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Evaluating Autism Diagnostic and Screening Tools for Cultural and Linguistic Responsiveness / Bryn HARRIS in Journal of Autism and Developmental Disorders, 44-6 (June 2014)
[article]
Titre : Evaluating Autism Diagnostic and Screening Tools for Cultural and Linguistic Responsiveness Type de document : Texte imprimé et/ou numérique Auteurs : Bryn HARRIS, Auteur ; Erin E. BARTON, Auteur ; Chantel ALBERT, Auteur Article en page(s) : p.1275-1287 Langues : Anglais (eng) Mots-clés : Autism Diagnostic assessment Screening Diverse populations Index. décimale : PER Périodiques Résumé : While clear guidelines and best practices exist for the assessment of autism spectrum disorders (ASD), little information is available about assessing for ASD in culturally and linguistically diverse (CLD) populations. CLD populations might be misidentified and under-identified with ASD due to the assessment practices that we employ. Four autism diagnostic tools and six autism screeners were selected and evaluated for their cultural and linguistic responsiveness. Although the evaluation of ASD within CLD populations is highly complex, this study identified the need for improved autism assessment tools and practices. Without the appropriate assessment of these populations, CLD children will likely continue to be misidentified (or not identified at all) and will miss crucial intervention opportunities. En ligne : http://dx.doi.org/10.1007/s10803-013-1991-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233
in Journal of Autism and Developmental Disorders > 44-6 (June 2014) . - p.1275-1287[article] Evaluating Autism Diagnostic and Screening Tools for Cultural and Linguistic Responsiveness [Texte imprimé et/ou numérique] / Bryn HARRIS, Auteur ; Erin E. BARTON, Auteur ; Chantel ALBERT, Auteur . - p.1275-1287.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 44-6 (June 2014) . - p.1275-1287
Mots-clés : Autism Diagnostic assessment Screening Diverse populations Index. décimale : PER Périodiques Résumé : While clear guidelines and best practices exist for the assessment of autism spectrum disorders (ASD), little information is available about assessing for ASD in culturally and linguistically diverse (CLD) populations. CLD populations might be misidentified and under-identified with ASD due to the assessment practices that we employ. Four autism diagnostic tools and six autism screeners were selected and evaluated for their cultural and linguistic responsiveness. Although the evaluation of ASD within CLD populations is highly complex, this study identified the need for improved autism assessment tools and practices. Without the appropriate assessment of these populations, CLD children will likely continue to be misidentified (or not identified at all) and will miss crucial intervention opportunities. En ligne : http://dx.doi.org/10.1007/s10803-013-1991-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233 A pilot study examining the use of the autism diagnostic observation schedule in community-based mental health clinics / Nicole STADNICK in Research in Autism Spectrum Disorders, 20 (December 2015)
[article]
Titre : A pilot study examining the use of the autism diagnostic observation schedule in community-based mental health clinics Type de document : Texte imprimé et/ou numérique Auteurs : Nicole STADNICK, Auteur ; Lauren BROOKMAN-FRAZEE, Auteur ; Katherine NGUYEN WILLIAMS, Auteur ; Gabrielle CERDA, Auteur ; Natacha AKSHOOMOFF, Auteur Article en page(s) : p.39-46 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Community mental health Youth Diagnostic assessment Autism Diagnostic Observation Schedule Index. décimale : PER Périodiques Résumé : Community-based mental health (CMH) services play an important, but relatively understudied role in the identification and treatment of youth with autism spectrum disorder (ASD) who may be receiving care for other psychiatric conditions. Little is known about the role of standardized ASD assessment measures administered by providers working in generalist community-based mental health (CMH) settings. This pilot study extracted data from three CMH clinics to examine the use of the Autism Diagnostic Observation Schedule (ADOS) by 17CMH providers who received ASD assessment training with 62 youth (Mean = 10.69 years) referred for an ASD diagnostic evaluation. Results indicated that 57% of youths assessed ultimately received an ASD diagnosis. All cases given a final ASD diagnosis were classified as “Autism” or “ASD” on the ADOS. Seventy percent of youth who did not receive a final ASD diagnosis were classified as “Non-Spectrum” on the ADOS. In these false positive cases, report narratives indicated that social communication difficulties identified on the ADOS were explained by symptoms of other mental health conditions (e.g., ADHD, anxiety). Future research is needed to examine the utility of the ADOS when used by CMH providers to facilitate CMH capacity to identify ASD. En ligne : http://dx.doi.org/10.1016/j.rasd.2015.08.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270
in Research in Autism Spectrum Disorders > 20 (December 2015) . - p.39-46[article] A pilot study examining the use of the autism diagnostic observation schedule in community-based mental health clinics [Texte imprimé et/ou numérique] / Nicole STADNICK, Auteur ; Lauren BROOKMAN-FRAZEE, Auteur ; Katherine NGUYEN WILLIAMS, Auteur ; Gabrielle CERDA, Auteur ; Natacha AKSHOOMOFF, Auteur . - p.39-46.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 20 (December 2015) . - p.39-46
Mots-clés : Autism spectrum disorder Community mental health Youth Diagnostic assessment Autism Diagnostic Observation Schedule Index. décimale : PER Périodiques Résumé : Community-based mental health (CMH) services play an important, but relatively understudied role in the identification and treatment of youth with autism spectrum disorder (ASD) who may be receiving care for other psychiatric conditions. Little is known about the role of standardized ASD assessment measures administered by providers working in generalist community-based mental health (CMH) settings. This pilot study extracted data from three CMH clinics to examine the use of the Autism Diagnostic Observation Schedule (ADOS) by 17CMH providers who received ASD assessment training with 62 youth (Mean = 10.69 years) referred for an ASD diagnostic evaluation. Results indicated that 57% of youths assessed ultimately received an ASD diagnosis. All cases given a final ASD diagnosis were classified as “Autism” or “ASD” on the ADOS. Seventy percent of youth who did not receive a final ASD diagnosis were classified as “Non-Spectrum” on the ADOS. In these false positive cases, report narratives indicated that social communication difficulties identified on the ADOS were explained by symptoms of other mental health conditions (e.g., ADHD, anxiety). Future research is needed to examine the utility of the ADOS when used by CMH providers to facilitate CMH capacity to identify ASD. En ligne : http://dx.doi.org/10.1016/j.rasd.2015.08.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270 Adults’ Experience of an Asperger Syndrome Diagnosis: Analysis of Its Emotional Meaning and Effect on Participants’ Lives / Trevor POWELL in Focus on Autism and Other Developmental Disabilities, 31-1 (March 2016)
[article]
Titre : Adults’ Experience of an Asperger Syndrome Diagnosis: Analysis of Its Emotional Meaning and Effect on Participants’ Lives Type de document : Texte imprimé et/ou numérique Auteurs : Trevor POWELL, Auteur ; Louise ACKER, Auteur Article en page(s) : p.72-80 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Asperger syndrome adults diagnostic assessment emotional reaction effect on life Index. décimale : PER Périodiques Résumé : This study explores the impact on 74 adults attending an Asperger syndrome diagnosis clinic. Feedback forms containing quantitative and qualitative measures were completed 3 months post-assessment. Qualitative responses were analyzed using thematic content analysis. Regarding questions about their emotional response, participants reported themes of “Relief,” “Feeling better about self,” “Mixed feelings,” “No clear feelings,” and “Negative feelings.” Regarding the impact of the diagnosis on their lives, participants reported themes of “Understanding and explanation,” “Self-acceptance,” “Social interaction,” and “Support.” A “sub-clinical threshold” group reported a theme of “Diagnostic disappointment” relating to their experience of not receiving a full diagnosis. There were no differences between pre- and post-assessment on standardized measures of anxiety, depression, or satisfaction with life. However, on a self-report Likert-type scale, participants who received a full diagnosis reported a significantly more positive effect of the diagnosis on their lives, compared with those who did not. En ligne : http://dx.doi.org/10.1177/1088357615588516 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=282
in Focus on Autism and Other Developmental Disabilities > 31-1 (March 2016) . - p.72-80[article] Adults’ Experience of an Asperger Syndrome Diagnosis: Analysis of Its Emotional Meaning and Effect on Participants’ Lives [Texte imprimé et/ou numérique] / Trevor POWELL, Auteur ; Louise ACKER, Auteur . - p.72-80.
Langues : Anglais (eng)
in Focus on Autism and Other Developmental Disabilities > 31-1 (March 2016) . - p.72-80
Mots-clés : Autism Spectrum Disorder Asperger syndrome adults diagnostic assessment emotional reaction effect on life Index. décimale : PER Périodiques Résumé : This study explores the impact on 74 adults attending an Asperger syndrome diagnosis clinic. Feedback forms containing quantitative and qualitative measures were completed 3 months post-assessment. Qualitative responses were analyzed using thematic content analysis. Regarding questions about their emotional response, participants reported themes of “Relief,” “Feeling better about self,” “Mixed feelings,” “No clear feelings,” and “Negative feelings.” Regarding the impact of the diagnosis on their lives, participants reported themes of “Understanding and explanation,” “Self-acceptance,” “Social interaction,” and “Support.” A “sub-clinical threshold” group reported a theme of “Diagnostic disappointment” relating to their experience of not receiving a full diagnosis. There were no differences between pre- and post-assessment on standardized measures of anxiety, depression, or satisfaction with life. However, on a self-report Likert-type scale, participants who received a full diagnosis reported a significantly more positive effect of the diagnosis on their lives, compared with those who did not. En ligne : http://dx.doi.org/10.1177/1088357615588516 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=282 Implementation of a Practice Development Model to Reduce the Wait for Autism Spectrum Diagnosis in Adults / M. RUTHERFORD in Journal of Autism and Developmental Disorders, 48-8 (August 2018)
[article]
Titre : Implementation of a Practice Development Model to Reduce the Wait for Autism Spectrum Diagnosis in Adults Type de document : Texte imprimé et/ou numérique Auteurs : M. RUTHERFORD, Auteur ; K. FORSYTH, Auteur ; K. MCKENZIE, Auteur ; I. MCCLURE, Auteur ; A. MURRAY, Auteur ; D. MCCARTNEY, Auteur ; L. IRVINE, Auteur ; A. O'HARE, Auteur Article en page(s) : p.2677-2691 Langues : Anglais (eng) Mots-clés : Asd Adults Diagnostic assessment Reducing wait times Service improvement Index. décimale : PER Périodiques Résumé : This study examined waiting times for diagnostic assessment of Autism Spectrum Disorder in 11 adult services, prior to and following the implementation of a 12 month change program. Methods to support change are reported and a multi-level modelling approach determined the effect of the change program on overall wait times. Results were statistically significant (b = - 0.25, t(136) = - 2.88, p = 0.005). The average time individuals waited for diagnosis across all services reduced from 149.4 days prior to the change program and 119.5 days after it, with an average reduction of 29.9 days overall. This innovative intervention provides a promising framework for service improvement to reduce the wait for diagnostic assessment of ASD in adults across the range of spectrum presentations. En ligne : http://dx.doi.org/10.1007/s10803-018-3501-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367
in Journal of Autism and Developmental Disorders > 48-8 (August 2018) . - p.2677-2691[article] Implementation of a Practice Development Model to Reduce the Wait for Autism Spectrum Diagnosis in Adults [Texte imprimé et/ou numérique] / M. RUTHERFORD, Auteur ; K. FORSYTH, Auteur ; K. MCKENZIE, Auteur ; I. MCCLURE, Auteur ; A. MURRAY, Auteur ; D. MCCARTNEY, Auteur ; L. IRVINE, Auteur ; A. O'HARE, Auteur . - p.2677-2691.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-8 (August 2018) . - p.2677-2691
Mots-clés : Asd Adults Diagnostic assessment Reducing wait times Service improvement Index. décimale : PER Périodiques Résumé : This study examined waiting times for diagnostic assessment of Autism Spectrum Disorder in 11 adult services, prior to and following the implementation of a 12 month change program. Methods to support change are reported and a multi-level modelling approach determined the effect of the change program on overall wait times. Results were statistically significant (b = - 0.25, t(136) = - 2.88, p = 0.005). The average time individuals waited for diagnosis across all services reduced from 149.4 days prior to the change program and 119.5 days after it, with an average reduction of 29.9 days overall. This innovative intervention provides a promising framework for service improvement to reduce the wait for diagnostic assessment of ASD in adults across the range of spectrum presentations. En ligne : http://dx.doi.org/10.1007/s10803-018-3501-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367 Why are they waiting? Exploring professional perspectives and developing solutions to delayed diagnosis of autism spectrum disorder in adults and children / Marion RUTHERFORD in Research in Autism Spectrum Disorders, 31 (November 2016)
[article]
Titre : Why are they waiting? Exploring professional perspectives and developing solutions to delayed diagnosis of autism spectrum disorder in adults and children Type de document : Texte imprimé et/ou numérique Auteurs : Marion RUTHERFORD, Auteur ; Karen MCKENZIE, Auteur ; Kirsty FORSYTH, Auteur ; Deborah MCCARTNEY, Auteur ; Anne O’HARE, Auteur ; IAIN MCCLURE, Auteur ; Linda IRVINE, Auteur Article en page(s) : p.53-65 Langues : Anglais (eng) Mots-clés : Focus groups Autism spectrum disorder Diagnostic assessment Wait times Index. décimale : PER Périodiques Résumé : AbstractBackground This paper reports on the development of child and adult Action Plans for Autism Spectrum Disorder to address the problem of delayed diagnosis and lengthy waiting times. Evidence used in the development of action plans was gathered from a sequential mixed methods study to further understand the reasons for the long waiting time and potential solutions. This is the first published investigation, from the perspective of diagnosing professional teams, of the reasons for delays, which also generates solutions. Methods Ninety five clinicians from 8 child and 8 adult services attended 16 focus groups to explore clinicians’ views on a) reducing the wait for diagnosis and b) providing a good quality diagnostic process with good adherence to clinical guidelines. During focus groups, quantitative data were fed back, used to frame discussions and facilitate solution focused action planning with each service. Sixteen local action plans were synthesised to create an ASD Action Plan for children and an ASD Action Plan for adults. Results Key solutions are proposed to support the reduction of the wait for diagnostic assessment, through reducing non-attendance rates, reducing inappropriate referrals, developing efficient working and communication and improving the effectiveness of care pathways. These are presented in actions plans for use by clinical teams. Conclusion The first step in addressing the clinical challenge of increased wait for diagnostic assessment of ASD is understanding the complex and multi-factorial reasons for delays. The action plans developed here through systematic enquiry and synthesis may provide clinical diagnostic teams with evidence based guidance on common challenges and solutions to guide future quality improvement programmes. Future research to evaluate whether using Action Plans leads to a reduction in waiting times would be of value. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.06.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=295
in Research in Autism Spectrum Disorders > 31 (November 2016) . - p.53-65[article] Why are they waiting? Exploring professional perspectives and developing solutions to delayed diagnosis of autism spectrum disorder in adults and children [Texte imprimé et/ou numérique] / Marion RUTHERFORD, Auteur ; Karen MCKENZIE, Auteur ; Kirsty FORSYTH, Auteur ; Deborah MCCARTNEY, Auteur ; Anne O’HARE, Auteur ; IAIN MCCLURE, Auteur ; Linda IRVINE, Auteur . - p.53-65.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 31 (November 2016) . - p.53-65
Mots-clés : Focus groups Autism spectrum disorder Diagnostic assessment Wait times Index. décimale : PER Périodiques Résumé : AbstractBackground This paper reports on the development of child and adult Action Plans for Autism Spectrum Disorder to address the problem of delayed diagnosis and lengthy waiting times. Evidence used in the development of action plans was gathered from a sequential mixed methods study to further understand the reasons for the long waiting time and potential solutions. This is the first published investigation, from the perspective of diagnosing professional teams, of the reasons for delays, which also generates solutions. Methods Ninety five clinicians from 8 child and 8 adult services attended 16 focus groups to explore clinicians’ views on a) reducing the wait for diagnosis and b) providing a good quality diagnostic process with good adherence to clinical guidelines. During focus groups, quantitative data were fed back, used to frame discussions and facilitate solution focused action planning with each service. Sixteen local action plans were synthesised to create an ASD Action Plan for children and an ASD Action Plan for adults. Results Key solutions are proposed to support the reduction of the wait for diagnostic assessment, through reducing non-attendance rates, reducing inappropriate referrals, developing efficient working and communication and improving the effectiveness of care pathways. These are presented in actions plans for use by clinical teams. Conclusion The first step in addressing the clinical challenge of increased wait for diagnostic assessment of ASD is understanding the complex and multi-factorial reasons for delays. The action plans developed here through systematic enquiry and synthesis may provide clinical diagnostic teams with evidence based guidance on common challenges and solutions to guide future quality improvement programmes. Future research to evaluate whether using Action Plans leads to a reduction in waiting times would be of value. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.06.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=295 Do Parental Interviews for ASD Converge with Clinical Diagnoses? An Empirical Comparison of the 3di and the DISCO in Children with ASD, a Clinically-Referred Group, and Typically Developing Children / Kris EVERS in Journal of Autism and Developmental Disorders, 50-4 (April 2020)
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