Brief Report: Preliminary Outcomes of a Peer Counselling Program for Parents of Children with Autism in the South Asian Community / Ann S. MILLS in Journal of Autism and Developmental Disorders, 51-1 (January 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-1 (January 2021) . - p.334-340 Titre : Brief Report: Preliminary Outcomes of a Peer Counselling Program for Parents of Children with Autism in the South Asian Community Type de document : Texte imprimé et/ou numérique Auteurs : Ann S. MILLS, Auteur ; Kiruthiha VIMALAKANTHAN, Auteur ; Shivajan SIVAPALAN, Auteur ; Neshanth SHANMUGALINGAM, Auteur ; Jonathan A WEISS, Auteur Article en page(s) : p.334-340 Langues : Anglais (eng) Mots-clés : Autism  Cultural responsivity  Mental health  Parent support  Well-being Index. décimale : PER Périodiques Résumé : Peer volunteers have been found to be effective in delivering psychosocial interventions when they come from the same culture and share similar experiences as participants. We examined the clinical utility (feasibility and preliminary effectiveness) of a community-based, manualized, peer-delivered group counselling program to address the need for culturally responsive counselling for parents of children with autism in the South Asian community. Sixty-three parents (M(age)?=?43.7 years, 68% mothers) participated in the program, and reported high stable program satisfaction across sessions. Further, parents reported improved mental health and quality of life following involvement in the program, with changes noted even after the first session. Further research is warranted to assess the efficacy of this kind of parent support intervention. En ligne : http://dx.doi.org/10.1007/s10803-020-04538-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=438 [article] Brief Report: Preliminary Outcomes of a Peer Counselling Program for Parents of Children with Autism in the South Asian Community [Texte imprimé et/ou numérique] / Ann S. MILLS, Auteur ; Kiruthiha VIMALAKANTHAN, Auteur ; Shivajan SIVAPALAN, Auteur ; Neshanth SHANMUGALINGAM, Auteur ; Jonathan A WEISS, Auteur . - p.334-340. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-1 (January 2021) . - p.334-340 Mots-clés : Autism  Cultural responsivity  Mental health  Parent support  Well-being Index. décimale : PER Périodiques Résumé : Peer volunteers have been found to be effective in delivering psychosocial interventions when they come from the same culture and share similar experiences as participants. We examined the clinical utility (feasibility and preliminary effectiveness) of a community-based, manualized, peer-delivered group counselling program to address the need for culturally responsive counselling for parents of children with autism in the South Asian community. Sixty-three parents (M(age)?=?43.7 years, 68% mothers) participated in the program, and reported high stable program satisfaction across sessions. Further, parents reported improved mental health and quality of life following involvement in the program, with changes noted even after the first session. Further research is warranted to assess the efficacy of this kind of parent support intervention. En ligne : http://dx.doi.org/10.1007/s10803-020-04538-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=438

Clinical and parental predictors of emotion regulation following cognitive behaviour therapy in children with autism / Diana J. TAJIK-PARVINCHI in Autism, 24-4 (May 2020)  

Public ISBD [article]  inAutism > 24-4 (May 2020) . - p.851-866 Titre : Clinical and parental predictors of emotion regulation following cognitive behaviour therapy in children with autism Type de document : Texte imprimé et/ou numérique Auteurs : Diana J. TAJIK-PARVINCHI, Auteur ; Linda FARMUS, Auteur ; Robert CRIBBIE, Auteur ; Carly ALBAUM, Auteur ; Jonathan A WEISS, Auteur Article en page(s) : p.851-866 Langues : Anglais (eng) Mots-clés : autism  cognitive behaviour therapy  efficacy  emotion regulation  treatment response Index. décimale : PER Périodiques Résumé : Children with autism commonly experience difficulty controlling their emotions. Although existing treatments are successful in teaching critical emotion regulation skills, not all children improve. It is important to identify the factors that influence treatment response to be able to reach more children. This study aimed to identify child and parent characteristics that predict treatment response in a 10-week cognitive behaviour therapy treatment for children with autism, 8-12?years of age, and their parents. We found that youth who started the treatment with higher verbal abilities, who were more anxious in social situations, and had parents who were more anxious, were more likely to improve in learning new emotion regulation skills. We also found that children who had more physical discomforts or complaints before starting the treatment were less likely to improve in their negative expressions of emotion. Our study suggests that it is important for clinicians to promote active involvement and learning by avoiding complex language and to use more visual materials to supplement the learning process, and make sure that sessions are sensitive to the individual needs of participants. En ligne : http://dx.doi.org/10.1177/1362361320909178 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425 [article] Clinical and parental predictors of emotion regulation following cognitive behaviour therapy in children with autism [Texte imprimé et/ou numérique] / Diana J. TAJIK-PARVINCHI, Auteur ; Linda FARMUS, Auteur ; Robert CRIBBIE, Auteur ; Carly ALBAUM, Auteur ; Jonathan A WEISS, Auteur . - p.851-866. Langues : Anglais (eng) in Autism > 24-4 (May 2020) . - p.851-866 Mots-clés : autism  cognitive behaviour therapy  efficacy  emotion regulation  treatment response Index. décimale : PER Périodiques Résumé : Children with autism commonly experience difficulty controlling their emotions. Although existing treatments are successful in teaching critical emotion regulation skills, not all children improve. It is important to identify the factors that influence treatment response to be able to reach more children. This study aimed to identify child and parent characteristics that predict treatment response in a 10-week cognitive behaviour therapy treatment for children with autism, 8-12?years of age, and their parents. We found that youth who started the treatment with higher verbal abilities, who were more anxious in social situations, and had parents who were more anxious, were more likely to improve in learning new emotion regulation skills. We also found that children who had more physical discomforts or complaints before starting the treatment were less likely to improve in their negative expressions of emotion. Our study suggests that it is important for clinicians to promote active involvement and learning by avoiding complex language and to use more visual materials to supplement the learning process, and make sure that sessions are sensitive to the individual needs of participants. En ligne : http://dx.doi.org/10.1177/1362361320909178 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425

Considering efficacy and effectiveness trials of cognitive behavioral therapy among youth with autism: A systematic review / Johanna K. LAKE in Autism, 24-7 (October 2020)  

Public ISBD [article]  inAutism > 24-7 (October 2020) . - p.1590-1606 Titre : Considering efficacy and effectiveness trials of cognitive behavioral therapy among youth with autism: A systematic review Type de document : Texte imprimé et/ou numérique Auteurs : Johanna K. LAKE, Auteur ; Paula TABLON-MODICA, Auteur ; Victoria CHAN, Auteur ; Jonathan A WEISS, Auteur Article en page(s) : p.1590-1606 Langues : Anglais (eng) Mots-clés : *autism  *cognitive behavioral therapy  *effectiveness  *efficacy  *feasibility  *implementation science Index. décimale : PER Périodiques Résumé : Cognitive behavioral therapy is a common treatment for emotional problems in people with autism. Most studies of cognitive behavioral therapy and autism have focused on efficacy, meaning whether a treatment produces results under "ideal" conditions, like a lab or research setting. Effectiveness trials, by contrast, investigate whether a treatment produces results under "real-world" conditions, like a community setting (e.g. hospital, community mental health center, school). There can be challenges in bringing a cognitive behavioral therapy treatment out of a lab or research setting into the community, and the field of implementation science uses frameworks to help guide researchers in this process. In this study, we reviewed efficacy and effectiveness studies of cognitive behavioral therapy treatments for emotional problems (e.g. anxiety, depression) in children and youth with autism. Our search found 2959 articles, with 33 studies meeting our criteria. In total, 13 studies were labelled as effectiveness and 20 as efficacy. We discuss how the effectiveness studies used characteristics of an implementation science framework, such as studying how individuals learn about the treatment, accept or reject it, how it is used in the community over time, and any changes that happened to the individual or the organization (e.g. hospital, school, community mental health center) because of it. Results help us better understand the use of cognitive behavioral therapy in the community, including how a framework can be used to improve effectiveness studies. En ligne : http://dx.doi.org/10.1177/1362361320918754 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431 [article] Considering efficacy and effectiveness trials of cognitive behavioral therapy among youth with autism: A systematic review [Texte imprimé et/ou numérique] / Johanna K. LAKE, Auteur ; Paula TABLON-MODICA, Auteur ; Victoria CHAN, Auteur ; Jonathan A WEISS, Auteur . - p.1590-1606. Langues : Anglais (eng) in Autism > 24-7 (October 2020) . - p.1590-1606 Mots-clés : *autism  *cognitive behavioral therapy  *effectiveness  *efficacy  *feasibility  *implementation science Index. décimale : PER Périodiques Résumé : Cognitive behavioral therapy is a common treatment for emotional problems in people with autism. Most studies of cognitive behavioral therapy and autism have focused on efficacy, meaning whether a treatment produces results under "ideal" conditions, like a lab or research setting. Effectiveness trials, by contrast, investigate whether a treatment produces results under "real-world" conditions, like a community setting (e.g. hospital, community mental health center, school). There can be challenges in bringing a cognitive behavioral therapy treatment out of a lab or research setting into the community, and the field of implementation science uses frameworks to help guide researchers in this process. In this study, we reviewed efficacy and effectiveness studies of cognitive behavioral therapy treatments for emotional problems (e.g. anxiety, depression) in children and youth with autism. Our search found 2959 articles, with 33 studies meeting our criteria. In total, 13 studies were labelled as effectiveness and 20 as efficacy. We discuss how the effectiveness studies used characteristics of an implementation science framework, such as studying how individuals learn about the treatment, accept or reject it, how it is used in the community over time, and any changes that happened to the individual or the organization (e.g. hospital, school, community mental health center) because of it. Results help us better understand the use of cognitive behavioral therapy in the community, including how a framework can be used to improve effectiveness studies. En ligne : http://dx.doi.org/10.1177/1362361320918754 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431

Defining crisis in families of individuals with autism spectrum disorders / Jonathan A WEISS in Autism, 18-8 (November 2014)  

Public ISBD [article]  inAutism > 18-8 (November 2014) . - p.985-995 Titre : Defining crisis in families of individuals with autism spectrum disorders Type de document : Texte imprimé et/ou numérique Auteurs : Jonathan A WEISS, Auteur ; Aranda WINGSIONG, Auteur ; Yona LUNSKY, Auteur Article en page(s) : p.985-995 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  crisis  family  qualitative study Index. décimale : PER Périodiques Résumé : Parents of children diagnosed with autism spectrum disorder often report higher levels of depression, anxiety, and mental health–related issues. The combination of stressors and family adjustment difficulties can cause distress which may develop into a crisis. Understanding crisis in the family is important to mental health practice since it can serve as a guide in delivering service to at-risk families. This study investigated the subjective experience of crisis in 155 mothers of children diagnosed with autism spectrum disorder. Thematic analysis revealed that crisis is characterized by factors influencing four major areas: demands, internal capabilities, external resources, and subjective appraisal. Understanding what crisis means to families of individuals with autism spectrum disorder can help inform effective preventative and crisis services. En ligne : http://dx.doi.org/10.1177/1362361313508024 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=242 [article] Defining crisis in families of individuals with autism spectrum disorders [Texte imprimé et/ou numérique] / Jonathan A WEISS, Auteur ; Aranda WINGSIONG, Auteur ; Yona LUNSKY, Auteur . - p.985-995. Langues : Anglais (eng) in Autism > 18-8 (November 2014) . - p.985-995 Mots-clés : autism spectrum disorder  crisis  family  qualitative study Index. décimale : PER Périodiques Résumé : Parents of children diagnosed with autism spectrum disorder often report higher levels of depression, anxiety, and mental health–related issues. The combination of stressors and family adjustment difficulties can cause distress which may develop into a crisis. Understanding crisis in the family is important to mental health practice since it can serve as a guide in delivering service to at-risk families. This study investigated the subjective experience of crisis in 155 mothers of children diagnosed with autism spectrum disorder. Thematic analysis revealed that crisis is characterized by factors influencing four major areas: demands, internal capabilities, external resources, and subjective appraisal. Understanding what crisis means to families of individuals with autism spectrum disorder can help inform effective preventative and crisis services. En ligne : http://dx.doi.org/10.1177/1362361313508024 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=242

Family wellbeing of individuals with autism spectrum disorder: A scoping review / Ami TINT in Autism, 20-3 (April 2016)  

Public ISBD [article]  inAutism > 20-3 (April 2016) . - p.262-275 Titre : Family wellbeing of individuals with autism spectrum disorder: A scoping review Type de document : Texte imprimé et/ou numérique Auteurs : Ami TINT, Auteur ; Jonathan A WEISS, Auteur Article en page(s) : p.262-275 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  caregivers  families  family wellbeing Index. décimale : PER Périodiques Résumé : Families play an important role in supporting individuals with autism spectrum disorder across the lifespan. Indicators of family wellbeing can help to establish benchmarks for service provision and evaluation; however, a critical first step is a clear understanding of the construct in question. The purpose of the current scoping review was to (a) summarize current conceptualizations and measurements of family wellbeing, (b) synthesize key findings, and (c) highlight gaps and limitations in the extant literature. A final review of 86 articles highlighted the difficulty of synthesizing findings of family wellbeing in the autism spectrum disorder literature due to varied measurement techniques and the limited use of a common theoretical direction. Considerations for future research are presented with an eye toward policy relevance. En ligne : http://dx.doi.org/10.1177/1362361315580442 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=284 [article] Family wellbeing of individuals with autism spectrum disorder: A scoping review [Texte imprimé et/ou numérique] / Ami TINT, Auteur ; Jonathan A WEISS, Auteur . - p.262-275. Langues : Anglais (eng) in Autism > 20-3 (April 2016) . - p.262-275 Mots-clés : autism spectrum disorder  caregivers  families  family wellbeing Index. décimale : PER Périodiques Résumé : Families play an important role in supporting individuals with autism spectrum disorder across the lifespan. Indicators of family wellbeing can help to establish benchmarks for service provision and evaluation; however, a critical first step is a clear understanding of the construct in question. The purpose of the current scoping review was to (a) summarize current conceptualizations and measurements of family wellbeing, (b) synthesize key findings, and (c) highlight gaps and limitations in the extant literature. A final review of 86 articles highlighted the difficulty of synthesizing findings of family wellbeing in the autism spectrum disorder literature due to varied measurement techniques and the limited use of a common theoretical direction. Considerations for future research are presented with an eye toward policy relevance. En ligne : http://dx.doi.org/10.1177/1362361315580442 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=284

Perceived self-efficacy in parents of adolescents and adults with autism spectrum disorder / Jonathan A WEISS in Autism, 20-4 (May 2016)  

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Person-oriented ethics for autism research: Creating best practices through engagement with autism and autistic communities / M. Ariel CASCIO in Autism, 24-7 (October 2020)  

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Predictors of Changes in Daily Activity in Transition-Age Autistic Youth / Jonathan A WEISS in Autism Research, 14-2 (February 2021)  

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