The experiences of parents raising children with developmental disabilities in Ethiopia / Bethlehem TEKOLA in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.539-551 Titre : The experiences of parents raising children with developmental disabilities in Ethiopia Type de document : Texte imprimé et/ou numérique Auteurs : Bethlehem TEKOLA, Auteur ; Mersha KINFE, Auteur ; Fikirte GIRMA BAYOUH, Auteur ; Charlotte HANLON, Auteur ; Rosa A. HOEKSTRA, Auteur Article en page(s) : p.539-551 Langues : Anglais (eng) Mots-clés : children  developmental disabilities  Ethiopia  parents  qualitative Index. décimale : PER Périodiques Résumé : The experiences of parents raising children with developmental disabilities have been widely researched, although most of this research comes from Western, high-income countries. In comparison, little is known about the lived experiences of parents of children with developmental disabilities in low- and middle-income countries and in Africa in particular. Parents’ lived experiences can provide insights into local conceptualizations of developmental disabilities, challenges children and their families face and their needs. This study explores the experiences of parents (14 mothers and 4 fathers) raising children with developmental disabilities in urban and rural Ethiopia using in-depth interviews. Cultural and religious beliefs played a role in the types of delays or differences in their child’s development that parents noticed early and the kinds of support they sought. Parents experienced stigma and lack of understanding from others. Their experiences regarding some of the challenges they faced such as lack of appropriate services varied based on where they lived (urban or rural). Single mothers especially were faced with multiple and intersecting struggles including poverty, stigma, and lack of social support. Implications for future research and interventions that aim to increase knowledge about developmental disabilities, tackle stigma and improve the lives of children and their families are discussed. En ligne : http://dx.doi.org/10.1177/13623613221105085 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] The experiences of parents raising children with developmental disabilities in Ethiopia [Texte imprimé et/ou numérique] / Bethlehem TEKOLA, Auteur ; Mersha KINFE, Auteur ; Fikirte GIRMA BAYOUH, Auteur ; Charlotte HANLON, Auteur ; Rosa A. HOEKSTRA, Auteur . - p.539-551. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.539-551 Mots-clés : children  developmental disabilities  Ethiopia  parents  qualitative Index. décimale : PER Périodiques Résumé : The experiences of parents raising children with developmental disabilities have been widely researched, although most of this research comes from Western, high-income countries. In comparison, little is known about the lived experiences of parents of children with developmental disabilities in low- and middle-income countries and in Africa in particular. Parents’ lived experiences can provide insights into local conceptualizations of developmental disabilities, challenges children and their families face and their needs. This study explores the experiences of parents (14 mothers and 4 fathers) raising children with developmental disabilities in urban and rural Ethiopia using in-depth interviews. Cultural and religious beliefs played a role in the types of delays or differences in their child’s development that parents noticed early and the kinds of support they sought. Parents experienced stigma and lack of understanding from others. Their experiences regarding some of the challenges they faced such as lack of appropriate services varied based on where they lived (urban or rural). Single mothers especially were faced with multiple and intersecting struggles including poverty, stigma, and lack of social support. Implications for future research and interventions that aim to increase knowledge about developmental disabilities, tackle stigma and improve the lives of children and their families are discussed. En ligne : http://dx.doi.org/10.1177/13623613221105085 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

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