Centre d'Information et de documentation du CRA Rhône-Alpes
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“It was like walking without knowing where I was going”: A Qualitative Study of Autism in a UK Somali Migrant Community / Fiona FOX in Journal of Autism and Developmental Disorders, 47-2 (February 2017)
[article]
Titre : “It was like walking without knowing where I was going”: A Qualitative Study of Autism in a UK Somali Migrant Community Type de document : Texte imprimé et/ou numérique Auteurs : Fiona FOX, Auteur ; Nura AABE, Auteur ; Katrina TURNER, Auteur ; Sabi REDWOOD, Auteur ; Dheeraj RAI, Auteur Article en page(s) : p.305-315 Langues : Anglais (eng) Mots-clés : Autism Somali Migrant Qualitative Attitudes Childhood Disability Help-seeking Index. décimale : PER Périodiques Résumé : Increasing recognition of autism in Somali migrant communities means that appropriate support services are needed. Attitudes to autism and barriers related to help-seeking in these communities are poorly understood. We aimed to assess what families affected by autism need, and how health, education and social care services can support them. In partnership with the local Somali community the research team conducted 15 in-depth interviews with parents affected by autism. Two themes are reported; ‘Perceptions of Autism’ and ‘Navigating the System’. Our research shows the importance of understanding cultural views of autism and the need to raise awareness, reduce stigma and provide support to encourage families not to delay seeking help for their children. En ligne : http://dx.doi.org/10.1007/s10803-016-2952-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=303
in Journal of Autism and Developmental Disorders > 47-2 (February 2017) . - p.305-315[article] “It was like walking without knowing where I was going”: A Qualitative Study of Autism in a UK Somali Migrant Community [Texte imprimé et/ou numérique] / Fiona FOX, Auteur ; Nura AABE, Auteur ; Katrina TURNER, Auteur ; Sabi REDWOOD, Auteur ; Dheeraj RAI, Auteur . - p.305-315.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-2 (February 2017) . - p.305-315
Mots-clés : Autism Somali Migrant Qualitative Attitudes Childhood Disability Help-seeking Index. décimale : PER Périodiques Résumé : Increasing recognition of autism in Somali migrant communities means that appropriate support services are needed. Attitudes to autism and barriers related to help-seeking in these communities are poorly understood. We aimed to assess what families affected by autism need, and how health, education and social care services can support them. In partnership with the local Somali community the research team conducted 15 in-depth interviews with parents affected by autism. Two themes are reported; ‘Perceptions of Autism’ and ‘Navigating the System’. Our research shows the importance of understanding cultural views of autism and the need to raise awareness, reduce stigma and provide support to encourage families not to delay seeking help for their children. En ligne : http://dx.doi.org/10.1007/s10803-016-2952-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=303 Understanding and awareness of autism among Somali parents living in the United Kingdom / A. M. HUSSEIN in Autism, 23-6 (August 2019)
[article]
Titre : Understanding and awareness of autism among Somali parents living in the United Kingdom Type de document : Texte imprimé et/ou numérique Auteurs : A. M. HUSSEIN, Auteur ; E. PELLICANO, Auteur ; L. CRANE, Auteur Article en page(s) : p.1408-1418 Langues : Anglais (eng) Mots-clés : Somali attitudes autism spectrum disorders culture migrant qualitative research Index. décimale : PER Périodiques Résumé : Using vignettes and interviews, this study examined understanding and awareness of autism, and (a)typical development more broadly, among 32 Somali parents living in the United Kingdom. Results demonstrated that parents of both autistic (n = 16) and non-autistic (n = 16) children were just as likely to identify vignettes of typically developing children, yet parents of autistic children appeared more astute to signs of atypical development. Across the whole sample, parents commonly identified and labelled vignettes of autistic children, but experienced more difficulty labelling vignettes that described children with other forms of atypical development, sometimes mislabeling these children as autistic. This suggests that there is a need for greater support in recognising and identifying different types of atypical development in the Somali community (to mitigate the risk that the term 'autism' may take on its own meaning within the Somali community, becoming a euphemism for a range of developmental conditions). Analysis of interview data identified key sociocultural factors that either helped or hindered the inclusion of families with autistic children within the community, including the Somali community's: (1) perceptions of disability, (2) beliefs about the causes of autism in the Western world and (3) strong reliance on religious beliefs in understanding and accepting an autism diagnosis. En ligne : http://dx.doi.org/10.1177/1362361318813996 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403
in Autism > 23-6 (August 2019) . - p.1408-1418[article] Understanding and awareness of autism among Somali parents living in the United Kingdom [Texte imprimé et/ou numérique] / A. M. HUSSEIN, Auteur ; E. PELLICANO, Auteur ; L. CRANE, Auteur . - p.1408-1418.
Langues : Anglais (eng)
in Autism > 23-6 (August 2019) . - p.1408-1418
Mots-clés : Somali attitudes autism spectrum disorders culture migrant qualitative research Index. décimale : PER Périodiques Résumé : Using vignettes and interviews, this study examined understanding and awareness of autism, and (a)typical development more broadly, among 32 Somali parents living in the United Kingdom. Results demonstrated that parents of both autistic (n = 16) and non-autistic (n = 16) children were just as likely to identify vignettes of typically developing children, yet parents of autistic children appeared more astute to signs of atypical development. Across the whole sample, parents commonly identified and labelled vignettes of autistic children, but experienced more difficulty labelling vignettes that described children with other forms of atypical development, sometimes mislabeling these children as autistic. This suggests that there is a need for greater support in recognising and identifying different types of atypical development in the Somali community (to mitigate the risk that the term 'autism' may take on its own meaning within the Somali community, becoming a euphemism for a range of developmental conditions). Analysis of interview data identified key sociocultural factors that either helped or hindered the inclusion of families with autistic children within the community, including the Somali community's: (1) perceptions of disability, (2) beliefs about the causes of autism in the Western world and (3) strong reliance on religious beliefs in understanding and accepting an autism diagnosis. En ligne : http://dx.doi.org/10.1177/1362361318813996 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403