques Résumé : Background An individual's subjective perception of well-being is increasingly recognized as an essential complement to clinical symptomatology and functional impairment in children's mental health. Measurement of quality of life (QoL) has the potential to give due weight to the child's perspective. Scope and methodology Our aim was to critically review the current evidence on how childhood mental disorders affect QoL. First, the major challenges in this research field are outlined. Then we present a systematic review of QoL in children and adolescents aged 0–18 years formally diagnosed with a mental and behavioural disorder, as compared to healthy or typically developing children or children with other health conditions. Finally, we discuss limitations of the current evidence base and future directions based on the results of the systematic review and other relevant literature. Findings and conclusions The systematic review identified 41 eligible studies. All were published after the year 2000 and 21 originated in Europe. The majority examined QoL in neurodevelopmental disorders, including attention-deficit hyperactivity disorder (k = 17), autism spectrum disorder (k = 6), motor disorders (k = 5) and intellectual disability (k = 4). Despite substantial heterogeneity, studies demonstrate that self-reported global QoL is significantly reduced compared to typical/healthy controls across several disorders and QoL dimensions. Parents’ ratings were on average substantially lower, casting doubt on the validity of proxy-report. Studies for large diagnostic groups such as depressive disorders, anxiety disorders, (early onset) schizophrenia and eating disorders are largely lacking. We conclude that representative, well-characterized normative and clinical samples as well as longitudinal and qualitative designs are needed to further clarify the construct of QoL, to derive measures of high ecological validity, and to examine how QoL fluctuates over time and is attributable to specific conditions or contextual factors. En ligne : http://dx.doi.org/10.1111/jcpp.12645 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=3051 [article] Annual Research Review: Quality of life and childhood mental and behavioural disorders – a critical review of the research [texte imprimé] / Ulf JONSSON, Auteur ; Iman ALAIE, Auteur ; Anna LÖFGREN WILTEUS, Auteur ; Eric ZANDER, Auteur ; Peter B. MARSCHIK, Auteur ; David COGHILL, Auteur ; Sven BÖLTE, Auteur . - p.439-469. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 58-4 (April 2017) . - p.439-469 Mots-clés : Quality of life  psychopathology  mental health  adolescence Index. décimale : PER Périodiques Résumé : Background An individual's subjective perception of well-being is increasingly recognized as an essential complement to clinical symptomatology and functional impairment in children's mental health. Measurement of quality of life (QoL) has the potential to give due weight to the child's perspective. Scope and methodology Our aim was to critically review the current evidence on how childhood mental disorders affect QoL. First, the major challenges in this research field are outlined. Then we present a systematic review of QoL in children and adolescents aged 0–18 years formally diagnosed with a mental and behavioural disorder, as compared to healthy or typically developing children or children with other health conditions. Finally, we discuss limitations of the current evidence base and future directions based on the results of the systematic review and other relevant literature. Findings and conclusions The systematic review identified 41 eligible studies. All were published after the year 2000 and 21 originated in Europe. The majority examined QoL in neurodevelopmental disorders, including attention-deficit hyperactivity disorder (k = 17), autism spectrum disorder (k = 6), motor disorders (k = 5) and intellectual disability (k = 4). Despite substantial heterogeneity, studies demonstrate that self-reported global QoL is significantly reduced compared to typical/healthy controls across several disorders and QoL dimensions. Parents’ ratings were on average substantially lower, casting doubt on the validity of proxy-report. Studies for large diagnostic groups such as depressive disorders, anxiety disorders, (early onset) schizophrenia and eating disorders are largely lacking. We conclude that representative, well-characterized normative and clinical samples as well as longitudinal and qualitative designs are needed to further clarify the construct of QoL, to derive measures of high ecological validity, and to examine how QoL fluctuates over time and is attributable to specific conditions or contextual factors. En ligne : http://dx.doi.org/10.1111/jcpp.12645 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=3051

Autism Diagnostic Interview-Revised (ADI-R) Algorithms for Toddlers and Young Preschoolers: Application in a Non-US Sample of 1,104 Children / Annelies DE BILDT in Journal of Autism and Developmental Disorders, 45-7 (July 2015) 

Public ISBD [article]  in Journal of Autism and Developmental Disorders > 45-7 (July 2015) . - p.2076-2091 Titre : Autism Diagnostic Interview-Revised (ADI-R) Algorithms for Toddlers and Young Preschoolers: Application in a Non-US Sample of 1,104 Children Type de document : texte imprimé Auteurs : Annelies DE BILDT, Auteur ; Sjoerd SYTEMA, Auteur ; Eric ZANDER, Auteur ; Sven BÖLTE, Auteur ; Harald STURM, Auteur ; Nurit YIRMIYA, Auteur ; Maya YAARI, Auteur ; Tony CHARMAN, Auteur ; Erica SALOMONE, Auteur ; Ann LECOUTEUR, Auteur ; Jonathan GREEN, Auteur ; Ricardo CANAL BEDIA, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Emma VAN DAALEN, Auteur ; Maretha V. DE JONGE, Auteur ; Emilía GUÐMUNDSDÓTTIR, Auteur ; Sigurrós JÓHANNSDÓTTIR, Auteur ; Marija RALEVA, Auteur ; Meri BOSKOVSKA, Auteur ; Bernadette ROGE, Auteur ; Sophie BADUEL, Auteur ; Irma MOILANEN, Auteur ; Anneli YLIHERVA, Auteur ; Jan BUITELAAR, Auteur ; IrisJ OOSTERLING, Auteur Année de publication : 2015 Article en page(s) : p.2076-2091 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Early diagnosis  Assessment Index. décimale : PER Périodiques Résumé : The current study aimed to investigate the Autism Diagnostic Interview-Revised (ADI-R) algorithms for toddlers and young preschoolers (Kim and Lord, J Autism Dev Disord 42(1):82–93, 2012) in a non-US sample from ten sites in nine countries (n = 1,104). The construct validity indicated a good fit of the algorithms. The diagnostic validity was lower, with satisfactorily high specificities but moderate sensitivities. Young children with clinical ASD and lower language ability were largely in the mild-to-moderate or moderate-to-severe concern ranges of the ADI-R, nearly half of the older and phrase speech ASD-group fell into the little-to-no concern range. Although broadly the findings support the toddler algorithms, further work is required to understand why they might have different properties in different samples to further inform research and clinical use. En ligne : http://dx.doi.org/10.1007/s10803-015-2372-2 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=2616 [article] Autism Diagnostic Interview-Revised (ADI-R) Algorithms for Toddlers and Young Preschoolers: Application in a Non-US Sample of 1,104 Children [texte imprimé] / Annelies DE BILDT, Auteur ; Sjoerd SYTEMA, Auteur ; Eric ZANDER, Auteur ; Sven BÖLTE, Auteur ; Harald STURM, Auteur ; Nurit YIRMIYA, Auteur ; Maya YAARI, Auteur ; Tony CHARMAN, Auteur ; Erica SALOMONE, Auteur ; Ann LECOUTEUR, Auteur ; Jonathan GREEN, Auteur ; Ricardo CANAL BEDIA, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Emma VAN DAALEN, Auteur ; Maretha V. DE JONGE, Auteur ; Emilía GUÐMUNDSDÓTTIR, Auteur ; Sigurrós JÓHANNSDÓTTIR, Auteur ; Marija RALEVA, Auteur ; Meri BOSKOVSKA, Auteur ; Bernadette ROGE, Auteur ; Sophie BADUEL, Auteur ; Irma MOILANEN, Auteur ; Anneli YLIHERVA, Auteur ; Jan BUITELAAR, Auteur ; IrisJ OOSTERLING, Auteur . - 2015 . - p.2076-2091. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-7 (July 2015) . - p.2076-2091 Mots-clés : Autism spectrum disorders  Early diagnosis  Assessment Index. décimale : PER Périodiques Résumé : The current study aimed to investigate the Autism Diagnostic Interview-Revised (ADI-R) algorithms for toddlers and young preschoolers (Kim and Lord, J Autism Dev Disord 42(1):82–93, 2012) in a non-US sample from ten sites in nine countries (n = 1,104). The construct validity indicated a good fit of the algorithms. The diagnostic validity was lower, with satisfactorily high specificities but moderate sensitivities. Young children with clinical ASD and lower language ability were largely in the mild-to-moderate or moderate-to-severe concern ranges of the ADI-R, nearly half of the older and phrase speech ASD-group fell into the little-to-no concern range. Although broadly the findings support the toddler algorithms, further work is required to understand why they might have different properties in different samples to further inform research and clinical use. En ligne : http://dx.doi.org/10.1007/s10803-015-2372-2 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=2616

The added value of the combined use of the Autism Diagnostic Interview–Revised and the Autism Diagnostic Observation Schedule: Diagnostic validity in a clinical Swedish sample of toddlers and young preschoolers / Eric ZANDER in Autism, 19-2 (February 2015) 

Public ISBD [article]  in Autism > 19-2 (February 2015) . - p.187-199 Titre : The added value of the combined use of the Autism Diagnostic Interview–Revised and the Autism Diagnostic Observation Schedule: Diagnostic validity in a clinical Swedish sample of toddlers and young preschoolers Type de document : texte imprimé Auteurs : Eric ZANDER, Auteur ; Harald STURM, Auteur ; Sven BÖLTE, Auteur Article en page(s) : p.187-199 Langues : Anglais (eng) Mots-clés : Asperger syndrome  assessment  Diagnostic and Statistical Manual of Mental Disorders (4th ed)  early detection  pervasive developmental disorder  psychometrics Index. décimale : PER Périodiques Résumé : The diagnostic validity of the new research algorithms of the Autism Diagnostic Interview–Revised and the revised algorithms of the Autism Diagnostic Observation Schedule was examined in a clinical sample of children aged 18–47 months. Validity was determined for each instrument separately and their combination against a clinical consensus diagnosis. A total of N = 268 children (n = 171 with autism spectrum disorder) were assessed. The new Autism Diagnostic Interview–Revised algorithms (research cutoff) gave excellent specificities (91%?96%) but low sensitivities (44%?52%). Applying adjusted cutoffs (lower than recommended based on receiver operating characteristics) yielded a better balance between sensitivity (77%?82%) and specificity (60%?62%). Findings for the Autism Diagnostic Observation Schedule were consistent with previous studies showing high sensitivity (94%?100%) and alongside lower specificity (52%?76%) when using the autism spectrum cutoff, but better balanced sensitivity (81%?94%) and specificity (81%?83%) when using the autism cutoff. A combination of both the Autism Diagnostic Interview–Revised (with adjusted cutoff) and the Autism Diagnostic Observation Schedule (autism spectrum cutoff) yielded balanced sensitivity (77%?80%) and specificity (87%?90%). Results favor a combined usage of the Autism Diagnostic Interview–Revised and Autism Diagnostic Observation Schedule in young children with unclear developmental problems, including suspicion of autism spectrum disorder. Evaluated separately, the Autism Diagnostic Observation Schedule (cutoff for autism) provides a better diagnostic accuracy than the Autism Diagnostic Interview–Revised. En ligne : http://dx.doi.org/10.1177/1362361313516199 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=2570 [article] The added value of the combined use of the Autism Diagnostic Interview–Revised and the Autism Diagnostic Observation Schedule: Diagnostic validity in a clinical Swedish sample of toddlers and young preschoolers [texte imprimé] / Eric ZANDER, Auteur ; Harald STURM, Auteur ; Sven BÖLTE, Auteur . - p.187-199. Langues : Anglais (eng) in Autism > 19-2 (February 2015) . - p.187-199 Mots-clés : Asperger syndrome  assessment  Diagnostic and Statistical Manual of Mental Disorders (4th ed)  early detection  pervasive developmental disorder  psychometrics Index. décimale : PER Périodiques Résumé : The diagnostic validity of the new research algorithms of the Autism Diagnostic Interview–Revised and the revised algorithms of the Autism Diagnostic Observation Schedule was examined in a clinical sample of children aged 18–47 months. Validity was determined for each instrument separately and their combination against a clinical consensus diagnosis. A total of N = 268 children (n = 171 with autism spectrum disorder) were assessed. The new Autism Diagnostic Interview–Revised algorithms (research cutoff) gave excellent specificities (91%?96%) but low sensitivities (44%?52%). Applying adjusted cutoffs (lower than recommended based on receiver operating characteristics) yielded a better balance between sensitivity (77%?82%) and specificity (60%?62%). Findings for the Autism Diagnostic Observation Schedule were consistent with previous studies showing high sensitivity (94%?100%) and alongside lower specificity (52%?76%) when using the autism spectrum cutoff, but better balanced sensitivity (81%?94%) and specificity (81%?83%) when using the autism cutoff. A combination of both the Autism Diagnostic Interview–Revised (with adjusted cutoff) and the Autism Diagnostic Observation Schedule (autism spectrum cutoff) yielded balanced sensitivity (77%?80%) and specificity (87%?90%). Results favor a combined usage of the Autism Diagnostic Interview–Revised and Autism Diagnostic Observation Schedule in young children with unclear developmental problems, including suspicion of autism spectrum disorder. Evaluated separately, the Autism Diagnostic Observation Schedule (cutoff for autism) provides a better diagnostic accuracy than the Autism Diagnostic Interview–Revised. En ligne : http://dx.doi.org/10.1177/1362361313516199 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=2570

The New DSM-5 Impairment Criterion: A Challenge to Early Autism Spectrum Disorder Diagnosis? / Eric ZANDER in Journal of Autism and Developmental Disorders, 45-11 (November 2015) 

Public ISBD [article]  in Journal of Autism and Developmental Disorders > 45-11 (November 2015) . - p.3634-3643 Titre : The New DSM-5 Impairment Criterion: A Challenge to Early Autism Spectrum Disorder Diagnosis? Type de document : texte imprimé Auteurs : Eric ZANDER, Auteur ; Sven BÖLTE, Auteur Article en page(s) : p.3634-3643 Langues : Anglais (eng) Mots-clés : Classification  Psychiatry  Assessment  Adaptive functioning  Neurodevelopmental disorders Index. décimale : PER Périodiques Résumé : The possible effect of the DSM-5 impairment criterion on diagnosing autism spectrum disorder (ASD) in young children was examined in 127 children aged 20–47 months with a DSM-IV-TR clinical consensus diagnosis of ASD. The composite score of the Vineland Adaptive Behavior Scales (VABS) served as a proxy for the DSM-5 impairment criterion. When applying a mild level of impairment (cutoff: 1 SD below the mean on the VABS), 88 % of the cases fulfilled the impairment criterion. Sixty-nine percent fulfilled the impairment criterion at a moderate level (1.5 SDs) and 33 % at a severe level (2 SDs). Findings indicate that a strict application of the new DSM-5 impairment criterion might compromise early diagnosis of ASD. En ligne : http://dx.doi.org/10.1007/s10803-015-2512-8 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=2704 [article] The New DSM-5 Impairment Criterion: A Challenge to Early Autism Spectrum Disorder Diagnosis? [texte imprimé] / Eric ZANDER, Auteur ; Sven BÖLTE, Auteur . - p.3634-3643. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-11 (November 2015) . - p.3634-3643 Mots-clés : Classification  Psychiatry  Assessment  Adaptive functioning  Neurodevelopmental disorders Index. décimale : PER Périodiques Résumé : The possible effect of the DSM-5 impairment criterion on diagnosing autism spectrum disorder (ASD) in young children was examined in 127 children aged 20–47 months with a DSM-IV-TR clinical consensus diagnosis of ASD. The composite score of the Vineland Adaptive Behavior Scales (VABS) served as a proxy for the DSM-5 impairment criterion. When applying a mild level of impairment (cutoff: 1 SD below the mean on the VABS), 88 % of the cases fulfilled the impairment criterion. Sixty-nine percent fulfilled the impairment criterion at a moderate level (1.5 SDs) and 33 % at a severe level (2 SDs). Findings indicate that a strict application of the new DSM-5 impairment criterion might compromise early diagnosis of ASD. En ligne : http://dx.doi.org/10.1007/s10803-015-2512-8 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=2704