Affective problems, gastrointestinal symptoms, sleep problems, and challenging behaviour in children and adolescents with autism spectrum disorder / Geraldine LEADER in Research in Autism Spectrum Disorders, 92 (April 2022)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 92 (April 2022) . - 101915 Titre : Affective problems, gastrointestinal symptoms, sleep problems, and challenging behaviour in children and adolescents with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Geraldine LEADER, Auteur ; Hannah BROWNE, Auteur ; Sally WHELAN, Auteur ; Hannah CUMMINS, Auteur ; Arlene MANNION, Auteur Article en page(s) : 101915 Langues : Anglais (eng) Mots-clés : Autism  Affective problems  Sleep problems  Challenging behaviour  Gastrointestinal symptoms Index. décimale : PER Périodiques Résumé : Background People with autism spectrum disorder (ASD) can experience affective problems, gastrointestinal (GI) symptoms, sleep problems, and challenging behaviour. This study identified the frequency of affective problems and explored how they related to co-occurring conditions in children and adolescents with ASD. Method Participants were children and adolescents diagnosed with ASD using DSM-IV-TR criteria (n = 95), 40 % (n = 38) of whom also had a diagnosis of intellectual disability (ID). The following scales were completed by the participants’ parents or guardians: Child Behaviour Checklist (CBCL), Gastrointestinal Symptoms Inventory, Children’s Sleep Habits Questionnaire (CSHQ), and the Behaviour Problems Inventory-Short Form (BPI-S). Pearson’s correlations and independent sample t-tests were used to examine the relationships between variables. Two hierarchal multiple regressions examined predictors for affective problems in preschool and school-aged children with ASD. Results Participants scored in the clinical range (69.5 %) and borderline range (10.5 %) for affective problems. Significant positive relationships were found between affective problems and sleep problems, GI symptoms, and challenging behaviour. ID and gender predicted affective problems in preschool aged children. In school-aged children, affective problems were predicted by ID, sleep problems, and aggressive/destructive behaviour severity. However, only 25 % of the variance in affective problems was accounted for. Conclusions Future research is needed to understand how affective problems are impacted by co-occurring conditions in children and adolescents with ASD. Affective problems are prevalent in this population and the quality of life for individuals may be improved if practitioners consider co-occurring conditions during clinical practice. En ligne : https://doi.org/10.1016/j.rasd.2022.101915 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Affective problems, gastrointestinal symptoms, sleep problems, and challenging behaviour in children and adolescents with autism spectrum disorder [Texte imprimé et/ou numérique] / Geraldine LEADER, Auteur ; Hannah BROWNE, Auteur ; Sally WHELAN, Auteur ; Hannah CUMMINS, Auteur ; Arlene MANNION, Auteur . - 101915. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 92 (April 2022) . - 101915 Mots-clés : Autism  Affective problems  Sleep problems  Challenging behaviour  Gastrointestinal symptoms Index. décimale : PER Périodiques Résumé : Background People with autism spectrum disorder (ASD) can experience affective problems, gastrointestinal (GI) symptoms, sleep problems, and challenging behaviour. This study identified the frequency of affective problems and explored how they related to co-occurring conditions in children and adolescents with ASD. Method Participants were children and adolescents diagnosed with ASD using DSM-IV-TR criteria (n = 95), 40 % (n = 38) of whom also had a diagnosis of intellectual disability (ID). The following scales were completed by the participants’ parents or guardians: Child Behaviour Checklist (CBCL), Gastrointestinal Symptoms Inventory, Children’s Sleep Habits Questionnaire (CSHQ), and the Behaviour Problems Inventory-Short Form (BPI-S). Pearson’s correlations and independent sample t-tests were used to examine the relationships between variables. Two hierarchal multiple regressions examined predictors for affective problems in preschool and school-aged children with ASD. Results Participants scored in the clinical range (69.5 %) and borderline range (10.5 %) for affective problems. Significant positive relationships were found between affective problems and sleep problems, GI symptoms, and challenging behaviour. ID and gender predicted affective problems in preschool aged children. In school-aged children, affective problems were predicted by ID, sleep problems, and aggressive/destructive behaviour severity. However, only 25 % of the variance in affective problems was accounted for. Conclusions Future research is needed to understand how affective problems are impacted by co-occurring conditions in children and adolescents with ASD. Affective problems are prevalent in this population and the quality of life for individuals may be improved if practitioners consider co-occurring conditions during clinical practice. En ligne : https://doi.org/10.1016/j.rasd.2022.101915 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

An examination of sleep problems and parental well-being, comparing families with and without autistic children / Sally WHELAN ; Geraldine LEADER in Research in Autism Spectrum Disorders, 117 (September 2024)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 117 (September 2024) . - p.102462 Titre : An examination of sleep problems and parental well-being, comparing families with and without autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Sally WHELAN, Auteur ; Geraldine LEADER, Auteur Article en page(s) : p.102462 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Sleep quality  Parental stress  Actigraphy  Maternal well-being  Maternal quality of life  Family medical history  Autoimmune disease Index. décimale : PER Périodiques Résumé : Background Sleep problems are a common comorbidity in autistic children and adolescents. Little is known about the role of sleep problems in parental well-being in the context of autism. Method The current study utilised actigraphy and questionnaire-based measures in mothers of autistic children and adolescents (n = 11), and mothers of typically developing (TD) children and adolescents (n = 11). Actigraphy is an objective, non-intrusive method for examining sleep. It involves wearing a wristwatch-like microcomputer that records motion. Measures included the Pittsburgh Sleep Quality Index, Autoimmune Disease in Family Members Questionnaire, Parenting Stress Index-Short Form, World Health Organization Quality of Life Abbreviated Version (WHOQOL-BREF), Hospital Anxiety and Depression Scale, and the Multidimensional Scale of Perceived Social Support. Results Mothers of autistic children had significantly greater difficulties with subjective sleep quality, sleep duration, sleep efficiency, and daytime dysfunction, than mothers of TD children. In mothers of autistic children, parental use of sleep medication on the PSQI was positively associated with objective sleep onset latency using actigraphy, with a large effect size. Families with an autistic child had significantly more family members with osteoarthritis and rheumatoid arthritis than did families of TD children. Families of autistic children had significantly more autistic family members than did families of TD children. Conclusions Mothers of autistic children had significantly higher levels of stress, anxiety, depression, and lower levels of quality of life and perceived social support, than parents of TD children. Sleep problems identified via actigraphy were associated with parental stress, anxiety and depression, and quality of life. En ligne : https://doi.org/10.1016/j.rasd.2024.102462 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534 [article] An examination of sleep problems and parental well-being, comparing families with and without autistic children [Texte imprimé et/ou numérique] / Sally WHELAN, Auteur ; Geraldine LEADER, Auteur . - p.102462. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 117 (September 2024) . - p.102462 Mots-clés : Autism spectrum disorder  Sleep quality  Parental stress  Actigraphy  Maternal well-being  Maternal quality of life  Family medical history  Autoimmune disease Index. décimale : PER Périodiques Résumé : Background Sleep problems are a common comorbidity in autistic children and adolescents. Little is known about the role of sleep problems in parental well-being in the context of autism. Method The current study utilised actigraphy and questionnaire-based measures in mothers of autistic children and adolescents (n = 11), and mothers of typically developing (TD) children and adolescents (n = 11). Actigraphy is an objective, non-intrusive method for examining sleep. It involves wearing a wristwatch-like microcomputer that records motion. Measures included the Pittsburgh Sleep Quality Index, Autoimmune Disease in Family Members Questionnaire, Parenting Stress Index-Short Form, World Health Organization Quality of Life Abbreviated Version (WHOQOL-BREF), Hospital Anxiety and Depression Scale, and the Multidimensional Scale of Perceived Social Support. Results Mothers of autistic children had significantly greater difficulties with subjective sleep quality, sleep duration, sleep efficiency, and daytime dysfunction, than mothers of TD children. In mothers of autistic children, parental use of sleep medication on the PSQI was positively associated with objective sleep onset latency using actigraphy, with a large effect size. Families with an autistic child had significantly more family members with osteoarthritis and rheumatoid arthritis than did families of TD children. Families of autistic children had significantly more autistic family members than did families of TD children. Conclusions Mothers of autistic children had significantly higher levels of stress, anxiety, depression, and lower levels of quality of life and perceived social support, than parents of TD children. Sleep problems identified via actigraphy were associated with parental stress, anxiety and depression, and quality of life. En ligne : https://doi.org/10.1016/j.rasd.2024.102462 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534

Parental experiences of raising an autistic child in Ireland: A qualitative thematic analysis / Sally WHELAN ; Niall Caulfield ; Sinéad O?Doherty ; Arlene MANNION ; Geraldine LEADER in Autism, 29-2 (February 2025)  

Public ISBD [article]  inAutism > 29-2 (February 2025) . - p.395-407 Titre : Parental experiences of raising an autistic child in Ireland: A qualitative thematic analysis : Autism Type de document : Texte imprimé et/ou numérique Auteurs : Sally WHELAN, Auteur ; Niall Caulfield, Auteur ; Sinéad O?Doherty, Auteur ; Arlene MANNION, Auteur ; Geraldine LEADER, Auteur Article en page(s) : p.395-407 Langues : Anglais (eng) Mots-clés : autism  autism spectrum disorder  coping strategies  parental challenges  parental stress  qualitative methodology  support services Index. décimale : PER Périodiques Résumé : The quality of life of autistic children and their parents is impacted by the stress they experience, their coping strategies and the availability of professional health, social and educational support services. Recent changes in the structural organisation of child disability professional supports in Ireland mean that in-depth knowledge about current experiences of parenting autistic children is necessary. This qualitative study explored parents' perceptions and experiences regarding their challenges, stress levels, coping strategies and professional support services. Semi-structured in-depth interviews were conducted with six parents of autistic children aged 4 to 16?years. Thematic analysis identified three core themes: 'The Autism Journey: Challenges and Rewards', 'Navigating a Flawed Support System' and 'The Importance of Social and Professional Supports'. Findings emphasised that parents face endless challenges in caring for autistic children. Dealing with autism-based support services, however, is the greatest stressor experienced by parents. It revealed that the system to access services is experienced as difficult and parents consider it is operating inadequately. This reveals a pressing need to improve systems that provide professional support services to autistic children and their families. Lay abstract Parenting an autistic child can be a challenging experience. Parents of autistic children often require social and professional support to cope with the various stresses they encounter and to ensure their children achieve their optimal potential. Recently, the way professional supports are organised in Ireland has changed. Very little previous recent research has investigated parents' experiences of raising an autistic child in Ireland. This study interviewed six parents asking them about their challenges, stress levels, coping strategies and their perceptions regarding professional support services. The data from these interviews were organised into themes. A major finding was that parents felt the healthcare system was failing to provide help for their children, and that support services in Ireland can cause more parental distress than dealing with their child?s difficulties. Other causes of parental stress included the child?s behaviours that they found challenging, stigma, a lack of awareness about autism and isolation. This study shows that both autistic children and their parents are at increased risk of developing mental health problems due to a flawed healthcare system that requires improvement urgently. En ligne : https://dx.doi.org/10.1177/13623613241277040 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547 [article] Parental experiences of raising an autistic child in Ireland: A qualitative thematic analysis : Autism [Texte imprimé et/ou numérique] / Sally WHELAN, Auteur ; Niall Caulfield, Auteur ; Sinéad O?Doherty, Auteur ; Arlene MANNION, Auteur ; Geraldine LEADER, Auteur . - p.395-407. Langues : Anglais (eng) in Autism > 29-2 (February 2025) . - p.395-407 Mots-clés : autism  autism spectrum disorder  coping strategies  parental challenges  parental stress  qualitative methodology  support services Index. décimale : PER Périodiques Résumé : The quality of life of autistic children and their parents is impacted by the stress they experience, their coping strategies and the availability of professional health, social and educational support services. Recent changes in the structural organisation of child disability professional supports in Ireland mean that in-depth knowledge about current experiences of parenting autistic children is necessary. This qualitative study explored parents' perceptions and experiences regarding their challenges, stress levels, coping strategies and professional support services. Semi-structured in-depth interviews were conducted with six parents of autistic children aged 4 to 16?years. Thematic analysis identified three core themes: 'The Autism Journey: Challenges and Rewards', 'Navigating a Flawed Support System' and 'The Importance of Social and Professional Supports'. Findings emphasised that parents face endless challenges in caring for autistic children. Dealing with autism-based support services, however, is the greatest stressor experienced by parents. It revealed that the system to access services is experienced as difficult and parents consider it is operating inadequately. This reveals a pressing need to improve systems that provide professional support services to autistic children and their families. Lay abstract Parenting an autistic child can be a challenging experience. Parents of autistic children often require social and professional support to cope with the various stresses they encounter and to ensure their children achieve their optimal potential. Recently, the way professional supports are organised in Ireland has changed. Very little previous recent research has investigated parents' experiences of raising an autistic child in Ireland. This study interviewed six parents asking them about their challenges, stress levels, coping strategies and their perceptions regarding professional support services. The data from these interviews were organised into themes. A major finding was that parents felt the healthcare system was failing to provide help for their children, and that support services in Ireland can cause more parental distress than dealing with their child?s difficulties. Other causes of parental stress included the child?s behaviours that they found challenging, stigma, a lack of awareness about autism and isolation. This study shows that both autistic children and their parents are at increased risk of developing mental health problems due to a flawed healthcare system that requires improvement urgently. En ligne : https://dx.doi.org/10.1177/13623613241277040 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547

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