Disparity in report of autism-related behaviors by social demographic characteristics: Findings from a community-based study in Taiwan / Peng-Chou TSAI in Autism, 21-5 (July 2017)  

Public ISBD [article]  inAutism > 21-5 (July 2017) . - p.540-551 Titre : Disparity in report of autism-related behaviors by social demographic characteristics: Findings from a community-based study in Taiwan Type de document : texte imprimé Auteurs : Peng-Chou TSAI, Auteur ; Rebecca A. HARRINGTON, Auteur ; For-Wey LUNG, Auteur ; Li-Ching LEE, Auteur Article en page(s) : p.540-551 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The Social Communication Questionnaire is one of the most commonly used screening tools for autism spectrum disorder. The Social Communication Questionnaire is a caregiver-reported questionnaire with 40 items based on questions from the Autism Diagnostic Interview?Revised. This study collected Social Communication Questionnaire data from a community-based, multi-stage case identification design epidemiologic study in one socioeconomically disadvantaged county in Taiwan. The Social Communication Questionnaire was distributed to 3034 school children, aged 6 8 years. Item prevalence results indicate males were reported to have more autism-related behaviors than females (higher prevalence on most items), in the whole study sample as well as in children meeting Social Communication Questionnaire clinical cut-offs ( 15). Children whose biological fathers completed the Social Communication Questionnaire were reported to have more behavioral issues than children whose biological mothers were the respondent. Lower respondent education levels were associated with reports of clinically concerning autism-related behaviors. However, males were not at higher risk of meeting Social Communication Questionnaire clinical cut-offs than females in this study population. Findings from this study help to better understand reporting patterns on children s autism-related behaviors potentially due to social demographic characteristics and child sex, which may lead to improved identification of these behaviors. En ligne : http://dx.doi.org/10.1177/1362361316677024 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310 [article] Disparity in report of autism-related behaviors by social demographic characteristics: Findings from a community-based study in Taiwan [texte imprimé] / Peng-Chou TSAI, Auteur ; Rebecca A. HARRINGTON, Auteur ; For-Wey LUNG, Auteur ; Li-Ching LEE, Auteur . - p.540-551. Langues : Anglais (eng) in Autism > 21-5 (July 2017) . - p.540-551 Index. décimale : PER Périodiques Résumé : The Social Communication Questionnaire is one of the most commonly used screening tools for autism spectrum disorder. The Social Communication Questionnaire is a caregiver-reported questionnaire with 40 items based on questions from the Autism Diagnostic Interview?Revised. This study collected Social Communication Questionnaire data from a community-based, multi-stage case identification design epidemiologic study in one socioeconomically disadvantaged county in Taiwan. The Social Communication Questionnaire was distributed to 3034 school children, aged 6 8 years. Item prevalence results indicate males were reported to have more autism-related behaviors than females (higher prevalence on most items), in the whole study sample as well as in children meeting Social Communication Questionnaire clinical cut-offs ( 15). Children whose biological fathers completed the Social Communication Questionnaire were reported to have more behavioral issues than children whose biological mothers were the respondent. Lower respondent education levels were associated with reports of clinically concerning autism-related behaviors. However, males were not at higher risk of meeting Social Communication Questionnaire clinical cut-offs than females in this study population. Findings from this study help to better understand reporting patterns on children s autism-related behaviors potentially due to social demographic characteristics and child sex, which may lead to improved identification of these behaviors. En ligne : http://dx.doi.org/10.1177/1362361316677024 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310

Lessons learned while developing, adapting and implementing a pilot parent-mediated behavioural intervention for children with autism spectrum disorder in rural Bangladesh / Jasmine M. BLAKE in Autism, 21-5 (July 2017)  

Public ISBD [article]  inAutism > 21-5 (July 2017) . - p.611-621 Titre : Lessons learned while developing, adapting and implementing a pilot parent-mediated behavioural intervention for children with autism spectrum disorder in rural Bangladesh Type de document : texte imprimé Auteurs : Jasmine M. BLAKE, Auteur ; Eric RUBENSTEIN, Auteur ; Peng-Chou TSAI, Auteur ; Hafizur RAHMAN, Auteur ; Sarah R. RIETH, Auteur ; Hasmot ALI, Auteur ; Li-Ching LEE, Auteur Article en page(s) : p.611-621 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Low- and middle-income countries often have limited resources, underdeveloped health systems and scarce knowledge of autism spectrum disorder. The objectives of this preliminary study were to develop and adapt intervention materials and to train a native clinician to implement a community-based parent-mediated behavioural intervention in rural Gaibandha, Bangladesh. Intervention materials to support parents? use of behavioural strategies were developed and refined by US behavioural intervention experts and Bangladesh field experts. Study investigators trained a native child psychologist in developmental milestones and behavioural intervention techniques. The native clinician delivered a 1-day group education session attended by 10 families of children aged 7 9 years with autism spectrum disorder, followed by two one-on-one training sessions with each family to train and practice individualized strategies for targeted challenging behaviours. Preliminary qualitative results indicate the importance of materials that are culturally appropriate and at an adequate literacy level. All families expressed strong desires to have learned the behavioural strategies when their child was younger and vocalized their need for further support and tools to help their children. This study is a preliminary step to creating sustainable and low-cost autism spectrum disorder interventions in rural Bangladesh, and possibly for families in regions with similar cultural and socioeconomic status backgrounds. En ligne : http://dx.doi.org/10.1177/1362361316683890 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310 [article] Lessons learned while developing, adapting and implementing a pilot parent-mediated behavioural intervention for children with autism spectrum disorder in rural Bangladesh [texte imprimé] / Jasmine M. BLAKE, Auteur ; Eric RUBENSTEIN, Auteur ; Peng-Chou TSAI, Auteur ; Hafizur RAHMAN, Auteur ; Sarah R. RIETH, Auteur ; Hasmot ALI, Auteur ; Li-Ching LEE, Auteur . - p.611-621. Langues : Anglais (eng) in Autism > 21-5 (July 2017) . - p.611-621 Index. décimale : PER Périodiques Résumé : Low- and middle-income countries often have limited resources, underdeveloped health systems and scarce knowledge of autism spectrum disorder. The objectives of this preliminary study were to develop and adapt intervention materials and to train a native clinician to implement a community-based parent-mediated behavioural intervention in rural Gaibandha, Bangladesh. Intervention materials to support parents? use of behavioural strategies were developed and refined by US behavioural intervention experts and Bangladesh field experts. Study investigators trained a native child psychologist in developmental milestones and behavioural intervention techniques. The native clinician delivered a 1-day group education session attended by 10 families of children aged 7 9 years with autism spectrum disorder, followed by two one-on-one training sessions with each family to train and practice individualized strategies for targeted challenging behaviours. Preliminary qualitative results indicate the importance of materials that are culturally appropriate and at an adequate literacy level. All families expressed strong desires to have learned the behavioural strategies when their child was younger and vocalized their need for further support and tools to help their children. This study is a preliminary step to creating sustainable and low-cost autism spectrum disorder interventions in rural Bangladesh, and possibly for families in regions with similar cultural and socioeconomic status backgrounds. En ligne : http://dx.doi.org/10.1177/1362361316683890 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310

Remembering Dr Li-Ching Lee, a pioneer of global autism research / Eric RUBENSTEIN in Autism, 26-2 (February 2022)  

Public ISBD [article]  inAutism > 26-2 (February 2022) . - p.562-563 Titre : Remembering Dr Li-Ching Lee, a pioneer of global autism research Type de document : texte imprimé Auteurs : Eric RUBENSTEIN, Auteur ; Catherine E. RICE, Auteur ; C. HOLLINGUE, Auteur ; Peng-Chou TSAI, Auteur ; Lydia STEWART, Auteur ; M. Daniele FALLIN, Auteur Article en page(s) : p.562-563 Langues : Anglais (eng) Mots-clés : epidemiology  global health Index. décimale : PER Périodiques Résumé : The field of global autism research lost a pioneer, champion, and innovator with the passing of Dr Li-Ching Lee in May 2021. Dr Lee served as the editor for a special issue in Autism on global autism research (2017, Volume 21, Issue 5) and her substantial impact on autism research and autistic individuals and their families in low- and middle-income countries warrants a place in this special issue. While a giant in the professional arena, her large impact on science is minor compared to the compassion, kindness, and love she brought to her family, friends, and her professional communities at Johns Hopkins, across institutions, her native Taiwan, and the areas in which she conducted her research. Dr Lee was immensely humble and intensely focused on harnessing epidemiology to positively impact the lives of people with autism and developmental disabilities. Her humility and professional dedication was coupled with a desire to keep her own challenges and triumphs private including her courageous efforts to stave off cancer while accomplishing so much in support of others. En ligne : http://dx.doi.org/10.1177/13623613211059641 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452 [article] Remembering Dr Li-Ching Lee, a pioneer of global autism research [texte imprimé] / Eric RUBENSTEIN, Auteur ; Catherine E. RICE, Auteur ; C. HOLLINGUE, Auteur ; Peng-Chou TSAI, Auteur ; Lydia STEWART, Auteur ; M. Daniele FALLIN, Auteur . - p.562-563. Langues : Anglais (eng) in Autism > 26-2 (February 2022) . - p.562-563 Mots-clés : epidemiology  global health Index. décimale : PER Périodiques Résumé : The field of global autism research lost a pioneer, champion, and innovator with the passing of Dr Li-Ching Lee in May 2021. Dr Lee served as the editor for a special issue in Autism on global autism research (2017, Volume 21, Issue 5) and her substantial impact on autism research and autistic individuals and their families in low- and middle-income countries warrants a place in this special issue. While a giant in the professional arena, her large impact on science is minor compared to the compassion, kindness, and love she brought to her family, friends, and her professional communities at Johns Hopkins, across institutions, her native Taiwan, and the areas in which she conducted her research. Dr Lee was immensely humble and intensely focused on harnessing epidemiology to positively impact the lives of people with autism and developmental disabilities. Her humility and professional dedication was coupled with a desire to keep her own challenges and triumphs private including her courageous efforts to stave off cancer while accomplishing so much in support of others. En ligne : http://dx.doi.org/10.1177/13623613211059641 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452

The role of intellectual disability with autism spectrum disorder and the documented cooccurring conditions: A population-based study / Semra ETYEMEZ in Autism Research, 15-12 (December 2022)  

Public ISBD [article]  inAutism Research > 15-12 (December 2022) . - p.2399-2408 Titre : The role of intellectual disability with autism spectrum disorder and the documented cooccurring conditions: A population-based study Type de document : texte imprimé Auteurs : Semra ETYEMEZ, Auteur ; Amy N. ESLER, Auteur ; Aniket KINI, Auteur ; Peng-Chou TSAI, Auteur ; Monica DIRIENZO, Auteur ; Matthew J. MAENNER, Auteur ; Li-Ching LEE, Auteur Article en page(s) : p.2399-2408 Langues : Anglais (eng) Mots-clés : Child  Humans  Autism Spectrum Disorder/complications/epidemiology  Intellectual Disability/complications/epidemiology  Prevalence  Research  Autistic Disorder  autism spectrum disorder  autistic disorder  developmental disabilities  intellectual disability  nervous system diseases Index. décimale : PER Périodiques Résumé : Previous research has identified that patterns of cooccurring conditions (CoCs) associated with autism spectrum disorder (ASD) differ based on the presence of intellectual disability (ID). This study explored the association of documented CoCs among 8-year-old children with ASD and ID (ASD+ID, n = 2416) and ASD without ID (ASD-ID, n = 5372) identified by the Autism and Developmental Disabilities Monitoring Network, surveillance years (SYs) 2012 and 2014. After adjusting for demographic variables, record source, surveillance site, and SY, children with ASD+ID, as compared with children with ASD-ID, were more likely to have histories of nonspecific developmental delays and neurological disorders documented in their records but were less likely to have behavioral and psychiatric disorders. ID plays a key role on how children with ASD would experience other CoCs. Our results emphasize how understanding the pattern of CoCs in ASD+ID and ASD-ID can inform comprehensive and multidisciplinary approaches in assessment and management of children in order to develop targeted interventions to reduce possible CoCs or CoCs-related impairments. En ligne : http://dx.doi.org/10.1002/aur.2831 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] The role of intellectual disability with autism spectrum disorder and the documented cooccurring conditions: A population-based study [texte imprimé] / Semra ETYEMEZ, Auteur ; Amy N. ESLER, Auteur ; Aniket KINI, Auteur ; Peng-Chou TSAI, Auteur ; Monica DIRIENZO, Auteur ; Matthew J. MAENNER, Auteur ; Li-Ching LEE, Auteur . - p.2399-2408. Langues : Anglais (eng) in Autism Research > 15-12 (December 2022) . - p.2399-2408 Mots-clés : Child  Humans  Autism Spectrum Disorder/complications/epidemiology  Intellectual Disability/complications/epidemiology  Prevalence  Research  Autistic Disorder  autism spectrum disorder  autistic disorder  developmental disabilities  intellectual disability  nervous system diseases Index. décimale : PER Périodiques Résumé : Previous research has identified that patterns of cooccurring conditions (CoCs) associated with autism spectrum disorder (ASD) differ based on the presence of intellectual disability (ID). This study explored the association of documented CoCs among 8-year-old children with ASD and ID (ASD+ID, n = 2416) and ASD without ID (ASD-ID, n = 5372) identified by the Autism and Developmental Disabilities Monitoring Network, surveillance years (SYs) 2012 and 2014. After adjusting for demographic variables, record source, surveillance site, and SY, children with ASD+ID, as compared with children with ASD-ID, were more likely to have histories of nonspecific developmental delays and neurological disorders documented in their records but were less likely to have behavioral and psychiatric disorders. ID plays a key role on how children with ASD would experience other CoCs. Our results emphasize how understanding the pattern of CoCs in ASD+ID and ASD-ID can inform comprehensive and multidisciplinary approaches in assessment and management of children in order to develop targeted interventions to reduce possible CoCs or CoCs-related impairments. En ligne : http://dx.doi.org/10.1002/aur.2831 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

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