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An international qualitative study of functioning in autism spectrum disorder using the World Health Organization international classification of functioning, disability and health framework / S. MAHDI in Autism Research, 11-3 (March 2018)
[article]
Titre : An international qualitative study of functioning in autism spectrum disorder using the World Health Organization international classification of functioning, disability and health framework Type de document : Texte imprimé et/ou numérique Auteurs : S. MAHDI, Auteur ; M. VILJOEN, Auteur ; T. YEE, Auteur ; M. SELB, Auteur ; N. SINGHAL, Auteur ; Omar ALMODAYFER, Auteur ; M. GRANLUND, Auteur ; P. J. DE VRIES, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Sven BÖLTE, Auteur Article en page(s) : p.463-475 Langues : Anglais (eng) Mots-clés : Icf assessment autism spectrum disorder clinical practice functioning qualitative study strength Index. décimale : PER Périodiques Résumé : This is the third in a series of four empirical studies designed to develop International Classification of Functioning, Disability and Health (ICF) Core Sets for Autism Spectrum Disorder (ASD). The present study aimed to describe functioning in ASD (as operationalized by the ICF) derived from the perspectives of diagnosed individuals, family members, and professionals. A qualitative study using focus groups and semi-structured interviews were conducted with 19 stakeholder groups (N = 90) from Canada, India, Saudi Arabia, South Africa, and Sweden. Meaningful concepts from the focus groups and individual interviews were linked to ICF categories using a deductive qualitative approach with standardized linking procedures. The deductive qualitative content analysis yielded meaningful functioning concepts that were linked to 110 ICF categories across all four ICF components. Broad variation of environmental factors and activities and participation categories were identified in this study, while body functions consisted mainly of mental functions. Body structures were sparsely mentioned by the participants. Positive aspects of ASD included honesty, attention to detail, and memory. The experiences provided by international stakeholders support the need to understand individuals with ASD in a broader perspective, extending beyond diagnostic criteria into many areas of functioning and environmental domains. This study is part of a larger systematic effort that will provide the basis to define ICF Core Sets for ASD, from which assessment tools can be generated for use in clinical practice, research, and health care policy making. Autism Res 2018, 11: 463-475. (c) 2017 The Authors Autism Research published by International Society for Autism Research and Wiley Periodicals, Inc. LAY SUMMARY: The study findings support the need to understand the living experiences of individuals with Autism Spectrum Disorder (ASD) from a broader perspective, taking into account many areas of an individual's functioning and environment. The ICF can serve as foundation for exploring these living experiences more extensively by offering tools that enable wide variety of individual difficulties and strengths to be captured along with important environmental influences. As such, these tools can facilitate interventions that meet the needs and goals of the individual. En ligne : http://dx.doi.org/10.1002/aur.1905 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=352
in Autism Research > 11-3 (March 2018) . - p.463-475[article] An international qualitative study of functioning in autism spectrum disorder using the World Health Organization international classification of functioning, disability and health framework [Texte imprimé et/ou numérique] / S. MAHDI, Auteur ; M. VILJOEN, Auteur ; T. YEE, Auteur ; M. SELB, Auteur ; N. SINGHAL, Auteur ; Omar ALMODAYFER, Auteur ; M. GRANLUND, Auteur ; P. J. DE VRIES, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Sven BÖLTE, Auteur . - p.463-475.
Langues : Anglais (eng)
in Autism Research > 11-3 (March 2018) . - p.463-475
Mots-clés : Icf assessment autism spectrum disorder clinical practice functioning qualitative study strength Index. décimale : PER Périodiques Résumé : This is the third in a series of four empirical studies designed to develop International Classification of Functioning, Disability and Health (ICF) Core Sets for Autism Spectrum Disorder (ASD). The present study aimed to describe functioning in ASD (as operationalized by the ICF) derived from the perspectives of diagnosed individuals, family members, and professionals. A qualitative study using focus groups and semi-structured interviews were conducted with 19 stakeholder groups (N = 90) from Canada, India, Saudi Arabia, South Africa, and Sweden. Meaningful concepts from the focus groups and individual interviews were linked to ICF categories using a deductive qualitative approach with standardized linking procedures. The deductive qualitative content analysis yielded meaningful functioning concepts that were linked to 110 ICF categories across all four ICF components. Broad variation of environmental factors and activities and participation categories were identified in this study, while body functions consisted mainly of mental functions. Body structures were sparsely mentioned by the participants. Positive aspects of ASD included honesty, attention to detail, and memory. The experiences provided by international stakeholders support the need to understand individuals with ASD in a broader perspective, extending beyond diagnostic criteria into many areas of functioning and environmental domains. This study is part of a larger systematic effort that will provide the basis to define ICF Core Sets for ASD, from which assessment tools can be generated for use in clinical practice, research, and health care policy making. Autism Res 2018, 11: 463-475. (c) 2017 The Authors Autism Research published by International Society for Autism Research and Wiley Periodicals, Inc. LAY SUMMARY: The study findings support the need to understand the living experiences of individuals with Autism Spectrum Disorder (ASD) from a broader perspective, taking into account many areas of an individual's functioning and environment. The ICF can serve as foundation for exploring these living experiences more extensively by offering tools that enable wide variety of individual difficulties and strengths to be captured along with important environmental influences. As such, these tools can facilitate interventions that meet the needs and goals of the individual. En ligne : http://dx.doi.org/10.1002/aur.1905 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=352 Brief Report: Stony Brook Guidelines on the Ethics of the Care of People with Autism and Their Families / Stephen G. POST in Journal of Autism and Developmental Disorders, 43-6 (June 2013)
[article]
Titre : Brief Report: Stony Brook Guidelines on the Ethics of the Care of People with Autism and Their Families Type de document : Texte imprimé et/ou numérique Auteurs : Stephen G. POST, Auteur ; John POMEROY, Auteur ; Carla C. KEIRNS, Auteur ; Virginia Isaacs COVER, Auteur ; Michael Leverett DORN, Auteur ; Louis BOROSON, Auteur ; Florence BOROSON, Auteur ; Anne COULEHAN, Auteur ; Jack COULEHAN, Auteur ; Kim COVELL, Auteur ; Kim KUBASEK, Auteur ; Elizabeth LUCHSINGER, Auteur ; Shana NICHOLS, Auteur ; James PARLES, Auteur ; Linda SCHREIBER, Auteur ; Samara PULVER TETENBAUM, Auteur ; Rose Ann WALSH, Auteur Article en page(s) : p.1473-1476 Langues : Anglais (eng) Mots-clés : Autism Ethics Clinical practice Treatment Social issues Goals Index. décimale : PER Périodiques Résumé : The increased prevalence of autism spectrum disorders (ASD), with associated societal and clinical impacts, calls for a broad community-based dialogue on treatment related ethical and social issues. The Stony Brook Guidelines, based on a community dialogue process with affected individuals, families and professionals, identify and discuss the following topics: treatment goals and happiness, distributive justice, managing the hopes for a cure, sibling responsibilities, intimacy and sex, diagnostic ethics, and research ethics. Our guidelines, based not on “top-down” imposition of professional expertise but rather on “bottom-up” grass roots attention to the voices of affected individuals and families speaking from experience, can inform clinical practice and are also meaningful for the wider social conversation emerging over the treatment of individuals with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1680-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=201
in Journal of Autism and Developmental Disorders > 43-6 (June 2013) . - p.1473-1476[article] Brief Report: Stony Brook Guidelines on the Ethics of the Care of People with Autism and Their Families [Texte imprimé et/ou numérique] / Stephen G. POST, Auteur ; John POMEROY, Auteur ; Carla C. KEIRNS, Auteur ; Virginia Isaacs COVER, Auteur ; Michael Leverett DORN, Auteur ; Louis BOROSON, Auteur ; Florence BOROSON, Auteur ; Anne COULEHAN, Auteur ; Jack COULEHAN, Auteur ; Kim COVELL, Auteur ; Kim KUBASEK, Auteur ; Elizabeth LUCHSINGER, Auteur ; Shana NICHOLS, Auteur ; James PARLES, Auteur ; Linda SCHREIBER, Auteur ; Samara PULVER TETENBAUM, Auteur ; Rose Ann WALSH, Auteur . - p.1473-1476.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 43-6 (June 2013) . - p.1473-1476
Mots-clés : Autism Ethics Clinical practice Treatment Social issues Goals Index. décimale : PER Périodiques Résumé : The increased prevalence of autism spectrum disorders (ASD), with associated societal and clinical impacts, calls for a broad community-based dialogue on treatment related ethical and social issues. The Stony Brook Guidelines, based on a community dialogue process with affected individuals, families and professionals, identify and discuss the following topics: treatment goals and happiness, distributive justice, managing the hopes for a cure, sibling responsibilities, intimacy and sex, diagnostic ethics, and research ethics. Our guidelines, based not on “top-down” imposition of professional expertise but rather on “bottom-up” grass roots attention to the voices of affected individuals and families speaking from experience, can inform clinical practice and are also meaningful for the wider social conversation emerging over the treatment of individuals with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1680-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=201 Commentary: Getting fathers into parenting programmes – a reflection on Panter-Brick et al. (2014) / Paul RAMCHANDANI in Journal of Child Psychology and Psychiatry, 55-11 (November 2014)
[article]
Titre : Commentary: Getting fathers into parenting programmes – a reflection on Panter-Brick et al. (2014) Type de document : Texte imprimé et/ou numérique Auteurs : Paul RAMCHANDANI, Auteur ; Jane ILES, Auteur Article en page(s) : p.1213-1214 Langues : Anglais (eng) Mots-clés : Parenting programmes fathers clinical practice implementation Index. décimale : PER Périodiques Résumé : Research, policy and clinical practice focussed on engaging and working with fathers and their children often seems to oscillate between extremes. Where policy documents relating to children's health and wellbeing do include fathers it is often in a restricted way, and similarly discussions about the role of fathers in the media are often one-dimensional. It is sometimes hard to escape a feeling of despondency at the continuing exchanges, too often made ignoring or misinterpreting years of research regarding the importance of co-parenting and the involvement of fathers and other carers. One of the great contributions of child and adolescent mental health professionals has been the drawing of attention to the importance of family processes and systemic thinking, yet in relation to parenting, this seems to have been increasingly overlooked in recent years with an increased focus on attachment or social learning inspired approaches for a single parent–child dyad. In this issue of the JCPP, in a thorough and timely review, Catherine Panter-Brick and colleagues call for a clear change to the way parenting programmes are considered, studied and implemented. In this commentary, we reflect on this call and look at three challenges for CAMHS professionals. En ligne : http://dx.doi.org/10.1111/jcpp.12321 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241
in Journal of Child Psychology and Psychiatry > 55-11 (November 2014) . - p.1213-1214[article] Commentary: Getting fathers into parenting programmes – a reflection on Panter-Brick et al. (2014) [Texte imprimé et/ou numérique] / Paul RAMCHANDANI, Auteur ; Jane ILES, Auteur . - p.1213-1214.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 55-11 (November 2014) . - p.1213-1214
Mots-clés : Parenting programmes fathers clinical practice implementation Index. décimale : PER Périodiques Résumé : Research, policy and clinical practice focussed on engaging and working with fathers and their children often seems to oscillate between extremes. Where policy documents relating to children's health and wellbeing do include fathers it is often in a restricted way, and similarly discussions about the role of fathers in the media are often one-dimensional. It is sometimes hard to escape a feeling of despondency at the continuing exchanges, too often made ignoring or misinterpreting years of research regarding the importance of co-parenting and the involvement of fathers and other carers. One of the great contributions of child and adolescent mental health professionals has been the drawing of attention to the importance of family processes and systemic thinking, yet in relation to parenting, this seems to have been increasingly overlooked in recent years with an increased focus on attachment or social learning inspired approaches for a single parent–child dyad. In this issue of the JCPP, in a thorough and timely review, Catherine Panter-Brick and colleagues call for a clear change to the way parenting programmes are considered, studied and implemented. In this commentary, we reflect on this call and look at three challenges for CAMHS professionals. En ligne : http://dx.doi.org/10.1111/jcpp.12321 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241 Commentary: Thinking outside the box about children's sleep – a commentary on Gregory and Sadeh (2016) / Gregory STORES in Journal of Child Psychology and Psychiatry, 57-3 (March 2016)
[article]
Titre : Commentary: Thinking outside the box about children's sleep – a commentary on Gregory and Sadeh (2016) Type de document : Texte imprimé et/ou numérique Auteurs : Gregory STORES, Auteur Article en page(s) : p.318-320 Langues : Anglais (eng) Mots-clés : Sleep children clinical practice assessment treatment Index. décimale : PER Périodiques Résumé : This commentary is intended to supplement the accompanying review of sleep problems in childhood psychiatric disorders by Gregory and Sadeh. A number of considerations are outlined because of their relevance to both clinical practice and research concerning assessment and treatment of sleep disturbance in children in general and especially those with psychiatric and/or neurological conditions. These considerations (which illustrate the importance of combined medical and psychological involvement) are as follows: the importance of screening for sleep disturbance which otherwise may well be overlooked; the need to specify sleep disorders rather than simply nonspecific sleep problems as this will guide choice of appropriate advice and treatment; the risk of sleep disorders being misdiagnosed because of clinicians' unfamiliarity with the sleep disorders field; the possibility that a child's sleep disturbance is of multiple aetiology; a wide range of treatments for disturbed sleep is now described from which a choice is possible given an accurate diagnosis; sleep problems may be intensified if a child's condition is complicated by intellectual disability but the same principles of assessment and management apply as in other children in the expectation that treatment can be effective. En ligne : http://dx.doi.org/10.1111/jcpp.12542 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=282
in Journal of Child Psychology and Psychiatry > 57-3 (March 2016) . - p.318-320[article] Commentary: Thinking outside the box about children's sleep – a commentary on Gregory and Sadeh (2016) [Texte imprimé et/ou numérique] / Gregory STORES, Auteur . - p.318-320.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 57-3 (March 2016) . - p.318-320
Mots-clés : Sleep children clinical practice assessment treatment Index. décimale : PER Périodiques Résumé : This commentary is intended to supplement the accompanying review of sleep problems in childhood psychiatric disorders by Gregory and Sadeh. A number of considerations are outlined because of their relevance to both clinical practice and research concerning assessment and treatment of sleep disturbance in children in general and especially those with psychiatric and/or neurological conditions. These considerations (which illustrate the importance of combined medical and psychological involvement) are as follows: the importance of screening for sleep disturbance which otherwise may well be overlooked; the need to specify sleep disorders rather than simply nonspecific sleep problems as this will guide choice of appropriate advice and treatment; the risk of sleep disorders being misdiagnosed because of clinicians' unfamiliarity with the sleep disorders field; the possibility that a child's sleep disturbance is of multiple aetiology; a wide range of treatments for disturbed sleep is now described from which a choice is possible given an accurate diagnosis; sleep problems may be intensified if a child's condition is complicated by intellectual disability but the same principles of assessment and management apply as in other children in the expectation that treatment can be effective. En ligne : http://dx.doi.org/10.1111/jcpp.12542 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=282