Brief Report: Stony Brook Guidelines on the Ethics of the Care of People with Autism and Their Families / Stephen G. POST in Journal of Autism and Developmental Disorders, 43-6 (June 2013)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 43-6 (June 2013) . - p.1473-1476 Titre : Brief Report: Stony Brook Guidelines on the Ethics of the Care of People with Autism and Their Families Type de document : Texte imprimé et/ou numérique Auteurs : Stephen G. POST, Auteur ; John POMEROY, Auteur ; Carla C. KEIRNS, Auteur ; Virginia Isaacs COVER, Auteur ; Michael Leverett DORN, Auteur ; Louis BOROSON, Auteur ; Florence BOROSON, Auteur ; Anne COULEHAN, Auteur ; Jack COULEHAN, Auteur ; Kim COVELL, Auteur ; Kim KUBASEK, Auteur ; Elizabeth LUCHSINGER, Auteur ; Shana NICHOLS, Auteur ; James PARLES, Auteur ; Linda SCHREIBER, Auteur ; Samara PULVER TETENBAUM, Auteur ; Rose Ann WALSH, Auteur Article en page(s) : p.1473-1476 Langues : Anglais (eng) Mots-clés : Autism  Ethics  Clinical practice  Treatment  Social issues  Goals Index. décimale : PER Périodiques Résumé : The increased prevalence of autism spectrum disorders (ASD), with associated societal and clinical impacts, calls for a broad community-based dialogue on treatment related ethical and social issues. The Stony Brook Guidelines, based on a community dialogue process with affected individuals, families and professionals, identify and discuss the following topics: treatment goals and happiness, distributive justice, managing the hopes for a cure, sibling responsibilities, intimacy and sex, diagnostic ethics, and research ethics. Our guidelines, based not on “top-down” imposition of professional expertise but rather on “bottom-up” grass roots attention to the voices of affected individuals and families speaking from experience, can inform clinical practice and are also meaningful for the wider social conversation emerging over the treatment of individuals with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1680-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=201 [article] Brief Report: Stony Brook Guidelines on the Ethics of the Care of People with Autism and Their Families [Texte imprimé et/ou numérique] / Stephen G. POST, Auteur ; John POMEROY, Auteur ; Carla C. KEIRNS, Auteur ; Virginia Isaacs COVER, Auteur ; Michael Leverett DORN, Auteur ; Louis BOROSON, Auteur ; Florence BOROSON, Auteur ; Anne COULEHAN, Auteur ; Jack COULEHAN, Auteur ; Kim COVELL, Auteur ; Kim KUBASEK, Auteur ; Elizabeth LUCHSINGER, Auteur ; Shana NICHOLS, Auteur ; James PARLES, Auteur ; Linda SCHREIBER, Auteur ; Samara PULVER TETENBAUM, Auteur ; Rose Ann WALSH, Auteur . - p.1473-1476. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 43-6 (June 2013) . - p.1473-1476 Mots-clés : Autism  Ethics  Clinical practice  Treatment  Social issues  Goals Index. décimale : PER Périodiques Résumé : The increased prevalence of autism spectrum disorders (ASD), with associated societal and clinical impacts, calls for a broad community-based dialogue on treatment related ethical and social issues. The Stony Brook Guidelines, based on a community dialogue process with affected individuals, families and professionals, identify and discuss the following topics: treatment goals and happiness, distributive justice, managing the hopes for a cure, sibling responsibilities, intimacy and sex, diagnostic ethics, and research ethics. Our guidelines, based not on “top-down” imposition of professional expertise but rather on “bottom-up” grass roots attention to the voices of affected individuals and families speaking from experience, can inform clinical practice and are also meaningful for the wider social conversation emerging over the treatment of individuals with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1680-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=201

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