Autism Spectrum Disorder Identification, Diagnosis, and Navigation of Services: Learning From the Voices of Caregivers / Elizabeth R. CRAIS in Focus on Autism and Other Developmental Disabilities, 35-4 (December 2020)  

Public ISBD [article]  inFocus on Autism and Other Developmental Disabilities > 35-4 (December 2020) . - p.246-256 Titre : Autism Spectrum Disorder Identification, Diagnosis, and Navigation of Services: Learning From the Voices of Caregivers Type de document : texte imprimé Auteurs : Elizabeth R. CRAIS, Auteur ; Cara S. MCCOMISH, Auteur ; Emily F. KERTCHER, Auteur ; Steve HOOPER, Auteur ; Rebecca EDMONDSON PRETZEL, Auteur ; Lucia MENDEZ, Auteur ; Michelle VILLALOBOS, Auteur Article en page(s) : p.246-256 Langues : Anglais (eng) Mots-clés : ASD  caregiver perspectives  screening  diagnosis  access  service systems Index. décimale : PER Périodiques Résumé : This study explored caregivers’ perspectives on facilitators and barriers to screening, diagnosis, and identifying and accessing other services for young children with autism spectrum disorder (ASD); and caregivers’ suggestions for improving the process. Eight focus groups with 55 caregivers were conducted. Four groups had a mix of White, African American, and Asian caregivers, and to gain broader populations, we recruited two groups of Spanish-speaking and two groups of American Indian caregivers. Some caregivers reported that their child and they received excellent services; however, the majority reported concerns about the services they and their child received. The findings also indicated a lower age of diagnosis and a smaller gap between concerns and diagnosis for White non-Hispanic children compared with Hispanic non-White children. Caregivers had many suggestions for ways to improve the process. En ligne : http://dx.doi.org/10.1177/1088357620922165 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434 [article] Autism Spectrum Disorder Identification, Diagnosis, and Navigation of Services: Learning From the Voices of Caregivers [texte imprimé] / Elizabeth R. CRAIS, Auteur ; Cara S. MCCOMISH, Auteur ; Emily F. KERTCHER, Auteur ; Steve HOOPER, Auteur ; Rebecca EDMONDSON PRETZEL, Auteur ; Lucia MENDEZ, Auteur ; Michelle VILLALOBOS, Auteur . - p.246-256. Langues : Anglais (eng) in Focus on Autism and Other Developmental Disabilities > 35-4 (December 2020) . - p.246-256 Mots-clés : ASD  caregiver perspectives  screening  diagnosis  access  service systems Index. décimale : PER Périodiques Résumé : This study explored caregivers’ perspectives on facilitators and barriers to screening, diagnosis, and identifying and accessing other services for young children with autism spectrum disorder (ASD); and caregivers’ suggestions for improving the process. Eight focus groups with 55 caregivers were conducted. Four groups had a mix of White, African American, and Asian caregivers, and to gain broader populations, we recruited two groups of Spanish-speaking and two groups of American Indian caregivers. Some caregivers reported that their child and they received excellent services; however, the majority reported concerns about the services they and their child received. The findings also indicated a lower age of diagnosis and a smaller gap between concerns and diagnosis for White non-Hispanic children compared with Hispanic non-White children. Caregivers had many suggestions for ways to improve the process. En ligne : http://dx.doi.org/10.1177/1088357620922165 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434

Pediatric Healthcare Professionals’ Views on Autism Spectrum Disorder Screening at 12–18 Months / Elizabeth R. CRAIS in Journal of Autism and Developmental Disorders, 44-9 (September 2014)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 44-9 (September 2014) . - p.2311-2328 Titre : Pediatric Healthcare Professionals’ Views on Autism Spectrum Disorder Screening at 12–18 Months Type de document : texte imprimé Auteurs : Elizabeth R. CRAIS, Auteur ; Cara S. MCCOMISH, Auteur ; Betsy P. HUMPHREYS, Auteur ; Linda R. WATSON, Auteur ; Grace T. BARANEK, Auteur ; J. Steven REZNICK, Auteur ; Rob B. CHRISTIAN, Auteur ; Marian EARLS, Auteur Article en page(s) : p.2311-2328 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder (ASD)  Screening  Infants  Pediatric healthcare professionals Index. décimale : PER Périodiques Résumé : This study explored North Carolina pediatric healthcare professional’s (PHP) perceptions of screening 12–18 month old infants for Autism Spectrum Disorder (ASD). Eight focus groups (66 PHPs) were conducted across practice settings. The purpose was to explore PHP’s perspectives to: inform development of ASD screening tools and ultimately impact their use in PHP settings. PHPs reported concerns, barriers, and the need for research to support early ASD screening. Additionally, they expressed the need for: (a) clear “red flags” of ASD for 12–18 month olds; (b) socioculturally sensitive and effective screening tools; (c) effective early interventions; (d) systems to handle potential increases in referrals; and (e) continuing education. PHPs also demonstrated preferences about screening tool characteristics and processes for enhancing screening efforts. En ligne : http://dx.doi.org/10.1007/s10803-014-2101-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=238 [article] Pediatric Healthcare Professionals’ Views on Autism Spectrum Disorder Screening at 12–18 Months [texte imprimé] / Elizabeth R. CRAIS, Auteur ; Cara S. MCCOMISH, Auteur ; Betsy P. HUMPHREYS, Auteur ; Linda R. WATSON, Auteur ; Grace T. BARANEK, Auteur ; J. Steven REZNICK, Auteur ; Rob B. CHRISTIAN, Auteur ; Marian EARLS, Auteur . - p.2311-2328. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 44-9 (September 2014) . - p.2311-2328 Mots-clés : Autism Spectrum Disorder (ASD)  Screening  Infants  Pediatric healthcare professionals Index. décimale : PER Périodiques Résumé : This study explored North Carolina pediatric healthcare professional’s (PHP) perceptions of screening 12–18 month old infants for Autism Spectrum Disorder (ASD). Eight focus groups (66 PHPs) were conducted across practice settings. The purpose was to explore PHP’s perspectives to: inform development of ASD screening tools and ultimately impact their use in PHP settings. PHPs reported concerns, barriers, and the need for research to support early ASD screening. Additionally, they expressed the need for: (a) clear “red flags” of ASD for 12–18 month olds; (b) socioculturally sensitive and effective screening tools; (c) effective early interventions; (d) systems to handle potential increases in referrals; and (e) continuing education. PHPs also demonstrated preferences about screening tool characteristics and processes for enhancing screening efforts. En ligne : http://dx.doi.org/10.1007/s10803-014-2101-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=238

A Retrospective Video Analysis of Canonical Babbling and Volubility in Infants with Fragile X Syndrome at 9–12 Months of Age / Katie BELARDI in Journal of Autism and Developmental Disorders, 47-4 (April 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-4 (April 2017) . - p.1193-1206 Titre : A Retrospective Video Analysis of Canonical Babbling and Volubility in Infants with Fragile X Syndrome at 9–12 Months of Age Type de document : texte imprimé Auteurs : Katie BELARDI, Auteur ; Linda R. WATSON, Auteur ; Richard A. FALDOWSKI, Auteur ; Heather C. HAZLETT, Auteur ; Elizabeth R. CRAIS, Auteur ; Grace T. BARANEK, Auteur ; Cara S. MCCOMISH, Auteur ; Elena PATTEN, Auteur ; D. Kimbrough OLLER, Auteur Article en page(s) : p.1193-1206 Langues : Anglais (eng) Mots-clés : Fragile X syndrome  Language development  Canonical babbling Index. décimale : PER Périodiques Résumé : An infant’s vocal capacity develops significantly during the first year of life. Research suggests early measures of pre-speech development, such as canonical babbling and volubility, can differentiate typical versus disordered development. This study offers a new contribution by comparing early vocal development in 10 infants with Fragile X syndrome and 14 with typical development. Results suggest infants with Fragile X syndrome produce fewer syllables and have significantly lower canonical babbling ratios compared to infants who are typically developing. Furthermore, the particular measures of babbling were strong predictors of group membership, adding evidence regarding the possible utility of these markers in early identification. En ligne : http://dx.doi.org/10.1007/s10803-017-3033-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304 [article] A Retrospective Video Analysis of Canonical Babbling and Volubility in Infants with Fragile X Syndrome at 9–12 Months of Age [texte imprimé] / Katie BELARDI, Auteur ; Linda R. WATSON, Auteur ; Richard A. FALDOWSKI, Auteur ; Heather C. HAZLETT, Auteur ; Elizabeth R. CRAIS, Auteur ; Grace T. BARANEK, Auteur ; Cara S. MCCOMISH, Auteur ; Elena PATTEN, Auteur ; D. Kimbrough OLLER, Auteur . - p.1193-1206. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-4 (April 2017) . - p.1193-1206 Mots-clés : Fragile X syndrome  Language development  Canonical babbling Index. décimale : PER Périodiques Résumé : An infant’s vocal capacity develops significantly during the first year of life. Research suggests early measures of pre-speech development, such as canonical babbling and volubility, can differentiate typical versus disordered development. This study offers a new contribution by comparing early vocal development in 10 infants with Fragile X syndrome and 14 with typical development. Results suggest infants with Fragile X syndrome produce fewer syllables and have significantly lower canonical babbling ratios compared to infants who are typically developing. Furthermore, the particular measures of babbling were strong predictors of group membership, adding evidence regarding the possible utility of these markers in early identification. En ligne : http://dx.doi.org/10.1007/s10803-017-3033-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304

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