Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom / Laura CRANE in Autism, 20-2 (February 2016)  

Public ISBD [article]  inAutism > 20-2 (February 2016) . - p.153-162 Titre : Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom Type de document : Texte imprimé et/ou numérique Auteurs : Laura CRANE, Auteur ; James W CHESTER, Auteur ; Lorna GODDARD, Auteur ; Lucy A HENRY, Auteur ; Elisabeth HILL, Auteur Article en page(s) : p.153-162 Langues : Anglais (eng) Mots-clés : autism  autism spectrum disorder  diagnosis  parent satisfaction  support  survey Index. décimale : PER Périodiques Résumé : A sample of 1047 parents completed an online survey about their experiences and opinions regarding the process of attaining a diagnosis of autism spectrum disorder for their children. The results revealed that parents usually waited a year from when they first had concerns about their child’s development before they sought professional help. On average, there was a delay of around 3.5?years from the point at which parents first approached a health professional with their concerns to the confirmation of an autism spectrum disorder diagnosis. Just over half of the parents surveyed were dissatisfied with the diagnostic process as a whole. Several factors predicted parents’ overall levels of satisfaction with the diagnostic process, including the time taken to receive a diagnosis, satisfaction with the information provided at diagnosis, the manner of the diagnosing professional, the stress associated with the diagnostic process and satisfaction with post-diagnostic support. Post-diagnosis, the support (if any) that was provided to parents was deemed unsatisfactory, and this was highlighted as an area of particular concern among parents. En ligne : http://dx.doi.org/10.1177/1362361315573636 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=278 [article] Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom [Texte imprimé et/ou numérique] / Laura CRANE, Auteur ; James W CHESTER, Auteur ; Lorna GODDARD, Auteur ; Lucy A HENRY, Auteur ; Elisabeth HILL, Auteur . - p.153-162. Langues : Anglais (eng) in Autism > 20-2 (February 2016) . - p.153-162 Mots-clés : autism  autism spectrum disorder  diagnosis  parent satisfaction  support  survey Index. décimale : PER Périodiques Résumé : A sample of 1047 parents completed an online survey about their experiences and opinions regarding the process of attaining a diagnosis of autism spectrum disorder for their children. The results revealed that parents usually waited a year from when they first had concerns about their child’s development before they sought professional help. On average, there was a delay of around 3.5?years from the point at which parents first approached a health professional with their concerns to the confirmation of an autism spectrum disorder diagnosis. Just over half of the parents surveyed were dissatisfied with the diagnostic process as a whole. Several factors predicted parents’ overall levels of satisfaction with the diagnostic process, including the time taken to receive a diagnosis, satisfaction with the information provided at diagnosis, the manner of the diagnosing professional, the stress associated with the diagnostic process and satisfaction with post-diagnostic support. Post-diagnosis, the support (if any) that was provided to parents was deemed unsatisfactory, and this was highlighted as an area of particular concern among parents. En ligne : http://dx.doi.org/10.1177/1362361315573636 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=278

Experiences of diagnosing autism spectrum disorder: A survey of professionals in the United Kingdom / Claire L ROGERS in Autism, 20-7 (October 2016)  

Public ISBD [article]  inAutism > 20-7 (October 2016) . - p.820-831 Titre : Experiences of diagnosing autism spectrum disorder: A survey of professionals in the United Kingdom Type de document : Texte imprimé et/ou numérique Auteurs : Claire L ROGERS, Auteur ; Lorna GODDARD, Auteur ; Elisabeth L HILL, Auteur ; Lucy A HENRY, Auteur ; Laura CRANE, Auteur Article en page(s) : p.820-831 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  diagnosis  health services  professional development Index. décimale : PER Périodiques Résumé : To date, research exploring experiences of diagnosing autism spectrum disorder has largely focused on parental perspectives. In order to obtain a more complete account of the autism spectrum disorder diagnostic process, it is essential that the views and experiences of professionals are heard. In this study, 116 multidisciplinary professionals involved in diagnosing autism spectrum disorder in the United Kingdom completed an online questionnaire exploring their experiences and opinions of three key areas of service: accessibility, the diagnostic process and post-diagnostic support. Although professionals were largely satisfied with service accessibility, around 40% of services were failing to provide timely assessments. Standardised diagnostic tools were perceived as helpful and were used consistently, but concerns were raised about their validity in detecting atypical autism spectrum disorder presentations (e.g. females). Several challenges regarding giving autism spectrum disorder diagnoses were reported; these included making sure caregivers understood the diagnosis, pitching information at the correct level and managing distress. Furthermore, the practice of ‘upgrading’ to a diagnosis of autism spectrum disorder in uncertain or complex cases was reported by many, albeit infrequently, and reasons for this varied widely. Professionals expressed dissatisfaction with post-diagnostic provision, especially onward and long-term support options. They also felt that service improvements were required across populations and across the three key areas of service. En ligne : http://dx.doi.org/10.1177/1362361315611109 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=293 [article] Experiences of diagnosing autism spectrum disorder: A survey of professionals in the United Kingdom [Texte imprimé et/ou numérique] / Claire L ROGERS, Auteur ; Lorna GODDARD, Auteur ; Elisabeth L HILL, Auteur ; Lucy A HENRY, Auteur ; Laura CRANE, Auteur . - p.820-831. Langues : Anglais (eng) in Autism > 20-7 (October 2016) . - p.820-831 Mots-clés : autism spectrum disorders  diagnosis  health services  professional development Index. décimale : PER Périodiques Résumé : To date, research exploring experiences of diagnosing autism spectrum disorder has largely focused on parental perspectives. In order to obtain a more complete account of the autism spectrum disorder diagnostic process, it is essential that the views and experiences of professionals are heard. In this study, 116 multidisciplinary professionals involved in diagnosing autism spectrum disorder in the United Kingdom completed an online questionnaire exploring their experiences and opinions of three key areas of service: accessibility, the diagnostic process and post-diagnostic support. Although professionals were largely satisfied with service accessibility, around 40% of services were failing to provide timely assessments. Standardised diagnostic tools were perceived as helpful and were used consistently, but concerns were raised about their validity in detecting atypical autism spectrum disorder presentations (e.g. females). Several challenges regarding giving autism spectrum disorder diagnoses were reported; these included making sure caregivers understood the diagnosis, pitching information at the correct level and managing distress. Furthermore, the practice of ‘upgrading’ to a diagnosis of autism spectrum disorder in uncertain or complex cases was reported by many, albeit infrequently, and reasons for this varied widely. Professionals expressed dissatisfaction with post-diagnostic provision, especially onward and long-term support options. They also felt that service improvements were required across populations and across the three key areas of service. En ligne : http://dx.doi.org/10.1177/1362361315611109 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=293

Mock Juror Perceptions of Child Witnesses on the Autism Spectrum: The Impact of Providing Diagnostic Labels and Information About Autism / Laura CRANE in Journal of Autism and Developmental Disorders, 50-5 (May 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-5 (May 2020) . - p.1509-1519 Titre : Mock Juror Perceptions of Child Witnesses on the Autism Spectrum: The Impact of Providing Diagnostic Labels and Information About Autism Type de document : Texte imprimé et/ou numérique Auteurs : Laura CRANE, Auteur ; Rachel WILCOCK, Auteur ; Katie L. MARAS, Auteur ; Wing CHUI, Auteur ; Carmen MARTI-SANCHEZ, Auteur ; Lucy A HENRY, Auteur Article en page(s) : p.1509-1519 Langues : Anglais (eng) Mots-clés : Autism  Credibility  Criminal justice  Eyewitness memory  Jury Index. décimale : PER Périodiques Résumé : Research suggests that autistic children can provide accurate and forensically useful eyewitness evidence. However, members of a jury also rely on non-verbal behaviours when judging the credibility of a witness, and this could determine the verdict of a case. We presented mock jurors with videos (from an experimental study) of one of two child witnesses on the autism spectrum being interviewed about a mock minor crime. Results demonstrated that providing jurors with generic information about autism and/or informing them of the child's diagnostic label differentially affected credibility ratings, but not for both children. Implications for how to present information about child witnesses with autism to a jury-highlighting the need for approaches tailored to individual children-are discussed. En ligne : http://dx.doi.org/10.1007/s10803-018-3700-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422 [article] Mock Juror Perceptions of Child Witnesses on the Autism Spectrum: The Impact of Providing Diagnostic Labels and Information About Autism [Texte imprimé et/ou numérique] / Laura CRANE, Auteur ; Rachel WILCOCK, Auteur ; Katie L. MARAS, Auteur ; Wing CHUI, Auteur ; Carmen MARTI-SANCHEZ, Auteur ; Lucy A HENRY, Auteur . - p.1509-1519. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-5 (May 2020) . - p.1509-1519 Mots-clés : Autism  Credibility  Criminal justice  Eyewitness memory  Jury Index. décimale : PER Périodiques Résumé : Research suggests that autistic children can provide accurate and forensically useful eyewitness evidence. However, members of a jury also rely on non-verbal behaviours when judging the credibility of a witness, and this could determine the verdict of a case. We presented mock jurors with videos (from an experimental study) of one of two child witnesses on the autism spectrum being interviewed about a mock minor crime. Results demonstrated that providing jurors with generic information about autism and/or informing them of the child's diagnostic label differentially affected credibility ratings, but not for both children. Implications for how to present information about child witnesses with autism to a jury-highlighting the need for approaches tailored to individual children-are discussed. En ligne : http://dx.doi.org/10.1007/s10803-018-3700-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422

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