"Different but connected": Participatory action research using Photovoice to explore well-being in autistic young adults / Gary Yu Hin LAM in Autism, 24-5 (July 2020)  

Public ISBD [article]  inAutism > 24-5 (July 2020) . - p.1246-1259 Titre : "Different but connected": Participatory action research using Photovoice to explore well-being in autistic young adults Type de document : Texte imprimé et/ou numérique Auteurs : Gary Yu Hin LAM, Auteur ; Emily HOLDEN, Auteur ; Megan FITZPATRICK, Auteur ; Linda RAFFAELE MENDEZ, Auteur ; Karen BERKMAN, Auteur Article en page(s) : p.1246-1259 Langues : Anglais (eng) Mots-clés : adults  autism spectrum disorders  participatory research  qualitative research  quality of life  transition Index. décimale : PER Périodiques Résumé : Past research has mainly focused on autistic people's deficits and poor outcomes compared to other groups of people. Little is known about their positive life experiences, and how to support them to achieve a higher quality of life. It is important to include autistic individuals in research so that they can influence how their voices are represented in a meaningful way and how the research results will be useful to them. In this study, a university researcher collaborated with 14 autistic young adults in a post-school transition program to design and run the research, collect and analyze the data, and use the results to create a presentation to the community. Specifically, the participants took photos in daily life and discussed their ideas about what a good life means to them. Results showed that these young adults described themselves as uniquely and different, but they were eager to learn and adapt. They also valued their relationships with their families, friends, and animals around them, as well as the community at large. This research shows that autistic individuals have important perspectives to share and knowledge to contribute when they are given the opportunities to participate in different aspects of research. The findings will be useful in developing services and influencing policies that promote well-being among autistic adults. En ligne : http://dx.doi.org/10.1177/1362361319898961 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=427 [article] "Different but connected": Participatory action research using Photovoice to explore well-being in autistic young adults [Texte imprimé et/ou numérique] / Gary Yu Hin LAM, Auteur ; Emily HOLDEN, Auteur ; Megan FITZPATRICK, Auteur ; Linda RAFFAELE MENDEZ, Auteur ; Karen BERKMAN, Auteur . - p.1246-1259. Langues : Anglais (eng) in Autism > 24-5 (July 2020) . - p.1246-1259 Mots-clés : adults  autism spectrum disorders  participatory research  qualitative research  quality of life  transition Index. décimale : PER Périodiques Résumé : Past research has mainly focused on autistic people's deficits and poor outcomes compared to other groups of people. Little is known about their positive life experiences, and how to support them to achieve a higher quality of life. It is important to include autistic individuals in research so that they can influence how their voices are represented in a meaningful way and how the research results will be useful to them. In this study, a university researcher collaborated with 14 autistic young adults in a post-school transition program to design and run the research, collect and analyze the data, and use the results to create a presentation to the community. Specifically, the participants took photos in daily life and discussed their ideas about what a good life means to them. Results showed that these young adults described themselves as uniquely and different, but they were eager to learn and adapt. They also valued their relationships with their families, friends, and animals around them, as well as the community at large. This research shows that autistic individuals have important perspectives to share and knowledge to contribute when they are given the opportunities to participate in different aspects of research. The findings will be useful in developing services and influencing policies that promote well-being among autistic adults. En ligne : http://dx.doi.org/10.1177/1362361319898961 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=427

A Mixed-Methods Study to Examine Dietary Intake of Children With Autism Spectrum Disorder and Parental Perspectives on Nutrition in Florida / Acadia W. BURO ; Chantell ROBINSON ; Nicole SLYE ; Wei WANG ; Sweta SINHA ; Russell S. KIRBY ; Karen BERKMAN ; Heather AGAZZI ; Emily SHAFFER-HUDKINS ; Jennifer MARSHALL in Focus on Autism and Other Developmental Disabilities, 38-4 (December 2023)  

Public ISBD [article]  inFocus on Autism and Other Developmental Disabilities > 38-4 (December 2023) . - p.258-267 Titre : A Mixed-Methods Study to Examine Dietary Intake of Children With Autism Spectrum Disorder and Parental Perspectives on Nutrition in Florida Type de document : Texte imprimé et/ou numérique Auteurs : Acadia W. BURO, Auteur ; Chantell ROBINSON, Auteur ; Nicole SLYE, Auteur ; Wei WANG, Auteur ; Sweta SINHA, Auteur ; Russell S. KIRBY, Auteur ; Karen BERKMAN, Auteur ; Heather AGAZZI, Auteur ; Emily SHAFFER-HUDKINS, Auteur ; Jennifer MARSHALL, Auteur Article en page(s) : p.258-267 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  young children  diet  parent  feeding Index. décimale : PER Périodiques Résumé : This study aimed to examine dietary nutrient intake and parental perspectives on nutrition in a diverse sample (e.g., age, ethnicity) of children with autism spectrum disorder (ASD) in the U.S. state of Florida. Forty-one parents of children with ASD (ages 2-17 years) completed a food record, and 25 of these parents participated in semi-structured focus groups. Children with ASD were significantly less likely to meet the recommendation for calcium compared with children in the general population (66.7% vs. 53.1%, odds ratio [OR] = 3.1; p = .002). Riboflavin and vitamin B12 intakes were significantly lower among children with ASD (p < .001). Focus group results indicated parental concerns on children?s diet and mealtime behaviors. Parents discussed the quality of existing nutrition information to be a concern, reported wanting intervention content on effective feeding strategies and healthy eating specific to children with ASD, and wanted to receive a nutrition intervention in multiple delivery formats. These findings will be utilized in developing a nutrition education intervention. En ligne : https://dx.doi.org/10.1177/10883576221136449 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=515 [article] A Mixed-Methods Study to Examine Dietary Intake of Children With Autism Spectrum Disorder and Parental Perspectives on Nutrition in Florida [Texte imprimé et/ou numérique] / Acadia W. BURO, Auteur ; Chantell ROBINSON, Auteur ; Nicole SLYE, Auteur ; Wei WANG, Auteur ; Sweta SINHA, Auteur ; Russell S. KIRBY, Auteur ; Karen BERKMAN, Auteur ; Heather AGAZZI, Auteur ; Emily SHAFFER-HUDKINS, Auteur ; Jennifer MARSHALL, Auteur . - p.258-267. Langues : Anglais (eng) in Focus on Autism and Other Developmental Disabilities > 38-4 (December 2023) . - p.258-267 Mots-clés : autism spectrum disorders  young children  diet  parent  feeding Index. décimale : PER Périodiques Résumé : This study aimed to examine dietary nutrient intake and parental perspectives on nutrition in a diverse sample (e.g., age, ethnicity) of children with autism spectrum disorder (ASD) in the U.S. state of Florida. Forty-one parents of children with ASD (ages 2-17 years) completed a food record, and 25 of these parents participated in semi-structured focus groups. Children with ASD were significantly less likely to meet the recommendation for calcium compared with children in the general population (66.7% vs. 53.1%, odds ratio [OR] = 3.1; p = .002). Riboflavin and vitamin B12 intakes were significantly lower among children with ASD (p < .001). Focus group results indicated parental concerns on children?s diet and mealtime behaviors. Parents discussed the quality of existing nutrition information to be a concern, reported wanting intervention content on effective feeding strategies and healthy eating specific to children with ASD, and wanted to receive a nutrition intervention in multiple delivery formats. These findings will be utilized in developing a nutrition education intervention. En ligne : https://dx.doi.org/10.1177/10883576221136449 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=515

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