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Parental perception of stress and emotional-behavioural difficulties of children with autism spectrum disorder and specific language impairment / Magda DI RENZO in Autism & Developmental Language Impairments, 5 (January-December 2020)
[article]
Titre : Parental perception of stress and emotional-behavioural difficulties of children with autism spectrum disorder and specific language impairment Type de document : Texte imprimé et/ou numérique Auteurs : Magda DI RENZO, Auteur ; Federico BIANCHI DI CASTELBIANCO, Auteur ; Elena VANADIA, Auteur ; Massimiliano PETRILLO, Auteur ; Lidia RACINARO, Auteur ; Monica REA, Auteur Langues : Anglais (eng) Mots-clés : Autism spectrum disorder emotional difficulties parental perception clinical symptoms Index. décimale : PER Périodiques Résumé : Background and aimsThe daily challenges of caring for a child with autism spectrum disorder affect many areas of everyday life and parental well-being, as well as parents’ ability to manage the needs of the family and the child concerned. A better understanding of parents’ perception of their child’s characteristics can allow better support for them and individualize intervention protocols in a more accurate way. The main objective of this study is the evaluation of the perception of stress by parents of children with autism compared to parents of children with specific language impairment.MethodsThe parents of 87 children aged between 2 and 6?years were included in this study, 34 children with a specific language impairment diagnosis and 53 children with an autism spectrum disorder diagnosis (ASD) or at risk of developing it. They were asked to complete a self-report on perceived stress and rating scales on adaptive/problematic behaviours, executive functions and sensory profile of the child.ResultsThe results reveal that parents of ASD children, compared to the control group, showed significantly higher levels of stress, mainly due to the difficulty of managing unexpected events, the feeling of loss of control over one's life and the fear of not being able to cope with the adversities they were experiences. The most critical area, both for ASD and control group, concern the executive function related to emotional reactions.ConclusionsThus, we argue that the difficulties in self-control, sensory modulation and emotional regulation, represent an element of stress for parents of children with developmental disorders.Implications: Regarding the difficulties of children with ASD, supporting the ways in which caregivers adapt to the signals of children is an important strategy, which has now become a key element of treatments for autism mediated by parents. En ligne : http://dx.doi.org/10.1177/2396941520971502 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=438
in Autism & Developmental Language Impairments > 5 (January-December 2020)[article] Parental perception of stress and emotional-behavioural difficulties of children with autism spectrum disorder and specific language impairment [Texte imprimé et/ou numérique] / Magda DI RENZO, Auteur ; Federico BIANCHI DI CASTELBIANCO, Auteur ; Elena VANADIA, Auteur ; Massimiliano PETRILLO, Auteur ; Lidia RACINARO, Auteur ; Monica REA, Auteur.
Langues : Anglais (eng)
in Autism & Developmental Language Impairments > 5 (January-December 2020)
Mots-clés : Autism spectrum disorder emotional difficulties parental perception clinical symptoms Index. décimale : PER Périodiques Résumé : Background and aimsThe daily challenges of caring for a child with autism spectrum disorder affect many areas of everyday life and parental well-being, as well as parents’ ability to manage the needs of the family and the child concerned. A better understanding of parents’ perception of their child’s characteristics can allow better support for them and individualize intervention protocols in a more accurate way. The main objective of this study is the evaluation of the perception of stress by parents of children with autism compared to parents of children with specific language impairment.MethodsThe parents of 87 children aged between 2 and 6?years were included in this study, 34 children with a specific language impairment diagnosis and 53 children with an autism spectrum disorder diagnosis (ASD) or at risk of developing it. They were asked to complete a self-report on perceived stress and rating scales on adaptive/problematic behaviours, executive functions and sensory profile of the child.ResultsThe results reveal that parents of ASD children, compared to the control group, showed significantly higher levels of stress, mainly due to the difficulty of managing unexpected events, the feeling of loss of control over one's life and the fear of not being able to cope with the adversities they were experiences. The most critical area, both for ASD and control group, concern the executive function related to emotional reactions.ConclusionsThus, we argue that the difficulties in self-control, sensory modulation and emotional regulation, represent an element of stress for parents of children with developmental disorders.Implications: Regarding the difficulties of children with ASD, supporting the ways in which caregivers adapt to the signals of children is an important strategy, which has now become a key element of treatments for autism mediated by parents. En ligne : http://dx.doi.org/10.1177/2396941520971502 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=438 Understanding How Parents Make Meaning of Their Child's Behaviors During Screening for Autism Spectrum Disorders: A Longitudinal Qualitative Investigation / Thomas I. MACKIE in Journal of Autism and Developmental Disorders, 51-3 (March 2021)
[article]
Titre : Understanding How Parents Make Meaning of Their Child's Behaviors During Screening for Autism Spectrum Disorders: A Longitudinal Qualitative Investigation Type de document : Texte imprimé et/ou numérique Auteurs : Thomas I. MACKIE, Auteur ; Ana J. SCHAEFER, Auteur ; Leah RAMELLA, Auteur ; Alice S. CARTER, Auteur ; Abbey EISENHOWER, Auteur ; Manuel E. JIMENEZ, Auteur ; Angel FETTIG, Auteur ; R. Christopher SHELDRICK, Auteur Article en page(s) : p.906-921 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders Parental perception Qualitative Screening Index. décimale : PER Périodiques Résumé : A family's journey in understanding their child's behaviors in relation to Autism Spectrum Disorders (ASD) frequently begins with screening. This study aimed to characterize the interpretive processes that unfold for parents. We employed longitudinal interviews with 19 families engaged in a community-based multi-stage screening protocol. Parents participated in 1-6 interviews dependent upon children's length of engagement in the screening protocol; data were analyzed through modified grounded theory. Parents who moved towards understanding their child's behaviors as ASD expressed (1) sensitization to ASD symptoms, (2) differentiation from other developmental conditions, and (3) use of the ASD diagnosis to explain the etiology of concerning behaviors. Identifying interpretive processes involved during ASD screening provides new opportunities for shared decision-making. En ligne : http://dx.doi.org/10.1007/s10803-020-04502-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=443
in Journal of Autism and Developmental Disorders > 51-3 (March 2021) . - p.906-921[article] Understanding How Parents Make Meaning of Their Child's Behaviors During Screening for Autism Spectrum Disorders: A Longitudinal Qualitative Investigation [Texte imprimé et/ou numérique] / Thomas I. MACKIE, Auteur ; Ana J. SCHAEFER, Auteur ; Leah RAMELLA, Auteur ; Alice S. CARTER, Auteur ; Abbey EISENHOWER, Auteur ; Manuel E. JIMENEZ, Auteur ; Angel FETTIG, Auteur ; R. Christopher SHELDRICK, Auteur . - p.906-921.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-3 (March 2021) . - p.906-921
Mots-clés : Autism spectrum disorders Parental perception Qualitative Screening Index. décimale : PER Périodiques Résumé : A family's journey in understanding their child's behaviors in relation to Autism Spectrum Disorders (ASD) frequently begins with screening. This study aimed to characterize the interpretive processes that unfold for parents. We employed longitudinal interviews with 19 families engaged in a community-based multi-stage screening protocol. Parents participated in 1-6 interviews dependent upon children's length of engagement in the screening protocol; data were analyzed through modified grounded theory. Parents who moved towards understanding their child's behaviors as ASD expressed (1) sensitization to ASD symptoms, (2) differentiation from other developmental conditions, and (3) use of the ASD diagnosis to explain the etiology of concerning behaviors. Identifying interpretive processes involved during ASD screening provides new opportunities for shared decision-making. En ligne : http://dx.doi.org/10.1007/s10803-020-04502-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=443