Health communication: A pilot study comparing perceptions of women with and without high functioning autism spectrum disorder / Michelle LUM in Research in Autism Spectrum Disorders, 8-12 (December 2014)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 8-12 (December 2014) . - p.1713-1721 Titre : Health communication: A pilot study comparing perceptions of women with and without high functioning autism spectrum disorder Type de document : texte imprimé Auteurs : Michelle LUM, Auteur ; Michelle S. GARNETT, Auteur ; Erin O’CONNOR, Auteur Article en page(s) : p.1713-1721 Langues : Anglais (eng) Mots-clés : High functioning autism  Communication  Healthcare  Stigma  Women Index. décimale : PER Périodiques Résumé : Abstract Research indicates significant health disparities for individuals with autism. Insight into characteristic sensory, cognitive, communication, social, emotional, and behavioural challenges that may influence health communication for patients with autism is vital to address potential disparities. Women with high functioning autism spectrum disorder (ASD) may have specific healthcare needs, and are likely to independently represent themselves and others in healthcare. A pilot study compared perceptions of healthcare experiences for women with and without ASD using on-line survey based on characteristics of ASD likely to influence healthcare. Fifty-eight adult female participants (32 with ASD diagnosis, 26 without ASD diagnosis) were recruited on-line from autism support organisations. Perceptions measured included self-reporting of pain and symptoms, healthcare seeking behaviours, the influence of emotional distress, sensory and social anxiety, maternity experiences, and the influence of autistic status disclosure. Results partially support the hypothesis that ASD women experience greater healthcare challenges. Women with ASD reported greater challenges in healthcare anxiety, communication under emotional distress, anxiety relating to waiting rooms, support during pregnancy, and communication during childbirth. Self-disclosure of diagnostic status and lack of ASD awareness by healthcare providers rated as highly problematic. Results offer detailed insight into healthcare communication and disparities for women with ASD. En ligne : http://dx.doi.org/10.1016/j.rasd.2014.09.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=243 [article] Health communication: A pilot study comparing perceptions of women with and without high functioning autism spectrum disorder [texte imprimé] / Michelle LUM, Auteur ; Michelle S. GARNETT, Auteur ; Erin O’CONNOR, Auteur . - p.1713-1721. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 8-12 (December 2014) . - p.1713-1721 Mots-clés : High functioning autism  Communication  Healthcare  Stigma  Women Index. décimale : PER Périodiques Résumé : Abstract Research indicates significant health disparities for individuals with autism. Insight into characteristic sensory, cognitive, communication, social, emotional, and behavioural challenges that may influence health communication for patients with autism is vital to address potential disparities. Women with high functioning autism spectrum disorder (ASD) may have specific healthcare needs, and are likely to independently represent themselves and others in healthcare. A pilot study compared perceptions of healthcare experiences for women with and without ASD using on-line survey based on characteristics of ASD likely to influence healthcare. Fifty-eight adult female participants (32 with ASD diagnosis, 26 without ASD diagnosis) were recruited on-line from autism support organisations. Perceptions measured included self-reporting of pain and symptoms, healthcare seeking behaviours, the influence of emotional distress, sensory and social anxiety, maternity experiences, and the influence of autistic status disclosure. Results partially support the hypothesis that ASD women experience greater healthcare challenges. Women with ASD reported greater challenges in healthcare anxiety, communication under emotional distress, anxiety relating to waiting rooms, support during pregnancy, and communication during childbirth. Self-disclosure of diagnostic status and lack of ASD awareness by healthcare providers rated as highly problematic. Results offer detailed insight into healthcare communication and disparities for women with ASD. En ligne : http://dx.doi.org/10.1016/j.rasd.2014.09.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=243

Parenting satisfaction and broader autism phenotype associated with depression, anxiety and stress in caregivers of infants showing early autistic features / Erin O’CONNOR in Research in Autism, 132 (April 2026)  

Public ISBD [article]  inResearch in Autism > 132 (April 2026) . - 202870 Titre : Parenting satisfaction and broader autism phenotype associated with depression, anxiety and stress in caregivers of infants showing early autistic features Type de document : texte imprimé Auteurs : Erin O’CONNOR, Auteur ; Karli TREYVAUD, Auteur ; Cherie C. GREEN, Auteur ; Josephine BARBARO, Auteur ; Murray MAYBERY, Auteur ; Kandice J. VARCIN, Auteur ; Ming Wai WAN, Auteur ; Andrew J. O. WHITEHOUSE, Auteur ; Kristelle HUDRY, Auteur Article en page(s) : 202870 Langues : Anglais (eng) Mots-clés : Caregivers  Supports  Mental health  Parenting  Autism Résumé : While parenting self-efficacy and broader autism phenotype (BAP) have been linked to caregiver depression, anxiety and stress at specific points in time, their influence on longer-term mental health trajectories remains unknown, especially for caregivers who participate in support programs for their infants with very-early autistic features. Through secondary analysis of a longitudinal randomized control trial dataset, using latent growth curve analysis we explored the pattern and personal predictors of caregiver depression, anxiety and stress trajectories over a two-year period in a sample of 100 families of infants with early autistic features (when aged 12 months to 3 years) where families had been randomized to receive a parent-mediated support program or community care as usual. While caregivers were estimated to have stable, low-level depression, anxiety and stress on average, for some individuals, stable and high levels of these were associated with low parenting satisfaction, and higher BAP traits of pragmatic language difficulties and rigidity. There was no evidence that participation in the caregiver-mediated support program had predicted caregiver mental health outcomes. Caregivers of infants with early autism features who themselves present with early, sustained mental health symptoms may benefit from additional specific mental health support. En ligne : https://doi.org/10.1016/j.reia.2026.202870 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=583 [article] Parenting satisfaction and broader autism phenotype associated with depression, anxiety and stress in caregivers of infants showing early autistic features [texte imprimé] / Erin O’CONNOR, Auteur ; Karli TREYVAUD, Auteur ; Cherie C. GREEN, Auteur ; Josephine BARBARO, Auteur ; Murray MAYBERY, Auteur ; Kandice J. VARCIN, Auteur ; Ming Wai WAN, Auteur ; Andrew J. O. WHITEHOUSE, Auteur ; Kristelle HUDRY, Auteur . - 202870. Langues : Anglais (eng) in Research in Autism > 132 (April 2026) . - 202870 Mots-clés : Caregivers  Supports  Mental health  Parenting  Autism Résumé : While parenting self-efficacy and broader autism phenotype (BAP) have been linked to caregiver depression, anxiety and stress at specific points in time, their influence on longer-term mental health trajectories remains unknown, especially for caregivers who participate in support programs for their infants with very-early autistic features. Through secondary analysis of a longitudinal randomized control trial dataset, using latent growth curve analysis we explored the pattern and personal predictors of caregiver depression, anxiety and stress trajectories over a two-year period in a sample of 100 families of infants with early autistic features (when aged 12 months to 3 years) where families had been randomized to receive a parent-mediated support program or community care as usual. While caregivers were estimated to have stable, low-level depression, anxiety and stress on average, for some individuals, stable and high levels of these were associated with low parenting satisfaction, and higher BAP traits of pragmatic language difficulties and rigidity. There was no evidence that participation in the caregiver-mediated support program had predicted caregiver mental health outcomes. Caregivers of infants with early autism features who themselves present with early, sustained mental health symptoms may benefit from additional specific mental health support. En ligne : https://doi.org/10.1016/j.reia.2026.202870 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=583

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