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Stress in Parents of Children with Autism Spectrum Disorder: An Exploration of Demands and Resources / Teri M. KRAKOVICH in Journal of Autism and Developmental Disorders, 46-6 (June 2016)
[article]
Titre : Stress in Parents of Children with Autism Spectrum Disorder: An Exploration of Demands and Resources Type de document : Texte imprimé et/ou numérique Auteurs : Teri M. KRAKOVICH, Auteur ; John H. MCGREW, Auteur ; Yue YU, Auteur ; Lisa A. RUBLE, Auteur Article en page(s) : p.2042-2053 Langues : Anglais (eng) Mots-clés : Autism Parent Stress Intervention Resources Demands Index. décimale : PER Périodiques Résumé : We applied the ABCX model of stress and coping to assess the association between child and family demands, school-based resources (i.e., parent–teacher alliance and COMPASS, a consultation intervention), and two measures of parent stress: perceptions of the demands of raising a child (Child domain) and reactions to those demands (Parent domain). Data were analyzed from seventy-nine parents of children ages 3–9 with ASD participating in two randomized controlled trials of COMPASS. Stronger parent–teacher alliance correlated with decreased Parent domain stress and participation in COMPASS correlated with decreased Child domain stress after controlling for baseline stress. The study indicates that school-based resources can help reduce parent stress. En ligne : http://dx.doi.org/10.1007/s10803-016-2728-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288
in Journal of Autism and Developmental Disorders > 46-6 (June 2016) . - p.2042-2053[article] Stress in Parents of Children with Autism Spectrum Disorder: An Exploration of Demands and Resources [Texte imprimé et/ou numérique] / Teri M. KRAKOVICH, Auteur ; John H. MCGREW, Auteur ; Yue YU, Auteur ; Lisa A. RUBLE, Auteur . - p.2042-2053.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 46-6 (June 2016) . - p.2042-2053
Mots-clés : Autism Parent Stress Intervention Resources Demands Index. décimale : PER Périodiques Résumé : We applied the ABCX model of stress and coping to assess the association between child and family demands, school-based resources (i.e., parent–teacher alliance and COMPASS, a consultation intervention), and two measures of parent stress: perceptions of the demands of raising a child (Child domain) and reactions to those demands (Parent domain). Data were analyzed from seventy-nine parents of children ages 3–9 with ASD participating in two randomized controlled trials of COMPASS. Stronger parent–teacher alliance correlated with decreased Parent domain stress and participation in COMPASS correlated with decreased Child domain stress after controlling for baseline stress. The study indicates that school-based resources can help reduce parent stress. En ligne : http://dx.doi.org/10.1007/s10803-016-2728-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288 Annual Research Review: Child and adolescent mental health interventions: a review of progress in economic studies across different disorders / Jennifer BEECHAM in Journal of Child Psychology and Psychiatry, 55-6 (June 2014)
[article]
Titre : Annual Research Review: Child and adolescent mental health interventions: a review of progress in economic studies across different disorders Type de document : Texte imprimé et/ou numérique Auteurs : Jennifer BEECHAM, Auteur Année de publication : 2014 Article en page(s) : p.714-732 Langues : Anglais (eng) Mots-clés : Economic evaluations childhood psychiatric disorders treatment costs support costs outcomes resources Index. décimale : PER Périodiques Résumé : Background Resources for supporting children and adolescents with psychiatric disorders continue to be scarce. Economics research can identify current patterns of expenditure, and help inform allocation of treatment and support resources between competing needs or uses. Scope and methods The aim was to identify the costs of supporting children and adolescents, the economic impacts of childhood psychiatric disorders in adulthood and any new evidence on the cost-effectiveness of interventions. An electronic search of databases (including PubMed, Medline and Psychinfo) identified peer-reviewed journal articles published between 2005 and 2012. Findings Sixty-seven papers provided data on support and treatment costs now or in the future, or cost-effectiveness analyses of services. Half the articles came from the United States. Most articles focussed on autism spectrum disorder (ASD; 23 articles), attention deficit hyperactivity disorder (ADHD; n = 15), conduct disorder (CD; n = 7), and anxiety or depression (n = 8). Conclusion Only 14 studies used a cost perspective wider than health care; most included education costs (n = 11), but only five included costs to the justice system. The number of studies estimating costs to the family has increased, particularly for children with autism spectrum disorder (ASD). In the United Kingdom, support costs for children and adolescents with conduct disorder (CD) appear to be lower than for those with attention deficit hyperactivity disorder (ADHD), although for the United States, the opposite may be true. Support costs for children and adolescents with ASD may be higher than both CD and ADHD. However, there were many differences between the samples and the methods employed making comparisons between studies difficult. Outcomes in adulthood include negative impacts on (mental) health, quality of life, public sector services, employment status and income. The evidence base is improving for child and adolescent psychiatric disorders, although only one full cost-effectiveness analysis was identified since the previous review published in 2012. However, we still do not know enough about the economic implications of support and treatment for specific disorders. En ligne : http://dx.doi.org/10.1111/jcpp.12216 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=234
in Journal of Child Psychology and Psychiatry > 55-6 (June 2014) . - p.714-732[article] Annual Research Review: Child and adolescent mental health interventions: a review of progress in economic studies across different disorders [Texte imprimé et/ou numérique] / Jennifer BEECHAM, Auteur . - 2014 . - p.714-732.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 55-6 (June 2014) . - p.714-732
Mots-clés : Economic evaluations childhood psychiatric disorders treatment costs support costs outcomes resources Index. décimale : PER Périodiques Résumé : Background Resources for supporting children and adolescents with psychiatric disorders continue to be scarce. Economics research can identify current patterns of expenditure, and help inform allocation of treatment and support resources between competing needs or uses. Scope and methods The aim was to identify the costs of supporting children and adolescents, the economic impacts of childhood psychiatric disorders in adulthood and any new evidence on the cost-effectiveness of interventions. An electronic search of databases (including PubMed, Medline and Psychinfo) identified peer-reviewed journal articles published between 2005 and 2012. Findings Sixty-seven papers provided data on support and treatment costs now or in the future, or cost-effectiveness analyses of services. Half the articles came from the United States. Most articles focussed on autism spectrum disorder (ASD; 23 articles), attention deficit hyperactivity disorder (ADHD; n = 15), conduct disorder (CD; n = 7), and anxiety or depression (n = 8). Conclusion Only 14 studies used a cost perspective wider than health care; most included education costs (n = 11), but only five included costs to the justice system. The number of studies estimating costs to the family has increased, particularly for children with autism spectrum disorder (ASD). In the United Kingdom, support costs for children and adolescents with conduct disorder (CD) appear to be lower than for those with attention deficit hyperactivity disorder (ADHD), although for the United States, the opposite may be true. Support costs for children and adolescents with ASD may be higher than both CD and ADHD. However, there were many differences between the samples and the methods employed making comparisons between studies difficult. Outcomes in adulthood include negative impacts on (mental) health, quality of life, public sector services, employment status and income. The evidence base is improving for child and adolescent psychiatric disorders, although only one full cost-effectiveness analysis was identified since the previous review published in 2012. However, we still do not know enough about the economic implications of support and treatment for specific disorders. En ligne : http://dx.doi.org/10.1111/jcpp.12216 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=234 Measuring use and cost of health sector and related care in a population of girls and young women with Rett syndrome / Delia HENDRIE in Research in Autism Spectrum Disorders, 5-2 (April-June 2011)
[article]
Titre : Measuring use and cost of health sector and related care in a population of girls and young women with Rett syndrome Type de document : Texte imprimé et/ou numérique Auteurs : Delia HENDRIE, Auteur ; Ami BEBBINGTON, Auteur ; Carol BOWER, Auteur ; Helen LEONARD, Auteur Année de publication : 2011 Article en page(s) : p.901-909 Langues : Anglais (eng) Mots-clés : Rett syndrome Healthcare Costs Resources Population-based Index. décimale : PER Périodiques Résumé : This study measured use and cost of health sector and related services in Rett syndrome and effects of socio-demographic, clinical severity and genetic factors on costs. The study population consisted of individuals with Rett syndrome registered with the Australian Rett Syndrome Database in 2004. Descriptive analysis was used to examine patterns of resource use and costs, and logistic regression to analyse factors associated with higher costs. We found the use of health sector and related resources varied by type of resource. Mean annual cost per case was $21,158 (range $238–$85,776). High cost items included long-term residential care, therapy services out of school and paid home and community care. Factors associated with increasing odds of being above the median cost were clinical severity and the p.R255X mutation. Compared with the youngest cases, cases in the 5–14 year age group and the 15–24 year age group were at lower odds of being above the median cost. Needs relating to health sector and related resources can result in considerable costs for individuals with Rett syndrome. Many households caring for dependents with Rett syndrome are like to be facing undue financial pressures from the additional costs of disability. En ligne : http://dx.doi.org/10.1016/j.rasd.2010.10.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=114
in Research in Autism Spectrum Disorders > 5-2 (April-June 2011) . - p.901-909[article] Measuring use and cost of health sector and related care in a population of girls and young women with Rett syndrome [Texte imprimé et/ou numérique] / Delia HENDRIE, Auteur ; Ami BEBBINGTON, Auteur ; Carol BOWER, Auteur ; Helen LEONARD, Auteur . - 2011 . - p.901-909.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 5-2 (April-June 2011) . - p.901-909
Mots-clés : Rett syndrome Healthcare Costs Resources Population-based Index. décimale : PER Périodiques Résumé : This study measured use and cost of health sector and related services in Rett syndrome and effects of socio-demographic, clinical severity and genetic factors on costs. The study population consisted of individuals with Rett syndrome registered with the Australian Rett Syndrome Database in 2004. Descriptive analysis was used to examine patterns of resource use and costs, and logistic regression to analyse factors associated with higher costs. We found the use of health sector and related resources varied by type of resource. Mean annual cost per case was $21,158 (range $238–$85,776). High cost items included long-term residential care, therapy services out of school and paid home and community care. Factors associated with increasing odds of being above the median cost were clinical severity and the p.R255X mutation. Compared with the youngest cases, cases in the 5–14 year age group and the 15–24 year age group were at lower odds of being above the median cost. Needs relating to health sector and related resources can result in considerable costs for individuals with Rett syndrome. Many households caring for dependents with Rett syndrome are like to be facing undue financial pressures from the additional costs of disability. En ligne : http://dx.doi.org/10.1016/j.rasd.2010.10.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=114 Stress and Personal Resource as Predictors of the Adjustment of Parents to Autistic Children: A Multivariate Model / Ayelet SIMAN-TOV in Journal of Autism and Developmental Disorders, 41-7 (July 2011)
[article]
Titre : Stress and Personal Resource as Predictors of the Adjustment of Parents to Autistic Children: A Multivariate Model Type de document : Texte imprimé et/ou numérique Auteurs : Ayelet SIMAN-TOV, Auteur ; Shlomo KANIEL, Auteur Année de publication : 2011 Article en page(s) : p.879-890 Langues : Anglais (eng) Mots-clés : Stress Adjustment Resources Autism Parents Coherence Index. décimale : PER Périodiques Résumé : The research validates a multivariate model that predicts parental adjustment to coping successfully with an autistic child. The model comprises four elements: parental stress, parental resources, parental adjustment and the child’s autism symptoms. 176 parents of children aged between 6 to 16 diagnosed with PDD answered several questionnaires measuring parental stress, personal resources (sense of coherence, locus of control, social support) adjustment (mental health and marriage quality) and the child’s autism symptoms. Path analysis showed that sense of coherence, internal locus of control, social support and quality of marriage increase the ability to cope with the stress of parenting an autistic child. Directions for further research are suggested. En ligne : http://dx.doi.org/10.1007/s10803-010-1112-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=130
in Journal of Autism and Developmental Disorders > 41-7 (July 2011) . - p.879-890[article] Stress and Personal Resource as Predictors of the Adjustment of Parents to Autistic Children: A Multivariate Model [Texte imprimé et/ou numérique] / Ayelet SIMAN-TOV, Auteur ; Shlomo KANIEL, Auteur . - 2011 . - p.879-890.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 41-7 (July 2011) . - p.879-890
Mots-clés : Stress Adjustment Resources Autism Parents Coherence Index. décimale : PER Périodiques Résumé : The research validates a multivariate model that predicts parental adjustment to coping successfully with an autistic child. The model comprises four elements: parental stress, parental resources, parental adjustment and the child’s autism symptoms. 176 parents of children aged between 6 to 16 diagnosed with PDD answered several questionnaires measuring parental stress, personal resources (sense of coherence, locus of control, social support) adjustment (mental health and marriage quality) and the child’s autism symptoms. Path analysis showed that sense of coherence, internal locus of control, social support and quality of marriage increase the ability to cope with the stress of parenting an autistic child. Directions for further research are suggested. En ligne : http://dx.doi.org/10.1007/s10803-010-1112-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=130 The GapMap project: a mobile surveillance system to map diagnosed autism cases and gaps in autism services globally / J. DANIELS in Molecular Autism, 8 (2017)
[article]
Titre : The GapMap project: a mobile surveillance system to map diagnosed autism cases and gaps in autism services globally Type de document : Texte imprimé et/ou numérique Auteurs : J. DANIELS, Auteur ; J. SCHWARTZ, Auteur ; N. ALBERT, Auteur ; M. DU, Auteur ; Dennis P. WALL, Auteur Article en page(s) : 55p. Langues : Anglais (eng) Mots-clés : Autism Autism spectrum disorder Crowdsourcing Epidemiology Prevalence Resources Index. décimale : PER Périodiques Résumé : Although the number of autism diagnoses is on the rise, we have no evidence-based tracking of size and severity of gaps in access to autism-related resources, nor do we have methods to geographically triangulate the locations of the widest gaps in either the US or elsewhere across the globe. To combat these related issues of (1) mapping diagnosed cases of autism and (2) quantifying gaps in access to key intervention services, we have constructed a crowd-based mobile platform called "GapMap" (http://gapmap.stanford.edu) for real-time tracking of autism prevalence and autism-related resources that can be accessed from any mobile device with cellular or wireless connectivity. Now in beta, our aim is for this Android/iOS compatible mobile tool to simultaneously crowd-enroll the massive and growing community of families with autism to capture geographic, diagnostic, and resource usage information while automatically computing prevalence at granular geographical scales to yield a more complete and dynamic understanding of autism resource epidemiology. En ligne : http://dx.doi.org/10.1186/s13229-017-0163-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=330
in Molecular Autism > 8 (2017) . - 55p.[article] The GapMap project: a mobile surveillance system to map diagnosed autism cases and gaps in autism services globally [Texte imprimé et/ou numérique] / J. DANIELS, Auteur ; J. SCHWARTZ, Auteur ; N. ALBERT, Auteur ; M. DU, Auteur ; Dennis P. WALL, Auteur . - 55p.
Langues : Anglais (eng)
in Molecular Autism > 8 (2017) . - 55p.
Mots-clés : Autism Autism spectrum disorder Crowdsourcing Epidemiology Prevalence Resources Index. décimale : PER Périodiques Résumé : Although the number of autism diagnoses is on the rise, we have no evidence-based tracking of size and severity of gaps in access to autism-related resources, nor do we have methods to geographically triangulate the locations of the widest gaps in either the US or elsewhere across the globe. To combat these related issues of (1) mapping diagnosed cases of autism and (2) quantifying gaps in access to key intervention services, we have constructed a crowd-based mobile platform called "GapMap" (http://gapmap.stanford.edu) for real-time tracking of autism prevalence and autism-related resources that can be accessed from any mobile device with cellular or wireless connectivity. Now in beta, our aim is for this Android/iOS compatible mobile tool to simultaneously crowd-enroll the massive and growing community of families with autism to capture geographic, diagnostic, and resource usage information while automatically computing prevalence at granular geographical scales to yield a more complete and dynamic understanding of autism resource epidemiology. En ligne : http://dx.doi.org/10.1186/s13229-017-0163-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=330