Brief Report: Stony Brook Guidelines on the Ethics of the Care of People with Autism and Their Families / Stephen G. POST in Journal of Autism and Developmental Disorders, 43-6 (June 2013)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 43-6 (June 2013) . - p.1473-1476 Titre : Brief Report: Stony Brook Guidelines on the Ethics of the Care of People with Autism and Their Families Type de document : Texte imprimé et/ou numérique Auteurs : Stephen G. POST, Auteur ; John POMEROY, Auteur ; Carla C. KEIRNS, Auteur ; Virginia Isaacs COVER, Auteur ; Michael Leverett DORN, Auteur ; Louis BOROSON, Auteur ; Florence BOROSON, Auteur ; Anne COULEHAN, Auteur ; Jack COULEHAN, Auteur ; Kim COVELL, Auteur ; Kim KUBASEK, Auteur ; Elizabeth LUCHSINGER, Auteur ; Shana NICHOLS, Auteur ; James PARLES, Auteur ; Linda SCHREIBER, Auteur ; Samara PULVER TETENBAUM, Auteur ; Rose Ann WALSH, Auteur Article en page(s) : p.1473-1476 Langues : Anglais (eng) Mots-clés : Autism  Ethics  Clinical practice  Treatment  Social issues  Goals Index. décimale : PER Périodiques Résumé : The increased prevalence of autism spectrum disorders (ASD), with associated societal and clinical impacts, calls for a broad community-based dialogue on treatment related ethical and social issues. The Stony Brook Guidelines, based on a community dialogue process with affected individuals, families and professionals, identify and discuss the following topics: treatment goals and happiness, distributive justice, managing the hopes for a cure, sibling responsibilities, intimacy and sex, diagnostic ethics, and research ethics. Our guidelines, based not on “top-down” imposition of professional expertise but rather on “bottom-up” grass roots attention to the voices of affected individuals and families speaking from experience, can inform clinical practice and are also meaningful for the wider social conversation emerging over the treatment of individuals with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1680-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=201 [article] Brief Report: Stony Brook Guidelines on the Ethics of the Care of People with Autism and Their Families [Texte imprimé et/ou numérique] / Stephen G. POST, Auteur ; John POMEROY, Auteur ; Carla C. KEIRNS, Auteur ; Virginia Isaacs COVER, Auteur ; Michael Leverett DORN, Auteur ; Louis BOROSON, Auteur ; Florence BOROSON, Auteur ; Anne COULEHAN, Auteur ; Jack COULEHAN, Auteur ; Kim COVELL, Auteur ; Kim KUBASEK, Auteur ; Elizabeth LUCHSINGER, Auteur ; Shana NICHOLS, Auteur ; James PARLES, Auteur ; Linda SCHREIBER, Auteur ; Samara PULVER TETENBAUM, Auteur ; Rose Ann WALSH, Auteur . - p.1473-1476. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 43-6 (June 2013) . - p.1473-1476 Mots-clés : Autism  Ethics  Clinical practice  Treatment  Social issues  Goals Index. décimale : PER Périodiques Résumé : The increased prevalence of autism spectrum disorders (ASD), with associated societal and clinical impacts, calls for a broad community-based dialogue on treatment related ethical and social issues. The Stony Brook Guidelines, based on a community dialogue process with affected individuals, families and professionals, identify and discuss the following topics: treatment goals and happiness, distributive justice, managing the hopes for a cure, sibling responsibilities, intimacy and sex, diagnostic ethics, and research ethics. Our guidelines, based not on “top-down” imposition of professional expertise but rather on “bottom-up” grass roots attention to the voices of affected individuals and families speaking from experience, can inform clinical practice and are also meaningful for the wider social conversation emerging over the treatment of individuals with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1680-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=201

Edward G. Carr 1947–2009 / Lauren J. MOSKOWITZ in Journal of Autism and Developmental Disorders, 39-12 (December 2009)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 39-12 (December 2009) . - p.1762-1764 Titre : Edward G. Carr 1947–2009 Type de document : Texte imprimé et/ou numérique Auteurs : Lauren J. MOSKOWITZ, Auteur ; Samara PULVER TETENBAUM, Auteur ; Lauren ADAMEK, Auteur Année de publication : 2009 Article en page(s) : p.1762-1764 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-009-0876-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=885 [article] Edward G. Carr 1947–2009 [Texte imprimé et/ou numérique] / Lauren J. MOSKOWITZ, Auteur ; Samara PULVER TETENBAUM, Auteur ; Lauren ADAMEK, Auteur . - 2009 . - p.1762-1764. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 39-12 (December 2009) . - p.1762-1764 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-009-0876-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=885

Girls Growing Up on the Autism Spectrum / Shana NICHOLS

Public ISBD Titre : Girls Growing Up on the Autism Spectrum : What Parents and Professionals Should Know About the Pre-Teen and Teenage Years Type de document : Texte imprimé et/ou numérique Auteurs : Shana NICHOLS, Auteur ; Gina Marie MORAVCIK, Auteur ; Samara PULVER TETENBAUM, Auteur ; Liane HOLLYDAY-WILLEY, Préfacier, etc. Editeur : Londres [Angleterre] : Jessica Kingsley Publishers Année de publication : 2009 Importance : 352 p. Format : 23,4 x 15,6cm x 2,2cm ISBN/ISSN/EAN : 978-1-84310-855-9 Note générale : Bibliogr., Index Langues : Anglais (eng) Mots-clés : Genre  Relation amicale Index. décimale : ASP-E ASP-E - Asperger - Féminin Résumé : "This book is not only reassuring; it is inspiring, and bursting with ideas and achievable strategies. The authors write with authority and conviction, and tackle even the most difficult and delicate of topics. If ever you needed to be convinced that girls with ASD can overcome the difficulties and challenges of puberty and adolescence, have successful friendships and relationships and enjoy a healthy sexuality, then take the time to read this book-it is a must-have for families, teachers and therapists alike." -Sarah Attwood, author of Making Sense of Sex: A Forthright Guide to Puberty, Sex and Relationships for People with Asperger's Syndrome "The authors tackle an important and sensitive issue for young people with ASC. The information presented is based in research and presented clearly in a most usable format. I would not hesitate to recommend this book to young people (it might even help a few boys!) with ASC and their parents." -E. Veronica Bliss, psychologist and Director of Missing Link Support Services, Ltd Growing up isn't easy, and the trials and tribulations of being a teenager can be particularly confusing for girls with Autism Spectrum Disorders (ASDs). This book covers all the concerns commonly faced by girls with ASDs and their parents, from periods and puberty to worries over friendships and "fitting in". Taking a good look at these adolescent issues, and many more, within the context of specific areas of difficulty for girls with ASDs, the authors provide families with the knowledge and advice they need to help their daughters - and the whole family - through the teenage years. This book addresses core issues such as cognition, communication, behavior, sensory sensitivities, and social difficulties; it gives candid and realistic advice on a wide range of important teenage topics. Providing professional perspectives alongside personal experiences from mothers, daughters and educators, this is a unique and indispensible guide for families and their daughters with ASDs, as well as the teachers and professionals who work with them. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=722 Girls Growing Up on the Autism Spectrum : What Parents and Professionals Should Know About the Pre-Teen and Teenage Years [Texte imprimé et/ou numérique] / Shana NICHOLS, Auteur ; Gina Marie MORAVCIK, Auteur ; Samara PULVER TETENBAUM, Auteur ; Liane HOLLYDAY-WILLEY, Préfacier, etc. . - Londres [Angleterre] : Jessica Kingsley Publishers, 2009 . - 352 p. ; 23,4 x 15,6cm x 2,2cm. ISBN : 978-1-84310-855-9 Bibliogr., Index Langues : Anglais (eng) Mots-clés : Genre  Relation amicale Index. décimale : ASP-E ASP-E - Asperger - Féminin Résumé : "This book is not only reassuring; it is inspiring, and bursting with ideas and achievable strategies. The authors write with authority and conviction, and tackle even the most difficult and delicate of topics. If ever you needed to be convinced that girls with ASD can overcome the difficulties and challenges of puberty and adolescence, have successful friendships and relationships and enjoy a healthy sexuality, then take the time to read this book-it is a must-have for families, teachers and therapists alike." -Sarah Attwood, author of Making Sense of Sex: A Forthright Guide to Puberty, Sex and Relationships for People with Asperger's Syndrome "The authors tackle an important and sensitive issue for young people with ASC. The information presented is based in research and presented clearly in a most usable format. I would not hesitate to recommend this book to young people (it might even help a few boys!) with ASC and their parents." -E. Veronica Bliss, psychologist and Director of Missing Link Support Services, Ltd Growing up isn't easy, and the trials and tribulations of being a teenager can be particularly confusing for girls with Autism Spectrum Disorders (ASDs). This book covers all the concerns commonly faced by girls with ASDs and their parents, from periods and puberty to worries over friendships and "fitting in". Taking a good look at these adolescent issues, and many more, within the context of specific areas of difficulty for girls with ASDs, the authors provide families with the knowledge and advice they need to help their daughters - and the whole family - through the teenage years. This book addresses core issues such as cognition, communication, behavior, sensory sensitivities, and social difficulties; it gives candid and realistic advice on a wide range of important teenage topics. Providing professional perspectives alongside personal experiences from mothers, daughters and educators, this is a unique and indispensible guide for families and their daughters with ASDs, as well as the teachers and professionals who work with them. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=722

Exemplaires (1)

Code-barres	Cote	Support	Localisation	Section	Disponibilité
DOC0000727	ASP-E NIC	Livre	Centre d'Information et de Documentation du CRA Rhône-Alpes	ASP - Syndrome d'Asperger - Autisme de haut niveau	Disponible

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Individual Temperament and Problem Behavior in Children With Autism Spectrum Disorders / Lauren ADAMEK in Focus on Autism and Other Developmental Disabilities, 26-3 (September 2011)  

Public ISBD [article]  inFocus on Autism and Other Developmental Disabilities > 26-3 (September 2011) . - p.173-183 Titre : Individual Temperament and Problem Behavior in Children With Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Lauren ADAMEK, Auteur ; Shana NICHOLS, Auteur ; Samara PULVER TETENBAUM, Auteur ; Joel D. BREGMAN, Auteur ; Christine A. PONZIO, Auteur ; Edward G. CARR, Auteur Année de publication : 2011 Article en page(s) : p.173-183 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  temperament  behavior  preschool Index. décimale : PER Périodiques Résumé : Temperament is important for considering differences among diagnostic groups and for understanding individual differences that predict problematic behavior. Temperament characteristics, such as negative affectivity, effortful control, and surgency (highly active and impulsive), are predictive of externalizing behavior in typically developing children, but these links have not been investigated among children with autism spectrum disorder (ASD). In the present study, the authors analyzed differences in temperament between children with ASD and neurotypical children, investigated the range of individual differences within our sample, and examined the relationship between temperament and problem behavior. A few differences in temperament between the ASD sample and reference sample were noted and considerable variability in temperament was observed across children with ASD. High negative affectivity, high surgency, and low effortful control were related to problem behavior as measured by parent questionnaire. The potential utility of temperament assessment in developing new intervention options for addressing problem behavior is discussed. En ligne : http://dx.doi.org/10.1177/1088357611405041 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=141 [article] Individual Temperament and Problem Behavior in Children With Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Lauren ADAMEK, Auteur ; Shana NICHOLS, Auteur ; Samara PULVER TETENBAUM, Auteur ; Joel D. BREGMAN, Auteur ; Christine A. PONZIO, Auteur ; Edward G. CARR, Auteur . - 2011 . - p.173-183. Langues : Anglais (eng) in Focus on Autism and Other Developmental Disabilities > 26-3 (September 2011) . - p.173-183 Mots-clés : autism spectrum disorders  temperament  behavior  preschool Index. décimale : PER Périodiques Résumé : Temperament is important for considering differences among diagnostic groups and for understanding individual differences that predict problematic behavior. Temperament characteristics, such as negative affectivity, effortful control, and surgency (highly active and impulsive), are predictive of externalizing behavior in typically developing children, but these links have not been investigated among children with autism spectrum disorder (ASD). In the present study, the authors analyzed differences in temperament between children with ASD and neurotypical children, investigated the range of individual differences within our sample, and examined the relationship between temperament and problem behavior. A few differences in temperament between the ASD sample and reference sample were noted and considerable variability in temperament was observed across children with ASD. High negative affectivity, high surgency, and low effortful control were related to problem behavior as measured by parent questionnaire. The potential utility of temperament assessment in developing new intervention options for addressing problem behavior is discussed. En ligne : http://dx.doi.org/10.1177/1088357611405041 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=141

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