An exploratory study of resilience to stressful life events in autistic children / Jennifer M. Putney ; Emily HICKEY ; Marcia A. WINTER ; Sigan L. HARTLEY in Research in Autism Spectrum Disorders, 114 (June 2024)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 114 (June 2024) . - p.102371 Titre : An exploratory study of resilience to stressful life events in autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Jennifer M. Putney, Auteur ; Emily HICKEY, Auteur ; Marcia A. WINTER, Auteur ; Sigan L. HARTLEY, Auteur Année de publication : 2024 Article en page(s) : p.102371 Langues : Anglais (eng) Mots-clés : Autism  Resilience  Mental health  Stressful life events  Stress Index. décimale : PER Périodiques Résumé : Background Autistic children experience more stressful life events (SLEs) than their neurotypical peers, which are related to poor mental health outcomes in both neurotypical and autistic individuals. However, there is a lack of longitudinal research assessing the perceived impact of stressful life events on autistic children?s mental health. Method Utilizing a novel statistical technique (Ratcliff et al., 2019), called 'area of resilience to stress events' or ARSE in R, we aimed to quantify aspects of resilience, growth, and non-resilience for 67 autistic children (6-13 years old) enrolled in a larger longitudinal study who experienced a SLE. Parents reported demographic information (e.g., child age, biological sex, household income) as well as the child?s internalizing and externalizing symptoms and autism characteristics across multiple time points spaced one year apart (baseline, T2, T3, T4). Results There was substantial variability in the resilience process within the sample. Older children exhibited a less adaptive resilience process (i.e., higher total scaled scores or arsets). Perceived stress of the disruptive event was not correlated with resilience; however, there was a significant child age x stress severity interaction, suggesting that younger children in households that perceived the disruptive event as highly stressful exhibited more efficient resilience, or lower arsets scores, compared to other children. Conclusions This study introduces an innovative methodological approach to understanding the effects of stressful life events on the mental health of autistic children. Results have implications for family-based policy and practice and highlight for whom services may be most beneficial. En ligne : https://doi.org/10.1016/j.rasd.2024.102371 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529 [article] An exploratory study of resilience to stressful life events in autistic children [Texte imprimé et/ou numérique] / Jennifer M. Putney, Auteur ; Emily HICKEY, Auteur ; Marcia A. WINTER, Auteur ; Sigan L. HARTLEY, Auteur . - 2024 . - p.102371. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 114 (June 2024) . - p.102371 Mots-clés : Autism  Resilience  Mental health  Stressful life events  Stress Index. décimale : PER Périodiques Résumé : Background Autistic children experience more stressful life events (SLEs) than their neurotypical peers, which are related to poor mental health outcomes in both neurotypical and autistic individuals. However, there is a lack of longitudinal research assessing the perceived impact of stressful life events on autistic children?s mental health. Method Utilizing a novel statistical technique (Ratcliff et al., 2019), called 'area of resilience to stress events' or ARSE in R, we aimed to quantify aspects of resilience, growth, and non-resilience for 67 autistic children (6-13 years old) enrolled in a larger longitudinal study who experienced a SLE. Parents reported demographic information (e.g., child age, biological sex, household income) as well as the child?s internalizing and externalizing symptoms and autism characteristics across multiple time points spaced one year apart (baseline, T2, T3, T4). Results There was substantial variability in the resilience process within the sample. Older children exhibited a less adaptive resilience process (i.e., higher total scaled scores or arsets). Perceived stress of the disruptive event was not correlated with resilience; however, there was a significant child age x stress severity interaction, suggesting that younger children in households that perceived the disruptive event as highly stressful exhibited more efficient resilience, or lower arsets scores, compared to other children. Conclusions This study introduces an innovative methodological approach to understanding the effects of stressful life events on the mental health of autistic children. Results have implications for family-based policy and practice and highlight for whom services may be most beneficial. En ligne : https://doi.org/10.1016/j.rasd.2024.102371 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529

A commentary on interpreting the United States preventive services task force autism screening recommendation statement / Emily HICKEY in Autism, 25-2 (February 2021)  

Public ISBD [article]  inAutism > 25-2 (February 2021) . - p.588-592 Titre : A commentary on interpreting the United States preventive services task force autism screening recommendation statement Type de document : Texte imprimé et/ou numérique Auteurs : Emily HICKEY, Auteur ; R. Christopher SHELDRICK, Auteur ; Jocelyn KUHN, Auteur ; Sarabeth BRODER-FINGERT, Auteur Article en page(s) : p.588-592 Langues : Anglais (eng) Mots-clés : Uspstf  autism spectrum disorders  diagnosis  prevention  screening Index. décimale : PER Périodiques Résumé : In 2016, the US Preventive Services Task Force concluded that there was "insufficient" ("I" statement) evidence to support universal primary care screening for autism spectrum disorder. The statement led to controversy among research and clinical communities. Although a number of papers have since been published arguing for the potential benefit of autism spectrum disorder screening, none adequately address the potential harms of autism spectrum disorder screening. This evidence gap may relate to confusion regarding how the US Preventive Services Task Force conceptualizes and evaluates potential harm. In this commentary, we explore how the US Preventive Services Task Force operationalizes harm and discuss how the potential for harm was described in the "I" statement on autism spectrum disorder screening. This information can serve as a guide for investigators working to study the benefits and harms of autism spectrum disorder screening in order to fill the research gaps cited by the US Preventive Services Task Force report. Finally, we recommend future research directions for exploring harms of autism spectrum disorder screening, filling cited research gaps, and ultimately ensuring that the benefits of autism spectrum disorder screening truly outweigh the harms for all children and their families. En ligne : http://dx.doi.org/10.1177/1362361320957463 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=442 [article] A commentary on interpreting the United States preventive services task force autism screening recommendation statement [Texte imprimé et/ou numérique] / Emily HICKEY, Auteur ; R. Christopher SHELDRICK, Auteur ; Jocelyn KUHN, Auteur ; Sarabeth BRODER-FINGERT, Auteur . - p.588-592. Langues : Anglais (eng) in Autism > 25-2 (February 2021) . - p.588-592 Mots-clés : Uspstf  autism spectrum disorders  diagnosis  prevention  screening Index. décimale : PER Périodiques Résumé : In 2016, the US Preventive Services Task Force concluded that there was "insufficient" ("I" statement) evidence to support universal primary care screening for autism spectrum disorder. The statement led to controversy among research and clinical communities. Although a number of papers have since been published arguing for the potential benefit of autism spectrum disorder screening, none adequately address the potential harms of autism spectrum disorder screening. This evidence gap may relate to confusion regarding how the US Preventive Services Task Force conceptualizes and evaluates potential harm. In this commentary, we explore how the US Preventive Services Task Force operationalizes harm and discuss how the potential for harm was described in the "I" statement on autism spectrum disorder screening. This information can serve as a guide for investigators working to study the benefits and harms of autism spectrum disorder screening in order to fill the research gaps cited by the US Preventive Services Task Force report. Finally, we recommend future research directions for exploring harms of autism spectrum disorder screening, filling cited research gaps, and ultimately ensuring that the benefits of autism spectrum disorder screening truly outweigh the harms for all children and their families. En ligne : http://dx.doi.org/10.1177/1362361320957463 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=442

Defining the core components of Family Navigation for autism spectrum disorder / Sarabeth BRODER-FINGERT in Autism, 24-2 (February 2020)  

Public ISBD [article]  inAutism > 24-2 (February 2020) . - p.526-530 Titre : Defining the core components of Family Navigation for autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Sarabeth BRODER-FINGERT, Auteur ; Nicole A. STADNICK, Auteur ; Emily HICKEY, Auteur ; Julia GOUPIL, Auteur ; Yaminette DIAZ LINDHART, Auteur ; Emily FEINBERG, Auteur Article en page(s) : p.526-530 Langues : Anglais (eng) Mots-clés : Family Navigation  autism  care coordination Index. décimale : PER Périodiques Résumé : This study aimed to define the core components of Family Navigation for autism spectrum disorder, a promising intervention to reduce disparities in care for this population. Teams from four trials of Family Navigation for autism spectrum disorder completed the Template for Intervention Description and Replication checklist to outline intervention components. Through intervention component analysis and qualitative synthesis, we identified 11 core components across three domains: Training and Supervision, Navigator Tools, and Navigator Activities. We discuss the importance of identifying these core components and implications for future research and practice. En ligne : http://dx.doi.org/10.1177/1362361319864079 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=415 [article] Defining the core components of Family Navigation for autism spectrum disorder [Texte imprimé et/ou numérique] / Sarabeth BRODER-FINGERT, Auteur ; Nicole A. STADNICK, Auteur ; Emily HICKEY, Auteur ; Julia GOUPIL, Auteur ; Yaminette DIAZ LINDHART, Auteur ; Emily FEINBERG, Auteur . - p.526-530. Langues : Anglais (eng) in Autism > 24-2 (February 2020) . - p.526-530 Mots-clés : Family Navigation  autism  care coordination Index. décimale : PER Périodiques Résumé : This study aimed to define the core components of Family Navigation for autism spectrum disorder, a promising intervention to reduce disparities in care for this population. Teams from four trials of Family Navigation for autism spectrum disorder completed the Template for Intervention Description and Replication checklist to outline intervention components. Through intervention component analysis and qualitative synthesis, we identified 11 core components across three domains: Training and Supervision, Navigator Tools, and Navigator Activities. We discuss the importance of identifying these core components and implications for future research and practice. En ligne : http://dx.doi.org/10.1177/1362361319864079 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=415

Profiles of the parenting experience in families of autistic children / Jessica L GREENLEE in Autism, 27-7 (October 2023)  

Public ISBD [article]  inAutism > 27-7 (October 2023) . - p.1919-1932 Titre : Profiles of the parenting experience in families of autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Jessica L GREENLEE, Auteur ; Emily HICKEY, Auteur ; Claire R STELTER, Auteur ; Tuyen HUYNH, Auteur ; Sigan L HARTLEY, Auteur Article en page(s) : p.1919-1932 Langues : Anglais (eng) Mots-clés : autism  family  parenting  person-centered approach Index. décimale : PER Périodiques Résumé : Parents of autistic children experience more parenting stress and are at increased risk for poor mental and physical health compared with parents of neurotypical children; however, not all parents are distressed. The present study used a person-centered analytic approach to identify profiles of the parenting experience in a sample of 183 mothers and fathers of an autistic child (5-12?years old) and to examine associations between profile membership and child outcomes. Results indicated three profiles for mothers: Adaptive (41.1%; high authoritative parenting, lowest stress, and highest competence), Average (42.1%; sample average of all parenting indicators), and Distressed (16.8%; high stress, low competence, maladaptive parenting strategies). Fathers were classified into four profiles: Adaptive (33.3%), Average (37.7%), Distressed-Permissive (15.3%; high stress, low competence, permissive parenting strategies), and Distressed-Authoritarian (13.6%; some stress, lowest competence, authoritarian parenting strategies). The profiles differed on child internalizing and externalizing symptoms and autism symptom severity. Comparative analysis also revealed that children did better when at least one parent was included in the Adaptive group. Implications of these findings are discussed and include fostering empowering messages to parents as well as providing useful new insight in the context of family-focused interventions.Lay abstractResearch shows that parents of autistic children, on average, are stressed; however, there is likely an array of factors that characterize the parenting experience in the context of autism other than stress. Understanding the diversity in the parenting experiences of both mothers and fathers of autistic children is important in the development of family-based intervention. A total of 188 co-habiting couples with an autistic child described their parenting experiences using a series of questionnaires examining their feelings of stress, parenting competence, and parenting attitudes and behaviors. We then sorted responses into profiles-three for mothers and four for fathers. We found that children of parents who reported the least amount of stress, highest feeling of competence, and use of responsive and directive parenting strategies (the Adaptive profile) had children with the least severe behavioral problems and autism symptoms. It was not necessary for both parents to be in the Adaptive category for child emotional and behavioral problems to less severe. We found that children did just as well when one parent was Adaptive compared with when both parents fell into this category. En ligne : http://dx.doi.org/10.1177/13623613221147399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510 [article] Profiles of the parenting experience in families of autistic children [Texte imprimé et/ou numérique] / Jessica L GREENLEE, Auteur ; Emily HICKEY, Auteur ; Claire R STELTER, Auteur ; Tuyen HUYNH, Auteur ; Sigan L HARTLEY, Auteur . - p.1919-1932. Langues : Anglais (eng) in Autism > 27-7 (October 2023) . - p.1919-1932 Mots-clés : autism  family  parenting  person-centered approach Index. décimale : PER Périodiques Résumé : Parents of autistic children experience more parenting stress and are at increased risk for poor mental and physical health compared with parents of neurotypical children; however, not all parents are distressed. The present study used a person-centered analytic approach to identify profiles of the parenting experience in a sample of 183 mothers and fathers of an autistic child (5-12?years old) and to examine associations between profile membership and child outcomes. Results indicated three profiles for mothers: Adaptive (41.1%; high authoritative parenting, lowest stress, and highest competence), Average (42.1%; sample average of all parenting indicators), and Distressed (16.8%; high stress, low competence, maladaptive parenting strategies). Fathers were classified into four profiles: Adaptive (33.3%), Average (37.7%), Distressed-Permissive (15.3%; high stress, low competence, permissive parenting strategies), and Distressed-Authoritarian (13.6%; some stress, lowest competence, authoritarian parenting strategies). The profiles differed on child internalizing and externalizing symptoms and autism symptom severity. Comparative analysis also revealed that children did better when at least one parent was included in the Adaptive group. Implications of these findings are discussed and include fostering empowering messages to parents as well as providing useful new insight in the context of family-focused interventions.Lay abstractResearch shows that parents of autistic children, on average, are stressed; however, there is likely an array of factors that characterize the parenting experience in the context of autism other than stress. Understanding the diversity in the parenting experiences of both mothers and fathers of autistic children is important in the development of family-based intervention. A total of 188 co-habiting couples with an autistic child described their parenting experiences using a series of questionnaires examining their feelings of stress, parenting competence, and parenting attitudes and behaviors. We then sorted responses into profiles-three for mothers and four for fathers. We found that children of parents who reported the least amount of stress, highest feeling of competence, and use of responsive and directive parenting strategies (the Adaptive profile) had children with the least severe behavioral problems and autism symptoms. It was not necessary for both parents to be in the Adaptive category for child emotional and behavioral problems to less severe. We found that children did just as well when one parent was Adaptive compared with when both parents fell into this category. En ligne : http://dx.doi.org/10.1177/13623613221147399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510

Using the Three-Minute Speech Sample to Examine the Parent-Adolescent Relationship in Autistic Youth: A Qualitative Analysis / Jessica L. GREENLEE in Journal of Autism and Developmental Disorders, 54-6 (June 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2274-2285 Titre : Using the Three-Minute Speech Sample to Examine the Parent-Adolescent Relationship in Autistic Youth: A Qualitative Analysis Type de document : Texte imprimé et/ou numérique Auteurs : Jessica L. GREENLEE, Auteur ; Claire R. STELTER, Auteur ; Emily HICKEY, Auteur ; Casey BURTON, Auteur ; Megan CARLSON, Auteur ; Marcia A. WINTER, Auteur Article en page(s) : p.2274-2285 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Purpose: This qualitative study examines autistic adolescents' perception of the quality of their relationship with their parent using the Three Minute Speech Sample. Methods: Twenty autistic youth (13-17 years; 83% male) spoke, uninterrupted, for three minutes about their thoughts and feelings regarding their mothers. Audio-recorded speech samples were transcribed and coded for emergent themes. Results: Adolescents highlighted emotional support and acceptance in the context of their relationship, support mothers provide for mental health, love and caring, efforts to build the relationship through shared activities, and areas of adolescent-parent conflict. Conclusion: The TMSS is a low cost, low burden method by which autistic adolescents can comfortably and effectively self-report the quality of their relationship with their parent/caregiver. En ligne : https://doi.org/10.1007/s10803-023-05942-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530 [article] Using the Three-Minute Speech Sample to Examine the Parent-Adolescent Relationship in Autistic Youth: A Qualitative Analysis [Texte imprimé et/ou numérique] / Jessica L. GREENLEE, Auteur ; Claire R. STELTER, Auteur ; Emily HICKEY, Auteur ; Casey BURTON, Auteur ; Megan CARLSON, Auteur ; Marcia A. WINTER, Auteur . - p.2274-2285. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2274-2285 Index. décimale : PER Périodiques Résumé : Purpose: This qualitative study examines autistic adolescents' perception of the quality of their relationship with their parent using the Three Minute Speech Sample. Methods: Twenty autistic youth (13-17 years; 83% male) spoke, uninterrupted, for three minutes about their thoughts and feelings regarding their mothers. Audio-recorded speech samples were transcribed and coded for emergent themes. Results: Adolescents highlighted emotional support and acceptance in the context of their relationship, support mothers provide for mental health, love and caring, efforts to build the relationship through shared activities, and areas of adolescent-parent conflict. Conclusion: The TMSS is a low cost, low burden method by which autistic adolescents can comfortably and effectively self-report the quality of their relationship with their parent/caregiver. En ligne : https://doi.org/10.1007/s10803-023-05942-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530

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