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Faire une suggestionHealth Services Use and Costs in Individuals with Autism Spectrum Disorder in Germany: Results from a Survey in ASD Outpatient Clinics / J. HOFER in Journal of Autism and Developmental Disorders, 52-2 (February 2022)
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Titre : Health Services Use and Costs in Individuals with Autism Spectrum Disorder in Germany: Results from a Survey in ASD Outpatient Clinics Type de document : texte imprimé Auteurs : J. HOFER, Auteur ; Falk HOFFMANN, Auteur ; Michael DÖRKS, Auteur ; Inge KAMP-BECKER, Auteur ; Charlotte KÜPPER, Auteur ; Luise POUSTKA, Auteur ; Stefan ROEPKE, Auteur ; Veit ROESSNER, Auteur ; Sanna STROTH, Auteur ; Nicole WOLFF, Auteur ; Christian J. BACHMANN, Auteur Article en page(s) : p.540-552 Langues : Anglais (eng) Mots-clés : Ambulatory Care Facilities Autism Spectrum Disorder/epidemiology/therapy Female Germany/epidemiology Health Care Costs Humans Male Mental Health Services Adolescents Adults Children Costs Germany Health services Index. décimale : PER Périodiques Résumé : Autism spectrum disorders (ASD) are associated with high services use, but European data on costs are scarce. Utilisation and annual costs of 385 individuals with ASD (aged 4-67 years; 18.2% females; 37.4% IQ < 85) from German outpatient clinics were assessed. Average annual costs per person were 3287 EUR, with psychiatric inpatient care (19.8%), pharmacotherapy (11.1%), and occupational therapy (11.1%) being the largest cost components. Females incurred higher costs than males (4864 EUR vs. 2936 EUR). In a regression model, female sex (Cost Ratio: 1.65), lower IQ (1.90), and Asperger syndrome (1.54) were associated with higher costs. In conclusion, ASD-related health costs are comparable to those of schizophrenia, thus underlining its public health relevance. Higher costs in females demand further research. En ligne : http://dx.doi.org/10.1007/s10803-021-04955-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455
in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.540-552[article] Health Services Use and Costs in Individuals with Autism Spectrum Disorder in Germany: Results from a Survey in ASD Outpatient Clinics [texte imprimé] / J. HOFER, Auteur ; Falk HOFFMANN, Auteur ; Michael DÖRKS, Auteur ; Inge KAMP-BECKER, Auteur ; Charlotte KÜPPER, Auteur ; Luise POUSTKA, Auteur ; Stefan ROEPKE, Auteur ; Veit ROESSNER, Auteur ; Sanna STROTH, Auteur ; Nicole WOLFF, Auteur ; Christian J. BACHMANN, Auteur . - p.540-552.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.540-552
Mots-clés : Ambulatory Care Facilities Autism Spectrum Disorder/epidemiology/therapy Female Germany/epidemiology Health Care Costs Humans Male Mental Health Services Adolescents Adults Children Costs Germany Health services Index. décimale : PER Périodiques Résumé : Autism spectrum disorders (ASD) are associated with high services use, but European data on costs are scarce. Utilisation and annual costs of 385 individuals with ASD (aged 4-67 years; 18.2% females; 37.4% IQ < 85) from German outpatient clinics were assessed. Average annual costs per person were 3287 EUR, with psychiatric inpatient care (19.8%), pharmacotherapy (11.1%), and occupational therapy (11.1%) being the largest cost components. Females incurred higher costs than males (4864 EUR vs. 2936 EUR). In a regression model, female sex (Cost Ratio: 1.65), lower IQ (1.90), and Asperger syndrome (1.54) were associated with higher costs. In conclusion, ASD-related health costs are comparable to those of schizophrenia, thus underlining its public health relevance. Higher costs in females demand further research. En ligne : http://dx.doi.org/10.1007/s10803-021-04955-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 The impact of COVID-19 on receipt of health services among children with and without autism / Sophie BRUNT in Autism, 28-3 (March 2024)
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Titre : The impact of COVID-19 on receipt of health services among children with and without autism Type de document : texte imprimé Auteurs : Sophie BRUNT, Auteur ; Eleonora SADIKOVA, Auteur ; Jessica PAPPAGIANOPOULOS, Auteur ; Micah O. MAZUREK, Auteur Article en page(s) : p.580-586 Langues : Anglais (eng) Mots-clés : autism COVID-19 health disparities health services NSCH Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic disrupted a range of health services for children across the United States. Autistic children have well-documented deficits in health-related services compared to nonautistic children. Parents of autistic children reported an increase in mental health and behavior problems with the onset of the pandemic, increasing the need for supportive services. The current study used data from the National Survey of Children s Health from 2019 and 2020 to conduct logistic regressions predicting the likelihood of having unmet service needs before and after the onset of the pandemic. Results suggested that autistic children were more likely to have unmet medical, dental, and mental health service needs across years compared to nonautistic children, but there were no interactions by year. All children experienced an increased likelihood of having unmet needs from pre- to post-pandemic. Results suggest that although the pandemic disrupted services across the board, autistic children lacked health services regardless of the pandemic, pointing to persisting disparities in service receipt. A discussion of ongoing barriers to services and issues related to virtual services is included. Future research should further investigate the feasibility of virtual services as well as ways of reducing barriers to all services for autistic children. Lay abstract The COVID-19 pandemic disrupted doctor?s and dental visits, mental health treatments, and other special therapies for children across the United States. Prior research has found that autistic children were more likely to lack these services even before the pandemic, but they experienced more mental health and behavior problems with the onset of the pandemic, increasing the need for these services. This study analyzed data from before (2019) and after (2020) the onset of the pandemic to determine whether autistic children had even more severe disruptions in services after the pandemic started compared to nonautistic children. We found that autistic children were more likely to have unmet medical, dental, and mental health needs in both 2019 and 2020. Overall, children experienced increased disruptions from 2019 to 2020, but this did not differ by diagnosis. Our results suggest that there are persisting gaps in autistic children s healthcare regardless of the pandemic. We discuss issues surrounding barriers to services for autistic children and issues surrounding virtual services, such as teletherapy. Future research should further explore how to reduce barriers to services for autistic children, including virtual and in-person services. En ligne : https://dx.doi.org/10.1177/13623613231176930 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523
in Autism > 28-3 (March 2024) . - p.580-586[article] The impact of COVID-19 on receipt of health services among children with and without autism [texte imprimé] / Sophie BRUNT, Auteur ; Eleonora SADIKOVA, Auteur ; Jessica PAPPAGIANOPOULOS, Auteur ; Micah O. MAZUREK, Auteur . - p.580-586.
Langues : Anglais (eng)
in Autism > 28-3 (March 2024) . - p.580-586
Mots-clés : autism COVID-19 health disparities health services NSCH Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic disrupted a range of health services for children across the United States. Autistic children have well-documented deficits in health-related services compared to nonautistic children. Parents of autistic children reported an increase in mental health and behavior problems with the onset of the pandemic, increasing the need for supportive services. The current study used data from the National Survey of Children s Health from 2019 and 2020 to conduct logistic regressions predicting the likelihood of having unmet service needs before and after the onset of the pandemic. Results suggested that autistic children were more likely to have unmet medical, dental, and mental health service needs across years compared to nonautistic children, but there were no interactions by year. All children experienced an increased likelihood of having unmet needs from pre- to post-pandemic. Results suggest that although the pandemic disrupted services across the board, autistic children lacked health services regardless of the pandemic, pointing to persisting disparities in service receipt. A discussion of ongoing barriers to services and issues related to virtual services is included. Future research should further investigate the feasibility of virtual services as well as ways of reducing barriers to all services for autistic children. Lay abstract The COVID-19 pandemic disrupted doctor?s and dental visits, mental health treatments, and other special therapies for children across the United States. Prior research has found that autistic children were more likely to lack these services even before the pandemic, but they experienced more mental health and behavior problems with the onset of the pandemic, increasing the need for these services. This study analyzed data from before (2019) and after (2020) the onset of the pandemic to determine whether autistic children had even more severe disruptions in services after the pandemic started compared to nonautistic children. We found that autistic children were more likely to have unmet medical, dental, and mental health needs in both 2019 and 2020. Overall, children experienced increased disruptions from 2019 to 2020, but this did not differ by diagnosis. Our results suggest that there are persisting gaps in autistic children s healthcare regardless of the pandemic. We discuss issues surrounding barriers to services for autistic children and issues surrounding virtual services, such as teletherapy. Future research should further explore how to reduce barriers to services for autistic children, including virtual and in-person services. En ligne : https://dx.doi.org/10.1177/13623613231176930 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523 Use of allied-health services and medication among adults with ASD in Latin America / Andy TORRES in Autism Research, 14-10 (October 2021)
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Titre : Use of allied-health services and medication among adults with ASD in Latin America Type de document : texte imprimé Auteurs : Andy TORRES, Auteur ; Denise LECUSAY, Auteur ; Daniel VALDEZ, Auteur ; Analia ROSOLI, Auteur ; Gabriela GARRIDO, Auteur ; Sebastián CUKIER, Auteur ; Cristiane S. PAULA, Auteur ; Ricardo GARCIA, Auteur ; Alexia RATTAZZI, Auteur ; Cecilia MONTIEL-NAVA, Auteur Article en page(s) : p.2200-2211 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder/drug therapy Autistic Disorder Caregivers Health Services Humans Latin America Hispanics allied health autism autism medication health disparities Index. décimale : PER Périodiques Résumé : ASD is a neurodevelopmental disorder that affects people across the entire lifespan, yet most of the research identifying the health and medical needs for autistic individuals have been among minors. As individuals with ASD transition to emerging adulthood, the services, already limited, become less available. This study aimed to identify the use of services for Latin American adults on the spectrum. We surveyed 295 caregivers of adults with ASD from six Latin American countries. Comparing the results for all the possible services observed in this study, the adults in our sample were primarily underserved: 84.4%-95.9% were receiving zero hours per week, 3.7%-12.9% 1%-10 h, 0%-1.7% 11-20, and only 0%-1% above 20 h of services. Almost half of the sample used medication, and neurologists were the most consulted health providers. Next to inexistent health care usage in Latin American adults with ASD highlights socioeconomic and health disparities in service provision for ASD in the region. The lack of services places adults with ASD in Latin America at a higher risk of worse symptom severity than autistic adults from regions with broader access to services. LAY SUMMARY: This study aimed to identify the quantity of services received by adults with autism in Latin America. Most of our sample was not receiving health services yet almost half had access to medication. This could mean that adults with autism in Latin America are at higher risk for poorer health. En ligne : http://dx.doi.org/10.1002/aur.2583 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450
in Autism Research > 14-10 (October 2021) . - p.2200-2211[article] Use of allied-health services and medication among adults with ASD in Latin America [texte imprimé] / Andy TORRES, Auteur ; Denise LECUSAY, Auteur ; Daniel VALDEZ, Auteur ; Analia ROSOLI, Auteur ; Gabriela GARRIDO, Auteur ; Sebastián CUKIER, Auteur ; Cristiane S. PAULA, Auteur ; Ricardo GARCIA, Auteur ; Alexia RATTAZZI, Auteur ; Cecilia MONTIEL-NAVA, Auteur . - p.2200-2211.
Langues : Anglais (eng)
in Autism Research > 14-10 (October 2021) . - p.2200-2211
Mots-clés : Adult Autism Spectrum Disorder/drug therapy Autistic Disorder Caregivers Health Services Humans Latin America Hispanics allied health autism autism medication health disparities Index. décimale : PER Périodiques Résumé : ASD is a neurodevelopmental disorder that affects people across the entire lifespan, yet most of the research identifying the health and medical needs for autistic individuals have been among minors. As individuals with ASD transition to emerging adulthood, the services, already limited, become less available. This study aimed to identify the use of services for Latin American adults on the spectrum. We surveyed 295 caregivers of adults with ASD from six Latin American countries. Comparing the results for all the possible services observed in this study, the adults in our sample were primarily underserved: 84.4%-95.9% were receiving zero hours per week, 3.7%-12.9% 1%-10 h, 0%-1.7% 11-20, and only 0%-1% above 20 h of services. Almost half of the sample used medication, and neurologists were the most consulted health providers. Next to inexistent health care usage in Latin American adults with ASD highlights socioeconomic and health disparities in service provision for ASD in the region. The lack of services places adults with ASD in Latin America at a higher risk of worse symptom severity than autistic adults from regions with broader access to services. LAY SUMMARY: This study aimed to identify the quantity of services received by adults with autism in Latin America. Most of our sample was not receiving health services yet almost half had access to medication. This could mean that adults with autism in Latin America are at higher risk for poorer health. En ligne : http://dx.doi.org/10.1002/aur.2583 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450 Barriers to healthcare predict reduced health-related quality of life in autistic adults without intellectual disability / Nicole DAVID ; Pascal RAHLFF ; Hannah KÖNIG ; Sophia DÜCKERT ; Petia GEWOHN ; Frank ERIK ; Kai VOGELEY ; Daniel SCHOTTLE ; Alexander KONNOPKA ; Holger SCHULZ ; Judith PETH in Autism, 29-2 (February 2025)
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Titre : Barriers to healthcare predict reduced health-related quality of life in autistic adults without intellectual disability : Autism Type de document : texte imprimé Auteurs : Nicole DAVID, Auteur ; Pascal RAHLFF, Auteur ; Hannah KÖNIG, Auteur ; Sophia DÜCKERT, Auteur ; Petia GEWOHN, Auteur ; Frank ERIK, Auteur ; Kai VOGELEY, Auteur ; Daniel SCHOTTLE, Auteur ; Alexander KONNOPKA, Auteur ; Holger SCHULZ, Auteur ; Judith PETH, Auteur Article en page(s) : p.476-489 Langues : Anglais (eng) Mots-clés : adults autism spectrum disorders health services quality of life Index. décimale : PER Périodiques Résumé : Autistic adults frequently show increased physical or mental health conditions and impairments in social, occupational, and other life domains. Accordingly, they often report reduced health-related quality of life. Yet, numerous barriers prevent effective healthcare for autistic adults. To date, the impact of healthcare barriers on health-related quality of life in autism has not been investigated. We, thus, sought to investigate the health-related quality of life of autistic adults without intellectual disability in Germany and analyze previously reported and novel predictors of health-related quality of life including healthcare barriers using multiple linear regression. Within a nationwide online survey, 311 autistic adults completed the Short-Form Health Survey and the Barriers to Healthcare Checklist. Demographic, clinical, and healthcare-related predictors were also assessed. Participants showed below-average mental and significantly reduced physical health-related quality of life compared to a German normative sample. Several independent variables differentially predicted mental and physical health-related quality of life. Healthcare barriers resulted as the only predictor, which explained variations in both domains: the more barriers autistic adults experienced, the lower their mental and physical health-related quality of life. Barriers emerged as the strongest predictor for mental health-related quality of life. Our results raise awareness for the barriers autistic adults experience in getting appropriate healthcare and the possible consequences for the individual. Improved healthcare access might contribute to better health-related quality of life in autism. Lay abstract Health-related quality of life reflects a person s perspective on their well-being in physical, mental, social, work-related, and other aspects of health or life. Autistic adults typically report difficulties in many or all of these domains and, thus, often experience their health-related quality of life being reduced. Nonetheless, they do not obtain the professional support they need and report barriers to accessing or receiving appropriate healthcare. We know little about the impact of barriers to healthcare on health-related quality of life in autistic adults. In the present study, 311 autistic adults without intellectual disability in Germany completed an online survey on their current health-related quality of life and the number of barriers to healthcare they experience. In addition, they were asked about their personal and clinical background as well as about the amount of healthcare and support they recently received. We investigated how this information and, particularly, barriers to healthcare explained variations in individual levels of health-related quality of life. We found that barriers to healthcare, compared to most other variables, were a strong predictor of health-related quality of life: The more barriers autistic adults reported, the lower their experienced psychological and physical well-being. To our knowledge, this is the first paper to examine the relationship between barriers to healthcare and health-related quality of life in autism. Our results suggest that healthcare providers need to become aware of the barriers individuals with autism have in seeking and getting healthcare. Improved access to services might contribute to better health-related quality of life in autistic adults. En ligne : https://dx.doi.org/10.1177/13623613241275406 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547
in Autism > 29-2 (February 2025) . - p.476-489[article] Barriers to healthcare predict reduced health-related quality of life in autistic adults without intellectual disability : Autism [texte imprimé] / Nicole DAVID, Auteur ; Pascal RAHLFF, Auteur ; Hannah KÖNIG, Auteur ; Sophia DÜCKERT, Auteur ; Petia GEWOHN, Auteur ; Frank ERIK, Auteur ; Kai VOGELEY, Auteur ; Daniel SCHOTTLE, Auteur ; Alexander KONNOPKA, Auteur ; Holger SCHULZ, Auteur ; Judith PETH, Auteur . - p.476-489.
Langues : Anglais (eng)
in Autism > 29-2 (February 2025) . - p.476-489
Mots-clés : adults autism spectrum disorders health services quality of life Index. décimale : PER Périodiques Résumé : Autistic adults frequently show increased physical or mental health conditions and impairments in social, occupational, and other life domains. Accordingly, they often report reduced health-related quality of life. Yet, numerous barriers prevent effective healthcare for autistic adults. To date, the impact of healthcare barriers on health-related quality of life in autism has not been investigated. We, thus, sought to investigate the health-related quality of life of autistic adults without intellectual disability in Germany and analyze previously reported and novel predictors of health-related quality of life including healthcare barriers using multiple linear regression. Within a nationwide online survey, 311 autistic adults completed the Short-Form Health Survey and the Barriers to Healthcare Checklist. Demographic, clinical, and healthcare-related predictors were also assessed. Participants showed below-average mental and significantly reduced physical health-related quality of life compared to a German normative sample. Several independent variables differentially predicted mental and physical health-related quality of life. Healthcare barriers resulted as the only predictor, which explained variations in both domains: the more barriers autistic adults experienced, the lower their mental and physical health-related quality of life. Barriers emerged as the strongest predictor for mental health-related quality of life. Our results raise awareness for the barriers autistic adults experience in getting appropriate healthcare and the possible consequences for the individual. Improved healthcare access might contribute to better health-related quality of life in autism. Lay abstract Health-related quality of life reflects a person s perspective on their well-being in physical, mental, social, work-related, and other aspects of health or life. Autistic adults typically report difficulties in many or all of these domains and, thus, often experience their health-related quality of life being reduced. Nonetheless, they do not obtain the professional support they need and report barriers to accessing or receiving appropriate healthcare. We know little about the impact of barriers to healthcare on health-related quality of life in autistic adults. In the present study, 311 autistic adults without intellectual disability in Germany completed an online survey on their current health-related quality of life and the number of barriers to healthcare they experience. In addition, they were asked about their personal and clinical background as well as about the amount of healthcare and support they recently received. We investigated how this information and, particularly, barriers to healthcare explained variations in individual levels of health-related quality of life. We found that barriers to healthcare, compared to most other variables, were a strong predictor of health-related quality of life: The more barriers autistic adults reported, the lower their experienced psychological and physical well-being. To our knowledge, this is the first paper to examine the relationship between barriers to healthcare and health-related quality of life in autism. Our results suggest that healthcare providers need to become aware of the barriers individuals with autism have in seeking and getting healthcare. Improved access to services might contribute to better health-related quality of life in autistic adults. En ligne : https://dx.doi.org/10.1177/13623613241275406 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547 Mental health care use of autistic adults: Identifying longitudinal patterns using sequence analysis / Tim ZIERMANS ; Iris RAPOPORT ; Kim M. JONKMAN ; Hilde M. GEURTS in Autism, 29-6 (June 2025)
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[article]
Titre : Mental health care use of autistic adults: Identifying longitudinal patterns using sequence analysis Type de document : texte imprimé Auteurs : Tim ZIERMANS, Auteur ; Iris RAPOPORT, Auteur ; Kim M. JONKMAN, Auteur ; Hilde M. GEURTS, Auteur Article en page(s) : p.1431-1445 Langues : Anglais (eng) Mots-clés : autism spectrum disorders health services interventions pharmacologic psychiatric comorbidity psychosocial/behavioral Index. décimale : PER Périodiques Résumé : To improve mental health care for autistic adults, a better understanding of their real-world intervention use is required. The aim of this study is to investigate individual differences in the intervention trajectories of autistic adults, by examining longitudinal patterns of therapy, counseling, and medication use. Self-reported intervention use of 445 autistic adults (18-87 years) across at least five consecutive measurements (2015-2021) was collected to identify clusters using sequence analysis and hierarchical clustering. Sensitivity analyses and cross-method validation (group-based multivariate trajectory modeling) were used to verify the obtained clusters. Four out of five obtained clusters had sufficient internal consistency and were replicated. These four clusters had distinct intervention trajectories (least intervention, mostly counseling, mostly medication, mixed use) and differed on several demographic variables. Most notably, the "mixed cluster" contained relatively more females and individuals with self-reported co-occurring psychiatric conditions. Many autistic adults used interventions, although they varied in type and duration of intervention use. This reflects the clinical complexity of tailoring intervention approaches and highlights that accessible and multidisciplinary care is essential to adequately support autistic adults. An important next step is to investigate whether available interventions sufficiently support autistic females and those with co-occurring psychiatric conditions.Lay abstract Many autistic adults experience co-occurring mental health problems, which have a negative effect on their well-being and result in increased use of mental health services. To improve mental healthcare for autistic adults, a better understanding is needed of what type of support they use in real life. Clinical guidelines recommend three kinds of mental health interventions: therapy, counseling, and medication. We investigated the use of these types of interventions in a sample of 445 autistic adults (aged 18-87 years) across a 5-to-7-year period. We found evidence for four different patterns of intervention use, or so-called subgroups: (1) least intervention use, (2) mostly counseling, (3) mostly medication, and (4) mixed intervention use. The group with mixed intervention use consisted of relatively more females and individuals with co-occurring psychiatric conditions, especially compared to the subgroup with the least intervention use. It appeared that many, but not all, autistic individuals used mental health services for an extended period. However, there was considerable variability in the type, combination, and duration of intervention use. This means that determining the optimal support for autistic adults is often a complex task, which requires collaboration of clinical experts and autistic individuals themselves, to make informed decisions. En ligne : https://dx.doi.org/10.1177/13623613241304513 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558
in Autism > 29-6 (June 2025) . - p.1431-1445[article] Mental health care use of autistic adults: Identifying longitudinal patterns using sequence analysis [texte imprimé] / Tim ZIERMANS, Auteur ; Iris RAPOPORT, Auteur ; Kim M. JONKMAN, Auteur ; Hilde M. GEURTS, Auteur . - p.1431-1445.
Langues : Anglais (eng)
in Autism > 29-6 (June 2025) . - p.1431-1445
Mots-clés : autism spectrum disorders health services interventions pharmacologic psychiatric comorbidity psychosocial/behavioral Index. décimale : PER Périodiques Résumé : To improve mental health care for autistic adults, a better understanding of their real-world intervention use is required. The aim of this study is to investigate individual differences in the intervention trajectories of autistic adults, by examining longitudinal patterns of therapy, counseling, and medication use. Self-reported intervention use of 445 autistic adults (18-87 years) across at least five consecutive measurements (2015-2021) was collected to identify clusters using sequence analysis and hierarchical clustering. Sensitivity analyses and cross-method validation (group-based multivariate trajectory modeling) were used to verify the obtained clusters. Four out of five obtained clusters had sufficient internal consistency and were replicated. These four clusters had distinct intervention trajectories (least intervention, mostly counseling, mostly medication, mixed use) and differed on several demographic variables. Most notably, the "mixed cluster" contained relatively more females and individuals with self-reported co-occurring psychiatric conditions. Many autistic adults used interventions, although they varied in type and duration of intervention use. This reflects the clinical complexity of tailoring intervention approaches and highlights that accessible and multidisciplinary care is essential to adequately support autistic adults. An important next step is to investigate whether available interventions sufficiently support autistic females and those with co-occurring psychiatric conditions.Lay abstract Many autistic adults experience co-occurring mental health problems, which have a negative effect on their well-being and result in increased use of mental health services. To improve mental healthcare for autistic adults, a better understanding is needed of what type of support they use in real life. Clinical guidelines recommend three kinds of mental health interventions: therapy, counseling, and medication. We investigated the use of these types of interventions in a sample of 445 autistic adults (aged 18-87 years) across a 5-to-7-year period. We found evidence for four different patterns of intervention use, or so-called subgroups: (1) least intervention use, (2) mostly counseling, (3) mostly medication, and (4) mixed intervention use. The group with mixed intervention use consisted of relatively more females and individuals with co-occurring psychiatric conditions, especially compared to the subgroup with the least intervention use. It appeared that many, but not all, autistic individuals used mental health services for an extended period. However, there was considerable variability in the type, combination, and duration of intervention use. This means that determining the optimal support for autistic adults is often a complex task, which requires collaboration of clinical experts and autistic individuals themselves, to make informed decisions. En ligne : https://dx.doi.org/10.1177/13623613241304513 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 Physical health needs and self-reported health status among adults with autism / Paul TURCOTTE in Autism, 25-3 (April 2021)
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PermalinkPredictors of health service use among adolescents and adults with autism and aggression / Melissa PAQUETTE-SMITH in Research in Autism Spectrum Disorders, 68 (December 2019)
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PermalinkWhere are US outpatient mental health facilities that serve children with autism spectrum disorder? A national snapshot of geographic disparities / Jonathan CANTOR in Autism, 26-1 (January 2022)
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PermalinkHealth status of Medicare-enrolled autistic older adults with and without co-occurring intellectual disability: An analysis of inpatient and institutional outpatient medical claims / Daniel GILMORE in Autism, 25-1 (January 2021)
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Permalink"I?m dealing with a health care system that doesn?t get it": Barriers and facilitators to inclusive healthcare for autistic adults / Kiley J. MCLEAN in Autism, 28-6 (June 2024)
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