22 recherche sur le mot-clé 'Healthcare'

Healthcare Providers' Experiences with Autism: A Scoping Review / R. MORRIS in Journal of Autism and Developmental Disorders, 49-6 (June 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-6 (June 2019) . - p.2374-2388 Titre : Healthcare Providers' Experiences with Autism: A Scoping Review Type de document : Texte imprimé et/ou numérique Auteurs : R. MORRIS, Auteur ; A. GREENBLATT, Auteur ; M. SAINI, Auteur Article en page(s) : p.2374-2388 Langues : Anglais (eng) Mots-clés : Autism  Healthcare  Patient-provider  Professional experience  Scoping review  Service provision Index. décimale : PER Périodiques Résumé : Gaps in research knowledge exist regarding patient-provider interactions with individuals with autism in healthcare settings. To address this, a scoping review was conducted focusing on the experiences of healthcare professionals working with individuals with autism. A systematic search and screen of the literature resulted in 27 relevant studies. Six key themes were found across these 27 studies including (1) complexity beyond usual role, (2) limited knowledge and resources, (3) training/prior experience, (4) communication and collaboration, (5) need for information and training, and (6) need for care coordination and systemic changes. The results of this review have implications for future research and practice and should be considered when reflecting on opportunities to enhance research and service provision with individuals with autism. En ligne : https://dx.doi.org/10.1007/s10803-019-03912-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400 [article] Healthcare Providers' Experiences with Autism: A Scoping Review [Texte imprimé et/ou numérique] / R. MORRIS, Auteur ; A. GREENBLATT, Auteur ; M. SAINI, Auteur . - p.2374-2388. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-6 (June 2019) . - p.2374-2388 Mots-clés : Autism  Healthcare  Patient-provider  Professional experience  Scoping review  Service provision Index. décimale : PER Périodiques Résumé : Gaps in research knowledge exist regarding patient-provider interactions with individuals with autism in healthcare settings. To address this, a scoping review was conducted focusing on the experiences of healthcare professionals working with individuals with autism. A systematic search and screen of the literature resulted in 27 relevant studies. Six key themes were found across these 27 studies including (1) complexity beyond usual role, (2) limited knowledge and resources, (3) training/prior experience, (4) communication and collaboration, (5) need for information and training, and (6) need for care coordination and systemic changes. The results of this review have implications for future research and practice and should be considered when reflecting on opportunities to enhance research and service provision with individuals with autism. En ligne : https://dx.doi.org/10.1007/s10803-019-03912-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400

Autistic and transgender/gender diverse people's experiences of health and healthcare / Elizabeth WEIR ; Lily WRIGHT ; Carrie ALLISON ; Simon BARON-COHEN in Molecular Autism, 16 (2025)  

Public ISBD [article]  inMolecular Autism > 16 (2025) . - 4 Titre : Autistic and transgender/gender diverse people's experiences of health and healthcare Type de document : Texte imprimé et/ou numérique Auteurs : Elizabeth WEIR, Auteur ; Lily WRIGHT, Auteur ; Carrie ALLISON, Auteur ; Simon BARON-COHEN, Auteur Article en page(s) : 4 Langues : Anglais (eng) Mots-clés : Humans  Male  Female  Transgender Persons/psychology  Adult  Autistic Disorder/psychology/epidemiology  Middle Aged  Young Adult  Delivery of Health Care  Adolescent  Surveys and Questionnaires  Autism  Healthcare  Healthcare quality  Mental health  Physical health  Self-harm  Transgender/gender diverse  provided by the Psychology Research Ethics Committee of the University of  Cambridge (PRE.2019.049). Competing interests: Prof. Sir Simon Baron-Cohen was a  founding Co-Editor-in-Chief of Molecular Autism. Index. décimale : PER Périodiques Résumé : BACKGROUND: Autistic people and transgender/gender diverse people experience poorer healthcare experiences and greater risk of diagnosed, suspected, and assessment recommended health conditions, compared to non-autistic and cisgender individuals, respectively. Despite this, there is a paucity of studies on the healthcare experiences and health outcomes of transgender/gender diverse autistic individuals. METHODS: We compared the healthcare experiences and health outcomes of cisgender autistic (n = 1094), transgender/gender diverse autistic (n = 174), and cisgender non-autistic adults (n = 1295) via an anonymous, self-report survey. All individuals whose sex assigned at birth did not match their current gender identity were categorized as transgender/gender diverse; this was possible to determine, as the survey asked about sex assigned at birth and gender in separate questions. Unfortunately, n = 57 transgender/gender diverse non-autistic participants were excluded from these analyses a priori, due to low power. Unadjusted and adjusted binomial logistic regression models with FDR correction were employed to assess healthcare experiences and rates of co-occurring mental and physical health conditions. RESULTS: Both transgender/gender diverse and cisgender autistic adults had higher rates of all health conditions (including conditions that are formally diagnosed, suspected, or recommended for assessment), compared to cisgender non-autistic adults. Transgender/gender diverse autistic adults were 2.3 times more likely to report a physical health condition, 10.9 times more likely to report a mental health condition, and 5.8 times more likely to report self-harm than cisgender non-autistic adults. Both autistic groups also reported significantly poorer healthcare experiences across 50/51 items. LIMITATIONS: These data were not originally collected to understand the experiences of transgender/gender diverse individuals. In addition, our recruitment strategies, use of a convenience sampling method, and the use of a self-report survey limit the generalizability of the study. As our sample was biased towards white individuals, UK residents, relatively highly educated individuals, those assigned female at birth, and those who currently identify as female, our findings may be less applicable to individuals of differing demographics. Finally, the present study does not include information on the experiences of transgender/gender diverse non-autistic people. CONCLUSIONS: Autistic people have poorer self-reported health and healthcare; however, being gender diverse is associated with further risk for certain adverse experiences and outcomes. Future research on the health and healthcare experiences of transgender/gender diverse autistic people is urgently needed. In particular, forthcoming studies in this area should aim to recruit large-scale and representative studies and should compare the experiences of transgender/gender diverse autistic people to those of transgender/gender diverse non-autistic people. Greater recognition of challenges and reasonable adjustments are essential for people with marginalized, intersectional identities in clinical practice. En ligne : https://dx.doi.org/10.1186/s13229-024-00634-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555 [article] Autistic and transgender/gender diverse people's experiences of health and healthcare [Texte imprimé et/ou numérique] / Elizabeth WEIR, Auteur ; Lily WRIGHT, Auteur ; Carrie ALLISON, Auteur ; Simon BARON-COHEN, Auteur . - 4. Langues : Anglais (eng) in Molecular Autism > 16 (2025) . - 4 Mots-clés : Humans  Male  Female  Transgender Persons/psychology  Adult  Autistic Disorder/psychology/epidemiology  Middle Aged  Young Adult  Delivery of Health Care  Adolescent  Surveys and Questionnaires  Autism  Healthcare  Healthcare quality  Mental health  Physical health  Self-harm  Transgender/gender diverse  provided by the Psychology Research Ethics Committee of the University of  Cambridge (PRE.2019.049). Competing interests: Prof. Sir Simon Baron-Cohen was a  founding Co-Editor-in-Chief of Molecular Autism. Index. décimale : PER Périodiques Résumé : BACKGROUND: Autistic people and transgender/gender diverse people experience poorer healthcare experiences and greater risk of diagnosed, suspected, and assessment recommended health conditions, compared to non-autistic and cisgender individuals, respectively. Despite this, there is a paucity of studies on the healthcare experiences and health outcomes of transgender/gender diverse autistic individuals. METHODS: We compared the healthcare experiences and health outcomes of cisgender autistic (n = 1094), transgender/gender diverse autistic (n = 174), and cisgender non-autistic adults (n = 1295) via an anonymous, self-report survey. All individuals whose sex assigned at birth did not match their current gender identity were categorized as transgender/gender diverse; this was possible to determine, as the survey asked about sex assigned at birth and gender in separate questions. Unfortunately, n = 57 transgender/gender diverse non-autistic participants were excluded from these analyses a priori, due to low power. Unadjusted and adjusted binomial logistic regression models with FDR correction were employed to assess healthcare experiences and rates of co-occurring mental and physical health conditions. RESULTS: Both transgender/gender diverse and cisgender autistic adults had higher rates of all health conditions (including conditions that are formally diagnosed, suspected, or recommended for assessment), compared to cisgender non-autistic adults. Transgender/gender diverse autistic adults were 2.3 times more likely to report a physical health condition, 10.9 times more likely to report a mental health condition, and 5.8 times more likely to report self-harm than cisgender non-autistic adults. Both autistic groups also reported significantly poorer healthcare experiences across 50/51 items. LIMITATIONS: These data were not originally collected to understand the experiences of transgender/gender diverse individuals. In addition, our recruitment strategies, use of a convenience sampling method, and the use of a self-report survey limit the generalizability of the study. As our sample was biased towards white individuals, UK residents, relatively highly educated individuals, those assigned female at birth, and those who currently identify as female, our findings may be less applicable to individuals of differing demographics. Finally, the present study does not include information on the experiences of transgender/gender diverse non-autistic people. CONCLUSIONS: Autistic people have poorer self-reported health and healthcare; however, being gender diverse is associated with further risk for certain adverse experiences and outcomes. Future research on the health and healthcare experiences of transgender/gender diverse autistic people is urgently needed. In particular, forthcoming studies in this area should aim to recruit large-scale and representative studies and should compare the experiences of transgender/gender diverse autistic people to those of transgender/gender diverse non-autistic people. Greater recognition of challenges and reasonable adjustments are essential for people with marginalized, intersectional identities in clinical practice. En ligne : https://dx.doi.org/10.1186/s13229-024-00634-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555

Barriers and facilitators towards an autism diagnosis for females within healthcare: A thematic analysis of interviews with UK healthcare professionals / Chris ASHWIN in Research in Autism, 121-122 (March-April 2025)  

Public ISBD [article]  inResearch in Autism > 121-122 (March-April 2025) . - 202547 Titre : Barriers and facilitators towards an autism diagnosis for females within healthcare: A thematic analysis of interviews with UK healthcare professionals Type de document : Texte imprimé et/ou numérique Auteurs : Chris ASHWIN, Auteur Article en page(s) : 202547 Langues : Anglais (eng) Mots-clés : Autism  Females  Healthcare  Barriers  Facilitators  Diagnosis Index. décimale : PER Périodiques Résumé : There has been growing recognition that autism spectrum disorder (ASD) presents differently in females than in males, and our current understanding of autism is male-centric. This may produce barriers towards appropriate recognition of autistic characteristics in key social areas, such as healthcare, which could affect referral for assessments and accurate autism diagnosis for females. While there are many studies reporting about patient perspectives on the autism diagnostic process, there is a dearth of research investigating the perspectives of healthcare professionals about the female presentation of autism. The present study aimed to explore the perspectives of NHS healthcare professionals (HCPs) on the recognition, referral, and diagnosis of autism in female patients across the lifespan. Semi-structured interviews were conducted with eleven NHS HCPs and a reflexive thematic analysis was carried out to identify the key themes. The results revealed themes about gender biases and diagnostic overshadowing as important general barriers towards autism recognition and diagnosis for females within the NHS healthcare system. Themes involving systemic barriers were also identified as limiting the recognition of female autistic presentation, which included issues about time constraints and a lack of training. Several facilitators towards better diagnosis of autism in females were identified, which emphasised changes to current practice and diagnostic criteria to better account for the heterogeneity of female autism, and a more integrated approach to referrals with the education sector. Together, these findings have implications for healthcare service development and implementation for the classification of autism, suggesting targeted training and diagnostic adaptions to improve the experience and accuracy of the pathway of females for a diagnosis of autism. En ligne : https://doi.org/10.1016/j.reia.2025.202547 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555 [article] Barriers and facilitators towards an autism diagnosis for females within healthcare: A thematic analysis of interviews with UK healthcare professionals [Texte imprimé et/ou numérique] / Chris ASHWIN, Auteur . - 202547. Langues : Anglais (eng) in Research in Autism > 121-122 (March-April 2025) . - 202547 Mots-clés : Autism  Females  Healthcare  Barriers  Facilitators  Diagnosis Index. décimale : PER Périodiques Résumé : There has been growing recognition that autism spectrum disorder (ASD) presents differently in females than in males, and our current understanding of autism is male-centric. This may produce barriers towards appropriate recognition of autistic characteristics in key social areas, such as healthcare, which could affect referral for assessments and accurate autism diagnosis for females. While there are many studies reporting about patient perspectives on the autism diagnostic process, there is a dearth of research investigating the perspectives of healthcare professionals about the female presentation of autism. The present study aimed to explore the perspectives of NHS healthcare professionals (HCPs) on the recognition, referral, and diagnosis of autism in female patients across the lifespan. Semi-structured interviews were conducted with eleven NHS HCPs and a reflexive thematic analysis was carried out to identify the key themes. The results revealed themes about gender biases and diagnostic overshadowing as important general barriers towards autism recognition and diagnosis for females within the NHS healthcare system. Themes involving systemic barriers were also identified as limiting the recognition of female autistic presentation, which included issues about time constraints and a lack of training. Several facilitators towards better diagnosis of autism in females were identified, which emphasised changes to current practice and diagnostic criteria to better account for the heterogeneity of female autism, and a more integrated approach to referrals with the education sector. Together, these findings have implications for healthcare service development and implementation for the classification of autism, suggesting targeted training and diagnostic adaptions to improve the experience and accuracy of the pathway of females for a diagnosis of autism. En ligne : https://doi.org/10.1016/j.reia.2025.202547 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555

Barriers to healthcare and a 'triple empathy problem' may lead to adverse outcomes for autistic adults: A qualitative study / Laura CARRAVALLAH ; Mona JOHNSON ; Jane O?SULLIVAN ; Nicholas CHOWN ; Stuart NEILSON ; Mary DOHERTY in Autism, 28-7 (July 2024)  

Public ISBD [article]  inAutism > 28-7 (July 2024) . - p.1746-1757 Titre : Barriers to healthcare and a 'triple empathy problem' may lead to adverse outcomes for autistic adults: A qualitative study Type de document : Texte imprimé et/ou numérique Auteurs : Laura CARRAVALLAH, Auteur ; Mona JOHNSON, Auteur ; Jane O?SULLIVAN, Auteur ; Nicholas CHOWN, Auteur ; Stuart NEILSON, Auteur ; Mary DOHERTY, Auteur Article en page(s) : p.1746-1757 Langues : Anglais (eng) Mots-clés : adults  autism  autistic  epistemic injustice  healthcare  health services  insider research  minority stress theory  qualitative research  triple empathy problem Index. décimale : PER Périodiques Résumé : Autistic people experience more co-occurring health conditions and, on average, die younger than non-autistic people. Despite growing awareness of health inequities, autistic people still report barriers to accessing healthcare. We aimed to explore the experiences of autistic people accessing healthcare, shining a light on the complex interplay of relevant factors and to explain, at least in part, the possible reasons underling health disparities and adverse health outcomes. This is a qualitative study from an autistic research team. Data were collected from 1248 autistic adults as part of a large, mixed-methods, international survey exploring barriers to primary healthcare. This article reports the qualitative findings, following a thematic analysis. Using our exploratory findings, we then constructed a model to explain the reported experiences. Respondents reported a variety of barriers. Here, our article gives voice to their stories, in their own words. Themes included: early barriers; communication mismatch; doubt - in oneself and from doctors; helplessness and fear; and healthcare avoidance and serious adverse health outcomes. Our constructed model outlines a chronological journey through which healthcare access barriers may lead to adverse health outcomes. Our findings also build on the double empathy problem, situating this in a medical context, proposing a triple empathy problem. Lay abstract Autistic people live with more mental and physical health conditions and, on average, die younger than non-autistic people. Despite widespread commitments to tackling these issues, autistic people still report various barriers to accessing healthcare. This article aims to explore the area in depth, from the perspective of autistic people. This research benefits from being led by autistic people, for autistic people - all of the researchers are autistic, and most of us are also medical doctors. Data, in the form of written comments and stories, were collected as part of a large survey. Here, we explored these for common themes and possible deeper meaning within the experiences. People who took part reported a variety of barriers. Here, our article gives voice to their stories, in their own words. Themes included: early barriers; communication mismatch; doubt - in oneself and from doctors; helplessness and fear; and healthcare avoidance and adverse health outcomes. Our findings allowed us to create a model that aimed to understand and explain the reported barriers in the context of the previously known consequences. We also built on wider autism theories to explain our findings in more depth. En ligne : https://dx.doi.org/10.1177/13623613231205629 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=531 [article] Barriers to healthcare and a 'triple empathy problem' may lead to adverse outcomes for autistic adults: A qualitative study [Texte imprimé et/ou numérique] / Laura CARRAVALLAH, Auteur ; Mona JOHNSON, Auteur ; Jane O?SULLIVAN, Auteur ; Nicholas CHOWN, Auteur ; Stuart NEILSON, Auteur ; Mary DOHERTY, Auteur . - p.1746-1757. Langues : Anglais (eng) in Autism > 28-7 (July 2024) . - p.1746-1757 Mots-clés : adults  autism  autistic  epistemic injustice  healthcare  health services  insider research  minority stress theory  qualitative research  triple empathy problem Index. décimale : PER Périodiques Résumé : Autistic people experience more co-occurring health conditions and, on average, die younger than non-autistic people. Despite growing awareness of health inequities, autistic people still report barriers to accessing healthcare. We aimed to explore the experiences of autistic people accessing healthcare, shining a light on the complex interplay of relevant factors and to explain, at least in part, the possible reasons underling health disparities and adverse health outcomes. This is a qualitative study from an autistic research team. Data were collected from 1248 autistic adults as part of a large, mixed-methods, international survey exploring barriers to primary healthcare. This article reports the qualitative findings, following a thematic analysis. Using our exploratory findings, we then constructed a model to explain the reported experiences. Respondents reported a variety of barriers. Here, our article gives voice to their stories, in their own words. Themes included: early barriers; communication mismatch; doubt - in oneself and from doctors; helplessness and fear; and healthcare avoidance and serious adverse health outcomes. Our constructed model outlines a chronological journey through which healthcare access barriers may lead to adverse health outcomes. Our findings also build on the double empathy problem, situating this in a medical context, proposing a triple empathy problem. Lay abstract Autistic people live with more mental and physical health conditions and, on average, die younger than non-autistic people. Despite widespread commitments to tackling these issues, autistic people still report various barriers to accessing healthcare. This article aims to explore the area in depth, from the perspective of autistic people. This research benefits from being led by autistic people, for autistic people - all of the researchers are autistic, and most of us are also medical doctors. Data, in the form of written comments and stories, were collected as part of a large survey. Here, we explored these for common themes and possible deeper meaning within the experiences. People who took part reported a variety of barriers. Here, our article gives voice to their stories, in their own words. Themes included: early barriers; communication mismatch; doubt - in oneself and from doctors; helplessness and fear; and healthcare avoidance and adverse health outcomes. Our findings allowed us to create a model that aimed to understand and explain the reported barriers in the context of the previously known consequences. We also built on wider autism theories to explain our findings in more depth. En ligne : https://dx.doi.org/10.1177/13623613231205629 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=531

Barriers to healthcare for Australian autistic adults / Georgia BRUCE ; Janelle WEISE ; Caroline J. MILLS ; Julian N. TROLLOR ; Kristy COXON in Autism, 28-2 (February 2024)  

Public ISBD [article]  inAutism > 28-2 (February 2024) . - p.301?315 Titre : Barriers to healthcare for Australian autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Georgia BRUCE, Auteur ; Janelle WEISE, Auteur ; Caroline J. MILLS, Auteur ; Julian N. TROLLOR, Auteur ; Kristy COXON, Auteur Article en page(s) : p.301?315 Mots-clés : access  adult  autism  autistic  healthcare Index. décimale : PER Périodiques Résumé : Barriers to healthcare experienced by Australian autistic adults have not been previously explored. We conducted a cross-sectional investigation of barriers to healthcare and associated factors from a subtle realism perspective. Perceived barriers to healthcare were obtained from the Barriers to Healthcare Checklist Short-Form (BHC). A total of 263 autistic and 70 non-autistic individuals completed the BHC. On average, autistic adults reported more barriers to healthcare (4.58) than non-autistic adults (0.76). Gender diversity, higher levels of generalised anxiety, greater global disability and less satisfaction with social support contributed to the experience of barriers to healthcare in autistic participants in regression modelling. Australian autistic adults face substantial barriers to healthcare. Understanding these barriers provides an opportunity to develop approaches to improve access; such as co-designing a healthcare access roadmap for autistic adults, with co-designed policies and practices which advocate for the needs of autistic adults. Lay abstract This study looked at how Australian autistic and non-autistic adults experience barriers to healthcare. We asked autistic and non-autistic adults to complete the Barriers to Healthcare Checklist Short-Form (BHC). We analysed data from 263 autistic adults and 70 non-autistic adults. We found that autistic adults experienced more barriers to healthcare than non-autistic adults. Gender diversity, feeling more anxious, having greater disability and feeling unsatisfied with social support contributed to barriers to healthcare in autistic participants. We recommend interventions such as developing and implementing a national action plan, similar to the National Roadmap for Improving the Health of People with Intellectual Disability (2021) to reduce barriers and address unmet healthcare needs of Australian autistic adults. We also recommend working with autistic adults to develop new policies and strategies, implementing environmental adaptations to health care facilities, and increasing Autism education opportunities for health professionals to address gaps in knowledge. En ligne : https://dx.doi.org/10.1177/13623613231168444 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519 [article] Barriers to healthcare for Australian autistic adults [Texte imprimé et/ou numérique] / Georgia BRUCE, Auteur ; Janelle WEISE, Auteur ; Caroline J. MILLS, Auteur ; Julian N. TROLLOR, Auteur ; Kristy COXON, Auteur . - p.301?315. in Autism > 28-2 (February 2024) . - p.301?315 Mots-clés : access  adult  autism  autistic  healthcare Index. décimale : PER Périodiques Résumé : Barriers to healthcare experienced by Australian autistic adults have not been previously explored. We conducted a cross-sectional investigation of barriers to healthcare and associated factors from a subtle realism perspective. Perceived barriers to healthcare were obtained from the Barriers to Healthcare Checklist Short-Form (BHC). A total of 263 autistic and 70 non-autistic individuals completed the BHC. On average, autistic adults reported more barriers to healthcare (4.58) than non-autistic adults (0.76). Gender diversity, higher levels of generalised anxiety, greater global disability and less satisfaction with social support contributed to the experience of barriers to healthcare in autistic participants in regression modelling. Australian autistic adults face substantial barriers to healthcare. Understanding these barriers provides an opportunity to develop approaches to improve access; such as co-designing a healthcare access roadmap for autistic adults, with co-designed policies and practices which advocate for the needs of autistic adults. Lay abstract This study looked at how Australian autistic and non-autistic adults experience barriers to healthcare. We asked autistic and non-autistic adults to complete the Barriers to Healthcare Checklist Short-Form (BHC). We analysed data from 263 autistic adults and 70 non-autistic adults. We found that autistic adults experienced more barriers to healthcare than non-autistic adults. Gender diversity, feeling more anxious, having greater disability and feeling unsatisfied with social support contributed to barriers to healthcare in autistic participants. We recommend interventions such as developing and implementing a national action plan, similar to the National Roadmap for Improving the Health of People with Intellectual Disability (2021) to reduce barriers and address unmet healthcare needs of Australian autistic adults. We also recommend working with autistic adults to develop new policies and strategies, implementing environmental adaptations to health care facilities, and increasing Autism education opportunities for health professionals to address gaps in knowledge. En ligne : https://dx.doi.org/10.1177/13623613231168444 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519

Brief Report: Factors Influencing Healthcare Satisfaction in Adults with Autism Spectrum Disorder / Alan H. GERBER in Journal of Autism and Developmental Disorders, 47-6 (June 2017)  

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Frustration in healthcare: Sex differences in parental perceptions of medical visits for autistic children / Tyler C. MCFAYDEN ; Jessica E. GOLDBLUM ; Stephanie BRISTOL ; Clare HARROP in Research in Autism, 124 (June 2025)  

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How healthcare systems are experienced by autistic adults in the United Kingdom: A meta-ethnography / Megan FREETH ; Andrew R. THOMPSON in Autism, 28-9 (September 2024)  

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Interviewing autistic adults: Adaptations to support recall in police, employment, and healthcare interviews / Jade Eloise NORRIS in Autism, 24-6 (August 2020)  

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Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware / S. SRINIVASAN in Autism Research, 14-8 (August 2021)  

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