Cluster Analysis of Clinical Features of Children Suspected to Have Neurodevelopmental Disorders / Mélina RIVARD ; Zakaria Mestari ; Diane MORIN ; Patrick Coulombe ; Catherine MELLO ; Marjorie MORIN in Journal of Autism and Developmental Disorders, 53-6 (June 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-6 (June 2023) . - p.2409-2420 Titre : Cluster Analysis of Clinical Features of Children Suspected to Have Neurodevelopmental Disorders : Journal of Autism and Developmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Mélina RIVARD, Auteur ; Zakaria Mestari, Auteur ; Diane MORIN, Auteur ; Patrick Coulombe, Auteur ; Catherine MELLO, Auteur ; Marjorie MORIN, Auteur Article en page(s) : p.2409-2420 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Early identification of neurodevelopmental disabilities (NDDs) is critical to a good prognosis. Several factors such as overlapping diagnoses can complicate this process and thus delay access to services. This study sought to identify meaningful clinical profiles, beyond diagnostic labels, in 194 children with NDDs referred to an assessment clinic. Cluster analyses were applied to eight selected behavioral and cognitive variables. Results suggested a cluster structure in which three homogenous groups differed significantly from one another: children who presented either (1) heterogeneous diagnoses and ambiguous profiles, (2) a clinical profile closely aligned to a classic presentation of ASD, and (3) emotional and behavioral challenges. These distinct profiles may have implications for assessment and clinical practices. En ligne : https://doi.org/10.1007/s10803-022-05533-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=506 [article] Cluster Analysis of Clinical Features of Children Suspected to Have Neurodevelopmental Disorders : Journal of Autism and Developmental Disorders [Texte imprimé et/ou numérique] / Mélina RIVARD, Auteur ; Zakaria Mestari, Auteur ; Diane MORIN, Auteur ; Patrick Coulombe, Auteur ; Catherine MELLO, Auteur ; Marjorie MORIN, Auteur . - p.2409-2420. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-6 (June 2023) . - p.2409-2420 Index. décimale : PER Périodiques Résumé : Early identification of neurodevelopmental disabilities (NDDs) is critical to a good prognosis. Several factors such as overlapping diagnoses can complicate this process and thus delay access to services. This study sought to identify meaningful clinical profiles, beyond diagnostic labels, in 194 children with NDDs referred to an assessment clinic. Cluster analyses were applied to eight selected behavioral and cognitive variables. Results suggested a cluster structure in which three homogenous groups differed significantly from one another: children who presented either (1) heterogeneous diagnoses and ambiguous profiles, (2) a clinical profile closely aligned to a classic presentation of ASD, and (3) emotional and behavioral challenges. These distinct profiles may have implications for assessment and clinical practices. En ligne : https://doi.org/10.1007/s10803-022-05533-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=506

Symptom Severity, Internalized and Externalized Behavioral and Emotional Problems: Links with Parenting Stress in Mothers of Children Recently Diagnosed with Autism / Catherine MELLO in Journal of Autism and Developmental Disorders, 52-6 (June 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-6 (June 2022) . - p.2400-2413 Titre : Symptom Severity, Internalized and Externalized Behavioral and Emotional Problems: Links with Parenting Stress in Mothers of Children Recently Diagnosed with Autism Type de document : Texte imprimé et/ou numérique Auteurs : Catherine MELLO, Auteur ; Mélina RIVARD, Auteur ; Diane MORIN, Auteur ; Shaneha PATEL, Auteur ; Marjorie MORIN, Auteur Article en page(s) : p.2400-2413 Langues : Anglais (eng) Mots-clés : Autism  Challenging behavior  Intellectual disability  Mothers  Parenting stress Index. décimale : PER Périodiques Résumé : The present study examined which aspects of the child's behavior and clinical profile accounted for three dimensions of parenting stress: related to parenting roles, to interactions with the child, and to the child. Measures of adaptive behavior, intellectual functioning, autism symptom severity, and challenging behavior and emotional difficulties were examined as predictors of parenting stress in 157 mothers of children recently diagnosed with autism. Children's emotional problems and aggressive behavior were most predictive of parenting distress, whereas autism symptoms along with emotional problems and aggressive behavior, respectively, were linked to stress pertaining to interactions and to the child. These findings underscore the need for comprehensive and complementary interventions that focus on children's behavior and symptoms but also on parent adjustment. En ligne : http://dx.doi.org/10.1007/s10803-021-05131-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474 [article] Symptom Severity, Internalized and Externalized Behavioral and Emotional Problems: Links with Parenting Stress in Mothers of Children Recently Diagnosed with Autism [Texte imprimé et/ou numérique] / Catherine MELLO, Auteur ; Mélina RIVARD, Auteur ; Diane MORIN, Auteur ; Shaneha PATEL, Auteur ; Marjorie MORIN, Auteur . - p.2400-2413. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-6 (June 2022) . - p.2400-2413 Mots-clés : Autism  Challenging behavior  Intellectual disability  Mothers  Parenting stress Index. décimale : PER Périodiques Résumé : The present study examined which aspects of the child's behavior and clinical profile accounted for three dimensions of parenting stress: related to parenting roles, to interactions with the child, and to the child. Measures of adaptive behavior, intellectual functioning, autism symptom severity, and challenging behavior and emotional difficulties were examined as predictors of parenting stress in 157 mothers of children recently diagnosed with autism. Children's emotional problems and aggressive behavior were most predictive of parenting distress, whereas autism symptoms along with emotional problems and aggressive behavior, respectively, were linked to stress pertaining to interactions and to the child. These findings underscore the need for comprehensive and complementary interventions that focus on children's behavior and symptoms but also on parent adjustment. En ligne : http://dx.doi.org/10.1007/s10803-021-05131-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474

The Diagnostic Period for Autism: Risk and Protective Factors for Family Quality of Life in Early Childhood / Mélina RIVARD in Journal of Autism and Developmental Disorders, 53-10 (October 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-10 (October 2023) . - p.3755-3769 Titre : The Diagnostic Period for Autism: Risk and Protective Factors for Family Quality of Life in Early Childhood Type de document : Texte imprimé et/ou numérique Auteurs : Mélina RIVARD, Auteur ; Diane MORIN, Auteur ; Patrick Coulombe, Auteur ; Marjorie MORIN, Auteur ; Catherine MELLO, Auteur Article en page(s) : p.3755-3769 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : During the diagnostic evaluation period for autism or intellectual disability (ID), families of young children are at risk for poor adjustment. The present study aimed to document family quality of life (FQOL), along with associated risk and protective factors, during this critical step of families' services trajectory. FQOL was measured in a large sample of families of children recently diagnosed with a neurodevelopmental disorder and examined in relation to the type of services received, children?s clinical profile, and family variables. FQOL was related to types of services, children?s challenging behavior, parenting stress, and several aspects of family composition and status. These findings highlight a need for mental health support for parents, coaching interventions for challenging behaviors, and family-centered supports. En ligne : https://doi.org/10.1007/s10803-022-05686-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=511 [article] The Diagnostic Period for Autism: Risk and Protective Factors for Family Quality of Life in Early Childhood [Texte imprimé et/ou numérique] / Mélina RIVARD, Auteur ; Diane MORIN, Auteur ; Patrick Coulombe, Auteur ; Marjorie MORIN, Auteur ; Catherine MELLO, Auteur . - p.3755-3769. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-10 (October 2023) . - p.3755-3769 Index. décimale : PER Périodiques Résumé : During the diagnostic evaluation period for autism or intellectual disability (ID), families of young children are at risk for poor adjustment. The present study aimed to document family quality of life (FQOL), along with associated risk and protective factors, during this critical step of families' services trajectory. FQOL was measured in a large sample of families of children recently diagnosed with a neurodevelopmental disorder and examined in relation to the type of services received, children?s clinical profile, and family variables. FQOL was related to types of services, children?s challenging behavior, parenting stress, and several aspects of family composition and status. These findings highlight a need for mental health support for parents, coaching interventions for challenging behaviors, and family-centered supports. En ligne : https://doi.org/10.1007/s10803-022-05686-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=511

A Window into the Use of Post-diagnostic Services for Autism and Parents? Perspective on the Quality of Early Childhood Services Trajectory in a Canadian Province / Mélina RIVARD in Journal of Autism and Developmental Disorders, 55-3 (March 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-3 (March 2025) . - p.955-968 Titre : A Window into the Use of Post-diagnostic Services for Autism and Parents? Perspective on the Quality of Early Childhood Services Trajectory in a Canadian Province Type de document : Texte imprimé et/ou numérique Auteurs : Mélina RIVARD, Auteur ; Catherine MELLO, Auteur ; Shaneha PATEL, Auteur ; Marjorie MORIN, Auteur ; Diane MORIN, Auteur Article en page(s) : p.955-968 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The pathway for post-diagnostic services for autism tends to be complex, heterogeneous, and fraught with delays. This situation has repercussions for families? experience with care systems, the quality of early interventions, and family adjustment. To date, studies of parents? point of view on autism services have predominantly focused on the diagnostic phase of the services trajectory. The goal of the present study was to investigate the perspective of parents on autism early childhood services within a public healthcare and social services system in a Canadian province (Québec). Participants were 91 parents who completed a structured framework for the evaluation of the quality of services trajectories, the Evaluation of the services Trajectory in Autism by Parents (ETAP; Mello et al., in Research in Developmental Disabilities 133, 2023). Approximately three-quarters of families received interim services (e.g., punctual speech therapy interventions) for which they had overall neutral-to-positive appraisals but viewed as having comparably low validity and continuity. Although all children diagnosed with autism are entitled to receive early behavioral intervention (EBI) dispensed by the public health and social services system, approximately a quarter of families did not receive this service. Families who received EBI evaluated this service positively on all ETAP dimensions. The empathy (i.e., parent-provider relationships) dimension was rated highest for both interim and EBI services. Some systemic, family, and child-related factors were associated with the perceived quality of services for both interim and early childhood services. Our results emphasize the need for services for children and families as soon as possible, both during assessment and after diagnosis. En ligne : https://doi.org/10.1007/s10803-024-06265-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=548 [article] A Window into the Use of Post-diagnostic Services for Autism and Parents? Perspective on the Quality of Early Childhood Services Trajectory in a Canadian Province [Texte imprimé et/ou numérique] / Mélina RIVARD, Auteur ; Catherine MELLO, Auteur ; Shaneha PATEL, Auteur ; Marjorie MORIN, Auteur ; Diane MORIN, Auteur . - p.955-968. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-3 (March 2025) . - p.955-968 Index. décimale : PER Périodiques Résumé : The pathway for post-diagnostic services for autism tends to be complex, heterogeneous, and fraught with delays. This situation has repercussions for families? experience with care systems, the quality of early interventions, and family adjustment. To date, studies of parents? point of view on autism services have predominantly focused on the diagnostic phase of the services trajectory. The goal of the present study was to investigate the perspective of parents on autism early childhood services within a public healthcare and social services system in a Canadian province (Québec). Participants were 91 parents who completed a structured framework for the evaluation of the quality of services trajectories, the Evaluation of the services Trajectory in Autism by Parents (ETAP; Mello et al., in Research in Developmental Disabilities 133, 2023). Approximately three-quarters of families received interim services (e.g., punctual speech therapy interventions) for which they had overall neutral-to-positive appraisals but viewed as having comparably low validity and continuity. Although all children diagnosed with autism are entitled to receive early behavioral intervention (EBI) dispensed by the public health and social services system, approximately a quarter of families did not receive this service. Families who received EBI evaluated this service positively on all ETAP dimensions. The empathy (i.e., parent-provider relationships) dimension was rated highest for both interim and EBI services. Some systemic, family, and child-related factors were associated with the perceived quality of services for both interim and early childhood services. Our results emphasize the need for services for children and families as soon as possible, both during assessment and after diagnosis. En ligne : https://doi.org/10.1007/s10803-024-06265-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=548

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