Psychological Well-Being of Mothers and Siblings in Families of Girls and Women with Rett Syndrome / Rina CIANFAGLIONE in Journal of Autism and Developmental Disorders, 45-9 (September 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-9 (September 2015) . - p.2939-2946 Titre : Psychological Well-Being of Mothers and Siblings in Families of Girls and Women with Rett Syndrome Type de document : Texte imprimé et/ou numérique Auteurs : Rina CIANFAGLIONE, Auteur ; Richard P. HASTINGS, Auteur ; David FELCE, Auteur ; Angus CLARKE, Auteur ; Michael P. KERR, Auteur Article en page(s) : p.2939-2946 Langues : Anglais (eng) Mots-clés : Rett syndrome  Siblings  Mothers  Maternal depression  Strengths and Difficulties Questionnaire  Families Index. décimale : PER Périodiques Résumé : Few published studies have reported on the psychological well-being of family members of individuals with Rett syndrome (RTT). Eighty-seven mothers of girls and women with RTT completed a questionnaire survey about their daughters’ behavioral phenotype, current health, and behavior problems, and their own and a sibling’s well-being. Mothers reported increased anxiety but similar levels of depression when compared to a normative sample. Across all problem domains on the Strengths and Difficulties Questionnaire, child and adolescent siblings (n = 39) were reported by mothers to have fewer difficulties than a normative sample. The severity of their daughters’ RTT behavioral phenotype predicted increased anxiety and stress for mothers. Increased RTT daughters’ current health problems predicted more maternal perceptions of positive gain. En ligne : http://dx.doi.org/10.1007/s10803-015-2457-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267 [article] Psychological Well-Being of Mothers and Siblings in Families of Girls and Women with Rett Syndrome [Texte imprimé et/ou numérique] / Rina CIANFAGLIONE, Auteur ; Richard P. HASTINGS, Auteur ; David FELCE, Auteur ; Angus CLARKE, Auteur ; Michael P. KERR, Auteur . - p.2939-2946. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-9 (September 2015) . - p.2939-2946 Mots-clés : Rett syndrome  Siblings  Mothers  Maternal depression  Strengths and Difficulties Questionnaire  Families Index. décimale : PER Périodiques Résumé : Few published studies have reported on the psychological well-being of family members of individuals with Rett syndrome (RTT). Eighty-seven mothers of girls and women with RTT completed a questionnaire survey about their daughters’ behavioral phenotype, current health, and behavior problems, and their own and a sibling’s well-being. Mothers reported increased anxiety but similar levels of depression when compared to a normative sample. Across all problem domains on the Strengths and Difficulties Questionnaire, child and adolescent siblings (n = 39) were reported by mothers to have fewer difficulties than a normative sample. The severity of their daughters’ RTT behavioral phenotype predicted increased anxiety and stress for mothers. Increased RTT daughters’ current health problems predicted more maternal perceptions of positive gain. En ligne : http://dx.doi.org/10.1007/s10803-015-2457-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267

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