Improving support for older autistic adults with intellectual impairments and their family carers / Eddie CHAPLIN in Good Autism Practice - GAP, 25-1 (May 2024)

Public ISBD [article]  inGood Autism Practice - GAP > 25-1 (May 2024) . - p.49-57 Titre : Improving support for older autistic adults with intellectual impairments and their family carers Type de document : Texte imprimé et/ou numérique Auteurs : Eddie CHAPLIN, Auteur ; Nicola MARTIN, Auteur ; Joanna KRUPA, Auteur ; Gianna KNOWLES, Auteur ; Mickey MAYHEW, Auteur ; Paula SANCHEZ, Auteur Article en page(s) : p.49-57 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The authors are part of the Critical Autism and Disability Studies (CADS) Research Forum based at London South Bank University, in the UK. The study reported in this paper was designed to identify issues in providing practical, social and wellbeing support for autistic adults with intellectual impairments over 45 years of age (referred to as ‘autistic+’ in this paper) and their family carers. This is a group with little representation in recent policy and academic literature. As with all CADS research, the research team included properly employed and supported autistic researchers. Because of restrictions arising from the Covid-19 pandemic, data was obtained largely via online methods. The findings showed issues in accessing digital sources of information and difficulties around available accessible transport, and demonstrated the importance of support continuing across the lifespan. The necessity for greater awareness by service providers of the requirements of autistic+ adults and their family carers was brought into sharp focus as one of the major issues faced. Rather than being only available online, information needs to be posted across multiple locations (e.g. health centres, libraries, community centres). There needs to be more opportunities for service providers to be able to access relevant training and support. The Editor welcomes papers that evidence good practice in relation to autistic+ adults and their families and carers. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=540 [article] Improving support for older autistic adults with intellectual impairments and their family carers [Texte imprimé et/ou numérique] / Eddie CHAPLIN, Auteur ; Nicola MARTIN, Auteur ; Joanna KRUPA, Auteur ; Gianna KNOWLES, Auteur ; Mickey MAYHEW, Auteur ; Paula SANCHEZ, Auteur . - p.49-57. Langues : Anglais (eng) in Good Autism Practice - GAP > 25-1 (May 2024) . - p.49-57 Index. décimale : PER Périodiques Résumé : The authors are part of the Critical Autism and Disability Studies (CADS) Research Forum based at London South Bank University, in the UK. The study reported in this paper was designed to identify issues in providing practical, social and wellbeing support for autistic adults with intellectual impairments over 45 years of age (referred to as ‘autistic+’ in this paper) and their family carers. This is a group with little representation in recent policy and academic literature. As with all CADS research, the research team included properly employed and supported autistic researchers. Because of restrictions arising from the Covid-19 pandemic, data was obtained largely via online methods. The findings showed issues in accessing digital sources of information and difficulties around available accessible transport, and demonstrated the importance of support continuing across the lifespan. The necessity for greater awareness by service providers of the requirements of autistic+ adults and their family carers was brought into sharp focus as one of the major issues faced. Rather than being only available online, information needs to be posted across multiple locations (e.g. health centres, libraries, community centres). There needs to be more opportunities for service providers to be able to access relevant training and support. The Editor welcomes papers that evidence good practice in relation to autistic+ adults and their families and carers. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=540

Screening for co-occurring conditions in adults with autism spectrum disorder using the strengths and difficulties questionnaire: A pilot study / James FINDON in Autism Research, 9-12 (December 2016)  

Public ISBD [article]  inAutism Research > 9-12 (December 2016) . - p.1353-1363 Titre : Screening for co-occurring conditions in adults with autism spectrum disorder using the strengths and difficulties questionnaire: A pilot study Type de document : Texte imprimé et/ou numérique Auteurs : James FINDON, Auteur ; Tim CADMAN, Auteur ; Catherine S. STEWART, Auteur ; Emma WOODHOUSE, Auteur ; Hanna EKLUND, Auteur ; Hannah HAYWARD, Auteur ; Daniel DE LE HARPE GOLDEN, Auteur ; Eddie CHAPLIN, Auteur ; Karen GLASER, Auteur ; Emily SIMONOFF, Auteur ; Declan MURPHY, Auteur ; Patrick BOLTON, Auteur ; Fiona S. MCEWEN, Auteur Article en page(s) : p.1353-1363 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  co-occurring disorder  co-morbid disorder  hyperactivity  attention deficit hyperactivity disorder  anxiety  depression  obsessive–compulsive disorder Index. décimale : PER Périodiques Résumé : Adolescents and adults with autism spectrum disorder (ASD) are at elevated risk of co-occurring mental health problems. These are often undiagnosed, can cause significant impairment, and place a very high burden on family and carers. Detecting co-occurring disorders is extremely important. However, there is no validated screening tool for this purpose. The aim of this pilot study is to test the utility of the strengths and difficulties questionnaire (SDQ) to screen for co-occurring emotional disorders and hyperactivity in adolescents and adults with ASD. The SDQ was completed by 126 parents and 98 individuals with ASD (in 79 cases both parent and self-report were available from the same families). Inter-rater reliability, test-retest stability, internal consistency, and construct validity were examined. SDQ subscales were also compared to clinically utilized measures of emotional disorders and hyperactivity to establish the ability to predict risk of disorder. Inter-rater reliability (r?=?0.42), test-retest stability (r?=?0.64), internal consistency (??=?0.52–0.81) and construct validity (r?=?0.42–0.57) for the SDQ subscales were comparable to general population samples. Parent- and self-report SDQ subscales were significantly associated with measures of anxiety, depression and hyperactivity (62–74% correctly classified). Parent-report performed significantly better than self-report; adults with ASD under-reported difficulties. The SDQ shows promise as a simple and efficient way to screen for emotional disorders and hyperactivity in adolescents and adults with ASD that could help reduce the impact of these disorders on individuals and their families. However, further more systematic attempts at validation are warranted. En ligne : http://dx.doi.org/10.1002/aur.1625 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=298 [article] Screening for co-occurring conditions in adults with autism spectrum disorder using the strengths and difficulties questionnaire: A pilot study [Texte imprimé et/ou numérique] / James FINDON, Auteur ; Tim CADMAN, Auteur ; Catherine S. STEWART, Auteur ; Emma WOODHOUSE, Auteur ; Hanna EKLUND, Auteur ; Hannah HAYWARD, Auteur ; Daniel DE LE HARPE GOLDEN, Auteur ; Eddie CHAPLIN, Auteur ; Karen GLASER, Auteur ; Emily SIMONOFF, Auteur ; Declan MURPHY, Auteur ; Patrick BOLTON, Auteur ; Fiona S. MCEWEN, Auteur . - p.1353-1363. Langues : Anglais (eng) in Autism Research > 9-12 (December 2016) . - p.1353-1363 Mots-clés : autism spectrum disorder  co-occurring disorder  co-morbid disorder  hyperactivity  attention deficit hyperactivity disorder  anxiety  depression  obsessive–compulsive disorder Index. décimale : PER Périodiques Résumé : Adolescents and adults with autism spectrum disorder (ASD) are at elevated risk of co-occurring mental health problems. These are often undiagnosed, can cause significant impairment, and place a very high burden on family and carers. Detecting co-occurring disorders is extremely important. However, there is no validated screening tool for this purpose. The aim of this pilot study is to test the utility of the strengths and difficulties questionnaire (SDQ) to screen for co-occurring emotional disorders and hyperactivity in adolescents and adults with ASD. The SDQ was completed by 126 parents and 98 individuals with ASD (in 79 cases both parent and self-report were available from the same families). Inter-rater reliability, test-retest stability, internal consistency, and construct validity were examined. SDQ subscales were also compared to clinically utilized measures of emotional disorders and hyperactivity to establish the ability to predict risk of disorder. Inter-rater reliability (r?=?0.42), test-retest stability (r?=?0.64), internal consistency (??=?0.52–0.81) and construct validity (r?=?0.42–0.57) for the SDQ subscales were comparable to general population samples. Parent- and self-report SDQ subscales were significantly associated with measures of anxiety, depression and hyperactivity (62–74% correctly classified). Parent-report performed significantly better than self-report; adults with ASD under-reported difficulties. The SDQ shows promise as a simple and efficient way to screen for emotional disorders and hyperactivity in adolescents and adults with ASD that could help reduce the impact of these disorders on individuals and their families. However, further more systematic attempts at validation are warranted. En ligne : http://dx.doi.org/10.1002/aur.1625 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=298

Social anxiety in adult males with autism spectrum disorders / Debbie SPAIN in Research in Autism Spectrum Disorders, 32 (December 2016)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 32 (December 2016) . - p.13-23 Titre : Social anxiety in adult males with autism spectrum disorders Type de document : Texte imprimé et/ou numérique Auteurs : Debbie SPAIN, Auteur ; Francesca HAPPE, Auteur ; Patrick JOHNSTON, Auteur ; Malcolm CAMPBELL, Auteur ; Jacqueline SIN, Auteur ; Eileen DALY, Auteur ; Christine ECKER, Auteur ; Martin ANSON, Auteur ; Eddie CHAPLIN, Auteur ; Karen GLASER, Auteur ; Andreina MENDEZ, Auteur ; Karina LOVELL, Auteur ; Declan G. MURPHY, Auteur Article en page(s) : p.13-23 Langues : Anglais (eng) Mots-clés : Autism spectrum  Social anxiety  Social phobia  Adults  Self-report questionnaires Index. décimale : PER Périodiques Résumé : AbstractBackground Psychiatric conditions, notably anxiety, commonly co-occur with autism spectrum disorders (ASD). Method This study investigated self-reported behavioural, cognitive and affective symptoms of social anxiety (SA) in 50 adult males with ASD. Associations between SA, core ASD symptoms and facets of neuropsychological functioning were also examined. Results Twenty-six participants (52%) endorsed levels of SA that exceeded the suggested caseness threshold for social anxiety disorder. Categorical and dimensional data analyses indicated that there were no relationships between SA symptoms, present-state or childhood ASD symptom-severity, or measures of socio-emotional processing in this sample. Conclusions Study findings suggest that severity of SA is not merely a reflection of ASD symptom-severity. Further research is needed to ascertain the prevalence of SA in adult ASD epidemiological samples, and identify causal and maintaining mechanisms for these co-morbid symptoms. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.08.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=296 [article] Social anxiety in adult males with autism spectrum disorders [Texte imprimé et/ou numérique] / Debbie SPAIN, Auteur ; Francesca HAPPE, Auteur ; Patrick JOHNSTON, Auteur ; Malcolm CAMPBELL, Auteur ; Jacqueline SIN, Auteur ; Eileen DALY, Auteur ; Christine ECKER, Auteur ; Martin ANSON, Auteur ; Eddie CHAPLIN, Auteur ; Karen GLASER, Auteur ; Andreina MENDEZ, Auteur ; Karina LOVELL, Auteur ; Declan G. MURPHY, Auteur . - p.13-23. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 32 (December 2016) . - p.13-23 Mots-clés : Autism spectrum  Social anxiety  Social phobia  Adults  Self-report questionnaires Index. décimale : PER Périodiques Résumé : AbstractBackground Psychiatric conditions, notably anxiety, commonly co-occur with autism spectrum disorders (ASD). Method This study investigated self-reported behavioural, cognitive and affective symptoms of social anxiety (SA) in 50 adult males with ASD. Associations between SA, core ASD symptoms and facets of neuropsychological functioning were also examined. Results Twenty-six participants (52%) endorsed levels of SA that exceeded the suggested caseness threshold for social anxiety disorder. Categorical and dimensional data analyses indicated that there were no relationships between SA symptoms, present-state or childhood ASD symptom-severity, or measures of socio-emotional processing in this sample. Conclusions Study findings suggest that severity of SA is not merely a reflection of ASD symptom-severity. Further research is needed to ascertain the prevalence of SA in adult ASD epidemiological samples, and identify causal and maintaining mechanisms for these co-morbid symptoms. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.08.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=296

---

1 (1 - 3 / 3)