Behavior Problems, Psychiatric Symptoms, and Quality of Life for Older Adults With Intellectual Disability With and Without Autism / Vasiliki TOTSIKA in Journal of Autism and Developmental Disorders, 40-10 (October 2010)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 40-10 (October 2010) . - p.1171-1178 Titre : Behavior Problems, Psychiatric Symptoms, and Quality of Life for Older Adults With Intellectual Disability With and Without Autism Type de document : texte imprimé Auteurs : Vasiliki TOTSIKA, Auteur ; Richard P. HASTINGS, Auteur ; David FELCE, Auteur ; Michael KERR, Auteur Année de publication : 2010 Article en page(s) : p.1171-1178 Langues : Anglais (eng) Mots-clés : Older-adults Autism-spectrum-disorders Intellectual-disability Ageing Index. décimale : PER Périodiques Résumé : The evidence base on outcomes associated with autism in older adulthood is limited. The expected increase in the prevalence of older adults with autism highlights the need to describe their profiles and service needs. Adults 50 years or older with an intellectual disability (ID) and the triad of impairments characteristic of autism spectrum disorders (ASD) were compared to peers with ID only, and younger adults with ASD and ID. After accounting for ability differences, older adults with ASD did not differ from those with ID in terms of behavior problems, psychiatric disorder, and quality of life. Any differences in the skills of adults with ASD were associated with decreased adaptive skills, and not the presence of ASD per se. En ligne : http://dx.doi.org/10.1007/s10803-010-0975-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=110 [article] Behavior Problems, Psychiatric Symptoms, and Quality of Life for Older Adults With Intellectual Disability With and Without Autism [texte imprimé] / Vasiliki TOTSIKA, Auteur ; Richard P. HASTINGS, Auteur ; David FELCE, Auteur ; Michael KERR, Auteur . - 2010 . - p.1171-1178. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 40-10 (October 2010) . - p.1171-1178 Mots-clés : Older-adults Autism-spectrum-disorders Intellectual-disability Ageing Index. décimale : PER Périodiques Résumé : The evidence base on outcomes associated with autism in older adulthood is limited. The expected increase in the prevalence of older adults with autism highlights the need to describe their profiles and service needs. Adults 50 years or older with an intellectual disability (ID) and the triad of impairments characteristic of autism spectrum disorders (ASD) were compared to peers with ID only, and younger adults with ASD and ID. After accounting for ability differences, older adults with ASD did not differ from those with ID in terms of behavior problems, psychiatric disorder, and quality of life. Any differences in the skills of adults with ASD were associated with decreased adaptive skills, and not the presence of ASD per se. En ligne : http://dx.doi.org/10.1007/s10803-010-0975-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=110

A national survey of Rett syndrome: behavioural characteristics / R. CIANFAGLIONE in Journal of Neurodevelopmental Disorders, 7-1 (December 2015)  

Public ISBD [article]  inJournal of Neurodevelopmental Disorders > 7-1 (December 2015) . - p.11 Titre : A national survey of Rett syndrome: behavioural characteristics Type de document : texte imprimé Auteurs : R. CIANFAGLIONE, Auteur ; A. CLARKE, Auteur ; Michael KERR, Auteur ; Richard P. HASTINGS, Auteur ; Chris OLIVER, Auteur ; Jo MOSS, Auteur ; M. HEALD, Auteur ; D. FELCE, Auteur Article en page(s) : p.11 Langues : Anglais (eng) Mots-clés : Behavioural characteristics  Great Britain  Intellectual disabilities  Rett syndrome Index. décimale : PER Périodiques Résumé : BACKGROUND: The aim was to gain a UK national sample of people with Rett syndrome (RTT) across the age range and compare their characteristics using a variety of relevant behavioural measures with a well-chosen contrast group. METHODS: The achieved sample was 91 girls and women, aged from 4 to 47 years, of whom 71 were known to be MECP2 positive. The contrast group (n = 66), matched for age, gender, language and self-help skills, comprised individuals with six other syndromes associated with intellectual disability. Parental questionnaire measures of RTT specific characteristics, impulsivity, overactivity, mood, interest and pleasure, repetitive behaviour and self-injury were administered. RESULTS: Hand stereotypies, breathing irregularities, night-time unrest and anxiety or inappropriate fear were commonly reported among the RTT sample. Problems of low mood were also reported as common. However, mood and interest and pleasure were no lower than found in the contrast group. In addition, self-injury was lower than in the contrast group and was associated with factors found to predict self-injury in other groups of people with severe intellectual disabilities. CONCLUSIONS: There is variability in the manifestation of problem behaviours potentially associated with the syndrome across individuals, with some more severely affected in most areas than others. Some of this variability appears to be underpinned by genetic mutation. En ligne : http://dx.doi.org/10.1186/s11689-015-9104-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=347 [article] A national survey of Rett syndrome: behavioural characteristics [texte imprimé] / R. CIANFAGLIONE, Auteur ; A. CLARKE, Auteur ; Michael KERR, Auteur ; Richard P. HASTINGS, Auteur ; Chris OLIVER, Auteur ; Jo MOSS, Auteur ; M. HEALD, Auteur ; D. FELCE, Auteur . - p.11. Langues : Anglais (eng) in Journal of Neurodevelopmental Disorders > 7-1 (December 2015) . - p.11 Mots-clés : Behavioural characteristics  Great Britain  Intellectual disabilities  Rett syndrome Index. décimale : PER Périodiques Résumé : BACKGROUND: The aim was to gain a UK national sample of people with Rett syndrome (RTT) across the age range and compare their characteristics using a variety of relevant behavioural measures with a well-chosen contrast group. METHODS: The achieved sample was 91 girls and women, aged from 4 to 47 years, of whom 71 were known to be MECP2 positive. The contrast group (n = 66), matched for age, gender, language and self-help skills, comprised individuals with six other syndromes associated with intellectual disability. Parental questionnaire measures of RTT specific characteristics, impulsivity, overactivity, mood, interest and pleasure, repetitive behaviour and self-injury were administered. RESULTS: Hand stereotypies, breathing irregularities, night-time unrest and anxiety or inappropriate fear were commonly reported among the RTT sample. Problems of low mood were also reported as common. However, mood and interest and pleasure were no lower than found in the contrast group. In addition, self-injury was lower than in the contrast group and was associated with factors found to predict self-injury in other groups of people with severe intellectual disabilities. CONCLUSIONS: There is variability in the manifestation of problem behaviours potentially associated with the syndrome across individuals, with some more severely affected in most areas than others. Some of this variability appears to be underpinned by genetic mutation. En ligne : http://dx.doi.org/10.1186/s11689-015-9104-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=347

Psychological Well-Being of Mothers and Siblings in Families of Girls and Women with Rett Syndrome / Rina CIANFAGLIONE in Journal of Autism and Developmental Disorders, 45-9 (September 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-9 (September 2015) . - p.2939-2946 Titre : Psychological Well-Being of Mothers and Siblings in Families of Girls and Women with Rett Syndrome Type de document : texte imprimé Auteurs : Rina CIANFAGLIONE, Auteur ; Richard P. HASTINGS, Auteur ; David FELCE, Auteur ; Angus CLARKE, Auteur ; Michael KERR, Auteur Article en page(s) : p.2939-2946 Langues : Anglais (eng) Mots-clés : Rett syndrome  Siblings  Mothers  Maternal depression  Strengths and Difficulties Questionnaire  Families Index. décimale : PER Périodiques Résumé : Few published studies have reported on the psychological well-being of family members of individuals with Rett syndrome (RTT). Eighty-seven mothers of girls and women with RTT completed a questionnaire survey about their daughters’ behavioral phenotype, current health, and behavior problems, and their own and a sibling’s well-being. Mothers reported increased anxiety but similar levels of depression when compared to a normative sample. Across all problem domains on the Strengths and Difficulties Questionnaire, child and adolescent siblings (n = 39) were reported by mothers to have fewer difficulties than a normative sample. The severity of their daughters’ RTT behavioral phenotype predicted increased anxiety and stress for mothers. Increased RTT daughters’ current health problems predicted more maternal perceptions of positive gain. En ligne : http://dx.doi.org/10.1007/s10803-015-2457-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267 [article] Psychological Well-Being of Mothers and Siblings in Families of Girls and Women with Rett Syndrome [texte imprimé] / Rina CIANFAGLIONE, Auteur ; Richard P. HASTINGS, Auteur ; David FELCE, Auteur ; Angus CLARKE, Auteur ; Michael KERR, Auteur . - p.2939-2946. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-9 (September 2015) . - p.2939-2946 Mots-clés : Rett syndrome  Siblings  Mothers  Maternal depression  Strengths and Difficulties Questionnaire  Families Index. décimale : PER Périodiques Résumé : Few published studies have reported on the psychological well-being of family members of individuals with Rett syndrome (RTT). Eighty-seven mothers of girls and women with RTT completed a questionnaire survey about their daughters’ behavioral phenotype, current health, and behavior problems, and their own and a sibling’s well-being. Mothers reported increased anxiety but similar levels of depression when compared to a normative sample. Across all problem domains on the Strengths and Difficulties Questionnaire, child and adolescent siblings (n = 39) were reported by mothers to have fewer difficulties than a normative sample. The severity of their daughters’ RTT behavioral phenotype predicted increased anxiety and stress for mothers. Increased RTT daughters’ current health problems predicted more maternal perceptions of positive gain. En ligne : http://dx.doi.org/10.1007/s10803-015-2457-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267

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