Families Living With Autism Spectrum Disorder: Roles and Responsibilities of Adolescent Sisters / Elizabeth K. CRIDLAND in Focus on Autism and Other Developmental Disabilities, 31-3 (September 2016)  

Public ISBD [article]  inFocus on Autism and Other Developmental Disabilities > 31-3 (September 2016) . - p.196-207 Titre : Families Living With Autism Spectrum Disorder: Roles and Responsibilities of Adolescent Sisters Type de document : Texte imprimé et/ou numérique Auteurs : Elizabeth K. CRIDLAND, Auteur ; Sandra C. JONES, Auteur ; Gerard STOYLES, Auteur ; Peter CAPUTI, Auteur ; Christopher A. MAGEE, Auteur Article en page(s) : p.196-207 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  siblings  family  support systems  high school  adolescence  sister Index. décimale : PER Périodiques Résumé : There is currently a limited understanding of adolescent sibling relationships where Autism Spectrum Disorder (ASD) is present. This research gap remains despite preliminary findings suggesting that neurotypically developing (NTD) siblings undertake extra caregiving responsibilities and experience differential treatment from family members. Using a Family Systems approach, this qualitative study investigated NTD adolescent sisters’ roles and responsibilities for their younger adolescent brother with ASD from the perspectives of 11 family members (including NTD sisters, brothers with ASD, mothers, and fathers). Findings indicate the sisters undertook various caregiving roles and responsibilities, particularly at school, which had both positive and negative influences on the family system. Additionally, sisters perceived they undertook unfair household responsibilities, received reduced parental attention, and desired both distance from and engagement with their families. These perceptions varied amongst other family members. Implications of these findings and strategies for best supporting adolescent NTD siblings are discussed. En ligne : http://dx.doi.org/10.1177/1088357615583466 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=292 [article] Families Living With Autism Spectrum Disorder: Roles and Responsibilities of Adolescent Sisters [Texte imprimé et/ou numérique] / Elizabeth K. CRIDLAND, Auteur ; Sandra C. JONES, Auteur ; Gerard STOYLES, Auteur ; Peter CAPUTI, Auteur ; Christopher A. MAGEE, Auteur . - p.196-207. Langues : Anglais (eng) in Focus on Autism and Other Developmental Disabilities > 31-3 (September 2016) . - p.196-207 Mots-clés : autism spectrum disorders  siblings  family  support systems  high school  adolescence  sister Index. décimale : PER Périodiques Résumé : There is currently a limited understanding of adolescent sibling relationships where Autism Spectrum Disorder (ASD) is present. This research gap remains despite preliminary findings suggesting that neurotypically developing (NTD) siblings undertake extra caregiving responsibilities and experience differential treatment from family members. Using a Family Systems approach, this qualitative study investigated NTD adolescent sisters’ roles and responsibilities for their younger adolescent brother with ASD from the perspectives of 11 family members (including NTD sisters, brothers with ASD, mothers, and fathers). Findings indicate the sisters undertook various caregiving roles and responsibilities, particularly at school, which had both positive and negative influences on the family system. Additionally, sisters perceived they undertook unfair household responsibilities, received reduced parental attention, and desired both distance from and engagement with their families. These perceptions varied amongst other family members. Implications of these findings and strategies for best supporting adolescent NTD siblings are discussed. En ligne : http://dx.doi.org/10.1177/1088357615583466 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=292

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