Parent perspectives on home participation of high-functioning children with autism spectrum disorder compared with a matched group of children without autism spectrum disorder / Snæfrídur T. EGILSON in Autism, 22-5 (July 2018)  

Public ISBD [article]  inAutism > 22-5 (July 2018) . - p.560-570 Titre : Parent perspectives on home participation of high-functioning children with autism spectrum disorder compared with a matched group of children without autism spectrum disorder Type de document : texte imprimé Auteurs : Snæfrídur T. EGILSON, Auteur ; G. JAKOBSDOTTIR, Auteur ; L.B. OLAFSDOTTIR, Auteur Article en page(s) : p.560-570 Langues : Anglais (eng) Mots-clés : Participation and Environment Measure for Children and Youth  autism  children  environment  home participation  parent-report  strategies Index. décimale : PER Périodiques Résumé : Few studies have focused on home participation of high-functioning children with autism spectrum disorder. We employed a mixed-methods design to explore and compare parent perspectives on (1) participation of children with and without autism spectrum disorder in activities at home, (2) the environmental features and resources that affect these children's home participation and (3) the strategies parents use to help their children participate at home. The Participation and Environment Measure for Children and Youth (PEM-CY) was used to gather online survey and qualitative data from parents of 99 high-functioning children with autism spectrum disorder and 241 children without autism spectrum disorder. Independent sample t-tests and chi(2) tests were used to explore differences between groups, and Cohen's d was calculated to examine effect sizes. Differences were obtained on all Participation and Environment Measure for Children and Youth dimensions but particularly when comparing parents' satisfaction and perceived environmental barriers to their children's participation. The qualitative analyses revealed that parents in both groups used similar strategies to facilitate their children's participation at home, although parents of children with autism spectrum disorder made use of more distinct modifications. Our results highlight the importance of environmental aspects and point to how practitioners can support families in their efforts to promote their child's participation at home. En ligne : http://dx.doi.org/10.1177/1362361316685555 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=366 [article] Parent perspectives on home participation of high-functioning children with autism spectrum disorder compared with a matched group of children without autism spectrum disorder [texte imprimé] / Snæfrídur T. EGILSON, Auteur ; G. JAKOBSDOTTIR, Auteur ; L.B. OLAFSDOTTIR, Auteur . - p.560-570. Langues : Anglais (eng) in Autism > 22-5 (July 2018) . - p.560-570 Mots-clés : Participation and Environment Measure for Children and Youth  autism  children  environment  home participation  parent-report  strategies Index. décimale : PER Périodiques Résumé : Few studies have focused on home participation of high-functioning children with autism spectrum disorder. We employed a mixed-methods design to explore and compare parent perspectives on (1) participation of children with and without autism spectrum disorder in activities at home, (2) the environmental features and resources that affect these children's home participation and (3) the strategies parents use to help their children participate at home. The Participation and Environment Measure for Children and Youth (PEM-CY) was used to gather online survey and qualitative data from parents of 99 high-functioning children with autism spectrum disorder and 241 children without autism spectrum disorder. Independent sample t-tests and chi(2) tests were used to explore differences between groups, and Cohen's d was calculated to examine effect sizes. Differences were obtained on all Participation and Environment Measure for Children and Youth dimensions but particularly when comparing parents' satisfaction and perceived environmental barriers to their children's participation. The qualitative analyses revealed that parents in both groups used similar strategies to facilitate their children's participation at home, although parents of children with autism spectrum disorder made use of more distinct modifications. Our results highlight the importance of environmental aspects and point to how practitioners can support families in their efforts to promote their child's participation at home. En ligne : http://dx.doi.org/10.1177/1362361316685555 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=366

Quality of life of high-functioning children and youth with autism spectrum disorder and typically developing peers: Self- and proxy-reports / Snæfrídur T. EGILSON in Autism, 21-2 (February 2017)  

Public ISBD [article]  inAutism > 21-2 (February 2017) . - p.133-141 Titre : Quality of life of high-functioning children and youth with autism spectrum disorder and typically developing peers: Self- and proxy-reports Type de document : texte imprimé Auteurs : Snæfrídur T. EGILSON, Auteur ; Linda B. ÓLAFSDOTTIR, Auteur ; Thóra LEOSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur Article en page(s) : p.133-141 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Studies have shown parents to report lower quality of life for their children with autism spectrum disorder than children s self-report scores and the same applies for data on typically developing children. Our objectives were to: (1) explore how high-functioning children with autism spectrum disorder rate their quality of life compared with paired controls without autism spectrum disorder; (2) explore how parents of high-functioning children with autism spectrum disorder rate their children s quality of life compared with parents of paired controls; and (3) compare child self-reports of quality of life with their parent?s proxy-reports for both groups of children. Data were collected with the Icelandic self- and proxy-reported versions of the KIDSCREEN-27. Reports of 96 children with autism spectrum disorder, 211 controls and their parents were included in the analyses. Compared with controls, children with autism spectrum disorder had lower means on all quality of life dimensions. Parents of children with autism spectrum disorder evaluated their children s quality of life lower on all dimensions than did parents of controls. On four out of five dimensions, children with autism spectrum disorder reported better quality of life than did their parents. Despite differences in ratings children with autism spectrum disorder and their parents agreed on the most problematic dimensions, namely, social support and peers and physical well-being. Our results highlight the importance of seeking the viewpoints of both children and their parents. En ligne : http://dx.doi.org/10.1177/1362361316630881 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=303 [article] Quality of life of high-functioning children and youth with autism spectrum disorder and typically developing peers: Self- and proxy-reports [texte imprimé] / Snæfrídur T. EGILSON, Auteur ; Linda B. ÓLAFSDOTTIR, Auteur ; Thóra LEOSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur . - p.133-141. Langues : Anglais (eng) in Autism > 21-2 (February 2017) . - p.133-141 Index. décimale : PER Périodiques Résumé : Studies have shown parents to report lower quality of life for their children with autism spectrum disorder than children s self-report scores and the same applies for data on typically developing children. Our objectives were to: (1) explore how high-functioning children with autism spectrum disorder rate their quality of life compared with paired controls without autism spectrum disorder; (2) explore how parents of high-functioning children with autism spectrum disorder rate their children s quality of life compared with parents of paired controls; and (3) compare child self-reports of quality of life with their parent?s proxy-reports for both groups of children. Data were collected with the Icelandic self- and proxy-reported versions of the KIDSCREEN-27. Reports of 96 children with autism spectrum disorder, 211 controls and their parents were included in the analyses. Compared with controls, children with autism spectrum disorder had lower means on all quality of life dimensions. Parents of children with autism spectrum disorder evaluated their children s quality of life lower on all dimensions than did parents of controls. On four out of five dimensions, children with autism spectrum disorder reported better quality of life than did their parents. Despite differences in ratings children with autism spectrum disorder and their parents agreed on the most problematic dimensions, namely, social support and peers and physical well-being. Our results highlight the importance of seeking the viewpoints of both children and their parents. En ligne : http://dx.doi.org/10.1177/1362361316630881 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=303

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