Pulling back the curtain: Issues in conducting an intervention study with transition-aged youth with autism spectrum disorder and their families / M. M. BURKE in Autism, 23-2 (February 2019)  

Public ISBD [article]  inAutism > 23-2 (February 2019) . - p.514-523 Titre : Pulling back the curtain: Issues in conducting an intervention study with transition-aged youth with autism spectrum disorder and their families Type de document : Texte imprimé et/ou numérique Auteurs : M. M. BURKE, Auteur ; Sydney N. WAITZ-KUDLA, Auteur ; C. RABIDEAU, Auteur ; Julie LOUNDS TAYLOR, Auteur ; R. M. HODAPP, Auteur Article en page(s) : p.514-523 Langues : Anglais (eng) Mots-clés : family  intervention research  services  transition Index. décimale : PER Périodiques Résumé : The transition from high school to adulthood is difficult for youth with autism spectrum disorder and their families. Recognizing these challenges, there is a small but emerging body of literature testing interventions to improve the transition process. But there are many challenges in performing intervention research that have yet to be fully addressed. We discuss issues that should be considered when conducting interventions with individuals with autism spectrum disorder to improve the transition to adulthood, drawing from our study of a parent training to facilitate access to adult services during the transition years. Issues covered include (1) timing (when is an intervention most effective?), (2) mode of delivery (what is the best way to present information?), (3) outcomes (how can intervention outcomes be accurately measured?), (4) target population (who is the intervention designed to help?), and (5) level of intervention (who should the intervention target?). Our answers, though preliminary, show the need to be flexible, to adopt a trial-and-error stance, and to listen to the needs-both explicit and implicit-of youth with autism spectrum disorder and their parents as they navigate the difficult transition from adolescence to adulthood. En ligne : http://dx.doi.org/10.1177/1362361317753016 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383 [article] Pulling back the curtain: Issues in conducting an intervention study with transition-aged youth with autism spectrum disorder and their families [Texte imprimé et/ou numérique] / M. M. BURKE, Auteur ; Sydney N. WAITZ-KUDLA, Auteur ; C. RABIDEAU, Auteur ; Julie LOUNDS TAYLOR, Auteur ; R. M. HODAPP, Auteur . - p.514-523. Langues : Anglais (eng) in Autism > 23-2 (February 2019) . - p.514-523 Mots-clés : family  intervention research  services  transition Index. décimale : PER Périodiques Résumé : The transition from high school to adulthood is difficult for youth with autism spectrum disorder and their families. Recognizing these challenges, there is a small but emerging body of literature testing interventions to improve the transition process. But there are many challenges in performing intervention research that have yet to be fully addressed. We discuss issues that should be considered when conducting interventions with individuals with autism spectrum disorder to improve the transition to adulthood, drawing from our study of a parent training to facilitate access to adult services during the transition years. Issues covered include (1) timing (when is an intervention most effective?), (2) mode of delivery (what is the best way to present information?), (3) outcomes (how can intervention outcomes be accurately measured?), (4) target population (who is the intervention designed to help?), and (5) level of intervention (who should the intervention target?). Our answers, though preliminary, show the need to be flexible, to adopt a trial-and-error stance, and to listen to the needs-both explicit and implicit-of youth with autism spectrum disorder and their parents as they navigate the difficult transition from adolescence to adulthood. En ligne : http://dx.doi.org/10.1177/1362361317753016 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383

A Study of the Families Included in Receiving Better Special Education Services (FIRME) Project for Latinx Families of Children with Autism and Developmental Disabilities / K. RIOS in Journal of Autism and Developmental Disorders, 51-10 (October 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3662-3676 Titre : A Study of the Families Included in Receiving Better Special Education Services (FIRME) Project for Latinx Families of Children with Autism and Developmental Disabilities Type de document : Texte imprimé et/ou numérique Auteurs : K. RIOS, Auteur ; M. M. BURKE, Auteur ; Janeth ALEMAN-TOVAR, Auteur Article en page(s) : p.3662-3676 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder  Child  Developmental Disabilities/therapy  Education, Special  Humans  Pilot Projects  Advocacy programs  Children with IDD  Empowerment  Latino families  Stress Index. décimale : PER Périodiques Résumé : Family-professional partnership is an essential component of the special education process for children with intellectual and/or developmental disabilities (IDD), including autism spectrum disorder (ASD). Latinx families face systemic barriers when participating in educational decision-making for their children with IDD. Few studies have examined the effectiveness of advocacy trainings among Latinx families of children with IDD, including ASD. The purpose of this pilot study was to examine the effectiveness and feasibility of the Familias Incluidas en Recibiendo Mejor Educación Especial (FIRME), an advocacy program for Latinx families of children with IDD, with respect to increasing special education knowledge, advocacy, empowerment, and receipt of services; and decreasing stress. After completing the FIRME program, participants demonstrated significantly increased: special education knowledge; advocacy; and empowerment. En ligne : http://dx.doi.org/10.1007/s10803-020-04827-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 [article] A Study of the Families Included in Receiving Better Special Education Services (FIRME) Project for Latinx Families of Children with Autism and Developmental Disabilities [Texte imprimé et/ou numérique] / K. RIOS, Auteur ; M. M. BURKE, Auteur ; Janeth ALEMAN-TOVAR, Auteur . - p.3662-3676. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3662-3676 Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder  Child  Developmental Disabilities/therapy  Education, Special  Humans  Pilot Projects  Advocacy programs  Children with IDD  Empowerment  Latino families  Stress Index. décimale : PER Périodiques Résumé : Family-professional partnership is an essential component of the special education process for children with intellectual and/or developmental disabilities (IDD), including autism spectrum disorder (ASD). Latinx families face systemic barriers when participating in educational decision-making for their children with IDD. Few studies have examined the effectiveness of advocacy trainings among Latinx families of children with IDD, including ASD. The purpose of this pilot study was to examine the effectiveness and feasibility of the Familias Incluidas en Recibiendo Mejor Educación Especial (FIRME), an advocacy program for Latinx families of children with IDD, with respect to increasing special education knowledge, advocacy, empowerment, and receipt of services; and decreasing stress. After completing the FIRME program, participants demonstrated significantly increased: special education knowledge; advocacy; and empowerment. En ligne : http://dx.doi.org/10.1007/s10803-020-04827-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453

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