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Auteur Carol BRAYNE |
Documents disponibles écrits par cet auteur (18)



Are Autism Spectrum Conditions More Prevalent in an Information-Technology Region? A School-Based Study of Three Regions in the Netherlands / Martine T. ROELFSEMA in Journal of Autism and Developmental Disorders, 42-5 (May 2012)
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Titre : Are Autism Spectrum Conditions More Prevalent in an Information-Technology Region? A School-Based Study of Three Regions in the Netherlands Type de document : Texte imprimé et/ou numérique Auteurs : Martine T. ROELFSEMA, Auteur ; Rosa A. HOEKSTRA, Auteur ; Carrie ALLISON, Auteur ; Sally WHEELWRIGHT, Auteur ; Carol BRAYNE, Auteur ; Fiona E. MATTHEWS, Auteur ; Simon BARON-COHEN, Auteur Année de publication : 2012 Article en page(s) : p.734-739 Langues : Anglais (eng) Mots-clés : Autism spectrum conditions Prevalence Regional differences Hyper-systemizing theory Index. décimale : PER Périodiques Résumé : We tested for differences in the prevalence of autism spectrum conditions (ASC) in school-aged children in three geographical regions in the Netherlands. Schools were asked to provide the number of children enrolled, the number having a clinical diagnosis of ASC and/or two control neurodevelopmental conditions. Prevalence was evaluated by negative binomial regression and adjustments were made for non-response and size of the schools. The prevalence estimates of ASC in Eindhoven was 229 per 10,000, significantly higher than in Haarlem (84 per 10,000) and Utrecht (57 per 10,000), whilst the prevalence for the control conditions were similar in all regions. Phase two is planned to validate school-reported cases using standardized diagnostic methods and to explore the possible causes for these differences. En ligne : http://dx.doi.org/10.1007/s10803-011-1302-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=154
in Journal of Autism and Developmental Disorders > 42-5 (May 2012) . - p.734-739[article] Are Autism Spectrum Conditions More Prevalent in an Information-Technology Region? A School-Based Study of Three Regions in the Netherlands [Texte imprimé et/ou numérique] / Martine T. ROELFSEMA, Auteur ; Rosa A. HOEKSTRA, Auteur ; Carrie ALLISON, Auteur ; Sally WHEELWRIGHT, Auteur ; Carol BRAYNE, Auteur ; Fiona E. MATTHEWS, Auteur ; Simon BARON-COHEN, Auteur . - 2012 . - p.734-739.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 42-5 (May 2012) . - p.734-739
Mots-clés : Autism spectrum conditions Prevalence Regional differences Hyper-systemizing theory Index. décimale : PER Périodiques Résumé : We tested for differences in the prevalence of autism spectrum conditions (ASC) in school-aged children in three geographical regions in the Netherlands. Schools were asked to provide the number of children enrolled, the number having a clinical diagnosis of ASC and/or two control neurodevelopmental conditions. Prevalence was evaluated by negative binomial regression and adjustments were made for non-response and size of the schools. The prevalence estimates of ASC in Eindhoven was 229 per 10,000, significantly higher than in Haarlem (84 per 10,000) and Utrecht (57 per 10,000), whilst the prevalence for the control conditions were similar in all regions. Phase two is planned to validate school-reported cases using standardized diagnostic methods and to explore the possible causes for these differences. En ligne : http://dx.doi.org/10.1007/s10803-011-1302-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=154 Autism and family involvement in the right to education in the EU: policy mapping in the Netherlands, Belgium and Germany / R. VAN KESSEL in Molecular Autism, 10 (2019)
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Titre : Autism and family involvement in the right to education in the EU: policy mapping in the Netherlands, Belgium and Germany Type de document : Texte imprimé et/ou numérique Auteurs : R. VAN KESSEL, Auteur ; A. ROMAN-URRESTARAZU, Auteur ; A. RUIGROK, Auteur ; R. HOLT, Auteur ; M. COMMERS, Auteur ; R. A. HOEKSTRA, Auteur ; K. CZABANOWSKA, Auteur ; Carol BRAYNE, Auteur ; Simon BARON-COHEN, Auteur Article en page(s) : 43 p. Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Introduction: In recent years, the universal right to education has been emphasised by the Universal Declaration on Human Rights and the Convention on the Rights of Persons with Disabilities. In this paper, we mapped policies relevant to special education needs and parental involvement of children with autism at an international level and in the Netherlands, Germany and Belgium. Methods: A policy path analysis was performed using a scoping review as an underlying methodological framework. This allowed for a rapid gathering of available data from which a timeline of adopted policies was derived. Results and discussion: Internationally, the universal right to education has been reinforced repeatedly and the values of the Universal Declaration of Human Rights have been reiterated with every reinforcement. Also, the additional support that a child with special education needs requires is acknowledged and measures are taken to facilitate access to any education for all children. There are slight cross-country differences between the countries under study, attributable to differences in national regulation of education. However, all countries have progressed to a state where the right to education for all children is integrated on a policy level and measures are taken to enable children with special needs to participate in education. Recently, an attempt to implement a form of inclusive education was made as a form of special needs provision. Nevertheless, nowhere has this been implemented successfully yet. Conclusion: The Universal Declaration of Human Rights was a critical juncture in international policy and created an environment where the universal right to education has been implemented for all children in the countries under study. En ligne : http://dx.doi.org/10.1186/s13229-019-0297-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414
in Molecular Autism > 10 (2019) . - 43 p.[article] Autism and family involvement in the right to education in the EU: policy mapping in the Netherlands, Belgium and Germany [Texte imprimé et/ou numérique] / R. VAN KESSEL, Auteur ; A. ROMAN-URRESTARAZU, Auteur ; A. RUIGROK, Auteur ; R. HOLT, Auteur ; M. COMMERS, Auteur ; R. A. HOEKSTRA, Auteur ; K. CZABANOWSKA, Auteur ; Carol BRAYNE, Auteur ; Simon BARON-COHEN, Auteur . - 43 p.
Langues : Anglais (eng)
in Molecular Autism > 10 (2019) . - 43 p.
Index. décimale : PER Périodiques Résumé : Introduction: In recent years, the universal right to education has been emphasised by the Universal Declaration on Human Rights and the Convention on the Rights of Persons with Disabilities. In this paper, we mapped policies relevant to special education needs and parental involvement of children with autism at an international level and in the Netherlands, Germany and Belgium. Methods: A policy path analysis was performed using a scoping review as an underlying methodological framework. This allowed for a rapid gathering of available data from which a timeline of adopted policies was derived. Results and discussion: Internationally, the universal right to education has been reinforced repeatedly and the values of the Universal Declaration of Human Rights have been reiterated with every reinforcement. Also, the additional support that a child with special education needs requires is acknowledged and measures are taken to facilitate access to any education for all children. There are slight cross-country differences between the countries under study, attributable to differences in national regulation of education. However, all countries have progressed to a state where the right to education for all children is integrated on a policy level and measures are taken to enable children with special needs to participate in education. Recently, an attempt to implement a form of inclusive education was made as a form of special needs provision. Nevertheless, nowhere has this been implemented successfully yet. Conclusion: The Universal Declaration of Human Rights was a critical juncture in international policy and created an environment where the universal right to education has been implemented for all children in the countries under study. En ligne : http://dx.doi.org/10.1186/s13229-019-0297-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 Autism and the right to education in the EU: policy mapping and scoping review of Nordic countries Denmark, Finland, and Sweden / R. VAN KESSEL in Molecular Autism, 10 (2019)
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Titre : Autism and the right to education in the EU: policy mapping and scoping review of Nordic countries Denmark, Finland, and Sweden Type de document : Texte imprimé et/ou numérique Auteurs : R. VAN KESSEL, Auteur ; S. WALSH, Auteur ; A. N. V. RUIGROK, Auteur ; R. HOLT, Auteur ; A. YLIHERVA, Auteur ; E. KARNA, Auteur ; I. MOILANEN, Auteur ; E. HJORNE, Auteur ; S. T. JOHANSSON, Auteur ; Diana SCHENDEL, Auteur ; L. PEDERSEN, Auteur ; M. JORGENSEN, Auteur ; Carol BRAYNE, Auteur ; Simon BARON-COHEN, Auteur ; A. ROMAN-URRESTARAZU, Auteur Article en page(s) : 44 p. Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Introduction: The universal right to education for people with disabilities has been highlighted by the Universal Declaration on Human Rights and the Convention on the Rights of Persons with Disabilities. In this paper, we mapped policies addressing the right to education and special education needs of autistic children in Denmark, Sweden, and Finland. Methods: A policy path analysis was carried out using a scoping review as an underlying framework for data gathering. Policy mapping was performed independently by both lead authors to increase reliability. Results and discussion: The values of the Universal Declaration of Human Rights and the Convention on the Rights of Persons with Disabilities have been closely translated into the respective education systems of the countries under study, offering special education needs services and support in mainstream education with the aim of including as many children into mainstream education as possible. Even though the education systems are comparable, the approaches between the countries under study are slightly different. Denmark and Sweden have passed several policies specifically geared towards special education needs, while Finland incorporates this more in general education policy. Conclusion: All countries under study have incorporated the values of the Universal Declaration of Human Rights and the Convention on the Rights of Persons with Disabilities in their respective education systems while emphasising the need to include as many children in the mainstream system as possible. En ligne : http://dx.doi.org/10.1186/s13229-019-0290-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414
in Molecular Autism > 10 (2019) . - 44 p.[article] Autism and the right to education in the EU: policy mapping and scoping review of Nordic countries Denmark, Finland, and Sweden [Texte imprimé et/ou numérique] / R. VAN KESSEL, Auteur ; S. WALSH, Auteur ; A. N. V. RUIGROK, Auteur ; R. HOLT, Auteur ; A. YLIHERVA, Auteur ; E. KARNA, Auteur ; I. MOILANEN, Auteur ; E. HJORNE, Auteur ; S. T. JOHANSSON, Auteur ; Diana SCHENDEL, Auteur ; L. PEDERSEN, Auteur ; M. JORGENSEN, Auteur ; Carol BRAYNE, Auteur ; Simon BARON-COHEN, Auteur ; A. ROMAN-URRESTARAZU, Auteur . - 44 p.
Langues : Anglais (eng)
in Molecular Autism > 10 (2019) . - 44 p.
Index. décimale : PER Périodiques Résumé : Introduction: The universal right to education for people with disabilities has been highlighted by the Universal Declaration on Human Rights and the Convention on the Rights of Persons with Disabilities. In this paper, we mapped policies addressing the right to education and special education needs of autistic children in Denmark, Sweden, and Finland. Methods: A policy path analysis was carried out using a scoping review as an underlying framework for data gathering. Policy mapping was performed independently by both lead authors to increase reliability. Results and discussion: The values of the Universal Declaration of Human Rights and the Convention on the Rights of Persons with Disabilities have been closely translated into the respective education systems of the countries under study, offering special education needs services and support in mainstream education with the aim of including as many children into mainstream education as possible. Even though the education systems are comparable, the approaches between the countries under study are slightly different. Denmark and Sweden have passed several policies specifically geared towards special education needs, while Finland incorporates this more in general education policy. Conclusion: All countries under study have incorporated the values of the Universal Declaration of Human Rights and the Convention on the Rights of Persons with Disabilities in their respective education systems while emphasising the need to include as many children in the mainstream system as possible. En ligne : http://dx.doi.org/10.1186/s13229-019-0290-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 Autism prevalence in China is comparable to Western prevalence / X. SUN in Molecular Autism, 10 (2019)
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Titre : Autism prevalence in China is comparable to Western prevalence Type de document : Texte imprimé et/ou numérique Auteurs : X. SUN, Auteur ; Carrie ALLISON, Auteur ; L. WEI, Auteur ; F. E. MATTHEWS, Auteur ; Bonnie AUYEUNG, Auteur ; Y. Y. WU, Auteur ; S. GRIFFITHS, Auteur ; J. ZHANG, Auteur ; Simon BARON-COHEN, Auteur ; Carol BRAYNE, Auteur Article en page(s) : 7 p. Langues : Anglais (eng) Mots-clés : *Autism *Children *China *Diagnosis *Prevalence *Screening University of Hong Kong and the Peking University Institutional Review Board. Consent was provided to participants via the screening package before participating. Participants were asked to indicate whether they continued to consent at the end of the study.Not applicable.The authors declare that they have no competing interests.Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. Index. décimale : PER Périodiques Résumé : Background: Autism prevalence in the West is approximately 1% of school age children. Autism prevalence in China has been reported to be lower than in the West. This is likely due to at least two reasons: (1) most studies in China only included the special school population, overlooking the mainstream school population; and (2) most studies in China have not used contemporary screening and diagnostic methods. To address this, we tested total autism prevalence (mainstream and special schools) in Jilin City, and mainstream school autism prevalence in Jiamusi and Shenzhen cities. Methods: The study included a three-step process: (1) screening; (2) clinical assessment of 'screen positives' plus controls; and (3) research diagnostic assessment of those meeting clinical threshold for concerns at step 2. Prevalence estimates per 10,000 children aged 6-10 years old were weighted for study design using diagnostic criteria applied at the research assessment stage. Results: In Jilin City, 77 cases of autism were identified from a total population of 7258, equating to a prevalence of 108 per 10,000 (95% confidence interval (CI) 89, 130). In Shenzhen City: 21,420 children were screened and 35 cases of autism were identified, resulting in a mainstream prevalence of 42 per 10,000 (95% CI 20-89). In Jiamusi City, 16,358 children were screened, with 10 autism cases being identified, with a mainstream prevalence of 19 per 10,000 (95% CI 10-38). Conclusions: Results from Jilin City, where both mainstream and special school data were available, revealed a similar prevalence of autism in China to the West, at around 1%. Results from Shenzhen and Jiamusi cities, where only mainstream data were available, prevalence is also in line with Western estimates. In all three cities, new cases of autism were identified by the study in mainstream schools, reflecting current under-diagnosis. Non-significant variation across different cities is seen indicating the need to explore potential variation of autism across diverse Chinese regions with large sample sizes to achieve a fully robust national picture. En ligne : https://dx.doi.org/10.1186/s13229-018-0246-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=389
in Molecular Autism > 10 (2019) . - 7 p.[article] Autism prevalence in China is comparable to Western prevalence [Texte imprimé et/ou numérique] / X. SUN, Auteur ; Carrie ALLISON, Auteur ; L. WEI, Auteur ; F. E. MATTHEWS, Auteur ; Bonnie AUYEUNG, Auteur ; Y. Y. WU, Auteur ; S. GRIFFITHS, Auteur ; J. ZHANG, Auteur ; Simon BARON-COHEN, Auteur ; Carol BRAYNE, Auteur . - 7 p.
Langues : Anglais (eng)
in Molecular Autism > 10 (2019) . - 7 p.
Mots-clés : *Autism *Children *China *Diagnosis *Prevalence *Screening University of Hong Kong and the Peking University Institutional Review Board. Consent was provided to participants via the screening package before participating. Participants were asked to indicate whether they continued to consent at the end of the study.Not applicable.The authors declare that they have no competing interests.Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. Index. décimale : PER Périodiques Résumé : Background: Autism prevalence in the West is approximately 1% of school age children. Autism prevalence in China has been reported to be lower than in the West. This is likely due to at least two reasons: (1) most studies in China only included the special school population, overlooking the mainstream school population; and (2) most studies in China have not used contemporary screening and diagnostic methods. To address this, we tested total autism prevalence (mainstream and special schools) in Jilin City, and mainstream school autism prevalence in Jiamusi and Shenzhen cities. Methods: The study included a three-step process: (1) screening; (2) clinical assessment of 'screen positives' plus controls; and (3) research diagnostic assessment of those meeting clinical threshold for concerns at step 2. Prevalence estimates per 10,000 children aged 6-10 years old were weighted for study design using diagnostic criteria applied at the research assessment stage. Results: In Jilin City, 77 cases of autism were identified from a total population of 7258, equating to a prevalence of 108 per 10,000 (95% confidence interval (CI) 89, 130). In Shenzhen City: 21,420 children were screened and 35 cases of autism were identified, resulting in a mainstream prevalence of 42 per 10,000 (95% CI 20-89). In Jiamusi City, 16,358 children were screened, with 10 autism cases being identified, with a mainstream prevalence of 19 per 10,000 (95% CI 10-38). Conclusions: Results from Jilin City, where both mainstream and special school data were available, revealed a similar prevalence of autism in China to the West, at around 1%. Results from Shenzhen and Jiamusi cities, where only mainstream data were available, prevalence is also in line with Western estimates. In all three cities, new cases of autism were identified by the study in mainstream schools, reflecting current under-diagnosis. Non-significant variation across different cities is seen indicating the need to explore potential variation of autism across diverse Chinese regions with large sample sizes to achieve a fully robust national picture. En ligne : https://dx.doi.org/10.1186/s13229-018-0246-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=389 Autism screening and conditional cash transfers in Chile: Using the Quantitative Checklist (Q-CHAT) for early autism detection in a low resource setting / Andres ROMAN-URRESTARAZU in Autism, 25-4 (May 2021)
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Titre : Autism screening and conditional cash transfers in Chile: Using the Quantitative Checklist (Q-CHAT) for early autism detection in a low resource setting Type de document : Texte imprimé et/ou numérique Auteurs : Andres ROMAN-URRESTARAZU, Auteur ; Carolina YAÑEZ, Auteur ; Claudia LOPEZ-GARI, Auteur ; Constanza ELGUETA, Auteur ; Carrie ALLISON, Auteur ; Carol BRAYNE, Auteur ; Mónica TRONCOSO, Auteur ; Simon BARON-COHEN, Auteur Article en page(s) : p.932-945 Langues : Anglais (eng) Mots-clés : Chile Chile Crece Contigo Q-chat autism spectrum conditions conditional cash transfer epidemiology health checks screening Index. décimale : PER Périodiques Résumé : Getting a diagnosis of autism can take long, because autism is different across people, but also because it depends on the way it gets diagnosed. This is especially important in poorer countries or in the case of poor people living in wealthier countries that have significant groups of disadvantaged communities. We adapted a 10-item version of the Q-CHAT-25 questionnaire for use in routine health check-ups programme in Chile and recruited 287 participants under the age of three divided into three groups: Controls (125), Developmental Delay (149) and Autism Spectrum Condition (13). Our results show that a short questionnaire for autism screening can be successfully applied in a health-check programme in poor resource settings. Our results show that our questionnaire had good overall performance, not different to its longer version, the Q-CHAT-25. Our questionnaire was autism specific, with good sensitivity and reliability, and is suitable to be used in a screening setting. This study provides evidence that the implementation of Autism Spectrum Condition screening programmes using the Q-CHAT-10 provides value for money and improves diagnosis of Autism Spectrum Condition in those participating in routine health check-up programmes in developing countries or poor areas of wealthy countries. En ligne : http://dx.doi.org/10.1177/1362361320972277 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444
in Autism > 25-4 (May 2021) . - p.932-945[article] Autism screening and conditional cash transfers in Chile: Using the Quantitative Checklist (Q-CHAT) for early autism detection in a low resource setting [Texte imprimé et/ou numérique] / Andres ROMAN-URRESTARAZU, Auteur ; Carolina YAÑEZ, Auteur ; Claudia LOPEZ-GARI, Auteur ; Constanza ELGUETA, Auteur ; Carrie ALLISON, Auteur ; Carol BRAYNE, Auteur ; Mónica TRONCOSO, Auteur ; Simon BARON-COHEN, Auteur . - p.932-945.
Langues : Anglais (eng)
in Autism > 25-4 (May 2021) . - p.932-945
Mots-clés : Chile Chile Crece Contigo Q-chat autism spectrum conditions conditional cash transfer epidemiology health checks screening Index. décimale : PER Périodiques Résumé : Getting a diagnosis of autism can take long, because autism is different across people, but also because it depends on the way it gets diagnosed. This is especially important in poorer countries or in the case of poor people living in wealthier countries that have significant groups of disadvantaged communities. We adapted a 10-item version of the Q-CHAT-25 questionnaire for use in routine health check-ups programme in Chile and recruited 287 participants under the age of three divided into three groups: Controls (125), Developmental Delay (149) and Autism Spectrum Condition (13). Our results show that a short questionnaire for autism screening can be successfully applied in a health-check programme in poor resource settings. Our results show that our questionnaire had good overall performance, not different to its longer version, the Q-CHAT-25. Our questionnaire was autism specific, with good sensitivity and reliability, and is suitable to be used in a screening setting. This study provides evidence that the implementation of Autism Spectrum Condition screening programmes using the Q-CHAT-10 provides value for money and improves diagnosis of Autism Spectrum Condition in those participating in routine health check-up programmes in developing countries or poor areas of wealthy countries. En ligne : http://dx.doi.org/10.1177/1362361320972277 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 Brief Report Prevalence of Autism Spectrum Conditions in Children Aged 5-11 Years in Cambridgeshire, UK / Fiona J. SCOTT in Autism, 6-3 (September 2002)
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PermalinkExploring the Underdiagnosis and Prevalence of Autism Spectrum Conditions in Beijing / Xiang SUN in Autism Research, 8-3 (June 2015)
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PermalinkNo major effect of twinning on autistic traits / Sarah CURRAN in Autism Research, 4-5 (October 2011)
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PermalinkPrevalence of autism in mainland China, Hong Kong and Taiwan: a systematic review and meta-analysis / Xiang SUN in Molecular Autism, (April 2013)
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PermalinkPsychometric Properties of the Mandarin Version of the Childhood Autism Spectrum Test (CAST): An Exploratory Study / Xiang SUN in Journal of Autism and Developmental Disorders, 44-7 (July 2014)
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PermalinkQuotas, and Anti-discrimination Policies Relating to Autism in the EU: Scoping Review and Policy Mapping in Germany, France, Netherlands, United Kingdom, Slovakia, Poland, and Romania / Danielle BUNT in Autism Research, 13-8 (August 2020)
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PermalinkThe CAST (Childhood Asperger Syndrome Test): Preliminary Development of a UK Screen for Mainstream Primary-School-Age Children / Fiona J. SCOTT in Autism, 6-1 (March 2002)
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PermalinkThe Childhood Asperger Syndrome Test (CAST): Test–retest reliability in a high scoring sample / Carrie ALLISON in Autism, 11-2 (March 2007)
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PermalinkThe Childhood Autism Spectrum Test (CAST): Sex Differences / Joanna G. WILLIAMS in Journal of Autism and Developmental Disorders, 38-9 (October 2008)
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PermalinkThe Mandarin Childhood Autism Spectrum Test (CAST): Sex Differences / Xiang SUN in Journal of Autism and Developmental Disorders, 44-9 (September 2014)
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