- <Centre d'Information et de documentation du CRA Rhône-Alpes
- CRA
- Informations pratiques
-
Adresse
Centre d'information et de documentation
Horaires
du CRA Rhône-Alpes
Centre Hospitalier le Vinatier
bât 211
95, Bd Pinel
69678 Bron CedexLundi au Vendredi
Contact
9h00-12h00 13h30-16h00Tél: +33(0)4 37 91 54 65
Mail
Fax: +33(0)4 37 91 54 37
-
Adresse
Auteur Cecilia MONTIEL-NAVA
|
|
Documents disponibles écrits par cet auteur (11)
Faire une suggestion Affiner la rechercheAge of diagnosis of autism spectrum disorder in Latino children: The case of Venezuelan children / Cecilia MONTIEL-NAVA in Autism, 21-5 (July 2017)
Titre : Age of diagnosis of autism spectrum disorder in Latino children: The case of Venezuelan children Type de document : texte imprimé Auteurs : Cecilia MONTIEL-NAVA, Auteur ; José A. CHACÍN, Auteur ; Zoila GONZÁLEZ-ÁVILA, Auteur Article en page(s) : p.573-580 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Latino children are diagnosed with autism spectrum disorder later in life, usually with more severe symptoms, and lower IQs, compared with non-Latino children. Possible reasons for such disparities could be due to lower levels of parent education, lower socioeconomic status, limited knowledge of parents about autism spectrum disorder, and diminished health-care knowledge. The goal of the study was to describe the age of parental concerns and at first autism spectrum disorder diagnosis, and factors associated with age at the first diagnosis in a sample of Venezuelan children. Diagnostic and demographic data were collected from 103 children between 2 and 7 years of age. Although the mean age of first concerns was 17 months, the age of diagnosis varied from 53.03 months for the Pervasive Developmental Disorders?Not Otherwise specified group to 54.38 months for the autism group. Although parents were aware of developmental difficulties before the second year of life, their children were diagnosed 36 months later. In Latin cultures, behavior problems are usually attributed to poor parenting skills, so parents might take longer to seek professional help. A better understanding of cultural influences on age of diagnosis will translate to quicker use of services independent of ethnicity. En ligne : http://dx.doi.org/10.1177/1362361317701267 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310
in Autism > 21-5 (July 2017) . - p.573-580[article] Age of diagnosis of autism spectrum disorder in Latino children: The case of Venezuelan children [texte imprimé] / Cecilia MONTIEL-NAVA, Auteur ; José A. CHACÍN, Auteur ; Zoila GONZÁLEZ-ÁVILA, Auteur . - p.573-580.
Langues : Anglais (eng)
in Autism > 21-5 (July 2017) . - p.573-580
Index. décimale : PER Périodiques Résumé : Latino children are diagnosed with autism spectrum disorder later in life, usually with more severe symptoms, and lower IQs, compared with non-Latino children. Possible reasons for such disparities could be due to lower levels of parent education, lower socioeconomic status, limited knowledge of parents about autism spectrum disorder, and diminished health-care knowledge. The goal of the study was to describe the age of parental concerns and at first autism spectrum disorder diagnosis, and factors associated with age at the first diagnosis in a sample of Venezuelan children. Diagnostic and demographic data were collected from 103 children between 2 and 7 years of age. Although the mean age of first concerns was 17 months, the age of diagnosis varied from 53.03 months for the Pervasive Developmental Disorders?Not Otherwise specified group to 54.38 months for the autism group. Although parents were aware of developmental difficulties before the second year of life, their children were diagnosed 36 months later. In Latin cultures, behavior problems are usually attributed to poor parenting skills, so parents might take longer to seek professional help. A better understanding of cultural influences on age of diagnosis will translate to quicker use of services independent of ethnicity. En ligne : http://dx.doi.org/10.1177/1362361317701267 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310
Titre : Challenges, priorities, barriers to care, and stigma in families of people with autism: Similarities and differences among six Latin American countries Type de document : texte imprimé Auteurs : Cristiane S. PAULA, Auteur ; Sebastián CUKIER, Auteur ; Graccielle Rodrigues CUNHA, Auteur ; Matías IRARRÁZAVAL, Auteur ; Cecilia MONTIEL-NAVA, Auteur ; Ricardo GARCIA, Auteur ; Analia ROSOLI, Auteur ; Daniel VALDEZ, Auteur ; Daniela BORDINI, Auteur ; Andy SHIH, Auteur ; Gabriela GARRIDO, Auteur ; Alexia RATTAZZI, Auteur Article en page(s) : p.2228-2242 Langues : Anglais (eng) Mots-clés : *autism *economic costs *healthcare utilization *stigma *treatment barriers Index. décimale : PER Périodiques Résumé : Approximately 6 million individuals with autism spectrum disorder live in Latin America. In order to strengthen autism spectrum disorder research collaborations and awareness in the region, the Latin American Autism Spectrum Network (Red Espectro Autista Latinoamerica) was constituted in 2015, comprising researchers and clinicians from the following six countries: Brazil Argentina, Chile, Uruguay, Venezuela, and the Dominican Republic. This first multisite study from the Red Espectro Autista Latinoamerica network aims to describe the challenges and priorities to identify barriers to care and to map stigma among families of individuals with autism spectrum disorder living in Latin America. A total of 2942 caregivers from these six countries completed an online survey showing that the main priorities were greater community awareness and improvements in the educational system for individuals with autism spectrum disorder. In addition to that, the main barriers to care were related to lack of structure, mainly waiting lists (50.2%), high treatment costs (35.2%), and lack of specialized services (26.1%). Stigma experienced by families was frequent: one third reported feeling discriminated against and helpless for having a child with autism spectrum disorder. Also, 48.8% of the caregivers declared financial problems, 47.4% of them had to cut down work hours, and 35.5% had to leave their jobs because of their child's autism spectrum disorder. This is a pioneer study providing a description of the needs and challenges faced by families affected by autism spectrum disorder in Latin America, helping to build data-driven strategies at the national and regional levels. En ligne : http://dx.doi.org/10.1177/1362361320940073 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431
in Autism > 24-8 (November 2020) . - p.2228-2242[article] Challenges, priorities, barriers to care, and stigma in families of people with autism: Similarities and differences among six Latin American countries [texte imprimé] / Cristiane S. PAULA, Auteur ; Sebastián CUKIER, Auteur ; Graccielle Rodrigues CUNHA, Auteur ; Matías IRARRÁZAVAL, Auteur ; Cecilia MONTIEL-NAVA, Auteur ; Ricardo GARCIA, Auteur ; Analia ROSOLI, Auteur ; Daniel VALDEZ, Auteur ; Daniela BORDINI, Auteur ; Andy SHIH, Auteur ; Gabriela GARRIDO, Auteur ; Alexia RATTAZZI, Auteur . - p.2228-2242.
Langues : Anglais (eng)
in Autism > 24-8 (November 2020) . - p.2228-2242
Mots-clés : *autism *economic costs *healthcare utilization *stigma *treatment barriers Index. décimale : PER Périodiques Résumé : Approximately 6 million individuals with autism spectrum disorder live in Latin America. In order to strengthen autism spectrum disorder research collaborations and awareness in the region, the Latin American Autism Spectrum Network (Red Espectro Autista Latinoamerica) was constituted in 2015, comprising researchers and clinicians from the following six countries: Brazil Argentina, Chile, Uruguay, Venezuela, and the Dominican Republic. This first multisite study from the Red Espectro Autista Latinoamerica network aims to describe the challenges and priorities to identify barriers to care and to map stigma among families of individuals with autism spectrum disorder living in Latin America. A total of 2942 caregivers from these six countries completed an online survey showing that the main priorities were greater community awareness and improvements in the educational system for individuals with autism spectrum disorder. In addition to that, the main barriers to care were related to lack of structure, mainly waiting lists (50.2%), high treatment costs (35.2%), and lack of specialized services (26.1%). Stigma experienced by families was frequent: one third reported feeling discriminated against and helpless for having a child with autism spectrum disorder. Also, 48.8% of the caregivers declared financial problems, 47.4% of them had to cut down work hours, and 35.5% had to leave their jobs because of their child's autism spectrum disorder. This is a pioneer study providing a description of the needs and challenges faced by families affected by autism spectrum disorder in Latin America, helping to build data-driven strategies at the national and regional levels. En ligne : http://dx.doi.org/10.1177/1362361320940073 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431
Titre : Cultural and Linguistic Adaptation of an Autism Parent Mediated Intervention for Spanish Speaking Latinos Type de document : texte imprimé Auteurs : Ana C. RAMIREZ, Auteur ; Maria C. MONTENEGRO, Auteur ; Bianca T. VILLALOBOS, Auteur ; Nazaret Fresno CAÑADA, Auteur ; Gabriel Gonzalez NUÑEZ, Auteur ; Rocio CALDERON, Auteur ; Susana Perez KANTOR, Auteur ; Miriam MARES, Auteur ; Miriam ORTIZ, Auteur ; Geohanna NOEL, Auteur ; Cecilia MONTIEL-NAVA, Auteur Article en page(s) : p.4892-4905 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The Caregiver Skills Training (CST) was developed by the World Health Organization (WHO) to improve access to evidence-based services for children with developmental concerns from low-income backgrounds. While the CST program has undergone four significant revisions to increase feasibility of implementation and has been adapted and implemented in more than 30 countries, currently the Spanish version is outdated and has never been implemented in the U.S. This study aimed to culturally and linguistically adapt the Spanish-version of the CST for a predominantly Spanish-speaking Latino-populated region in the United States. The present study followed a community based participatory research (CBPR) approach and used a phenomenological framework to evaluate the content and cultural appropriateness of the Spanish translation of the CST. Focus groups were conducted with Spanish-speaking and bilingual parents of children with an autism spectrum disorder (ASD) diagnosis to inform potential modifications needed to establish a culturally responsive and linguistically appropriate curriculum. Findings yielded linguistic and environmental adaptations to the program, particularly related to autism labels and common values of Latino culture, such as personalismo. Results also indicated that the overall content of the program was acceptable for the Spanish speaking Latino community. This study highlights the critical role of community engagement. By actively involving stakeholders in the adaptation process, the CST is tailored to reflect the unique cultural values, language preferences, and lived experiences of the community. In doing so, it ensures that the program truly meets their needs, improving efficacy, and reducing attrition. En ligne : https://doi.org/10.1007/s10803-025-06921-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=595
in Journal of Autism and Developmental Disorders > 56-12 (December 2026) . - p.4892-4905[article] Cultural and Linguistic Adaptation of an Autism Parent Mediated Intervention for Spanish Speaking Latinos [texte imprimé] / Ana C. RAMIREZ, Auteur ; Maria C. MONTENEGRO, Auteur ; Bianca T. VILLALOBOS, Auteur ; Nazaret Fresno CAÑADA, Auteur ; Gabriel Gonzalez NUÑEZ, Auteur ; Rocio CALDERON, Auteur ; Susana Perez KANTOR, Auteur ; Miriam MARES, Auteur ; Miriam ORTIZ, Auteur ; Geohanna NOEL, Auteur ; Cecilia MONTIEL-NAVA, Auteur . - p.4892-4905.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 56-12 (December 2026) . - p.4892-4905
Index. décimale : PER Périodiques Résumé : The Caregiver Skills Training (CST) was developed by the World Health Organization (WHO) to improve access to evidence-based services for children with developmental concerns from low-income backgrounds. While the CST program has undergone four significant revisions to increase feasibility of implementation and has been adapted and implemented in more than 30 countries, currently the Spanish version is outdated and has never been implemented in the U.S. This study aimed to culturally and linguistically adapt the Spanish-version of the CST for a predominantly Spanish-speaking Latino-populated region in the United States. The present study followed a community based participatory research (CBPR) approach and used a phenomenological framework to evaluate the content and cultural appropriateness of the Spanish translation of the CST. Focus groups were conducted with Spanish-speaking and bilingual parents of children with an autism spectrum disorder (ASD) diagnosis to inform potential modifications needed to establish a culturally responsive and linguistically appropriate curriculum. Findings yielded linguistic and environmental adaptations to the program, particularly related to autism labels and common values of Latino culture, such as personalismo. Results also indicated that the overall content of the program was acceptable for the Spanish speaking Latino community. This study highlights the critical role of community engagement. By actively involving stakeholders in the adaptation process, the CST is tailored to reflect the unique cultural values, language preferences, and lived experiences of the community. In doing so, it ensures that the program truly meets their needs, improving efficacy, and reducing attrition. En ligne : https://doi.org/10.1007/s10803-025-06921-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=595
Titre : Epidemiological findings of pervasive developmental disorders in a Venezuelan study Type de document : texte imprimé Auteurs : Cecilia MONTIEL-NAVA, Auteur ; Joaquín A. PENA, Auteur Année de publication : 2008 Article en page(s) : p.191-202 Langues : Anglais (eng) Mots-clés : autism-spectrum-disorders epidemiology pervasive-developmental-disorders prevalence Venezuela Index. décimale : PER Périodiques Résumé : The study aims to determine the prevalence of autism spectrum disorders (ASDs) for children receiving services in Maracaibo County, Venezuela. Children aged 3—9 with diagnosis of any ASD were recruited. We ascertained area, referral process, and definitions of ASD for each patient. A total of 430 children were identified, and 76.5 percent were boys. Prevalences were 1.7 per 1000 for all ASD, 1.1 per 1000 for autism, and 0.6 per 1000 for PDD-NOS and Asperger syndrome combined. These prevalences are lower than current reports in the literature. Differences in case-finding methods, diagnostic criteria, and lack of awareness in the general population may have influenced the number of cases identified. An ASD prevalence of 1.7 per 1000 should alert the health and education authorities to the need to reassess the services available for children with these disorders and their families. En ligne : http://dx.doi.org/10.1177/1362361307086663 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=331
in Autism > 12-2 (March 2008) . - p.191-202[article] Epidemiological findings of pervasive developmental disorders in a Venezuelan study [texte imprimé] / Cecilia MONTIEL-NAVA, Auteur ; Joaquín A. PENA, Auteur . - 2008 . - p.191-202.
Langues : Anglais (eng)
in Autism > 12-2 (March 2008) . - p.191-202
Mots-clés : autism-spectrum-disorders epidemiology pervasive-developmental-disorders prevalence Venezuela Index. décimale : PER Périodiques Résumé : The study aims to determine the prevalence of autism spectrum disorders (ASDs) for children receiving services in Maracaibo County, Venezuela. Children aged 3—9 with diagnosis of any ASD were recruited. We ascertained area, referral process, and definitions of ASD for each patient. A total of 430 children were identified, and 76.5 percent were boys. Prevalences were 1.7 per 1000 for all ASD, 1.1 per 1000 for autism, and 0.6 per 1000 for PDD-NOS and Asperger syndrome combined. These prevalences are lower than current reports in the literature. Differences in case-finding methods, diagnostic criteria, and lack of awareness in the general population may have influenced the number of cases identified. An ASD prevalence of 1.7 per 1000 should alert the health and education authorities to the need to reassess the services available for children with these disorders and their families. En ligne : http://dx.doi.org/10.1177/1362361307086663 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=331
Permalink
Permalink
Permalink
Permalink
Permalink
Permalink
