‘Do It Yourself’ in the parent–professional partnership for the assessment and diagnosis of children with autism spectrum conditions in Hong Kong: A qualitative study / Hilda S.W. HO in Autism, 18-7 (October 2014)  

Public ISBD [article]  inAutism > 18-7 (October 2014) . - p.832-844 Titre : ‘Do It Yourself’ in the parent–professional partnership for the assessment and diagnosis of children with autism spectrum conditions in Hong Kong: A qualitative study Type de document : Texte imprimé et/ou numérique Auteurs : Hilda S.W. HO, Auteur ; Huso YI, Auteur ; Sian GRIFFITHS, Auteur ; Dorothy F.Y. CHAN, Auteur ; Stuart MURRAY, Auteur Article en page(s) : p.832-844 Langues : Anglais (eng) Mots-clés : autism spectrum conditions  clinical pathway  Hong Kong  parent–professional partnership  qualitative study Index. décimale : PER Périodiques Résumé : Timely and appropriate care for children with autism spectrum conditions is affected by the interaction between healthcare professionals and parents. Despite the importance of the parent–professional partnership, there is a dearth of cultural-specific data on parent–professional partnership in the Chinese context. We conducted 10 in-depth life-history interviews with parents of children with autism spectrum conditions in Hong Kong who were diagnosed during preschool years. Using an interpretative phenomenological analytic method, five themes were constructed to represent the context of parent–professional partnership in Hong Kong along the pathway of seeking a diagnosis: (a) access to the assessment and diagnosis of autism spectrum conditions, (b) multiple procedures of assessment, (c) consultation prior to diagnosis and assessment, (d) communication of diagnosis and assessment result and (e) post-assessment isolation. Parental narratives highlight the important domains of parent–professional partnership and reflect the complexity of diagnosis and the lack of a cohesive system. For many parents, the assessment procedure was marred by a series of obstacles, which were further exacerbated by a poorly developed parent–professional partnership. Suggestions for parent–professional partnership development include establishing an evidence-based best practice guideline for Hong Kong, creating pre-assessment information workshops for parents to attend and equipping professionals with knowledge about autism spectrum conditions and enhanced communication skills. En ligne : http://dx.doi.org/10.1177/1362361313508230 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241 [article] ‘Do It Yourself’ in the parent–professional partnership for the assessment and diagnosis of children with autism spectrum conditions in Hong Kong: A qualitative study [Texte imprimé et/ou numérique] / Hilda S.W. HO, Auteur ; Huso YI, Auteur ; Sian GRIFFITHS, Auteur ; Dorothy F.Y. CHAN, Auteur ; Stuart MURRAY, Auteur . - p.832-844. Langues : Anglais (eng) in Autism > 18-7 (October 2014) . - p.832-844 Mots-clés : autism spectrum conditions  clinical pathway  Hong Kong  parent–professional partnership  qualitative study Index. décimale : PER Périodiques Résumé : Timely and appropriate care for children with autism spectrum conditions is affected by the interaction between healthcare professionals and parents. Despite the importance of the parent–professional partnership, there is a dearth of cultural-specific data on parent–professional partnership in the Chinese context. We conducted 10 in-depth life-history interviews with parents of children with autism spectrum conditions in Hong Kong who were diagnosed during preschool years. Using an interpretative phenomenological analytic method, five themes were constructed to represent the context of parent–professional partnership in Hong Kong along the pathway of seeking a diagnosis: (a) access to the assessment and diagnosis of autism spectrum conditions, (b) multiple procedures of assessment, (c) consultation prior to diagnosis and assessment, (d) communication of diagnosis and assessment result and (e) post-assessment isolation. Parental narratives highlight the important domains of parent–professional partnership and reflect the complexity of diagnosis and the lack of a cohesive system. For many parents, the assessment procedure was marred by a series of obstacles, which were further exacerbated by a poorly developed parent–professional partnership. Suggestions for parent–professional partnership development include establishing an evidence-based best practice guideline for Hong Kong, creating pre-assessment information workshops for parents to attend and equipping professionals with knowledge about autism spectrum conditions and enhanced communication skills. En ligne : http://dx.doi.org/10.1177/1362361313508230 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241

Looking back and moving forward: The experiences of canadian parents raising an adolescent with autism spectrum disorder / Hilda S.W. HO in Research in Autism Spectrum Disorders, 52 (August 2018)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 52 (August 2018) . - p.12-22 Titre : Looking back and moving forward: The experiences of canadian parents raising an adolescent with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Hilda S.W. HO, Auteur ; Karen FERGUS, Auteur ; Adrienne PERRY, Auteur Article en page(s) : p.12-22 Langues : Anglais (eng) Mots-clés : Parent-professional  Canada  Qualitative research  Adolescents Index. décimale : PER Périodiques Résumé : Background The aim of this study was to investigate parent experiences of raising a child with autism spectrum disorder (ASD) from early childhood and into adolescence. Method Semi-structured in-depth interviews were conducted with nine families of adolescents diagnosed with ASD with a range of cognitive ability. Thematic analysis was used to analyze the parents’ narratives. Findings Four themes were constructed to represent the parents’ narratives of their caregiving journey: 1) Rippling Effect of Loss; 2) Becoming a Parent-Professional; 3) One Size Fits None; and 4) Preparing for “The Future”. Parental narratives reflect the tension they experience with the school system and the frustration with dealing with services that do not grow with their child’s needs. Findings also indicate that, over the years, parents develop a specialized skill set that helps them navigate the ever-changing ASD landscape. Discussion The results of this study have several important implications, including the need for service and education providers to actively involve parents in the treatment of their child, as well as to increase appropriate services for adolescents that target both ASD and comorbid mental health challenges. En ligne : https://doi.org/10.1016/j.rasd.2018.05.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=368 [article] Looking back and moving forward: The experiences of canadian parents raising an adolescent with autism spectrum disorder [Texte imprimé et/ou numérique] / Hilda S.W. HO, Auteur ; Karen FERGUS, Auteur ; Adrienne PERRY, Auteur . - p.12-22. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 52 (August 2018) . - p.12-22 Mots-clés : Parent-professional  Canada  Qualitative research  Adolescents Index. décimale : PER Périodiques Résumé : Background The aim of this study was to investigate parent experiences of raising a child with autism spectrum disorder (ASD) from early childhood and into adolescence. Method Semi-structured in-depth interviews were conducted with nine families of adolescents diagnosed with ASD with a range of cognitive ability. Thematic analysis was used to analyze the parents’ narratives. Findings Four themes were constructed to represent the parents’ narratives of their caregiving journey: 1) Rippling Effect of Loss; 2) Becoming a Parent-Professional; 3) One Size Fits None; and 4) Preparing for “The Future”. Parental narratives reflect the tension they experience with the school system and the frustration with dealing with services that do not grow with their child’s needs. Findings also indicate that, over the years, parents develop a specialized skill set that helps them navigate the ever-changing ASD landscape. Discussion The results of this study have several important implications, including the need for service and education providers to actively involve parents in the treatment of their child, as well as to increase appropriate services for adolescents that target both ASD and comorbid mental health challenges. En ligne : https://doi.org/10.1016/j.rasd.2018.05.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=368

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